The Spark: A Mother's Story of Nurturing Genius


Kristine Barnett - 2013
    At nine he started working on an original theory in astrophysics that experts believe may someday put him in line for a Nobel Prize, and at age twelve he became a paid researcher in quantum physics. But the story of Kristine’s journey with Jake is all the more remarkable because his extraordinary mind was almost lost to autism. At age two, when Jake was diagnosed, Kristine was told he might never be able to tie his own shoes. The Spark is a remarkable memoir of mother and son. Surrounded by “experts” at home and in special ed who tried to focus on Jake’s most basic skills and curtail his distracting interests—moving shadows on the wall, stars, plaid patterns on sofa fabric—Jake made no progress, withdrew more and more into his own world, and eventually stopped talking completely. Kristine knew in her heart that she had to make a change. Against the advice of her husband, Michael, and the developmental specialists, Kristine followed her instincts, pulled Jake out of special ed, and began preparing him for mainstream kindergarten on her own. Relying on the insights she developed at the daycare center she runs out of the garage in her home, Kristine resolved to follow Jacob’s “spark”—his passionate interests. Why concentrate on what he couldn’t do? Why not focus on what he could? This basic philosophy, along with her belief in the power of ordinary childhood experiences (softball, picnics, s’mores around the campfire) and the importance of play, helped Kristine overcome huge odds. The Barnetts were not wealthy people, and in addition to financial hardship, Kristine herself faced serious health issues. But through hard work and determination on behalf of Jake and his two younger brothers, as well as an undying faith in their community, friends, and family, Kristine and Michael prevailed. The results were beyond anything anyone could have imagined. Dramatic, inspiring, and transformative, The Spark is about the power of love and courage in the face of overwhelming obstacles, and the dazzling possibilities that can occur when we learn how to tap the true potential that lies within every child, and in all of us.

Ask Me About My Uterus: A Quest to Make Doctors Believe in Women's Pain


Abby Norman - 2018
    She was repeatedly hospitalized in excruciating pain, but the doctors insisted it was a urinary tract infection and sent her home with antibiotics. Unable to get out of bed, much less attend class, Norman dropped out of college and embarked on what would become a years-long journey to discover what was wrong with her. It wasn't until she took matters into her own hands--securing a job in a hospital and educating herself over lunchtime reading in the medical library--that she found an accurate diagnosis of endometriosis.In Ask Me About My Uterus, Norman describes what it was like to have her pain dismissed, to be told it was all in her head, only to be taken seriously when she was accompanied by a boyfriend who confirmed that her sexual performance was, indeed, compromised. Putting her own trials into a broader historical, sociocultural, and political context, Norman shows that women's bodies have long been the battleground of a never-ending war for power, control, medical knowledge, and truth. It's time to refute the belief that being a woman is a preexisting condition.

Women from Another Planet? Our Lives in the Universe of Autism


Jean Kearns Miller - 2003
    It’s the dreaded A word. People’s attention turns to late night TV public service ads declaring that autistic children are “imprisoned” by autism and need curing at all cost. Recent autobiographies have helped dispel this dire description by suggesting that autism is not a prison and that the door is unlocked and you’re free to come in. Women from Another Planet? moves beyond these autistic life stories in important ways. It’s a collection of stories and conversations, all of them by women on the autism spectrum who speak candidly, insightfully, and often engagingly about both their gender in terms of their autism and their autism in terms of their gender. It is written not just for parents and professionals, like the other works, but also to those women still searching for ways to understand the unnamed difference they live with, as well as the wider audience of discerning readers. If you enter the unlocked door of these Women from Another Planet? you may end up with a question mark or two about your planet. Is normalcy really all it’s cracked up to be?

The Power of Different: The Link Between Disorder and Genius


Gail Saltz - 2017
    Saltz shows how the very conditions that cause people to experience difficulty at school, in social situations, at home, or at work, are inextricably bound to creative, disciplinary, artistic, empathetic, and cognitive abilities.In this pioneering work, readers will find engaging scientific research and stories from historical geniuses and everyday individuals who have not only made the most of their conditions, but who have flourished because of them. They are leaning into their brain differences to:*Identify areas of interest and expertise*Develop work arounds*Create the environments that best foster their talents*Forge rewarding interpersonal relationshipsEnlightening and inspiring, The Power of Different proves that the unique wiring of every brain can be a source of strength and productivity, and contributes to the richness of our world.

Demystifying Disability: What to Know, What to Say, and How to Be an Ally


Emily Ladau - 2021
    But many of us–disabled and non-disabled alike–don’t know how to act, what to say, or how to be an ally to the disability community. Demystifying Disability is a friendly handbook on important disability issues you need to know about, including: • How to appreciate disability history and identity • How to recognize and avoid ableism (discrimination toward disabled people) • How to be mindful of good disability etiquette • How to appropriately think, talk, and ask about disability • How to ensure accessibility becomes your standard practice, from everyday communication to planning special events • How to identify and speak up about disability stereotypes in mediaAuthored by celebrated disability rights advocate, speaker, and writer Emily Ladau, this practical, intersectional guide offers all readers a welcoming place to understand disability as part of the human experience.

Uniquely Human: A Different Way of Seeing Autism


Barry M. Prizant - 2015
    This perspective leads to therapies focused on ridding individuals of autistic symptoms. In Uniquely Human, Dr. Barry M. Prizant suggests a major shift in understanding autism: Instead of classifying "autistic" behaviors as signs of pathology, he sees them as strategies to cope with a world that feels chaotic and overwhelming. Rather than curb these behaviors, it's better to enhance abilities, build on strengths, and offer supports that will naturally lead to more desirable behavior and a better quality of life. In fact, argues Dr. Prizant, attempts to eliminate autistic behaviors may actually interfere with important developmental processes.Including inspiring stories and practical advice drawn from Dr. Prizant's four-decade career working in universities, schools, hospitals, and in private practice, Uniquely Human offers a compassionate and insightful perspective that parents, professionals, and family members will find uplifting and hopeful.

Send in the Idiots: Stories from the Other Side of Autism


Kamran Nazeer - 2006
    In 1982, when he was four years old, Kamran Nazeer was enrolled in a small school in New York City alongside a dozen other children diagnosed with autism. Calling themselves the Idiots, these kids received care that was at the cutting edge of developmental psychology. Twenty-three years later, the school no longer exists.Send in the Idiots is the always candid, often surprising, and ultimately moving investigation into what happened to those children. Now a policy adviser in England, Kamran decides to visit four of his old classmates to find out the kind of lives that they are living now, how much they've been able to overcome—and what remains missing. A speechwriter unable to make eye contact; a messenger who gets upset if anyone touches his bicycle; a depressive suicide victim; and a computer engineer who communicates difficult emotions through the use of hand puppets: these four classmates reveal an astonishing, thought-provoking spectrum of behavior.Bringing to life the texture of autistic lives and the pressures and limitations that the condition presents, Kamran also relates the ways in which those can be eased over time, and with the right treatment. Using his own experiences to examine such topics as the difficulties of language, conversation as performance, and the politics of civility, Send in the Idiots is also a rare and provocative exploration of the way that people—all people—learn to think and feel. Written with unmatched insight and striking personal testimony, Kamran Nazeer's account is a stunning, invaluable, and utterly unique contribution to the literature of what makes us human.

Somebody Somewhere: Breaking Free from the World of Autism


Donna Williams - 1994
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Body Talk: 37 Voices Explore Our Radical Anatomy


Kelly Jensen - 2020
    Just as every person has a unique personality, every person has a unique body, and every body tells its own story.   In Body Talk, thirty-seven writers, models, actors, musicians, and artists share essays, lists, comics, and illustrations—about everything from size and shape to scoliosis, from eating disorders to cancer, from sexuality and gender identity to the use of makeup as armor. Together, they contribute a broad variety of perspectives on what it’s like to live in their particular bodies—and how their bodies have helped to inform who they are and how they move through the world.   Come on in, turn the pages, and join the celebration of our diverse, miraculous, beautiful bodies!

The Complete Guide to Asperger's Syndrome


Tony Attwood - 2006
    Now including a new introduction explaining the impact of DSM-5 on the diagnosis and approach to AS, it brings together a wealth of information on all aspects of the syndrome for children through to adults.Drawing on case studies and personal accounts from Attwood's extensive clinical experience, and from his correspondence with individuals with AS, this book is both authoritative and extremely accessible. Chapters examine:* causes and indications of the syndrome* the diagnosis and its effect on the individual* theory of mind * the perception of emotions in self and others* social interaction, including friendships* long-term relationships* teasing, bullying and mental health issues* the effect of AS on language and cognitive abilities, sensory sensitivity, movement and co-ordination skills* career development.There is also an invaluable frequently asked questions chapter and a section listing useful resources for anyone wishing to find further information on a particular aspect of AS, as well as literature and educational tools.Essential reading for families and individuals affected by AS as well as teachers, professionals and employers coming in contact with people with AS, this book should be on the bookshelf of anyone who needs to know or is interested in this complex condition.'I usually say to the child, "Congratulations, you have Asperger's syndrome", and explain that this means he or she is not mad, bad or defective, but has a different way of thinking.' - from The Complete Guide to Asperger's Syndrome.

Real


Carol Cujec - 2021
    I am thirteen years old. Actually, thirteen years plus eighty-seven days. I love sour gummies and pepperoni pizza. That last part no one knows because I have not spoken a sentence since I was born. Each dawning day, I live in terror of my unpredictable body that no one understands.Charity may have mad math skills and a near-perfect memory, but with a mouth that can’t speak and a body that jumps, rocks, and howls unpredictably, most people incorrectly assume she cannot learn. Charity’s brain works differently from most people’s because of her autism, but she’s still funny, determined, and kind. So why do people treat her like a disease or ignore her like she’s invisible?When Charity’s parents enroll her in a public junior high school, she faces her greatest fears. Will kids make fun of her? Will her behavior get her kicked out? Will her million thoughts stay locked in her head forever? With the support of teachers and newfound friends, Charity will have to fight to be treated like a real student.Inspired by a true story, Real speaks to all those who’ve ever felt they didn’t belong and reminds readers that all people are worthy of being included.

The Electricity of Every Living Thing


Katherine May - 2018
    In August 2015, Katherine May set out to walk the 630-mile South West Coast Path. She wanted to understand why she had stopped coping with everyday life; why motherhood had been so overwhelming and isolating, and why the world felt full of inundation and expectations she can't meet. Setting her feet down on the rugged and difficult path by the sea, the answer begins to unfold. It's a chance encounter with a voice on the radio that sparks a realisation that she has Asperger's Syndrome. The Electricity of Every Living Thing tells the story of the year in which Katherine comes to terms with her diagnosis. It leads to a re-evaluation of her life so far - a kinder one, which finally allows her to be different rather than simply awkward, arrogant or unfeeling. The physical and psychological journeys become inextricably entwined, and as Katherine finds her way across the untameable coast, she also finds the way to herself.This book is a life-affirming exploration of wild landscapes, what it means to be different and, above all, how we can all learn to make peace within our own unquiet minds.

I Am Intelligent: From Heartbreak to Healing--A Mother and Daughter's Journey Through Autism


Peyton Goddard - 2012
    Robbed of speech and bodily control, and despite her loving parents' best efforts to help her, Peyton Goddard suffered neglect and ongoing abuse by many who dismissed her as autistic and severely mentally retarded. Peyton's violent outbursts and bizarre, self-destructive behavior left her parents terrified at the prospect of having to institutionalize their daughter. No one could have imagined that she possessed a brilliant mind in her uncooperative body until her first opportunity to communicate electronically at age 22 when she typed "I AM INTLGENT," a breakthrough reminiscent of "The Miracle Worker." After two decades, mother and daughter are finally able to communicate, and Peyton goes on to graduate valedictorian from college. Her story challenges assumptions that any child, regardless of competence, can be less of a human being. Today Peyton is following through on her vow to be an advocate on behalf of other devalued people. Her inspirational life helps readers transcend stereotypes and join her in the radical notion that, as she says, "All people are vastly valuable. Treasure all because great is each."

Connecting With The Autism Spectrum: How To Talk, How To Listen, And Why You Shouldn’t Call It High-Functioning


Casey "Remrov" Vormer - 2020
    But Connecting with the Autism Spectrum can help you find common ground with expert tips and helpful insights about talking (and listening) to neurodiverse adults so you can make your interactions more transparent, meaningful, and rewarding for all.Written by Casey Vormer, a self-taught artist and high functioning autism advocate, this comprehensive guide is a trusted source to understanding neurodiversity, a brief introduction to the autism spectrum, and easy communication strategies like active listening and positive encouragement as well as steps to avoid misunderstandings by teaching how to recognize biases and correct them.This standout selection on working alongside others with high functioning autism delivers:A simple approach—Discover the best ways to communicate with those living with high functioning autism.Situational success—Find the right information for various situations and settings, including school, work, and social relationships.Sensitive tone—Get valuable information from a clear, honest point-of-view that does not seek to “cure” or manipulate people with high functioning autism.Learn how to communicate better with those diagnosed with high functioning autism in this simple book.

Songs of the Gorilla Nation: My Journey Through Autism


Dawn Prince-Hughes - 2004
    Specifically, it is about my autism, which is both like and unlike other people’s autism. But just as much, it is a story about how I emerged from the darkness of it into the beauty of it.”In this elegant and thought-provoking memoir, Dawn Prince-Hughes traces her personal growth from undiagnosed autism to the moment when, as a young woman, she entered the Seattle Zoo and immediately became fascinated with the gorillas.Having suffered from a lifelong inability to relate to people in a meaningful way, Dawn was surprised to find herself irresistibly drawn to these great primates. By observing them and, later, working with them, she was finally able to emerge from her solitude and connect to living beings in a way she had never previously experienced.Songs of the Gorilla Nation is more than a story of autism, it is a paean to all that is important in life. Dawn Prince-Hughes’s evocative story will undoubtedly have a lasting impact, forcing us, like the author herself, to rediscover and assess our own understanding of human emotion.