Book picks similar to
Exiting Nirvana: A Daughter's Life with Autism by Clara Claiborne Park
autism
non-fiction
nonfiction
psychology
Parallel Play
Tim Page - 2009
In 1997, Tim Page won the Pulitzer Prize for Criticism for his work as the chief classical music critic of The Washington Post, work that the Pulitzer board called “lucid and illuminating.” Three years later, at the age of 45, he was diagnosed with Asperger's syndrome–an autistic disorder characterized by often superior intellectual abilities but also by obsessive behavior, ineffective communication, and social awkwardness. In a personal chronicle that is by turns hilarious and heartbreaking, Page revisits his early days through the prism of newfound clarity. Here is the tale of a boy who could blithely recite the names and dates of all the United States’ presidents and their wives in order (backward upon request), yet lacked the coordination to participate in the simplest childhood games. It is the story of a child who memorized vast portions of the World Book Encyclopedia simply by skimming through its volumes, but was unable to pass elementary school math and science. And it is the triumphant account of a disadvantaged boy who grew into a high-functioning, highly successful adult–perhaps not despite his Asperger’s but because of it, as Page believes. For in the end, it was his all-consuming love of music that emerged as something around which to construct a life and a prodigious career. In graceful prose, Page recounts the eccentric behavior that withstood glucose-tolerance tests, anti-seizure medications, and sessions with the school psychiatrist, but which above all, eluded his own understanding. A poignant portrait of a lifelong search for answers, Parallel Play provides a unique perspective on Asperger's and the well of creativity that can spring forth as a result of the condition.
The Still Point of the Turning World
Emily Rapp - 2013
But all of these plans changed when Ronan was diagnosed at nine months old with Tay-Sachs disease, a rare and always-fatal degenerative disorder. Ronan was not expected to live beyond the age of three; he would be permanently stalled at a developmental level of six months. Rapp and her husband were forced to re-evaluate everything they thought they knew about parenting. They would have to learn to live with their child in the moment; to find happiness in the midst of sorrow; to parent without a future.The Still Point of the Turning World is the story of a mother’s journey through grief and beyond it. Rapp’s response to her son’s diagnosis was a belief that she needed to “make my world big”—to make sense of her family’s situation through art, literature, philosophy, theology and myth. Drawing on a broad range of thinkers and writers, from C.S. Lewis to Sylvia Plath, Hegel to Mary Shelley’s Frankenstein, Rapp learns what wisdom there is to be gained from parenting a terminally ill child. In luminous, exquisitely moving prose she re-examines our most fundamental assumptions about what it means to be a good parent, to be a success, and to live a meaningful life.
A Stolen Life
Jaycee Dugard - 2011
It was the last her family and friends saw of her for over eighteen years. On 26 August 2009, Dugard, her daughters, and Phillip Craig Garrido appeared in the office of her kidnapper's parole officer in California. Their unusual behaviour sparked an investigation that led to the positive identification of Jaycee Lee Dugard, living in a tent behind Garrido's home. During her time in captivity, at the age of fourteen and seventeen, she gave birth to two daughters, both fathered by Garrido. Dugard's memoir is written by the 30-year-old herself and covers the period from the time of her abduction in 1991 up until the present. In her stark, utterly honest and unflinching narrative, Jaycee opens up about what she experienced, including how she feels now, a year after being found. Garrido and his wife Nancy have since pleaded guilty to their crimes.
Becoming Nicole: The Transformation of an American Family
Amy Ellis Nutt - 2015
But it wasn’t long before they noticed a marked difference between Jonas and his brother, Wyatt. Jonas preferred sports and trucks and many of the things little boys were “supposed” to like; but Wyatt liked princess dolls and dress-up and playing Little Mermaid. By the time the twins were toddlers, confusion over Wyatt’s insistence that he was female began to tear the family apart. In the years that followed, the Maineses came to question their long-held views on gender and identity, to accept and embrace Wyatt’s transition to Nicole, and to undergo an emotionally wrenching transformation of their own that would change all their lives forever.Becoming Nicole chronicles a journey that could have destroyed a family but instead brought it closer together. It’s the story of a mother whose instincts told her that her child needed love and acceptance, not ostracism and disapproval; of a Republican, Air Force veteran father who overcame his deepest fears to become a vocal advocate for trans rights; of a loving brother who bravely stuck up for his twin sister; and of a town forced to confront its prejudices, a school compelled to rewrite its rules, and a courageous community of transgender activists determined to make their voices heard. Ultimately, Becoming Nicole is the story of an extraordinary girl who fought for the right to be herself.Granted wide-ranging access to personal diaries, home videos, clinical journals, legal documents, medical records, and the Maineses themselves, Amy Ellis Nutt spent almost four years reporting this immersive account of an American family confronting an issue that is at the center of today’s cultural debate. Becoming Nicole will resonate with anyone who’s ever raised a child, felt at odds with society’s conventions and norms, or had to embrace life when it plays out unexpectedly. It’s a story of standing up for your beliefs and yourself—and it will inspire all of us to do the same.
Sometimes Amazing Things Happen: Heartbreak and Hope on the Bellevue Hospital Psychiatric Prison Ward
Elizabeth Ford - 2017
Elizabeth Ford went through medical school unsure of where she belonged. It wasn’t until she did her psychiatry rotation that she found her calling—to care for one of the most vulnerable populations of mentally ill people, the inmates of New York's jails, including Rikers Island, who are so sick that they are sent to the Bellevue Hospital Prison Ward for care.These men were broken, unloved, without resources or support, and very ill. They could be violent, unpredictable, but they could also be funny and tender and needy. Mostly, they were human and they awakened in Ford a boundless compassion. Her patients made her a great doctor and a better person and, as she treated these men, she learned about doctoring, about nurturing, about parenting, and about love. While Ford was a psychiatrist at Bellevue she becomes a wife and a mother. In her book she shares her struggles to balance her life and her work, to care for her children and her patients, and to maintain the empathy that is essential to her practice—all in the face of a jaded institution, an exhausting workload, and the deeply emotionally taxing nature of her work. Ford brings humor, grace, and humanity to the lives of the patients in her care and in beautifully rendered prose illuminates the inner workings (and failings) of our mental health system, our justice system, and the prison system.
Being Heumann: An Unrepentant Memoir of a Disability Rights Activist
Judith Heumann - 2020
From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that fundamentally improved rights for disabled people.As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples' rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act.Candid, intimate, and irreverent, Judy Heumann's memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.
The World's Strongest Librarian: A Memoir of Tourette's, Faith, Strength, and the Power of Family
Josh Hanagarne - 2013
Although he wouldn't officially be diagnosed with Tourette Syndrome until his freshman year of high school, Josh was six years old and onstage in a school Thanksgiving play when he first began exhibiting symptoms. By the time he was twenty, the young Mormon had reached his towering adult height of 6'7" when — while serving on a mission for the Church of Latter Day Saints — his Tourette's tics escalated to nightmarish levels.Determined to conquer his affliction, Josh underwent everything from quack remedies to lethargy-inducing drug regimes to Botox injections that paralyzed his vocal cords and left him voiceless for three years. Undeterred, Josh persevered to marry and earn a degree in Library Science. At last, an eccentric, autistic strongman — and former Air Force Tech Sergeant and guard at an Iraqi prison — taught Josh how to "throttle" his tics into submission through strength-training.Today, Josh is a librarian in the main branch of Salt Lake City's public library and founder of a popular blog about books and weight lifting—and the proud father of four-year-old Max, who has already started to show his own symptoms of Tourette's.The World's Strongest Librarian illuminates the mysteries of this little-understood disorder, as well as the very different worlds of strongman training and modern libraries. With humor and candor, this unlikely hero traces his journey to overcome his disability — and navigate his wavering Mormon faith — to find love and create a life worth living.
Unnatural Causes: The Life and Many Deaths of Britain's Top Forensic Pathologist
Richard Shepherd - 2018
When death is sudden or unexplained, it falls to Shepherd to establish the cause. Each post-mortem is a detective story in its own right - and Shepherd has performed over 23,000 of them. Through his skill, dedication and insight, Dr Shepherd solves the puzzle to answer our most pressing question: how did this person die?From serial killer to natural disaster, 'perfect murder' to freak accident, Shepherd takes nothing for granted in pursuit of truth. And while he's been involved in some of the most high-profile cases of recent times, it's often the less well known encounters that prove the most perplexing, intriguing and even bizarre. In or out of the public eye, his evidence has put killers behind bars, freed the innocent and turned open-and-shut cases on their heads.But a life in death, bearing witness to some of humanity's darkest corners, exacts a price and Shepherd doesn't flinch from counting the cost to him and his family.
How to Fail: Everything I’ve Ever Learned From Things Going Wrong
Elizabeth Day - 2019
This is a book for anyone who has ever failed. Which means it’s a book for everyone. If I have learned one thing from this shockingly beautiful venture called life, it is this: failure has taught me lessons I would never otherwise have understood. I have evolved more as a result of things going wrong than when everything seemed to be going right. Out of crisis has come clarity, and sometimes even catharsis.Part memoir, part manifesto, and including chapters on dating, work, sport, babies, families, anger and friendship, it is based on the simple premise that understanding why we fail ultimately makes us stronger. It's a book about learning from our mistakes and about not being afraid. Uplifting, inspiring and rich in stories from Elizabeth’s own life, How to Fail reveals that failure is not what defines us; rather it is how we respond to it that shapes us as individuals. Because learning how to fail is actually learning how to succeed better. And everyone needs a bit of that.
The Boy Who Loved Tornadoes
Randi Davenport - 2010
And at fifteen, her son Chase entered an unremitting psychosis—pursued by terrifying images, unable to recognize his own mother, unwilling to eat or even talk—becoming ever more tortured and unreachable.Beautifully written and profoundly moving, this is the heartbreaking yet triumphant story of how Randi Davenport navigated the byzantine and broken health care system and managed not just to save her son from the brink of suicide but to bring him back to her again, and make her family whole.In The Boy Who Loved Tornadoes, she gives voice to the experiences of countless families whose struggles with mental illness are likewise invisible to the larger world.
Kid Gloves: Nine Months of Careful Chaos
Lucy Knisley - 2019
But when it was finally the perfect time, conceiving turned out to be harder than anything she’d ever attempted. Fertility problems were followed by miscarriages, and her eventual successful pregnancy plagued by health issues, up to a dramatic, near-death experience during labor and delivery.This moving, hilarious, and surprisingly informative memoir not only follows Lucy’s personal transition into motherhood but also illustrates the history and science of reproductive health from all angles, including curious facts and inspiring (and notorious) figures in medicine and midwifery. Whether you’ve got kids, want them, or want nothing to do with them, there’s something in this graphic memoir to open your mind and heart.
Acquainted with the Night: A Parent's Quest to Understand Depression and Bipolar Disorder in His Children
Paul Raeburn - 2004
He was hospitalized three times over the next three years until he was finally diagnosed by a psychiatrist as someone exhibiting a clear-cut case of bipolar disorder. This ended a painful period of misdiagnosis and inappropriate drug therapy. Then Raeburn’s younger daughter, Alicia, twelve, was diagnosed as suffering from depression after episodes of self-mutilation and suicidal thoughts. She too was repeatedly admitted to psychiatric hospitals. All during this terrible, painful time, Raeburn’s marriage was disintegrating, and he had to ask what he and his wife might have done, unwittingly, to contribute to their children’s mental illness. And so, literally to save his children’s lives, he used all the resources available to him as a science reporter and writer to educate himself on their diseases and the various drugs and therapies available to help them return from a land of inner torment. In Paul Raeburn’s skilled hands, this memoir of a family stricken with the pain of depression and mania becomes a cathartic story that any reader can share, even as parents unlucky enough to be in a similar position will find it of immeasurable practical value in their own struggles with the child psychiatry establishment.
Elena Vanishing
Elena Dunkle - 2015
Every day means renewed determination, so every day means fewer calories. This is the story of a girl whose armor against anxiety becomes artillery against herself as she battles on both sides of a lose-lose war in a struggle with anorexia. Told entirely from Elena's perspective over a five-year period and co-written with her mother, award-winning author Clare B. Dunkle, Elena's memoir is a fascinating and intimate look at a deadly disease, and a must read for anyone who knows someone suffering from an eating disorder.
So Sad Today: Personal Essays
Melissa Broder - 2016
In the fall of 2012, she went through a harrowing cycle of panic attacks and dread that wouldn't abate for months. So she began @sosadtoday, an anonymous Twitter feed that allowed her to express her darkest feelings, and which quickly gained a dedicated following. In So Sad Today, Broder delves deeper into the existential themes she explores on Twitter, grappling with sex, death, love, low self-esteem, addiction, and the drama of waiting for the universe to text you back. With insights as sharp as her humor, Broder explores—in prose that is both gutsy and beautiful, aggressively colloquial and achingly poetic—questions most of us are afraid to even acknowledge, let alone answer, in order to discover what it really means to be a person in this modern world.
Nothing Good Can Come from This
Kristi Coulter - 2018
Nothing Good Can Come from This is her debut--a frank, funny, and feminist essay collection by a keen-eyed observer no longer numbed into complacency.When Kristi stopped drinking, she started noticing things. Like when you give up a debilitating habit, it leaves a space, one that can't easily be filled by mocktails or ice cream or sex or crafting. And when you cancel Ros� Season for yourself, you're left with just Summer, and that's when you notice that the women around you are tanked--that alcohol is the oil in the motors that keeps them purring when they could be making other kinds of noise.In her sharp, incisive debut essay collection, Coulter reveals a portrait of a life in transition. By turns hilarious and heartrending, Nothing Good Can Come from This introduces a fierce new voice to fans of Sloane Crosley, David Sedaris, and Cheryl Strayed--perfect for anyone who has ever stood in the middle of a so-called perfect life and looked for an escape hatch.