Old Before My Time: Hayley Okines' Life with Progeria


Hayley Okines - 2011
    Born with the rare genetic condition progeria, she ages eight times faster than the average person. In medical terms her body is like that of a 100-year-old woman. Yet she faces her condition with immense courage and a refreshing lack of self-pity. In Old Before My Time, Hayley and her mum Kerry reflect on her unusual life. Share Hayley's excitement as she travels the world meeting her pop heroes Kylie, Girls Aloud and Justin Bieber and her sadness as she loses her best friend to the disease at the age of 11. Now as she passes the age of 13 -- the average life expectancy for a child with progeria -- Hayley talks frankly about her hopes for the future and her pioneering drug trials in America which could unlock the secrets of ageing for everyone...

The Bright Hour: A Memoir of Living and Dying


Nina Riggs - 2017
    They are promises. They are the only way to walk from one night to the other."Nina Riggs was just thirty-seven years old when initially diagnosed with breast cancer--one small spot. Within a year, the mother of two sons, ages seven and nine, and married sixteen years to her best friend, received the devastating news that her cancer was terminal.How does one live each day, "unattached to outcome"? How does one approach the moments, big and small, with both love and honesty?Exploring motherhood, marriage, friendship, and memory, even as she wrestles with the legacy of her great-great-great grandfather, Ralph Waldo Emerson, Nina Riggs's breathtaking memoir continues the urgent conversation that Paul Kalanithi began in his gorgeous When Breath Becomes Air. She asks, what makes a meaningful life when one has limited time?Brilliantly written, disarmingly funny, and deeply moving, The Bright Hour is about how to love all the days, even the bad ones, and it's about the way literature, especially Emerson, and Nina's other muse, Montaigne, can be a balm and a form of prayer. It's a book about looking death squarely in the face and saying "this is what will be."Especially poignant in these uncertain times, The Bright Hour urges us to live well and not lose sight of what makes us human: love, art, music, words.

Where the Light Enters: Building a Family, Discovering Myself


Jill Biden - 2019
    senator Joe Biden when he called her out of the blue to ask her on a date.Growing up, Jill had wanted two things: a marriage like her parents'--strong, loving, and full of laughter--and a career. An early heartbreak had left her uncertain about love, until she met Joe. But as they grew closer, Jill faced difficult questions: How would politics shape her family and professional life? And was she ready to become a mother to Joe's two young sons?She soon found herself falling in love with her three "boys," learning to balance life as a mother, wife, educator, and political spouse. Through the challenges of public scrutiny, complicated family dynamics, and personal losses, she grew alongside her family, and she extended the family circle at every turn: with her students, military families, friends and staff at the White House, and more.This is the story of how Jill built a family--and a life--of her own. From the pranks she played to keep everyone laughing to the traditions she formed that would carry them through tragedy, hers is the spirited journey of a woman embracing many roles.Where the Light Enters is a candid, heartwarming glimpse into the creation of a beloved American family, and the life of a woman at its center.

The Prize Winner of Defiance, Ohio: How My Mother Raised 10 Kids on 25 Words or Less


Terry Ryan - 2001
    When finances ran low, feeling desperate, she turned to her parish priest who suggested she "take in laundry." Ryan had to laugh at the advice because she could barely keep up with her own family's washing and ironing. A lesser woman might have succumbed to poverty, but she was determined to keep her family financially afloat and to teach her children that the life of the mind was important. In the early 1950s, Ryan started entering contests, composing her jingles, poems, and essays at the ironing board. She won household appliances, bikes, watches, clocks, and, occasionally, cash. She won a freezer, and several weeks later, she won a supermarket shopping-spree. When the family was faced with eviction, she received a $5000 first place check from the regional Western Auto Store. Ryan's unconventionality and sense of humor triumphed over poverty, and her persistence makes the reader cheer her on.

Poser: My Life in Twenty-three Yoga Poses


Claire Dederer - 2010
    All was white and blond and clean, as though the room had been designed for surgery, or Swedish people. The only spot of color came from the Tibetan prayer flags strung over the doorway into the studio. In flagrant defiance of my longtime policy of never entering a structure adorned with Tibetan prayer flags, I removed my shoes, paid my ten bucks, and walked in . . .Ten years ago, Claire Dederer put her back out while breastfeeding her baby daughter. Told to try yoga by everyone from the woman behind the counter at the co-op to the homeless guy on the corner, she signed up for her first class. She fell madly in love.Over the next decade, she would tackle triangle, wheel, and the dreaded crow, becoming fast friends with some poses and developing long-standing feuds with others. At the same time, she found herself confronting the forces that shaped her generation. Daughters of women who ran away to find themselves and made a few messes along the way, Dederer and her peers grew up determined to be good, good, good—even if this meant feeling hemmed in by the smugness of their organic-buying, attachment-parenting, anxiously conscientious little world. Yoga seemed to fit right into this virtuous program, but to her surprise, Dederer found that the deeper she went into the poses, the more they tested her most basic ideas of what makes a good mother, daughter, friend, wife—and the more they made her want something a little less tidy, a little more improvisational. Less goodness, more joy.Poser is unlike any other book about yoga you will read—because it is actually a book about life. Witty and heartfelt, sharp and irreverent, Poser is for anyone who has ever tried to stand on their head while keeping both feet on the ground.

Lady's Hands, Lion's Heart- A Midwife's Saga


Carol Leonard - 2008
    A story of love, loss and deep dedication to birthing women.

Everything Happens for a Reason: And Other Lies I've Loved


Kate Bowler - 2018
    She lost thirty pounds, chugged antacid, and visited doctors for three months before she was finally diagnosed with Stage IV colon cancer.As she navigates the aftermath of her diagnosis, Kate pulls the reader deeply into her life, which is populated with a colorful, often hilarious collection of friends, pastors, parents, and doctors, and shares her laser-sharp reflections on faith, friendship, love, and death. She wonders why suffering makes her feel like a loser and explores the burden of positivity. Trying to relish the time she still has with her son and husband, she realizes she must change her habit of skipping to the end and planning the next move. A historian of the "American prosperity gospel"--the creed of the mega-churches that promises believers a cure for tragedy, if they just want it badly enough--Bowler finds that, in the wake of her diagnosis, she craves these same "outrageous certainties." She wants to know why it's so hard to surrender control over that which you have no control. She contends with the terrifying fact that, even for her husband and child, she is not the lynchpin of existence, and that even without her, life will go on.On the page, Kate Bowler is warm, witty, and ruthless, and, like Paul Kalanithi, one of the talented, courageous few who can articulate the grief she feels as she contemplates her own mortality.

Brain on Fire: My Month of Madness


Susannah Cahalan - 2012
    Days earlier, she had been on the threshold of a new, adult life: at the beginning of her first serious relationship and a promising career at a major New York newspaper. Now she was labeled violent, psychotic, a flight risk. What happened?In a swift and breathtaking narrative, Cahalan tells the astonishing true story of her descent into madness, her family’s inspiring faith in her, and the lifesaving diagnosis that nearly didn’t happen.

Choosing to SEE


Mary Beth Chapman - 2010
    Together they began Show Hope, a nonprofit organization dedicated to caring for the world's most vulnerable children by providing financial assistance to families wishing to adopt, as well as increasing awareness of the orphan crisis and funneling resources to orphans domestically and internationally. Mary Beth serves as president of Show Hope and is a speaker for Women of Faith 2010 with her husband. She is also coauthor with Steven of the Shaoey and Dot series of children's picture books. Mary Beth and Steven have six children: Emily, Caleb, Will Franklin, and adopted daughters Shaohannah Hope, Stevey Joy, and Maria Sue, who is now with Jesus. The Chapmans live in Tennessee.www.MaryBethChapman.comEllen Vaughn is a bestselling author and inspirational speaker. Her recent books include It's All About Him with Denise Jackson (wife of Alan Jackson), which debuted at #1 on the New York Times nonfiction list. She is also coauthor with Chuck Colson of Being the Body. In addition to her nonfiction work, Vaughn is an award-winning novelist. She lives in the Washington, D.C., area with her husband, Lee.

Inconceivable: A Medical Mistake, the Baby We Couldn't Keep, and Our Choice to Deliver the Ultimate Gift


Carolyn Savage - 2011
    An unthinkable situation . . . you’re pregnant with the wrong baby. You can terminate, but you can’t keep him. What choice would you make?Carolyn and Sean Savage had been trying to expand their family for years. When they underwent an IVF transfer in February 2009, they knew it would be their last chance. If they became pregnant, they would celebrate the baby as an answer to their prayers. If not, they would be grateful for the family they had and leave their fertility struggles behind forever.They never imagined a third option. The pregnancy test was positive, but the clinic had transferred the wrong embryos. Carolyn was pregnant with someone else’s baby.The Savages faced a series of heartbreaking decisions: terminate the pregnancy, sue for custody, or hand over the infant to his genetic parents upon delivery. Knowing that Carolyn was carrying another couple’s hope for a baby, the Savages wanted to do what they prayed the other family would do for them if the situation was reversed. Sean and Carolyn Savage decided to give the ultimate gift, the gift of life, to a family they didn’t know, no strings attached.Inconceivable provides an inside look at how modern medicine, which creates miracles daily, could allow such a tragic mistake, and the many legal ramifications that ensued with both the genetic family and the clinic. Chronicling their tumultuous pregnancy and its aftermath, which tested the Savage’s faith, their relationship to their church, and their marriage, Inconceivable is ultimately a testament to love. Carolyn and Sean loved this baby, making it impossible for them to imagine how they could give him life and then give him away.In the end, Inconceivable is a story of what it is to be a parent, someone who nurtures a life, protects a soul, only to release that child into the world long before you’re ready to let him go.

The Rainbow Comes and Goes: A Mother and Son on Life, Love, and Loss


Anderson Cooper - 2016
    After she suffers a brief but serious illness at the age of ninety-one, they resolve to change their relationship by beginning a year-long conversation unlike any they had ever had before. The result is a correspondence of surprising honesty and depth in which they discuss their lives, the things that matter to them, and what they still want to learn about each other.Both a son’s love letter to his mother and an unconventional mom’s life lessons for her grown son, The Rainbow Comes and Goes offers a rare window into their close relationship and fascinating life stories, including their tragedies and triumphs. In these often humorous and moving exchanges, they share their most private thoughts and the hard-earned truths they’ve learned along the way. In their words their distinctive personalities shine through—Anderson’s journalistic outlook on the world is a sharp contrast to his mother’s idealism and unwavering optimism.An appealing memoir with inspirational advice, The Rainbow Comes and Goes is a beautiful and affectionate celebration of the universal bond between a parent and a child, and a thoughtful reflection on life, reminding us of the precious insight that remains to be shared, no matter our age.

Refuge: An Unnatural History of Family and Place


Terry Tempest Williams - 1991
    That same season, The Great Salt Lake began to rise to record heights, threatening the herons, owls, and snowy egrets that Williams, a poet and naturalist, had come to gauge her life by. One event was nature at its most random, the other a by-product of rogue technology: Terry's mother, and Terry herself, had been exposed to the fallout of atomic bomb tests in the 1950s. As it interweaves these narratives of dying and accommodation, Refuge transforms tragedy into a document of renewal and spiritual grace, resulting in a work that has become a classic.

As Nature Made Him: The Boy Who Was Raised as a Girl


John Colapinto - 2000
    The case would become one of the most famous in modern medicine—and a total failure. As Nature Made Him tells the extraordinary story of David Reimer, who, when finally informed of his medical history, made the decision to live as a male. A macabre tale of medical arrogance, it is first and foremost a human drama of one man's—and one family's—amazing survival in the face of terrible odds.

The Immortal Life of Henrietta Lacks


Rebecca Skloot - 2010
    She was a poor Southern tobacco farmer who worked the same land as her enslaved ancestors, yet her cells—taken without her knowledge—became one of the most important tools in medicine. The first “immortal” human cells grown in culture, they are still alive today, though she has been dead for more than sixty years. If you could pile all HeLa cells ever grown onto a scale, they’d weigh more than 50 million metric tons—as much as a hundred Empire State Buildings. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer, viruses, and the atom bomb’s effects; helped lead to important advances like in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions.Yet Henrietta Lacks remains virtually unknown, buried in an unmarked grave.Now Rebecca Skloot takes us on an extraordinary journey, from the “colored” ward of Johns Hopkins Hospital in the 1950s to stark white laboratories with freezers full of HeLa cells; from Henrietta’s small, dying hometown of Clover, Virginia — a land of wooden quarters for enslaved people, faith healings, and voodoo — to East Baltimore today, where her children and grandchildren live and struggle with the legacy of her cells.Henrietta’s family did not learn of her “immortality” until more than twenty years after her death, when scientists investigating HeLa began using her husband and children in research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the profits. As Rebecca Skloot so brilliantly shows, the story of the Lacks family — past and present — is inextricably connected to the history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of.Over the decade it took to uncover this story, Rebecca became enmeshed in the lives of the Lacks family—especially Henrietta’s daughter Deborah, who was devastated to learn about her mother’s cells. She was consumed with questions: Had scientists cloned her mother? Did it hurt her when researchers infected her cells with viruses and shot them into space? What happened to her sister, Elsie, who died in a mental institution at the age of fifteen? And if her mother was so important to medicine, why couldn’t her children afford health insurance?Intimate in feeling, astonishing in scope, and impossible to put down, The Immortal Life of Henrietta Lacks captures the beauty and drama of scientific discovery, as well as its human consequences.

My Lobotomy: A Memoir


Howard Dully - 2007
    Yet somehow, this normal boy became one of the youngest people on whom Dr. Walter Freeman performed his barbaric transorbital—or ice pick—lobotomy.Abandoned by his family within a year of the surgery, Howard spent his teen years in mental institutions, his twenties in jail, and his thirties in a bottle. It wasn’t until he was in his forties that Howard began to pull his life together. But even as he began to live the “normal” life he had been denied, Howard struggled with one question: Why?“October 8, 1960. I gather that Mrs. Dully is perpetually talking, admonishing, correcting, and getting worked up into a spasm, whereas her husband is impatient, explosive, rather brutal, won’t let the boy speak for himself, and calls him numbskull, dimwit, and other uncomplimentary names.”There were only three people who would know the truth: Freeman, the man who performed the procedure; Lou, his cold and demanding stepmother who brought Howard to the doctor’s attention; and his father, Rodney. Of the three, only Rodney, the man who hadn’t intervened on his son’s behalf, was still living. Time was running out. Stable and happy for the first time in decades, Howard began to search for answers. “December 3, 1960. Mr. and Mrs. Dully have apparently decided to have Howard operated on. I suggested [they] not tell Howard anything about it.”Through his research, Howard met other lobotomy patients and their families, talked with one of Freeman’s sons about his father’s controversial life’s work, and confronted Rodney about his complicity. And, in the archive where the doctor’s files are stored, he finally came face to face with the truth.Revealing what happened to a child no one—not his father, not the medical community, not the state—was willing to protect, My Lobotomy exposes a shameful chapter in the history of the treatment of mental illness. Yet, ultimately, this is a powerful and moving chronicle of the life of one man. Without reticence, Howard Dully shares the story of a painfully dysfunctional childhood, a misspent youth, his struggle to claim the life that was taken from him, and his redemption.