Book picks similar to
Shouting Won't Help: Why I--and 50 Million Other Americans--Can't Hear You by Katherine Bouton
non-fiction
nonfiction
memoir
disability
The Nurses: A Year of Secrets, Drama, and Miracles with the Heroes of the Hospital
Alexandra Robbins - 2015
Lara, a superstar nurse who tries to battle her way back from a near-ruinous prescription-drug addiction. The outspoken but compassionate Juliette, a fierce advocate for her patients. And Sam, a first-year nurse, struggling to find her way in a gossipy mean-girl climate she likens to “high school, except for the dying people.”The result is a riveting page-turner, insightful and thought-provoking, that will leave readers feeling smarter about their healthcare and undeniably appreciative of the incredible nurses who provide it.
A Journey Round My Skull
Frigyes Karinthy - 1936
Soon it was gone, only to be succeeded by another. And another. Strange, Karinthy thought, it had been years since Budapest had streetcars. Only then did he realize he was suffering from an auditory hallucination of extraordinary intensity. What in fact Karinthy was suffering from was a brain tumor, not cancerous but hardly benign, though it was only much later—after spells of giddiness, fainting fits, friends remarking that his handwriting had altered, and books going blank before his eyes—that he consulted a doctor and embarked on a series of examinations that would lead to brain surgery. Karinthy’s description of his descent into illness and his observations of his symptoms, thoughts, and feelings, as well as of his friends’ and doctors’ varied responses to his predicament, are exact and engrossing and entirely free of self-pity. A Journey Round My Skull is not only an extraordinary piece of medical testimony, but a powerful work of literature—one that dances brilliantly on the edge of extinction.
Second Suns: Two Doctors and Their Amazing Quest to Restore Sight and Save Lives
David Oliver Relin - 2013
In this transporting book, David Oliver Relin shines a light on the work of Geoffrey Tabin and Sanduk Ruit, gifted ophthalmologists who have dedicated their lives to restoring sight to some of the world’s most isolated, impoverished people through the Himalayan Cataract Project, an organization they founded in 1995. Tabin was the high-achieving bad boy of Harvard Medical School, an accomplished mountain climber and adrenaline junkie as brilliant as he was unconventional. Ruit grew up in a remote Nepalese village, where he became intimately acquainted with the human costs of inadequate access to health care. Together they found their life’s calling: tending to the afflicted people of the Himalayas, a vast mountainous region with an alarmingly high incidence of cataract blindness. Second Suns takes us from improvised plywood operating tables in villages without electricity or plumbing to state-of-the-art surgical centers at major American universities where these two driven men are restoring sight—and hope—to patients from around the world. With their revolutionary, inexpensive style of surgery, Tabin and Ruit have been able to cure tens of thousands—all for about twenty dollars per operation. David Oliver Relin brings the doctors’ work to vivid life through poignant portraits of patients helped by the surgery, from old men who cannot walk treacherous mountain trails unaided to cataract-stricken children who have not seen their mothers’ faces for years. With the dexterity of a master storyteller, Relin shows the profound emotional and practical impact that these operations have had on patients’ lives. Second Suns is the moving, unforgettable story of how two men with a shared dream are changing the world, one pair of eyes at a time.Praise for Second Suns
“As miracles go, it’s hard to beat making the blind see. Yet that’s exactly what the eye surgeon Dr. Geoffrey Tabin can do. He services poor people in the developing world who have developed cataracts—a clouding of the lens of the eye that is the world’s leading cause of blindness. . . . Second Suns is a hopeful work, a profile of two doctors who have dedicated their lives to bringing light to those in darkness.”—Time
“A compelling and inspiring book . . . Second Suns portrays heroic health care delivered under harrowing conditions: Ruit and his teams carry their equipment on multi-day treks up steep mountain trails, sometimes hiking at night with flashlights or head lamps, to reach settlements where they typically spend several days operating on hundreds of villagers in makeshift surgical theaters.”—The Washington Post
“Second Suns should be required reading for anybody with an interest in humanitarian philanthropy—or, for that matter, a desire to feel a little better about the world.”—Outside
“A detailed, heartfelt account of the work of [two] dedicated pioneers.”—Kirkus Reviews
Life After Deaf: My Misadventures in Hearing Loss and Recovery
Noel Holston - 2019
On a spring night in 2010, Noel Holston, a journalist, songwriter, and storyteller, went to bed with reasonably intact hearing. By dawn, it was gone, thus beginning a long process of hearing-restoration that included misdiagnoses, an obstinate health-insurance bureaucracy, failed cochlear-implant surgery, and a second surgery that finally worked. He negotiated the gauntlet with a wry sense of humor and the aid of his supportive wife, Marty. Life After Deaf details his experience with warmth, understanding, and candor. It’s the story not only of his way back to the world of the hearing, but of a great marriage that weathered serious testing. Their determination and resilience serve as a source of inspiration for all.Life After Deaf is not just for the more than forty million people in the United States alone who cope with some form of hearing loss, but is also for their wide circles of friends, family, caregivers, and audiologists. This highly readable book will be an invaluable guide and source of hope for the large number of baby boomers now handling hearing loss.
The Reason I Jump: The Inner Voice of a Thirteen-Year-Old Boy with Autism
Naoki Higashida - 2005
Parents and family members who never thought they could get inside the head of their autistic loved one, at last, have a way to break through to the curious, subtle, and complex life within.Using an alphabet grid to painstakingly construct words, sentences, and thoughts that he is unable to speak out loud, Naoki answers even the most delicate questions that people want to know. Questions such as: “Why do people with autism talk so loudly and weirdly?” “Why do you line up your toy cars and blocks?” “Why don’t you make eye contact when you’re talking?” and “What’s the reason you jump?” (Naoki’s answer: “When I’m jumping, it’s as if my feelings are going upward to the sky.”) With disarming honesty and a generous heart, Naoki shares his unique point of view on not only autism but life itself. His insights—into the mystery of words, the wonders of laughter, and the elusiveness of memory—are so startling, so strange, and so powerful that you will never look at the world the same way again.
Rx
Rachel Lindsay - 2018
But work takes a strange turn when she is promoted onto the Pfizer account and suddenly finds herself on the other side of the curtain, developing ads for an anti-depressant drug. Overwhelmed by her professional life and the self-scrutiny it inspires, her mania takes hold. She quits her job to become an artist, only to be hospitalized by her parents against her will. Over the course of her two weeks in the ward, she tries to find a path out of the hospital and this cycle of treatment. One where she can live the life she wants, finding freedom and autonomy, without sacrificing her dreams in order to stay well.
Irritable Hearts: A PTSD Love Story
Mac McClelland - 2015
I dissociated... Changes in self-perception and hallucinations-those are some of my other symptoms. You are poison, I chanted silently to myself. And your poison is contagious."So begins Mac McClelland's powerful, unforgettable memoir, Irritable Hearts.When thirty-year-old, award-winning human rights journalist Mac McClelland left Haiti after reporting on the devastating earthquake of 2010, she never imagined how the assignment would irrevocably affect her own life. Back home in California, McClelland cannot stop reliving vivid scenes of violence. She is plagued by waking terrors, violent fantasies, and crippling emotional breakdowns. She can't sleep or stop crying. Her life in shambles, it becomes clear that she is suffering from Post-Traumatic Stress Disorder. Her bewilderment about this sudden loss of control is magnified by the intensity of her feelings for Nico, a French soldier she met in Port-au-Prince and with whom she connected instantly and deeply.With inspiring fearlessness, McClelland tackles perhaps her most harrowing assignment to date: investigating the damage in her own mind and repairing her broken psyche. She begins to probe the depths of her illness, exploring our culture's history with PTSD, delving into the latest research by the country's top scientists and therapists, and spending time with veterans and their families. McClelland discovers she is far from alone: while we frequently associate PTSD with wartime combat, it is more often caused by other manner of trauma and can even be contagious-close proximity to those afflicted can trigger its symptoms. As she confronts the realities of her diagnosis, she opens up to the love that seems to have found her at an inopportune moment.Irritable Hearts is a searing, personal medical mystery that unfolds at a breakneck pace. But it is also a romance. McClelland fights desperately to repair her heart so that she can give it to the kind, patient, and compassionate man with whom she wants to share a life. Vivid, suspenseful, tender, and intimate, Irritable Hearts is a remarkable exploration of vulnerability and resilience, control and acceptance. It is a riveting and hopeful story of survival, strength, and love.
Swimming in the Sink: An Episode of the Heart
Lynne Cox - 2016
Lynne Cox was a super athlete who broke many world records, among them swimming the English Channel at 15, being the first woman to swim across Cook Strait (15.2 miles) between the North and South Islands of New Zealand, and the first to swim off Antarctica in 32-degree water--for 25 minutes!--all without a wetsuit. And that's where "Swimming in the Sink" begins--at a laboratory at the University of London, with Cox's hand in cold water, hooked up to thermocouples and probes, with three scientists trying to make sense of her extraordinary human capabilities of athleticism. The test results paved the way for new medical and life-saving practices. As an athlete, Cox had put her heart into everything she'd ever accomplished. In turn her heart gave her great physical strength and endurance. In the midst of becoming the embodiment of a supreme endurance athlete, Cox had taken care of her elderly parents, both of whom passed away in quick succession followed by the death of her beloved Labrador retriever, leaving Lynne in shock from loss and loneliness and soon, literally, suffering from the debilitating effects of a broken heart. On the edge of a precipice, Cox was diagnosed with atrial fibrillation (Afib). As the prognosis went from bad to worse, Cox was in fear of living out a lesser life as an invalid with a pacemaker, hooked up to a defibrillator . . . for the first time, the very real possibility of her own death was before her. Cox writes of her full surrender to her increasing physical frailty, to her illness, her treatment, her slow pull toward recovery. In "Swimming in the Sink" we see her finding her way, writing about her transformative journey that led her away from her illlness back toward health, and slowly making her way toward the one aspect of her life that meant everything to her--freedom; mastery; transcendence--back to open waters, and the surprise that she never saw coming: falling in love."
The Bone Woman: A Forensic Anthropologist's Search for Truth in the Mass Graves of Rwanda, Bosnia, Croatia, and Kosovo
Clea Koff - 2001
Two years later, Clea Koff, a twenty-three-year-old forensic anthropologist, left the safe confines of a lab in Berkeley, California, to serve as one of sixteen scientists chosen by the United Nations to unearth the physical evidence of the Rwandan genocide. Over the next four years, Koff’s grueling investigations took her across geography synonymous with some of the worst crimes of the twentieth century. The Bone Woman is Koff’s unflinching, riveting account of her seven UN missions to Bosnia, Croatia, Kosovo, and Rwanda, as she shares what she saw, how it affected her, who was prosecuted based on evidence she found, and what she learned about the world. Yet even as she recounts the hellish nature of her work and the heartbreak of the survivors, she imbues her story with purpose, humanity, and a sense of justice. A tale of science in service of human rights, The Bone Woman is, even more profoundly, a story of hope and enduring moral principles.
Carly's Voice: Breaking Through Autism
Arthur Fleischmann - 2012
Doctors predicted that she would never intellectually develop beyond the abilities of a small child. Although she made some progress after years of intensive behavioral and communication therapy, Carly remained largely unreachable. Then, at the age of ten, she had a breakthrough. While working with her devoted therapists Howie and Barb, Carly reached over to their laptop and typed in "HELP TEETH HURT," much to everyone's astonishment. This was the beginning of Carly's journey toward self-realization. Although Carly still struggles with all the symptoms of autism, which she describes with uncanny accuracy and detail, she now has regular, witty, and profound conversations on the computer with her family, her therapists, and the many thousands of people who follow her via her blog, Facebook, and Twitter. In Carly's Voice, her father, Arthur Fleischmann, blends Carly's own words with his story of getting to know his remarkable daughter. One of the first books to explore firsthand the challenges of living with autism, it brings readers inside a once-secret world and in the company of an inspiring young woman who has found her voice and her mission.
In Shock: My Journey from Death to Recovery and the Redemptive Power of Hope
Rana Awdish - 2017
Rana Awdish never imagined that an emergency trip to the hospital would result in hemorrhaging nearly all of her blood volume and losing her unborn first child. But after her first visit, Dr. Awdish spent months fighting for her life, enduring consecutive major surgeries and experiencing multiple overlapping organ failures. At each step of the recovery process, Awdish was faced with something even more unexpected: repeated cavalier behavior from her fellow physicians—indifference following human loss, disregard for anguish and suffering, and an exacting emotional distance.Hauntingly perceptive and beautifully written, In Shock allows the reader to transform alongside Awidsh and watch what she discovers in our carefully-cultivated, yet often misguided, standard of care. Awdish comes to understand the fatal flaws in her profession and in her own past actions as a physician while achieving, through unflinching presence, a crystalline vision of a new and better possibility for us all.As Dr. Awdish finds herself up against the same self-protective partitions she was trained to construct as a medical student and physician, she artfully illuminates the dysfunction of disconnection. Shatteringly personal, and yet wholly universal, she offers a brave road map for anyone navigating illness while presenting physicians with a new paradigm and rationale for embracing the emotional bond between doctor and patient.
Radical: The Science, Culture, and History of Breast Cancer in America
Kate Pickert - 2019
That is, until she was unexpectedly diagnosed with an aggressive type of breast cancer at the age of 35. As she underwent more than a year of treatment, Pickert realized that the popular understanding of breast care in America bears little resemblance to the experiences of today's patients and the rapidly changing science designed to save their lives. After using her journalistic skills to navigate her own care, Pickert embarked on a quest to understand the cultural, scientific and historical forces shaping the lives of breast-cancer patients in the modern age.Breast cancer is one of history's most prolific killers. Despite billions spent on research and treatments, it remains one of the deadliest diseases facing women today. From the forests of the Pacific Northwest to an operating suite in Los Angeles to the epicenter of pink-ribbon advocacy in Dallas, Pickert reports on the turning points and people responsible for the progress that has been made against breast cancer and documents the challenges of defeating a disease that strikes one in eight American women and has helped shape the country's medical culture.Drawing on interviews with doctors, economists, researchers, advocates and patients, as well as on journal entries and recordings collected over the author's treatment, Radical puts the story of breast cancer into context, and shows how modern treatments represent a long overdue shift in the way doctors approach cancer -- and disease -- itself.
Carrier: Untangling the Danger in My DNA
Bonnie J. Rough - 2010
Rough receives the test results that confirm she is a carrier of the genetic condition "hypohidrotic ectodermal dysplasia," or H.E.D., it propels her on a journey deep into her family's past in the American West.At first glance, H.E.D. seems only to be a superficial condition: a peculiar facial bone structure, sparse hair, few teeth, and an inability to sweat. But a closer look reveals the source of a lifetime of infections, breathing problems, and drug dependency for Bonnie's grandfather Earl, who suffered from the disorder. After a boyhood as a small-town oddity and an adulthood fraught with disaster, Earl died penniless and alone at the age of 49. Bonnie's mother was left with an inheritance that included not just the gene for H.E.D., but also the emotional pain that came from witnessing her father's misery.As Bonnie and her husband consider becoming parents themselves, their biological legacy haunts every decision. The availability of genetic testing gives them new choices to make, choices more excruciating than any previous generation could have imagined. Ultimately, Carrier is a story of a modern moral crisis, one that reveals the eternal tension between past and future."
Sickened: The Memoir of a Munchausen by Proxy Childhood
Julie Gregory - 2003
Just twelve, she’s tall, skinny, and weak. It’s four o’clock, and she hasn’t been allowed to eat anything all day. Her mother, on the other hand, seems curiously excited. She's about to suggest open-heart surgery on her child to "get to the bottom of this." She checks her teeth for lipstick and, as the doctor enters, shoots the girl a warning glance. This child will not ruin her plans.SickenedFrom early childhood, Julie Gregory was continually X-rayed, medicated, and operated on—in the vain pursuit of an illness that was created in her mother’s mind. Munchausen by proxy (MBP) is the world’s most hidden and dangerous form of child abuse, in which the caretaker—almost always the mother—invents or induces symptoms in her child because she craves the attention of medical professionals. Many MBP children die, but Julie Gregory not only survived, she escaped the powerful orbit of her mother's madness and rebuilt her identity as a vibrant, healthy young woman.Sickened is a remarkable memoir that speaks in an original and distinctive Midwestern voice, rising to indelible scenes in prose of scathing beauty and fierce humor. Punctuated with Julie's actual medical records, it re-creates the bizarre cocoon of her family's isolated double-wide trailer, their wild shopping sprees and gun-waving confrontations, the astonishing naïveté of medical professionals and social workers. It also exposes the twisted bonds of terror and love that roped Julie's family together—including the love that made a child willing to sacrifice herself to win her mother's happiness. The realization that the sickness lay in her mother, not in herself, would not come to Julie until adulthood. But when it did, it would strike like lightning. Through her painful metamorphosis, she discovered the courage to save her own life—and, ultimately, the life of the girl her mother had found to replace her. Sickened takes us to new places in the human heart and spirit. It is an unforgettable story, unforgettably told.
Patient H69: The Story of My Second Sight
Vanessa Potter - 2017
She was hospitalized for two weeks. Over the next five months at home, she regained mobility but recovering her sight was more problematic. At first what she saw was monochromatic. As color reappeared, she encountered synesthesia (experiencing odd responses to stimuli, such as hearing inanimate objects talk to her). While a multidisciplinary team of neurobiologists, psychologists, immunologists, and developmental biologists treated her, she blogged and kept audio-diaries, using the pen-name Patient H69.In her own words, Potter reveals the terror and torment of her blindness. Supported by neuroscientists and Britain's National Health Service, Potter became a science sleuth, uncovering some of the innermost functions of the brain and our complex visual system, while learning meditation and self-hypnosis to help herself endure the ordeal and make a miraculous recovery.Her case offered scientists an important, and previously inaccessible, window into the process of early visual development, as her own optic nerves self-repaired and her brain went into overdrive. Patient H69 is a gripping human story, made all the more real by the unique response of one patient and the science she uncovers.