Worse, as they failed to cure her, they hinted that her devastating symptoms were psychological.The Lady's Handbook for Her Mysterious Illness is a memoir with a mission, to help the millions of (mostly) women who suffer from unnamed or misunderstood conditions.Ramey's pursuit of a diagnosis and cure for her own mysterious illness is a medical mystery that she says reveals a new understanding of today's chronic illnesses as ecological in nature, driven by modern changes to the basic foundations of health, from the quality of our sleep, diet, and social connection to the state of our microbiomes.

    The next morning, things take a sharp turn as she’s led from work to the emergency room. By the end of the week, a neurologist delivers a devastating prognosis: Sarah suffered a traumatic brain injury that has caused her IQ to plummet, with no hope of recovery. Her brain has irrevocably changed.Afraid of judgment and deemed no longer fit for work, Sarah isolates herself from the outside world. She spends months at home, with her dogs as her only source of companionship, battling a personality she no longer recognizes and her shock and rage over losing simple functions she’d taken for granted. Her life is consumed by fear and shame until a chance encounter gives Sarah hope that her brain can heal. That conversation lights a small flame of determination, and Sarah begins to push back, painstakingly reteaching herself to read and write, and eventually reentering the workforce and a new, if unpredictable, life.In this highly intimate account of devastation and renewal, Sarah pulls back the curtain on life with traumatic brain injury, an affliction where the wounds are invisible and the lasting effects are often misunderstood. Over years of frustrating setbacks and uncertain triumphs, Sarah comes to terms with her disability and finds love with a woman who helps her embrace a new, accepting sense of self.

    At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a yearslong nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better.Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications.Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.

    But I was getting there. I wanted the world to know that all of this pain I had been feeling…that it was related to my vagina. Thus, Vagina Problems was born. It was a cutesy name. It was my way of taking this pain and saying, “Whatever. I’m here. I have it. It sucks. Let’s talk about it.”In April 2014, Deputy Editorial Director at BuzzFeed Lara Parker opened up to the world in an article on the website: she suffers from endometriosis. And beyond that? She let the whole world know that she wasn’t having any sex, as sex was excruciatingly painful. Less than a year before, she received not only the diagnosis of endometriosis, but also a diagnosis of pelvic floor dysfunction, vulvodynia, vaginismus, and vulvar vestibulitis. Combined, these debilitating conditions have wreaked havoc on her life, causing excruciating pain throughout her body since she was fourteen years old. These are her Vagina Problems. It was five years before Lara learned what was happening to her body. Five years of doctors insisting she just had “bad period cramps,” or implying her pain was psychological. Shamed and stigmatized, Lara fought back against a medical community biased against women and discovered that the ignorance of many doctors about women’s anatomy was damaging more than just her own life. One in ten women have endometriosis and it takes an average of seven years before they receive an accurate diagnosis—or any relief from this incurable illness’ chronic pain. With candid revelations about her vaginal physical therapy, dating as a straight woman without penetrative sex, coping with painful seizures while at the office, diet and wardrobe malfunctions when your vagina hurts all the time, and the depression and anxiety of feeling unloved, Lara tackles it all in Vagina Problems: Endometriosis, Painful Sex, and Other Taboo Topics with courage, wit, love, and a determination to live her best life."

    Fate landed her at a wildlife sanctuary on the edge of the Amazon jungle where she was assigned to a beautiful and complex puma named Wayra. Wide-eyed, inexperienced, and comically terrified, Laura made the scrappy, make-do camp her home. And in Wayra, she made a friend for life.They weren’t alone, not with over a hundred quirky animals to care for, each lost and hurt in its own way: a pair of suicidal, bra-stealing monkeys, a frustrated parrot desperate to fly, and a pig with a wicked sense of humor. The humans, too, were cause for laughter and tears. There were animal whisperers, committed staff, wildly devoted volunteers, handsome heartbreakers, and a machete-wielding prom queen who carried Laura through. Most of all, there were the jungle—lyrical and alive—and Wayra, who would ultimately teach Laura so much about love, healing, and the person she was capable of becoming.Set against a turbulent and poignant backdrop of deforestation, the illegal pet trade, and forest fires, The Puma Years explores what happens when two desperate creatures in need of rescue find one another.

    None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling.Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life.Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story.

    For a single mother living paycheck to paycheck who had always been the caregiver rather than the one needing care, the catastrophic illness was both a crisis and an initiation into new ideas about mortality and the gendered politics of illness.A twenty-first-century Illness as Metaphor, as well as a harrowing memoir of survival, The Undying explores the experience of illness as mediated by digital screens, weaving in ancient Roman dream diarists, cancer hoaxers and fetishists, cancer vloggers, corporate lies, John Donne, pro-pain ”dolorists,” the ecological costs of chemotherapy, and the many little murders of capitalism. It excoriates the pharmaceutical industry and the bland hypocrisies of ”pink ribbon culture” while also diving into the long literary line of women writing about their own illnesses and ongoing deaths: Audre Lorde, Kathy Acker, Susan Sontag, and others.A genre-bending memoir in the tradition of The Argonauts, The Undying will break your heart, make you angry enough to spit, and show you contemporary America as a thing both desperately ill and occasionally, perversely glorious.

    In this captivating story, Manguso recalls her struggle: arduous blood cleansings, collapsed veins, multiple chest catheters, depression, the deaths of friends and strangers, addiction, and, worst of all for a writer, the trite metaphors that accompany prolonged illness. A book of tremendous grace, The Two Kinds of Decay transcends the very notion of what an illness story can and should be.

    Racism, wealth, poverty, beauty, inclusion, exclusion, and hope -- all of these intractable and unavoidable features course through the media we consume. Examining pop culture’s impact on her life, Nichole Perkins takes readers on a rollicking trip through the last twenty years of music, media and the internet from the perspective of one southern Black woman. She explores her experience with mental illness and how the TV series Frasier served as a crutch, how her role as mistress led her to certain internet message boards that prepared her for current day social media, and what it means to figure out desire and sexuality and Prince in a world where marriage is the only acceptable goal for women. Combining her sharp wit, stellar pop culture sensibility, and trademark spirited storytelling, Nichole boldly tackles the damage done to women, especially Black women, by society’s failure to confront the myths and misogyny at its heart, and her efforts to stop the various cycles that limit confidence within herself. By using her own life and loves as a unique vantage point, Nichole humorously and powerfully illuminates how to take the best pop culture has to offer and discard the harmful bits, offering a mirror into our own lives.

    Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.

    From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that fundamentally improved rights for disabled people.As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples' rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act.Candid, intimate, and irreverent, Judy Heumann's memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.

    She was repeatedly hospitalized in excruciating pain, but the doctors insisted it was a urinary tract infection and sent her home with antibiotics. Unable to get out of bed, much less attend class, Norman dropped out of college and embarked on what would become a years-long journey to discover what was wrong with her. It wasn't until she took matters into her own hands--securing a job in a hospital and educating herself over lunchtime reading in the medical library--that she found an accurate diagnosis of endometriosis.In Ask Me About My Uterus, Norman describes what it was like to have her pain dismissed, to be told it was all in her head, only to be taken seriously when she was accompanied by a boyfriend who confirmed that her sexual performance was, indeed, compromised. Putting her own trials into a broader historical, sociocultural, and political context, Norman shows that women's bodies have long been the battleground of a never-ending war for power, control, medical knowledge, and truth. It's time to refute the belief that being a woman is a preexisting condition.

    "Now everyone is going to know." "I know," I said. "I’m sorry."Kelly Sundberg’s husband, Caleb, was a funny, warm, supportive man and a wonderful father to their little boy Reed. He was also vengeful and violent. But Sundberg did not know that when she fell in love, and for years told herself he would get better. It took a decade for her to ultimately accept that the partnership she desired could not work with such a broken man. In her remarkable book, she offers an intimate record of the joys and terrors that accompanied her long, difficult awakening, and presents a haunting, heartbreaking glimpse into why women remain too long in dangerous relationships.To understand herself and her violent marriage, Sundberg looks to her childhood in Salmon, a small, isolated mountain community known as the most redneck town in Idaho. Like her marriage, Salmon is a place of deep contradictions, where Mormon ranchers and hippie back-to-landers live side-by-side; a place of magical beauty riven by secret brutality; a place that takes pride in its individualism and rugged self-sufficiency, yet is beholden to church and communal standards at all costs.Mesmerizing and poetic, Goodbye, Sweet Girl is a harrowing, cautionary, and ultimately redemptive tale that brilliantly illuminates one woman’s transformation as she gradually rejects the painful reality of her violent life at the hands of the man who is supposed to cherish her, begins to accept responsibility for herself, and learns to believe that she deserves better.

    Dawn, tall and studious; her sister, Kim, younger by three years and headstrong; and her best friend, Debra, already prom-queen pretty by third grade. They bonded as they roamed the concrete landscape of Bronzeville, a historic neighborhood on Chicago’s South Side, the destination of hundreds of thousands of Black folks who fled the ravages of the Jim Crow South. These third-generation daughters of the Great Migration come of age in the 1970s, in the warm glow of the recent civil rights movement. It has offered them a promise that they will have more opportunities, rights, and freedoms than any generation of Black Americans in history. But the girls have much more immediate concerns: hiding under the dining room table and eavesdropping on grown folks’ business; collecting secret treasures; and daydreaming about their futures. And then fate intervenes, sending them careening in wildly different directions. There’s heartbreak, loss, displacement, and even murder. Three Girls from Bronzeville is a memoir that chronicles Dawn’s attempt to find answers. It’s a celebration of sisterhood, a testimony to the unique struggles of Black women, and a tour-de-force about the complex interplay of race, class, and opportunity, and how those forces shape our lives and our capacity for resilience and redemption.

    Was he drunk to boot? He greeted his new assistant with "What are you drinking?" Yes, he was drunk.Charlie Harmon was hired to manage the day-to-day parts of Bernstein's life. There was one additional responsibility: make sure Bernstein met the deadline for an opera commission. But things kept getting in the way: the centenary of Igor Stravinsky, intestinal parasites picked up in Mexico, teaching all summer in Los Angeles, a baker's dozen of young men, plus depression, exhaustion, insomnia, and cut-throat games of anagrams. Did the opera get written?For four years, Charlie saw Bernstein every day, as his social director, gatekeeper, valet, music copyist, and itinerant orchestra librarian. He packed (and unpacked) Bernstein's umpteen pieces of luggage, got the Maestro to his concerts, kept him occupied changing planes in Zurich, Anchorage, Tokyo, or Madrid, and learned how to make small talk with mayors, ambassadors, a chancellor, a queen, and a Hollywood legend or two. How could anyone absorb all those people and places? Because there was music: late-night piano duets, or the Maestro's command to accompany an audition, or, by the way, the greatest orchestras in the world. Charlie did it, and this is what it was like, told for the first time.A celebratory, intimate, and detailed look at the public and private life of Leonard Bernstein written by his former assistant. Foreword by Broadway legend Harold Prince.