Bloom: Finding Beauty in the Unexpected--A Memoir


Kelle Hampton - 2012
    The author of the popular blog Enjoying the Small Things—named The Bump’s Best Special Needs Blog and The Blog You’ve Learned the Most From in the 2010 BlogLuxe Awards—Kelle Hampton interweaves lyrical prose and stunning four-color photography as she recounts the unforgettable story of the first year in the life of her daughter Nella, who has Down syndrome. Poignant, eye-opening, and heart-soaring, Hampton’s Bloom is ultimately about embracing life and really living it.

Road Map to Holland: How I Found My Way Through My Son's First Two Years with Down Syndrome


Jennifer Graf Groneberg - 2008
    You need a new road map, and fast...When Jennifer Groneberg and her husband learned they'd be having twin boys, their main concern was whether they'd need an addition on their house. Then, five days after Avery and Bennett were born, Avery was diagnosed with Down syndrome.Here, Jennifer shares the story of what followed. She dealt with doctors-some who helped, and some who were disrespectful or even dangerous. She saw some relationships in her life grow stronger, while severing ties with people who proved unsupportive. And she continues to struggle to find balance in the hardships and joys of raising a child with special needs. This book is a resource, a companion for parents, and above all, a story of the love between a mother and her son-as she learns that Avery is exactly the child she never knew she wanted.

Raising Henry: A Memoir of Motherhood, Disability, and Discovery


Rachel Adams - 2013
    She had an adoring husband, a beautiful two-year-old son, a sunny Manhattan apartment, and a position as a tenured professor at Columbia University. Everything changed with the birth of her second child, Henry. Just minutes after he was born, doctors told her that Henry had Down syndrome, and she knew that her life would never be the same. In this honest, self-critical, and surprisingly funny book, Adams chronicles the first three years of Henry’s life and her own transformative experience of unexpectedly becoming the mother of a disabled child. A highly personal story of one family’s encounter with disability, Raising Henry is also an insightful exploration of today’s knotty terrain of social prejudice, disability policy, genetics, prenatal testing, medical training, and inclusive education. Adams untangles the contradictions of living in a society that is more enlightened and supportive of people with disabilities than ever before, yet is racing to perfect prenatal tests to prevent children like Henry from being born. Her book is gripping, beautifully written, and nearly impossible to put down. Once read, her family’s story is impossible to forget.

Expecting Adam: A True Story of Birth, Rebirth, and Everyday Magic


Martha N. Beck - 1999
    This "rueful, riveting, piercingly funny" (Julia Cameron) book is written by a Harvard graduate--but it tells a story in which hearts trump brains every time. It's a tale about mothering a Down syndrome child that opts for sass over sap, and it's a book of heavenly visions and inexplicable phenomena that's as down-to-earth as anyone could ask for. This small masterpiece is Martha Beck's own story--of leaving behind the life of a stressed-out superachiever, opening herself to things she'd never dared consider, meeting her son for (maybe) the first time...and "unlearn[ing] virtually everything Harvard taught [her] about what is precious and what is garbage.""Beck [is] very funny, particularly about the most serious possible subjects--childbirth, angels and surviving at Harvard." --New York Times Book Review"Immensely appealing...hooked me on the first page and propelled me right through visions and out-of-body experiences I would normally scoff at." --Detroit Free Press"I challenge any reader not to be moved by it." --Newsday"Brilliant." --Minneapolis Star-Tribune

The Anti-Romantic Child: A Story of Unexpected Joy


Priscilla Gilman - 2011
    This haunting and lyrical memoir will be an invaluable and heartening guide to all who find themselves in similar situations and indeed anyone confronting an unforeseen challenge.”—Marie Brenner, writer for Vanity Fair and author of Apples and Oranges With an emotionally resonant combination of memoir and literature, Wordsworth scholar Priscilla Gilman recounts the challenges of raising a son with hyperlexia, a developmental disorder neurologically counterpoint to dyslexia. Gilman explores the complexities of our hopes and expectations for our children and ourselves. With luminous prose and a searing, personal story evocative of A Year of Magical Thinking and A Year of Reading Proust, Gilman’s The Anti-Romantic Child is an unforgettable exploration of what happens when we lean to embrace the unexpected.

Riding the Bus with My Sister: A True Life Journey


Rachel Simon - 2002
    Beth spends her days riding the buses in her Pennsylvania city. The drivers, a lively group, are her mentors; her fellow passengers are her community. One day, Beth asked Rachel to accompany her on the buses for an entire year; the book is the chronicle of that remarkable time. Rachel, a writer and college teacher whose hyperbusy life camouflaged her emotional isolation, had much to learn in her sister's extraordinary world. Here are life lessons from which every reader can profit: how to live in the moment, how to pay attention to what really matters, how to change, how to love, —and how to slow down and enjoy the ride. Simon elegantly braids together riveting memories of terrifying maternal abandonment, fierce sisterly loyalty, and astonishing forgiveness. She brings to light the almost invisible world of mental retardation, finds unlikely heroes in everyday life, and portrays her very special sister Beth as the endearing and indomitable person she is. This heartwarming book takes the reader on an inspirational journey, at once unique and universal.

It Sucked and Then I Cried: How I Had a Baby, a Breakdown, and a Much Needed Margarita


Heather B. Armstrong - 2009
    The eighteen months that followed were filled with anxiety, constipation, nacho cheese Doritos, and an unconditional love that threatened to make her heart explode. Still, as baby Leta grew and her husband, Jon, returned to work, Heather faced lonely days, sleepless nights, and endless screaming that sometimes made her wish she'd never become a mother. Just as she was poised to throw another gallon of milk at her husband's head, she committed herself for a short stay in a mental hospital -- the best decision she ever made for her family.To the dedicated millions who can't get enough of Heather's unforgettably unique style and hilarious stories on her hugely popular blog, there's little she won't share about her daily life as a recovering Mormon, liberal daughter of Republicans, wife of a charming geek, lover of television that exceeds at being really awful, and stay-at-home mom to five-year-old Leta and two willful dogs.In It Sucked and Then I Cried, Heather tells, with trademark wit, the heartfelt, unrelentingly honest story of her battle with postpartum depression and all the other minor details of pregnancy and motherhood that no one cares to mention. Like how boring it can be to care for someone whose primary means of communication is through her bowels. And how long it can possibly take to reconvene the procedure that got you into this whole parenthood mess in the first place. And how you sometimes think you can't possibly go five more minutes without breathing in that utterly irresistible and totally redeemable fresh baby smell.It Sucked and Then I Cried is a brave cautionary tale about crossing over that invisible line to the other side (the parenting side), where everything changes and it only gets worse. But most of all, it's a celebration of a love so big it can break your heart into a million pieces.

The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son


Ian Brown - 2009
    At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.

The Year of Learning Dangerously: Adventures in Homeschooling


Quinn Cummings - 2012
    What could possibly go wrong? In this honest and wry memoir, popular blogger, author, and former child actor Quinn Cummings recounts her family’s decision to wade into the unfamiliar waters of homeschooling – the fastest-growing educational trend of our time -- despite a chronic lack of discipline, some major gaps in academic knowledge, and a serious case of math aversion. (And that’s just Quinn.) Quinn’s fearless quest includes some self-homeschooling – reading up on education reform, debating the need for “socialization,” and infiltrating conferences filled with Radical Unschoolers as well as Christian fundamentalists (and even chaperoning a homeschool prom). Part personal narrative, part social commentary, and part how-not-to guide, The Year of Learning Dangerously will make you laugh and make you think. And there may or may not be a quiz at the end. OK, there’s no quiz. Probably.

Carly's Voice: Breaking Through Autism


Arthur Fleischmann - 2012
    Doctors predicted that she would never intellectually develop beyond the abilities of a small child. Although she made some progress after years of intensive behavioral and communication therapy, Carly remained largely unreachable. Then, at the age of ten, she had a breakthrough. While working with her devoted therapists Howie and Barb, Carly reached over to their laptop and typed in "HELP TEETH HURT," much to everyone's astonishment. This was the beginning of Carly's journey toward self-realization. Although Carly still struggles with all the symptoms of autism, which she describes with uncanny accuracy and detail, she now has regular, witty, and profound conversations on the computer with her family, her therapists, and the many thousands of people who follow her via her blog, Facebook, and Twitter. In Carly's Voice, her father, Arthur Fleischmann, blends Carly's own words with his story of getting to know his remarkable daughter. One of the first books to explore firsthand the challenges of living with autism, it brings readers inside a once-secret world and in the company of an inspiring young woman who has found her voice and her mission.

Choosing Naia: A Family's Journey


Mitchell Zuckoff - 2002
    A dramatic and carefully detailed account of one family's journey through the maze of genetic counseling, medical technology, and disability rights; destined to become required reading for anyone touched by any of these issues.

The Lucky Few: Finding God's Best in the Most Unlikely Places


Heather Avis - 2017
    That's what adoptive mom Heather Avis learned, and that's the invitation of this book.As the mother of three adopted children - two with Down syndrome - Heather Avis has learned that it's truly the lucky few who get to live a life like hers, who actually recognize that God's plans are best, even when they seem so radically different from the plans we have for ourselves.When Heather started her journey into parenthood she never thought it would look like this, never planned to have three adopted children, and certainly never imagined that two of them would have Down syndrome. But like most things God does, once she stepped into the craziness and confusion that comes with the unknown and the unplanned, she realized that they were indeed among the lucky few.Discover in this book what 70,000+ followers of Heather's hit Instagram account @macymakesmyday already know: the power of faith and family can help us stay strong in the toughest times. This book will also be especially touching to those with adopted family members or children with Down syndrome in their lives.

Schuyler's Monster: A Father's Journey with His Wordless Daughter


Robert Rummel-Hudson - 2008
    Once they knew why she couldn’t speak, they needed to determine how to help her learn. They didn’t know that Schuyler was going to teach them a thing or two about fearlessness, tenacity, and joy.Schuyler’s Monster is more than the memoir of a parent dealing with a child’s disability. It is the story of the relationship between a unique and ethereal little girl floating through the world without words, and her earthbound father who struggles with whether or not he is the right dad for the job. It is the story of a family seeking answers to a child’s dilemma, but it is also a chronicle of their unique relationships, formed without traditional language against the expectations of a doubting world. It is a story that has equal measure of laughter and tears. Ultimately, it is the tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs. Schuyler can now communicate through assistive technology, and continues to be the source of her father's inspiration, literary and otherwise.

What Made Maddy Run: The Secret Struggles and Tragic Death of an All-American Teen


Kate Fagan - 2017
    This was a girl who succeeded at everything she tried, and who was only getting started.But when Maddy began her long-awaited college career, her parents noticed something changed. Previously indefatigable Maddy became withdrawn, and her thoughts centered on how she could change her life. In spite of thousands of hours of practice and study, she contemplated transferring from the school that had once been her dream. When Maddy's dad, Jim, dropped her off for the first day of spring semester, she held him a second longer than usual. That would be the last time Jim would see his daughter.What Made Maddy Run began as a piece that Kate Fagan, a columnist for espnW, wrote about Maddy's life. What started as a profile of a successful young athlete whose life ended in suicide became so much larger when Fagan started to hear from other college athletes also struggling with mental illness. This is the story of Maddy Holleran's life, and her struggle with depression, which also reveals the mounting pressures young people, and college athletes in particular, face to be perfect, especially in an age of relentless connectivity and social media saturation.

Four Seasons in Rome: On Twins, Insomnia, and the Biggest Funeral in the History of the World


Anthony Doerr - 2007
    From the award-winning author of The Shell Collector and About Grace comes an evocative memoir of the timeless beauty of Rome and the day-to-day wonderment of living, writing, and raising twin boys in a foreign city.