Every Patient Tells a Story: Medical Mysteries and the Art of Diagnosis


Lisa Sanders - 2009
    Lisa Sanders, author of the monthly New York Times Magazine column "Diagnosis," the inspiration for the hit Fox TV series House, M.D.The experience of being ill can be like waking up in a foreign country. Life, as you formerly knew it, is on hold while you travel through this other world as unknown as it is unexpected. When I see patients in the hospital or in my office who are suddenly, surprisingly ill, what they really want to know is, ‘What is wrong with me?’ They want a road map that will help them manage their new surroundings. The ability to give this unnerving and unfamiliar place a name, to know it–on some level–restores a measure of control, independent of whether or not that diagnosis comes attached to a cure. Because, even today, a diagnosis is frequently all a good doctor has to offer.A healthy young man suddenly loses his memory–making him unable to remember the events of each passing hour. Two patients diagnosed with Lyme disease improve after antibiotic treatment–only to have their symptoms mysteriously return. A young woman lies dying in the ICU–bleeding, jaundiced, incoherent–and none of her doctors know what is killing her. In Every Patient Tells a Story, Dr. Lisa Sanders takes us bedside to witness the process of solving these and other diagnostic dilemmas, providing a firsthand account of the expertise and intuition that lead a doctor to make the right diagnosis.Never in human history have doctors had the knowledge, the tools, and the skills that they have today to diagnose illness and disease. And yet mistakes are made, diagnoses missed, symptoms or tests misunderstood. In this high-tech world of modern medicine, Sanders shows us that knowledge, while essential, is not sufficient to unravel the complexities of illness. She presents an unflinching look inside the detective story that marks nearly every illness–the diagnosis–revealing the combination of uncertainty and intrigue that doctors face when confronting patients who are sick or dying. Through dramatic stories of patients with baffling symptoms, Sanders portrays the absolute necessity and surprising difficulties of getting the patient’s story, the challenges of the physical exam, the pitfalls of doctor-to-doctor communication, the vagaries of tests, and the near calamity of diagnostic errors. In Every Patient Tells a Story, Dr. Sanders chronicles the real-life drama of doctors solving these difficult medical mysteries that not only illustrate the art and science of diagnosis, but often save the patients’ lives.

When the Dogs Don't Bark: A Forensic Scientist’s Search for the Truth


Angela Gallop - 2019
    With ever-more sophisticated and powerful techniques at their disposal, forensic scientists have an unprecedented ability to help solve even the most complex cases. Angela Gallop has been a forensic scientist for over 40 years. After joining the Forensic Science Service, the first crime scene she attended was for a case involving the Yorkshire Ripper. As well as working on a wide range of cases in many countries around the world, she is now the most sought-after forensic scientist in the UK, where she has helped solve numerous high-profile cases.

Invisible: How Young Women with Serious Health Issues Navigate Work, Relationships, and the Pressure to Seem Just Fine


Michele Lent Hirsch - 2018
    She did.Sophie navigates being the only black scientist in her lab while studying the very disease, HIV, that she hides from her coworkers.For Victoria, coming out as a transgender woman was less difficult than coming out as bipolar.Author Michele Lent Hirsch knew she couldn't be the only woman who's faced serious health issues at a young age, as well as the resulting effects on her career, her relationships, and her sense of self. What she found while researching Invisible was a surprisingly large and overlooked population with important stories to tell.Though young women with serious illness tend to be seen as outliers, young female patients are in fact the primary demographic for many illnesses. They are also one of the most ignored groups in our medical system--a system where young women, especially women of color and trans women, are invisible.And because of expectations about gender and age, young women with health issues must often deal with bias in their careers and personal lives. Not only do they feel pressured to seem perfect and youthful, they also find themselves amid labyrinthine obstacles in a culture that has one narrow idea of womanhood.Lent Hirsch weaves her own harrowing experiences together with stories from other women, perspectives from sociologists on structural inequality, and insights from neuroscientists on misogyny in health research. She shows how health issues and disabilities amplify what women in general already confront: warped beauty standards, workplace sexism, worries about romantic partners, and mistrust of their own bodies. By shining a light on this hidden demographic, Lent Hirsch explores the challenges that all women face.

Love Sick


Cory Martin - 2016
    But when she found herself on the floor of her apartment wailing into the phone, 'but I don’t want to be sick,' her entire world came crashing down.A doctor had just revealed that she had Multiple Sclerosis, a potentially debilitating disease, her good friend was getting married that weekend and the only people she wanted to call were her parents. In a time when she was supposed to be coming into her own as an adult, all she could think was who's going to want to marry me now?As she embarked on a medical quest, subjecting herself to countless MRIs and a painful spinal tap that landed her in the ER, Cory simultaneously threw herself head first into dating. She was determined to find love before the disease took over her body. But no matter how many doctors she saw or men she met there would never be a cure for MS. And if you think it's hard to get the guy you’re dating to give you a ride to the airport, try getting him to drive you to the hospital. Add to that an unfortunate incident with a blue thong and a cute young doctor, and Cory quickly realized that learning to deal with MS would take a whole lot more strength than a ring on her finger could ever provide.Love Sick is a smart and witty account of dating while navigating a life of uncertain health. Writing from a place of strength and vulnerability, Cory Martin faces her fears head on with humor and grace. Her tales are real life. There is no magical ending and no grand epiphany. Instead it is her desire to be loved and feel normal that makes her journey so poignant.

The Red Devil : A Memoir About Beating The Odds


Katherine Russell Rich - 1999
    Hailed by critics nationwide and winner of two 1999 Books for a Better Life Awards, this book shares the author's bold tale of illness, joy, mortality, and the improbable triumph of love in the midst of despair.

Unlocking Lyme: Myths, Truths, and Practical Solutions for Chronic Lyme Disease


William Rawls - 2017
    Bill Rawls understands Lyme disease sufferers seeking clarity and relief because, like myself, he has experienced the pain and frustration firsthand. Through this ground-breaking book, he shares everything he has discovered on his journey to reclaiming his health... it may just be the answer you've been waiting for." – Neil Spector, MD, Author of Gone in a Heartbeat Lyme disease is one of the most puzzling illnesses on the planet. Anyone who has suffered from its debilitating symptoms knows the frustrations of trying to find a cure. Many sufferers drag themselves from one doctor or alternative practitioner to the next, getting lost in a maze of lab tests, prescription drugs, and treatments. Thousands of dollars and months (or years) later, they realize they are no better off than where they started. Unlocking Lyme puts an end to this desperate quest. Written by Dr. Bill Rawls, a physician who overcame Lyme disease himself, this book is a comprehensive, practical resource full of solutions that work. What took Dr. Rawls 10 years to learn through intense research and personal experience, you can now learn and implement in a matter of months. DR. RAWLS’ STORY Dr. Rawls was in the middle of a successful OB/GYN career when Lyme disease interrupted his life. In his struggle to overcome it, he explored every treatment option – from conventional medicine to the full range of alternative therapies. Ultimately, he embraced modern herbal therapy as his preferred solution, but he recognizes that the path may be different for each person. INSIDE THE BOOK Unlocking Lyme is the sum of Dr. Rawls’ experience, research, and practical solutions to date. The book is divided into four parts, each part addressing a critical aspect of recovery: PART 1 - Provides an overview of common misconceptions about what Lyme disease is (hint: it’s more than just a tick bite and Borrelia infection) PART 2 - Provides information on how to obtain a diagnosis, despite current limitations in diagnostic testing for Lyme PART 3 - Discusses limitations of long-term antibiotic use, and offers an overview of holistic and non-toxic therapies for healing and symptom control (including pain, depression, insomnia) PART 4 - Explains how to embrace a healthier lifestyle so you can stay well; learn how to strengthen your immune system, microbiome, and balance in your body In the years since his recovery, Dr. Rawls has helped thousands of patients find their path to healing from Lyme disease. Unlocking Lyme brings together Dr. Rawls’ accumulated knowledge and is the key you need to get your life back. TESTIMONIALS “Dr. Rawls understands the misery of chronic Lyme disease firsthand. Unlocking Lyme shares the approaches that he used to successfully recover his own health, and helps the reader understand that there is so much that can be done to regain a state of wellness and optimal health.” – Scott Forsgren Editor & Founder, BetterHealthGuy.com “Dr. Rawls has spoken on his approach to Lyme disease for the past several years; his comprehensive approach and lifestyle guidance has helped many of our members. We heartily endorse his approach to helping deal with the symptoms of Lyme and other tick-borne illnesses.” – John Dorney, President NC Lyme Disease Foundation "Unlocking Lyme delves into the science behind Lyme disease, explaining what it is, but more importantly how it can be overcome. Dr. Rawls carefully explains the various treatments for Lyme, leaving the reader feeling informed and empowered.

We Danced: Our Story of Love and Dementia


Scott M. Rose - 2021
    It opens with snapshots of her troubled childhood and early adult life in two difficult marriages. It quickly transitions to our first meeting, friendship, and relationship - not without their own complications. Through those trials, she showed tremendous strength and heart. We eventually married and lived a love story that others marveled at for years. We travelled, went to concerts, built a home, and remained completely devoted. While still in her early sixties, she lost a piece of herself. Words became harder to find. Steps to perform the simplest tasks became impossible to follow. We knew something was wrong but had no idea the severity of her condition. Our world turned upside down.The latter half of the book chronicles in exacting detail her diagnosis and life with Frontotemporal Degeneration, a dementia known as FTD. I cared for her for the three and a half years of this disease. Her mental state deteriorated rapidly. I changed to a more flexible job to stay with her more during the day as she lost even the most basic functions of eating alone, toileting, or using a phone. We still created tender moments and danced but she was losing a tremendous amount of weight and required greater and greater care.Financials not allowing me to quit work, I succumbed to the recommendations of multiple professionals and made the painful decision to place her in memory care. I visited her every day, two to three times per day, and we made the best of a horrible situation. We still shared many tender moments during this last year, including the moment I held her hand as she passed. The story is told in a vulnerable and unfiltered manner. It collects writings from both husband and wife through journals, letters, and social media posts integrated into the main narrative. It captures our real-life, undying love story through this incurable disease

Far from the East End


Iris Jones Simantel - 2012
    But the hardships of poverty and the dreaded Blitz could not match the pain she felt from her parents' indifference. She prayed that just once her mother would hold her when the bombs rained down. But her loneliness only intensified when she was evacuated.Funny, moving and heart-warming, little Iris 's tale is the story of a lonely girl's long journey in search of a place to call home.

Sensing the Rhythm: Finding My Voice in a World Without Sound


Mandy Harvey - 2017
    A gifted musician with perfect pitch, she planned to get a music degree and pursue a career doing what she loved. But less than two months into her first semester, she noticed she was having trouble hearing her professors. In a matter of months, Mandy was profoundly deaf. With her dreams so completely crushed, Mandy dropped out of college and suffered a year of severe depression. But one day, things changed. Mandy’s father asked her to join him in their once favorite pastime—recording music together—and the result was stunningly beautiful. Mandy soon learned to sense the vibrations of the music through her bare feet on a stage floor and to watch visual cues from her live accompaniment. The result was that she now sings on key, on beat, and in time, performing jazz, ballads, and sultry blues around the country. Full of inspiring wisdom and honest advice, Sensing the Rhythm is a deeply moving story about Mandy’s journey through profound loss, how she found hope and meaning in the face of adversity, and how she discovered a new sense of passion and joy.

Wasted: An Alcoholic Therapist's Fight for Recovery in a Flawed Treatment System


Michael Pond - 2016
    . . A riveting and anxiety-inducing read. Mike Pond tells his story of recovery from alcoholism with a brutally honest, warts-and-all approach that makes you want cheer for him and simultaneously slap him upside the head.” – Vancouver SunPsychotherapist Michael Pond is no stranger to the devastating consequences of alcoholism. He has helped hundreds of people conquer their addictions, but this knowledge did not prevent his own near-demise. In this riveting memoir, he recounts how he lost his Penticton-based practice, his home, and his family—all because of his drinking. After scores of visits to the ER, a tour of hellish recovery homes, a stint in intensive care for end-stage alcoholism, and jail, Pond devised his own personal plan for recovery. He met Maureen Palmer and together they investigated scientific alternatives to the rigid abstinence doctrine pushed by Alcoholics Anonymous.

Pandemics: Our Fears and the Facts (Kindle Single)


Sunetra Gupta - 2013
    As recently as 1918, a pandemic of influenza claimed over 50 million lives worldwide. The advent of drugs and vaccines led to an era of hope when we thought our battles with infectious disease were won, but our optimism has been eroded by the recognition that many pathogens have the capacity to transform themselves and escape our efforts to eradicate them. Are we now facing an inevitable repeat of a calamity such as the 1918 influenza pandemic or the Black Death? Can we anticipate and thwart such an event, or are we wilfully creating the conditions that would promote the emergence of new and highly virulent human infectious disease?Sunetra Gupta is Professor of Theoretical Epidemiology at the University of Oxford specialising in infectious diseases. She holds a bachelor's degree from Princeton University and a Ph.D. from the University of London. She has been awarded the Scientific Medal by the Zoological Society of London and the Royal Society Rosalind Franklin Award for her scientific research. She is also a novelist whose books have been awarded the Sahitya Akademi Award, the Southern Arts Literature Prize, shortlisted for the Crossword Award, and longlisted for the DSC and Orange Prizes.

The Lobotomist: A Maverick Medical Genius and His Tragic Quest to Rid the World of Mental Illness


Jack El-Hai - 2005
    Into this crisis stepped Walter Freeman, M.D., who saw a solution in lobotomy, a brain operation intended to reduce the severity of psychotic symptoms. Drawing on Freeman’s documents and interviews with Freeman's family, Jack El-Hai takes a penetrating look at the life and work of this complex scientific genius.The Lobotomist explores one of the darkest chapters of American medicine: the desperate attempt to treat the hundreds of thousands of psychiatric patients in need of help during the middle decades of the twentieth century. Into this crisis stepped Walter Freeman, M.D., who saw a solution in lobotomy, a brain operation intended to reduce the severity of psychotic symptoms. Although many patients did not benefit from the thousands of lobotomies Freeman performed, others believed their lobotomies changed them for the better. Drawing on a rich collection of documents Freeman left behind and interviews with Freeman's family, Jack El-Hai takes a penetrating look into the life of this complex scientific genius and traces the physician's fascinating life and work.

I Had Brain Surgery, What's Your Excuse?


Suzy Becker - 2003
    During much of that time she was also suffering seizures. But they came secretly in the middle of the night, and were probably stress-related, or so one doctor said. Then a seizure (and a second opinion) led to a round of specialists, Cat scans, MRIs, and-Suzy's worst fears come true--brain surgery.An inspiring memoir, I Had Brain Surgery, What's Your Excuse? is a story of identity told with wise, surprising humor. It takes readers on a journey that's both metaphysical and whimsical; one that is by turns rivetingly dramatic and unexpectedly light. Illustrated with drawings, charts, newspaper clippings, silly graphs, and real EEGs and MRIs, I Had Brain Surgery . . . turns one artist's story into a universal book about creativity, family, healing, love, commitment, and that intangible something that gives each of us our spark.

Full Body Burden: Growing Up in the Nuclear Shadow of Rocky Flats


Kristen Iversen - 2012
    Her father's hidden liquor bottles, the strange cancers in children in the neighborhood, the truth about what was made at Rocky Flats (cleaning supplies, her mother guessed)—best not to inquire too deeply into any of it.But as Iversen grew older, she began to ask questions. She learned about the infamous 1969 Mother's Day fire, in which a few scraps of plutonium spontaneously ignited and—despite the desperate efforts of firefighters—came perilously close to a "criticality," the deadly blue flash that signals a nuclear chain reaction. Intense heat and radiation almost melted the roof, which nearly resulted in an explosion that would have had devastating consequences for the entire Denver metro area. Yet the only mention of the fire was on page 28 of the Rocky Mountain News, underneath a photo of the Pet of the Week. In her early thirties, Iversen even worked at Rocky Flats for a time, typing up memos in which accidents were always called "incidents."And as this memoir unfolds, it reveals itself as a brilliant work of investigative journalism—a detailed and shocking account of the government's sustained attempt to conceal the effects of the toxic and radioactive waste released by Rocky Flats, and of local residents' vain attempts to seek justice in court. Here, too, are vivid portraits of former Rocky Flats workers—from the healthy, who regard their work at the plant with pride and patriotism, to the ill or dying, who battle for compensation for cancers they got on the job.Based on extensive interviews, FBI and EPA documents, and class-action testimony, this taut, beautifully written book promises to have a very long half-life.

Show Me Where It Hurts: Living with Invisible Illness


Kylie Maslen - 2020
    I work the way I do because of my body, I vote the way I do because of my body and I live the way I do because of my body. It is not my body that is at fault, but society's failure to deal with bodies like mine. I might be in pain, but I am whole. I refuse to have the difficult parts cropped out.Kylie Maslen has been living with invisible illness for twenty years-more than half her life. Its impact is felt in every aspect of her day-to-day existence- from work to dating; from her fears for what the future holds to her struggles to get out of bed some mornings. Drawing on pop music, art, literature and online culture, Maslen explores the lived experience of invisible illness with sensitivity and wit, drawing back the veil on a reality many struggle-or refuse-to recognise. Show Me Where it Hurts- Living with Invisible Illness is a powerful collection of essays that speak to those who have encountered the brush-off from doctors, faced endless tests and treatments, and endured chronic pain and suffering. But it is also a bridge reaching out to partners, families, friends, colleagues, doctors- all those who want to better understand what life looks like when you cannot simply show others where it hurts.