Freaks, Geeks and Asperger Syndrome: A User Guide to Adolescence


Luke Jackson - 2002
    Over the years Luke has learned to laugh at such names but there are other aspects of life which are more difficult. Adolescence and the teenage years are a minefield of emotions, transitions and decisions and when a child has Asperger Syndrome, the result is often explosive. Luke has three sisters and one brother in various stages of their adolescent and teenage years but he is acutely aware of just how different he is and how little information is available for adolescents like himself. Drawing from his own experiences and gaining information from his teenage brother and sisters, he wrote this enlightening, honest and witty book in an attempt to address difficult topics such as bullying, friendships, when and how to tell others about AS, school problems, dating and relationships, and morality. Luke writes briefly about his younger autistic and AD/HD brothers, providing amusing insights into the antics of his younger years and advice for parents, carers and teachers of younger AS children. However, his main reason for writing was because "so many books are written about us, but none are written directly to adolescents with Asperger Syndrome. I thought I would write one in the hope that we could all learn together."

Raising Cubby: A Father and Son's Adventures with Asperger's, Trains, Tractors, and High Explosives


John Elder Robison - 2013
    John Robison was never a model child, and he wasn’t a model dad either. Diagnosed with Asperger’s syndrome at the age of forty, he approached fatherhood as a series of logic puzzles and practical jokes. When his son, Cubby, asked, “Where did I come from?” John said he’d bought him at the Kid Store and that the salesman had cheated him by promising Cubby would “do all chores.” He read electrical engineering manuals to Cubby at bedtime. He told Cubby that wizards turned children into stone when they misbehaved. Still, John got the basics right. He made sure Cubby never drank diesel fuel at the automobile repair shop he owns. And he gave him a life of adventure: By the time Cubby was ten, he’d steered a Coast Guard cutter, driven a freight locomotive, and run an antique Rolls Royce into a fence.The one thing John couldn’t figure out was what to do when school authorities decided that Cubby was dumb and stubborn—the very same thing he had been told as a child. Did Cubby have Asperger’s too? The answer was unclear. One thing was clear, though: By the time he turned seventeen, Cubby had become a brilliant chemist—smart enough to make military-grade explosives and bring state and federal agents calling. Afterward, with Cubby facing up to sixty years in prison, both father and son were forced to take stock of their lives, finally coming to terms with being “on the spectrum” as both a challenge and a unique gift. By turns tender, suspenseful, and hilarious, this is more than just the story of raising Cubby. It’s the story of a father and son who grow up together. Praise for John Robison's first book, Look Me In the Eye:"Lean, powerful in its descriptive accuracy and engaging in its understated humor...Emotionally gripping." --Chicago Tribune"A fantastic life story told with grace, humor, and a bracing lack of sentimentality." --Entertainment Weekly"Endearing...Robison is a natural storyteller." --Boston Globe

In a Different Key: The Story of Autism


John Donvan - 2016
    Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism—by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different.  It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting “refrigerator mothers” for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families’ battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne’eman, who explained their inner worlds and championed the philosophy of neurodiversity. This is also a story of fierce controversies—from the question of whether there is truly an autism “epidemic,” and whether vaccines played a part in it; to scandals involving “facilitated communication,” one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death.<

Nerdy, Shy, and Socially Inappropriate: A User Guide to an Asperger Life


Cynthia Kim - 2014
    Her own life presents many rich examples. From being labelled nerdy and shy as an undiagnosed child to redefining herself when diagnosed with Asperger Syndrome as an adult, she describes how her perspective shifted to understanding a previously confusing world and combines this with the results of extensive research to explore the 'why' of ASD traits. She explains how they impact on everything from self-care to holding down a job and offers typically practical and creative strategies to help manage them, including a section on the vestibular, sensory and social benefits of martial arts for people with autism.Well known in the autism community and beyond for her popular blog, Musings of an Aspie, Cynthia Kim's book is rich with personal anecdotes and useful advice. This intelligent insider guide will help adults with ASDs and their partners, family members, friends, and colleagues, but it also provides a fresh and witty window onto a different worldview.

The Reason I Jump: The Inner Voice of a Thirteen-Year-Old Boy with Autism


Naoki Higashida - 2005
    Parents and family members who never thought they could get inside the head of their autistic loved one, at last, have a way to break through to the curious, subtle, and complex life within.Using an alphabet grid to painstakingly construct words, sentences, and thoughts that he is unable to speak out loud, Naoki answers even the most delicate questions that people want to know. Questions such as: “Why do people with autism talk so loudly and weirdly?” “Why do you line up your toy cars and blocks?” “Why don’t you make eye contact when you’re talking?” and “What’s the reason you jump?” (Naoki’s answer: “When I’m jumping, it’s as if my feelings are going upward to the sky.”) With disarming honesty and a generous heart, Naoki shares his unique point of view on not only autism but life itself. His insights—into the mystery of words, the wonders of laughter, and the elusiveness of memory—are so startling, so strange, and so powerful that you will never look at the world the same way again.

Carly's Voice: Breaking Through Autism


Arthur Fleischmann - 2012
    Doctors predicted that she would never intellectually develop beyond the abilities of a small child. Although she made some progress after years of intensive behavioral and communication therapy, Carly remained largely unreachable. Then, at the age of ten, she had a breakthrough. While working with her devoted therapists Howie and Barb, Carly reached over to their laptop and typed in "HELP TEETH HURT," much to everyone's astonishment. This was the beginning of Carly's journey toward self-realization. Although Carly still struggles with all the symptoms of autism, which she describes with uncanny accuracy and detail, she now has regular, witty, and profound conversations on the computer with her family, her therapists, and the many thousands of people who follow her via her blog, Facebook, and Twitter. In Carly's Voice, her father, Arthur Fleischmann, blends Carly's own words with his story of getting to know his remarkable daughter. One of the first books to explore firsthand the challenges of living with autism, it brings readers inside a once-secret world and in the company of an inspiring young woman who has found her voice and her mission.

I Am Intelligent: From Heartbreak to Healing--A Mother and Daughter's Journey Through Autism


Peyton Goddard - 2012
    Robbed of speech and bodily control, and despite her loving parents' best efforts to help her, Peyton Goddard suffered neglect and ongoing abuse by many who dismissed her as autistic and severely mentally retarded. Peyton's violent outbursts and bizarre, self-destructive behavior left her parents terrified at the prospect of having to institutionalize their daughter. No one could have imagined that she possessed a brilliant mind in her uncooperative body until her first opportunity to communicate electronically at age 22 when she typed "I AM INTLGENT," a breakthrough reminiscent of "The Miracle Worker." After two decades, mother and daughter are finally able to communicate, and Peyton goes on to graduate valedictorian from college. Her story challenges assumptions that any child, regardless of competence, can be less of a human being. Today Peyton is following through on her vow to be an advocate on behalf of other devalued people. Her inspirational life helps readers transcend stereotypes and join her in the radical notion that, as she says, "All people are vastly valuable. Treasure all because great is each."

Pretending to Be Normal: Living with Asperger's Syndrome


Liane Holliday Willey - 1999
    Chronicling her life from her earliest memories through her life as a university lecturer, writer, wife and mother, Liane Holliday Willey shares, with insight and warmth, the daily struggles and challenges that face many of those who have Asperger's Syndrome. Pretending to be Normal invites its readers to welcome the Asperger community with open acceptance, for it makes it clear that, more often than not, they are capable, viable, interesting and kind people who simply find unique ways to exhibit those qualities.The last part of the book consists of a series of substantial appendices which provide helpful coping strategies and guidance, based on the author's own experience, for a range of situations. This positive and humane book will provide not only insight into the Asperger world which will prove invaluable for the professionals who work with people with Asperger's Syndrome, but also hope and encouragement for other people with Asperger's Syndrome, their families, and their friends.

Autism in Heels: The Untold Story of a Female Life on the Spectrum


Jennifer O'Toole - 2018
    And more often than we realize, that face is wearing lipstick. Autism in Heels , an intimate memoir, reveals the woman inside one of autism's most prominent figures, Jennifer O'Toole. At the age of thirty-five, Jennifer was diagnosed with Asperger's syndrome, and for the first time in her life, things made sense. Now, Jennifer exposes the constant struggle between carefully crafted persona and authentic existence, editing the autism script with wit, candor, passion, and power. Her journey is one of reverse-self-discovery not only as an Aspie but--more importantly--as a thoroughly modern woman.Beyond being a memoir, Autism in Heels is a love letter to all women. It's a conversation starter. A game changer. And a firsthand account of what it is to walk in Jennifer's shoes (especially those iconic red stilettos).Whether it's bad perms or body image, sexuality or self-esteem, Jennifer's is as much a human journey as one on the spectrum. Because autism "looks a bit different in pink," most girls and women who fit the profile are not identified, facing years of avoidable anxiety, eating disorders, volatile relationships, self-harm, and stunted independence. Jennifer has been there, too. Autism in Heels takes that message to the mainstream.From her own struggles and self-discovery, she has built an empire of empowerment, inspiring women the world over to realize they aren't mistakes. They are misunderstood miracles.

The Spark: A Mother's Story of Nurturing Genius


Kristine Barnett - 2013
    At nine he started working on an original theory in astrophysics that experts believe may someday put him in line for a Nobel Prize, and at age twelve he became a paid researcher in quantum physics. But the story of Kristine’s journey with Jake is all the more remarkable because his extraordinary mind was almost lost to autism. At age two, when Jake was diagnosed, Kristine was told he might never be able to tie his own shoes. The Spark is a remarkable memoir of mother and son. Surrounded by “experts” at home and in special ed who tried to focus on Jake’s most basic skills and curtail his distracting interests—moving shadows on the wall, stars, plaid patterns on sofa fabric—Jake made no progress, withdrew more and more into his own world, and eventually stopped talking completely. Kristine knew in her heart that she had to make a change. Against the advice of her husband, Michael, and the developmental specialists, Kristine followed her instincts, pulled Jake out of special ed, and began preparing him for mainstream kindergarten on her own. Relying on the insights she developed at the daycare center she runs out of the garage in her home, Kristine resolved to follow Jacob’s “spark”—his passionate interests. Why concentrate on what he couldn’t do? Why not focus on what he could? This basic philosophy, along with her belief in the power of ordinary childhood experiences (softball, picnics, s’mores around the campfire) and the importance of play, helped Kristine overcome huge odds. The Barnetts were not wealthy people, and in addition to financial hardship, Kristine herself faced serious health issues. But through hard work and determination on behalf of Jake and his two younger brothers, as well as an undying faith in their community, friends, and family, Kristine and Michael prevailed. The results were beyond anything anyone could have imagined. Dramatic, inspiring, and transformative, The Spark is about the power of love and courage in the face of overwhelming obstacles, and the dazzling possibilities that can occur when we learn how to tap the true potential that lies within every child, and in all of us.

Born on a Blue Day: Inside the Extraordinary Mind of an Autistic Savant


Daniel Tammet - 2006
    Tammet's ability to think abstractly, deviate from routine, and empathize, interact and communicate with others is impaired, yet he's capable of incredible feats of memorization and mental calculation. Besides being able to effortlessly multiply and divide huge sums in his head with the speed and accuracy of a computer, Tammet, the subject of the 2005 documentary Brainman, learned Icelandic in a single week and recited the number pi up to the 22,514th digit, breaking the European record. He also experiences synesthesia, an unusual neurological syndrome that enables him to experience numbers and words as "shapes, colors, textures and motions." Tammet traces his life from a frustrating, withdrawn childhood and adolescence to his adult achievements, which include teaching in Lithuania, achieving financial independence with an educational Web site and sustaining a long-term romantic relationship. As one of only about 50 people living today with synesthesia and autism, Tammet's condition is intriguing to researchers; his ability to express himself clearly and with a surprisingly engaging tone (given his symptoms) makes for an account that will intrigue others as well.

Camouflage: The Hidden Lives of Autistic Women


Sarah Bargiela - 2019
    This graphic novel offers an engaging and accessible insight into the lives and minds of autistic women, using real-life case studies.The charming illustrations lead readers on a visual journey of how women on the spectrum experience everyday life, from metaphors and masking in social situations, to friendships and relationships and the role of special interests.Fun, sensitive and informative, this is a fantastic resource for anyone who wishes to understand how gender affects autism, and how to create safer supportive and more accessible environments for women on the spectrum.

Send in the Idiots: Stories from the Other Side of Autism


Kamran Nazeer - 2006
    In 1982, when he was four years old, Kamran Nazeer was enrolled in a small school in New York City alongside a dozen other children diagnosed with autism. Calling themselves the Idiots, these kids received care that was at the cutting edge of developmental psychology. Twenty-three years later, the school no longer exists.Send in the Idiots is the always candid, often surprising, and ultimately moving investigation into what happened to those children. Now a policy adviser in England, Kamran decides to visit four of his old classmates to find out the kind of lives that they are living now, how much they've been able to overcome—and what remains missing. A speechwriter unable to make eye contact; a messenger who gets upset if anyone touches his bicycle; a depressive suicide victim; and a computer engineer who communicates difficult emotions through the use of hand puppets: these four classmates reveal an astonishing, thought-provoking spectrum of behavior.Bringing to life the texture of autistic lives and the pressures and limitations that the condition presents, Kamran also relates the ways in which those can be eased over time, and with the right treatment. Using his own experiences to examine such topics as the difficulties of language, conversation as performance, and the politics of civility, Send in the Idiots is also a rare and provocative exploration of the way that people—all people—learn to think and feel. Written with unmatched insight and striking personal testimony, Kamran Nazeer's account is a stunning, invaluable, and utterly unique contribution to the literature of what makes us human.

Uniquely Human: A Different Way of Seeing Autism


Barry M. Prizant - 2015
    This perspective leads to therapies focused on ridding individuals of autistic symptoms. In Uniquely Human, Dr. Barry M. Prizant suggests a major shift in understanding autism: Instead of classifying "autistic" behaviors as signs of pathology, he sees them as strategies to cope with a world that feels chaotic and overwhelming. Rather than curb these behaviors, it's better to enhance abilities, build on strengths, and offer supports that will naturally lead to more desirable behavior and a better quality of life. In fact, argues Dr. Prizant, attempts to eliminate autistic behaviors may actually interfere with important developmental processes.Including inspiring stories and practical advice drawn from Dr. Prizant's four-decade career working in universities, schools, hospitals, and in private practice, Uniquely Human offers a compassionate and insightful perspective that parents, professionals, and family members will find uplifting and hopeful.

Animals in Translation: Using the Mysteries of Autism to Decode Animal Behavior


Temple Grandin - 2004
    She has a perspective like that of no other expert in the field, which allows her to offer unparalleled observations and groundbreaking ideas.People with autism can often think the way animals think, putting them in the perfect position to translate "animal talk." Grandin is a faithful guide into their world, exploring animal pain, fear, aggression, love, friendship, communication, learning, and, yes, even animal genius. The sweep of Animals in Translation is immense and will forever change the way we think about animals.*includes a Behavior and Training Troubleshooting Guide Among its provocative ideas, the book:~argues that language is not a requirement for consciousness--and that animals do have consciousness.~applies the autism theory of "hyper-specificity" to animals, showing that animals and autistic people are so sensitive to detail that they "can't see the forest for the trees"--a talent as well as a "deficit".~explores the "interpreter" in the normal human brain that filters out detail, leaving people blind to much of the reality that surrounds them--a reality animals and autistic people see, sometimes all too clearly.~explains how animals have "superhuman" skills: animals have animal genius.~compares animals to autistic savants, declaring that animals may in fact be autistic savants, with special forms of genius that normal people do not possess and sometimes cannot even see.~examines how humans and animals use their emotions to think, to decide, and even to predict the future.~reveals the remarkable abilities of handicapped people and animals .~maintains that the single worst thing you can do to an animal is to make it feel afraid.