Golem Girl: A Memoir


Riva Lehrer - 2020
    At the time, most such children are not expected to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured.Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture. Their work is daring, edgy, funny, and dark — it rejects tropes that define disabled people as pathetic, frightening, or worthless. They insist that disability is an opportunity for creativity and resistance. Emboldened, Riva asks if she can paint their portraits — inventing an intimate and collaborative process that will transform the way she sees herself, others, and the world. Each portrait story begins to transform the myths she’s been told her whole life about her body, her sexuality, and other measures of normal.Written with the vivid, cinematic prose of a visual artist, and the love and playfulness that defines all of Riva's work, Golem Girl is an extraordinary story of tenacity and creativity. With the author's magnificent portraits featured throughout, this memoir invites us to stretch ourselves toward a world where bodies flow between all possible forms of what it is to be human.

Just Like Someone Without Mental Illness Only More So


Mark Vonnegut - 2010
    And here is the world after Mark was released from a mental hospital to find his family forever altered. At the late age of twenty-eight—and after nineteen rejections—Mark was accepted to Harvard Medical School, where he gained purpose, a life, and some control over his condition.The brilliantly evoked events of Mark Vonnegut’s life are at once perfectly unique and achingly relatable. There are the manic episodes, during which he felt burdened with saving the world, juxtaposed against the real-world responsibilities of running a pediatric practice. At times he felt that his parents’ lives would improve if only they had a few hundred more bucks in their bank account, while at other points his father’s fame merely heightened expectations that he be better, funnier (and crazier) than the average person.Ultimately a tribute to the small, daily, and positive parts of a life interrupted by bipolar disorder, Just Like Someone Without Mental Illness Only More So is a wise, unsentimental, and inspiring book that will resonate with generations of readers.

Ladyparts


Deborah Copaken - 2021
    These pieces are not a metaphor. They are actual pieces. Twenty years after the publication of her iconic Shutterbabe, we remeet Deborah Copaken at her darkly comedic nadir: battered, broke, divorcing, dissected, and dying—literally—on sexism’s battlefield as she deliriously scoops up what she believes to be her internal organs, which have fallen out of her body, into a glass Tupperware container before heading off to the hospital for emergency surgery . . . in an UberPool.Part cri de coeur cautionary tale, part dystopian tragicomedy, Ladyparts is Copaken’s irreverent inventory of both the female body and the body politic of womanhood in America. With her journalist’s eye, her novelist’s heart, and her performer’s sense of timing, she provides a frontline account of one woman brought to her knees by the one-two-twelve punch of divorce, solo motherhood, lack of healthcare, unaffordable childcare, shady landlords, her father’s death, college tuitions, sexual harassment, corporate indifference, ageism, sexism, and just plain old bad luck. Plus seven serious illnesses, one on top of the other, which provide the book’s narrative skeleton: vagina, uterus, breast, heart, cervix, brain, and lungs. She keeps bouncing back from each bum body part and finding the black humor in every setback, but in her slippery struggle to survive a steep plunge off the middle-class ladder, she is suddenly awoken to what it means to have no safety net.Turning her Harlem home into a commune to pay rent and have childcare, she trades her life as a bestselling novelist to apply for full-time corporate gigs that come with health insurance but often not scruples. She gets fired from a health magazine for being unhealthy; laid off from a PR firm for rushing home to deal with a child’s medical emergency; and sexually harassed out of her newspaper column, only to be grilled by the FBI when her harasser is offered a plum job in the White House.Side-splittingly funny one minute, a freak horror show the next, and quintessentially American, Ladyparts is an era-defining memoir for our time.

Monsoon Mansion: A Memoir


Cinelle Barnes - 2018
    It would take a young warrior to survive it.Cinelle Barnes was barely three years old when her family moved into Mansion Royale, a stately ten-bedroom home in the Philippines. Filled with her mother’s opulent social aspirations and the gloriously excessive evidence of her father’s self-made success, it was a girl’s storybook playland. But when a monsoon hits, her father leaves, and her mother’s terrible lover takes the reins, Cinelle’s fantastical childhood turns toward tyranny she could never have imagined. Formerly a home worthy of magazines and lavish parties, Mansion Royale becomes a dangerous shell of the splendid palace it had once been.In this remarkable ode to survival, Cinelle creates something magical out of her truth—underscored by her complicated relationship with her mother. Through a tangle of tragedy and betrayal emerges a revelatory journey of perseverance and strength, of grit and beauty, and of coming to terms with the price of family—and what it takes to grow up.

The Camera My Mother Gave Me


Susanna Kaysen - 2001
    It is an extraordinary investigation into the role sex plays in perception and our notions of ourselves--and into what happens when the erotic impulse meets the world of medicine.

The Deep Places: A Memoir of Illness and Discovery


Ross Douthat - 2021
    It left him sleepless, crippled, wracked with pain--a shell of himself. After months of seeing doctors and descending deeper into a physical inferno, he discovered that he had a disease which according to CDC definitions does not actually exist: the chronic form of Lyme disease, a hotly contested condition that devastates the lives of tens of thousands of people but has no official recognition--and no medically approved cure.From a rural dream house that now felt like a prison, Douthat's search for help takes him off the map of official medicine, into territory where cranks and conspiracies abound and patients are forced to take control of their own treatment and experiment on themselves. Slowly, against his instincts and assumptions, he realizes that many of the cranks and weirdos are right, that many supposed hypochondriacs are victims of an indifferent medical establishment, and that all kinds of unexpected experiences and revelations lurk beneath the surface of normal existence, in the places underneath.The Deep Places is a story about what happens when you are terribly sick and realize that even the doctors who are willing to treat you can only do so much. Along the way, Douthat describes his struggle back toward health with wit and candor, portraying sickness as the most terrible of gifts. It teaches you to appreciate the grace of ordinary life by taking that life away from you. It reveals the deep strangeness of the world, the possibility that the reasonable people might be wrong, and the necessity of figuring out things for yourself. And it proves, day by dreadful day, that you are stronger than you ever imagined, and that even in the depths there is always hope.

No Cure for Being Human: And Other Truths I Need to Hear


Kate Bowler - 2021
    A beach body by summer. A trip to Disneyland around the corner. A promotion on the horizon. Everyone wants to believe that they are headed toward good, better, best. But what happens when the life you hoped for is put on hold indefinitely?Kate Bowler believed that life was a series of unlimited choices, until she discovered, at age 35, that her body was wracked with cancer. In No Cure for Being Human, she searches for a way forward as she mines the wisdom (and absurdity) of today's "best life now" advice industry, which insists on exhausting positivity and on trying to convince us that we can out-eat, out-learn, and out-perform our humanness. We are, she finds, as fragile as the day we were born.With dry wit and unflinching honesty, Kate Bowler grapples with her diagnosis, her ambition, and her faith as she tries to come to terms with her limitations in a culture that says anything is possible. She finds that we need one another if we're going to tell the truth: Life is beautiful and terrible, full of hope and despair and everything in between--and there's no cure for being human.

Shoot the Damn Dog: A Memoir of Depression


Sally Brampton - 2008
    But behind the successful, glamorous career was a story that many of her friends and colleagues knew nothing about—her ongoing struggle with severe depression and alcoholism. Brampton's is a candid, tremendously honest telling of how she was finally able to "address the elephant in the room," and of a culture that sends the overriding message that people who suffer from depression are somehow responsible for their own illness. She offers readers a unique perspective of depression from the inside that is at times wrenching, but ultimately inspirational, as it charts her own coming back to life. Beyond her personal story, Brampton offers practical advice to all those affected by this illness. This book will resonate with any person whose life has been haunted by depression, at the same time offering help and understanding to those whose loved ones suffer from this debilitating condition.

The Sound of a Wild Snail Eating


Elisabeth Tova Bailey - 2010
    While an illness keeps her bedridden, Bailey watches a wild snail that has taken up residence on her nightstand. As a result, she discovers the solace and sense of wonder that this mysterious creature brings and comes to a greater understanding of her own confined place in the world. Intrigued by the snail’s molluscan anatomy, cryptic defenses, clear decision making, hydraulic locomotion, and mysterious courtship activities, Bailey becomes an astute and amused observer, providing a candid and engaging look into the curious life of this underappreciated small animal.  Told with wit and grace, The Sound of a Wild Snail Eating is a remarkable journey of survival and resilience, showing us how a small part of the natural world illuminates our own human existence and provides an appreciation of what it means to be fully alive.

The Unwinding of the Miracle: A Memoir of Life, Death, and Everything That Comes After


Julie Yip-Williams - 2019
    What began as the chronicle of an imminent and early death became something much more--a powerful exhortation to the living.That Julie Yip-Williams survived infancy was a miracle. Born blind in Vietnam, she narrowly escaped euthanasia at the hands of her grandmother, only to flee with her family the political upheaval of her country in the late 1970s. Loaded into a rickety boat with three hundred other refugees, Julie made it to Hong Kong and, ultimately, America, where a surgeon at UCLA gave her partial sight. She would go on to become a Harvard-educated lawyer, with a husband, a family, and a life she had once assumed would be impossible. Then, at age thirty-seven, with two little girls at home, Julie was diagnosed with terminal metastatic colon cancer, and a different journey began.The Unwinding of the Miracle is the story of a vigorous life refracted through the prism of imminent death. When she was first diagnosed, Julie Yip-Williams sought clarity and guidance through the experience and, finding none, began to write her way through it--a chronicle that grew beyond her imagining. Motherhood, marriage, the immigrant experience, ambition, love, wanderlust, tennis, fortune-tellers, grief, reincarnation, jealousy, comfort, pain, the marvel of the body in full rebellion--this book is as sprawling and majestic as the life it records. It is inspiring and instructive, delightful and shattering. It is a book of indelible moments, seared deep--an incomparable guide to living vividly by facing hard truths consciously.With humor, bracing honesty, and the cleansing power of well-deployed anger, Julie Yip-Williams set the stage for her lasting legacy and one final miracle: the story of her life.

Divided Minds: Twin Sisters and Their Journey Through Schizophrenia


Pamela Spiro Wagner - 2005
    But as the twins approached adolescence, Pamela began to succumb to schizophrenia, hearing disembodied voices and eventually suffering many breakdowns and hospitalizations.Divided Minds is a dual memoir of identical twins, one of whom faces a life sentence of schizophrenia, and the other who becomes a psychiatrist, after entering the spotlight that had for so long been focused on her sister. Told in the alternating voices of the sisters, Divided Minds is a heartbreaking account of the far reaches of madness, as well as the depths of ambivalence and love between twins. It is a true and unusually frank story of identical twins with very different identities and wildly different experiences of the world around them.

Autism in Heels: The Untold Story of a Female Life on the Spectrum


Jennifer O'Toole - 2018
    And more often than we realize, that face is wearing lipstick. Autism in Heels , an intimate memoir, reveals the woman inside one of autism's most prominent figures, Jennifer O'Toole. At the age of thirty-five, Jennifer was diagnosed with Asperger's syndrome, and for the first time in her life, things made sense. Now, Jennifer exposes the constant struggle between carefully crafted persona and authentic existence, editing the autism script with wit, candor, passion, and power. Her journey is one of reverse-self-discovery not only as an Aspie but--more importantly--as a thoroughly modern woman.Beyond being a memoir, Autism in Heels is a love letter to all women. It's a conversation starter. A game changer. And a firsthand account of what it is to walk in Jennifer's shoes (especially those iconic red stilettos).Whether it's bad perms or body image, sexuality or self-esteem, Jennifer's is as much a human journey as one on the spectrum. Because autism "looks a bit different in pink," most girls and women who fit the profile are not identified, facing years of avoidable anxiety, eating disorders, volatile relationships, self-harm, and stunted independence. Jennifer has been there, too. Autism in Heels takes that message to the mainstream.From her own struggles and self-discovery, she has built an empire of empowerment, inspiring women the world over to realize they aren't mistakes. They are misunderstood miracles.

Drinking: A Love Story


Caroline Knapp - 1996
    Caroline Knapp describes how the distorted world of her well-to-do parents pushed her toward anorexia and alcoholism. Fittingly, it was literature that saved her: she found inspiration in Pete Hamill's 'A Drinking Life' and sobered up. Her tale is spiced up with the characters she has known along the way. A journalist describes her twenty years as a functioning alcoholic, explaining how she used alcohol to escape personal relationships and the realities of life until a series of personal crises forced her to confront her problem.

Call the Nurse: True Stories of a Country Nurse on a Scottish Isle


Mary J. MacLeod - 2012
    MacLeod and her husband encountered their dream while vacationing on a remote island in the Scottish Hebrides. Enthralled by its windswept beauty, they soon were the proud owners of a near-derelict croft house--a farmer's stone cottage--on "a small acre" of land. Mary assumed duties as the island's district nurse. Call the Nurse is her account of the enchanted years she and her family spent there, coming to know its folk as both patients and friends.In anecdotes that are by turns funny, sad, moving, and tragic, she recalls them all, the crofters and their laird, the boatmen and tradesmen, young lovers and forbidding churchmen. Against the old-fashioned island culture and the grandeur of mountain and sea unfold indelible stories: a young woman carried through snow for airlift to the hospital; a rescue by boat; the marriage of a gentle giant and the island beauty; a ghostly encounter; the shocking discovery of a woman in chains; the flames of a heather fire at night; an unexploded bomb from World War II; and the joyful, tipsy celebration of a ceilidh. Gaelic fortitude meets a nurse's compassion in these wonderful true stories from rural Scotland.

Your Blue Is Not My Blue: A Missing Person Memoir


Aspen Matis - 2020
    Both sought to redefine themselves beneath the stars. By the time they made it to the snowy Cascade Range of British Columbia—the trail’s end—Aspen and Justin were in love.Embarking on a new pilgrimage the next summer, they returned to those same mossy mountains where they’d met, and they married. They built a world together, three years of a happy marriage. Until a cold November morning, when, after kissing Aspen goodbye, Justin left to attend the funeral of a close friend.He never came back. As days became weeks, her husband’s inexplicable absence left Aspen unmoored. Shock, grief, fear, and anger battled for control—but nothing prepared her for the disarming truth. A revelation that would lead Aspen to reassess not only her own life but that of the disappeared as well.The result is a brave and inspiring memoir of secrets kept and unearthed, of a vanishing that became a gift: a woman’s empowering reclamation of unmitigated purpose in the surreal wake of mystifying loss.