Book picks similar to
Borrowed Time: An AIDS Memoir by Paul Monette
memoir
non-fiction
lgbt
nonfiction
The Shift: One Nurse, Twelve Hours, Four Patients' Lives
Theresa Brown - 2015
In the span of twelve hours, lives can be lost, life-altering medical treatment decisions made, and dreams fulfilled or irrevocably stolen. In Brown’s skilled hands--as both a dedicated nurse and an insightful chronicler of events--we are given an unprecedented view into the individual struggles as well as the larger truths about medicine in this country, and by shift’s end, we have witnessed something profound about hope and healing and humanity. Every day, Theresa Brown holds patients' lives in her hands. On this day there are four. There is Mr. Hampton, a patient with lymphoma to whom Brown is charged with administering a powerful drug that could cure him--or kill him; Sheila, who may have been dangerously misdiagnosed; Candace, a returning patient who arrives (perhaps advisedly) with her own disinfectant wipes, cleansing rituals, and demands; and Dorothy, who after six weeks in the hospital may finally go home. Prioritizing and ministering to their needs takes the kind of skill, sensitivity, and, yes, humor that enable a nurse to be a patient’s most ardent advocate in a medical system marked by heartbreaking dysfunction as well as miraculous success.
The Duchess of Bloomsbury Street
Helene Hanff - 1973
A zesty memoir of the celebrated writer's travels to England where she meets the cherished friends from 84, Charing Cross Road.
The Undying
Anne Boyer - 2019
For a single mother living paycheck to paycheck who had always been the caregiver rather than the one needing care, the catastrophic illness was both a crisis and an initiation into new ideas about mortality and the gendered politics of illness.A twenty-first-century Illness as Metaphor, as well as a harrowing memoir of survival, The Undying explores the experience of illness as mediated by digital screens, weaving in ancient Roman dream diarists, cancer hoaxers and fetishists, cancer vloggers, corporate lies, John Donne, pro-pain ”dolorists,” the ecological costs of chemotherapy, and the many little murders of capitalism. It excoriates the pharmaceutical industry and the bland hypocrisies of ”pink ribbon culture” while also diving into the long literary line of women writing about their own illnesses and ongoing deaths: Audre Lorde, Kathy Acker, Susan Sontag, and others.A genre-bending memoir in the tradition of The Argonauts, The Undying will break your heart, make you angry enough to spit, and show you contemporary America as a thing both desperately ill and occasionally, perversely glorious.
Stone Butch Blues
Leslie Feinberg - 1993
Stone Butch Blues traces a propulsive journey, powerfully evoking history and politics while portraying an extraordinary protagonist full of longing, vulnerability, and working-class grit. This once-underground classic takes the reader on a roller-coaster ride of gender transformation and exploration and ultimately speaks to the heart of anyone who has ever suffered or gloried in being different.
The Iceberg
Marion Coutts - 2014
The tumour was located in the area of the brain that controls speech and language, and would eventually rob him of the ability to speak. Tom was 53 when he died, leaving Marion and their son Eugene, just two years old, alone. In short bursts of beautiful, textured prose, Coutts describes the eighteen months leading up to Tom's death. The Iceberg is an unflinching, honest exploration of staring death in the face, finding solace in strange places, finding beauty and even joy in the experience of dying. Written with extraordinary narrative force and power, it is almost shocking in its rawness. Nothing is kept from the reader: the fury, the occasional spells of selfishness, the indignity of being trapped in a hopeless situation. It is a story of pain and sadness, but also an uplifting and life-affirming tale of great fortitude, courage, determination – and above all, love.
Long Live the Tribe of Fatherless Girls
T Kira Madden - 2019
But under the surface was a wild instability. The only child of parents continually battling drug and alcohol addictions, Madden confronted her environment alone. Facing a culture of assault and objectification, she found lifelines in the desperately loving friendships of fatherless girls.With unflinching honesty and lyrical prose, spanning from 1960s Hawai'i to the present-day struggle of a young woman mourning the loss of a father while unearthing truths that reframe her reality, Long Live the Tribe of Fatherless Girls is equal parts eulogy and love letter. It's a story about trauma and forgiveness, about families of blood and affinity, both lost and found, unmade and rebuilt, crooked and beautiful.
Old Before My Time: Hayley Okines' Life with Progeria
Hayley Okines - 2011
Born with the rare genetic condition progeria, she ages eight times faster than the average person. In medical terms her body is like that of a 100-year-old woman. Yet she faces her condition with immense courage and a refreshing lack of self-pity. In Old Before My Time, Hayley and her mum Kerry reflect on her unusual life. Share Hayley's excitement as she travels the world meeting her pop heroes Kylie, Girls Aloud and Justin Bieber and her sadness as she loses her best friend to the disease at the age of 11. Now as she passes the age of 13 -- the average life expectancy for a child with progeria -- Hayley talks frankly about her hopes for the future and her pioneering drug trials in America which could unlock the secrets of ageing for everyone...
Past Mortems: Life and Death Behind Mortuary Doors
Carla Valentine - 2017
She spent ten years training and working as an Anatomical Pathology Technologist: where the mortuary slab was her desk, and that day's corpses her task list.Past Mortems tells Carla's stories of those years, as well as investigating the body alongside our attitudes towards death - shedding light on what the living can learn from dead and the toll the work can take on the living souls who carry it out. Fascinating and insightful, Past Mortems reveals the truth about what happens when the mortuary doors swing shut or the lid of the coffin closes . . .
Gypsy Boy
Mikey Walsh - 2009
They live in a closeted community, and little is known about their way of life. After centuries of persecution Gypsies are wary of outsiders and if you choose to leave you can never come back.This is something Mikey knows only too well.Growing up, he rarely went to school, and seldom mixed with non-Gypsies. The caravan and camp were his world.But although Mikey inherited a vibrant and loyal culture his family’s legacy was bittersweet with a hidden history of grief and abuse.Eventually Mikey was forced to make an agonising decision – to stay and keep secrets, or escape and find somewhere he could truly belong.
The Center Cannot Hold: My Journey Through Madness
Elyn R. Saks - 2007
She has managed to achieve this in spite of being diagnosed as schizophrenic and given a "grave" prognosis—and suffering the effects of her illness throughout her life.Saks was only eight, and living an otherwise idyllic childhood in sunny 1960s Miami, when her first symptoms appeared in the form of obsessions and night terrors. But it was not until she reached Oxford University as a Marshall Scholar that her first full-blown episode, complete with voices in her head and terrifying suicidal fantasies, forced her into a psychiatric hospital.Saks would later attend Yale Law School where one night, during her first term, she had a breakdown that left her singing on the roof of the law school library at midnight. She was taken to the emergency room, force-fed antipsychotic medication, and tied hand-and-foot to the cold metal of a hospital bed. She spent the next five months in a psychiatric ward.So began Saks's long war with her own internal demons and the equally powerful forces of stigma. Today she is a chaired professor of law who researches and writes about the rights of the mentally ill. She is married to a wonderful man.In The Center Cannot Hold, Elyn Saks discusses frankly and movingly the paranoia, the inability to tell imaginary fears from real ones, and the voices in her head insisting she do terrible things, as well as the many obstacles she overcame to become the woman she is today. It is destined to become a classic in the genre.
Real Queer America: LGBT Stories from Red States
Samantha Allen - 2019
Now she's a senior Daily Beast reporter happily married to another woman. A lot in her life has changed, but what hasn't changed is her deep love of Red State America, and of queer people who stay in so-called "flyover country" rather than moving to the liberal coasts. In Real Queer America, Allen takes us on a cross-country road-trip stretching all the way from Provo, Utah to the Rio Grande Valley to the Bible Belt to the Deep South. Her motto for the trip: "Something gay every day." Making pit stops at drag shows, political rallies, and hubs of queer life across the heartland, she introduces us to scores of extraordinary LGBT people working for change, from the first openly transgender mayor in Texas history to the manager of the only queer night club in Bloomington, Indiana, and many more.Capturing profound cultural shifts underway in unexpected places and revealing a national network of chosen family fighting for a better world, Real Queer America is a treasure trove of uplifting stories and a much-needed source of hope and inspiration in these divided times.
Born Both: An Intersex Life
Hida Viloria - 2017
My name is Hida Viloria. I was raised as a girl but discovered at a young age that my body looked different. Having endured an often turbulent home life as a kid, there were many times when I felt scared and alone, especially given my attraction to girls. But unlike most people in the first world who are born intersex--meaning they have genitals, reproductive organs, hormones, and/or chromosomal patterns that do not fit standard definitions of male or female--I grew up in the body I was born with because my parents did not have my sex characteristics surgically altered at birth. It wasn't until I was twenty-six and encountered the term intersex in a San Francisco newspaper that I finally had a name for my difference. That's when I began to explore what it means to live in the space between genders--to be both and neither. I tried living as a feminine woman, an androgynous person, and even for a brief period of time as a man. Good friends would not recognize me, and gay men would hit on me. My gender fluidity was exciting, and in many ways freeing--but it could also be isolating. I had to know if there were other intersex people like me, but when I finally found an intersex community to connect with I was shocked, and then deeply upset, to learn that most of the people I met had been scarred, both physically and psychologically, by infant surgeries and hormone treatments meant to "correct" their bodies. Realizing that the invisibility of intersex people in society facilitated these practices, I made it my mission to bring an end to it--and became one of the first people to voluntarily come out as intersex at a national and then international level.Born Both is the story of my lifelong journey toward finding love and embracing my authentic identity in a world that insists on categorizing people into either/or, and of my decades-long fight for human rights and equality for intersex people everywhere.
Taking Turns: Stories from HIV/AIDS Care Unit 371
M.K. Czerwiec - 2017
Taking Turns pulls back the curtain on life in the ward.A shining example of excellence in the treatment and care of patients, Unit 371 was a community for thousands of patients and families affected by HIV and AIDS and the people who cared for them. This graphic novel combines Czerwiec’s memories with the oral histories of patients, family members, and staff. It depicts life and death in the ward, the ways the unit affected and informed those who passed through it, and how many look back on their time there today. Czerwiec joined Unit 371 at a pivotal time in the history of AIDS: deaths from the syndrome in the Midwest peaked in 1995 and then dropped drastically in the following years, with the release of antiretroviral protease inhibitors. This positive turn of events led to a decline in patient populations and, ultimately, to the closure of Unit 371. Czerwiec’s restrained, inviting drawing style and carefully considered narrative examine individual, institutional, and community responses to the AIDS epidemic—as well as the role that art can play in the grieving process.Deeply personal yet made up of many voices, this history of daily life in a unique AIDS care unit is an open, honest look at suffering, grief, and hope among a community of medical professionals and patients at the heart of the epidemic.
The Know-It-All: One Man's Humble Quest to Become the Smartest Person in the World
A.J. Jacobs - 2004
Jacobs's hilarious, enlightening, and seemingly impossible quest to read the Encyclopaedia Britannica from A to Z. 33,000 Pages44 Million Words10 Billion Years Of History1 Obsessed ManTo fill the ever-widening gaps in his Ivy League education, A.J. Jacobs sets for himself the daunting task of reading all thirty-two volumes of the Encyclopaedia Britannica. His wife, Julie, tells him it's a waste of time, his friends believe he is losing his mind, and his father, a brilliant attorney who had once attempted the same feat and quit somewhere around Borneo, is encouraging but unconvinced. With self-deprecating wit and a disarming frankness, The Know-It-All recounts the unexpected and comically disruptive effects Operation Encyclopedia has on every part of Jacobs's life -- from his newly minted marriage to his complicated relationship with his father and the rest of his charmingly eccentric New York family to his day job as an editor at Esquire. Jacobs's project tests the outer limits of his stamina and forces him to explore the real meaning of intelligence as he endeavors to join Mensa, win a spot on Jeopardy!, and absorb 33,000 pages of learning. On his journey he stumbles upon some of the strangest, funniest, and most profound facts about every topic under the sun, all while battling fatigue, ridicule, and the paralyzing fear that attends his first real-life responsibility -- the impending birth of his first child. The Know-It-All is an ingenious, mightily entertaining memoir of one man's intellect, neuroses, and obsessions, and a struggle between the all-consuming quest for factual knowledge and the undeniable gift of hard-won wisdom.
Eleanor and Hick: The Love Affair That Shaped a First Lady
Susan Quinn - 2016
By that time, she had put her deep disappointment in her marriage behind her and developed an independent life—now threatened by the public role she would be forced to play. A lifeline came to her in the form of a feisty campaign reporter for the Associated Press: Lorena Hickok. Over the next thirty years, until Eleanor’s death, the two women carried on an extraordinary relationship: They were, at different points, lovers, confidantes, professional advisors, and caring friends. They couldn't have been more different. Eleanor had been raised in one of the nation’s most powerful political families and was introduced to society as a debutante before marrying her distant cousin, Franklin. Hick, as she was known, had grown up poor in rural South Dakota and worked as a servant girl after she escaped an abusive home, eventually becoming one of the most respected reporters at the AP. Her admiration drew the buttoned-up Eleanor out of her shell, and the two quickly fell in love. For the next thirteen years, Hick had her own room at the White House, next door to the First Lady. These fiercely compassionate women inspired each other to right the wrongs of the turbulent era in which they lived. During the Depression, Hick reported from the nation’s poorest areas for the WPA, and Eleanor used these reports to lobby her husband for New Deal programs. Hick encouraged Eleanor to turn their frequent letters into her popular and long-lasting syndicated column "My Day," and to befriend the female journalists who became her champions. When Eleanor’s tenure as First Lady ended with FDR's death, Hick pushed her to continue to use her popularity for good—advice Eleanor took by leading the UN’s postwar Human Rights Commission. At every turn, the bond these women shared was grounded in their determination to better their troubled world. Deeply researched and told with great warmth, Eleanor and Hick is a vivid portrait of love and a revealing look at how an unlikely romance influenced some of the most consequential years in American history.