Look up for Yes


Julia Tavalaro - 1997
    Suddenly, just thirty-two years old, she was a prisoner in her own body and a victim of the ignorant and cruel treatment of hospital workers who neither noticed nor cared that the "vegetable" they changed and fed every day was actually a bright and emotional woman. In this powerful memoir, painstakingly written with the help of poet Richard Tayson, Tavalaro details the hellish life she endured as a defenseless patient, angry and desperate to die, and the liberating actions of two therapists who took the time to realize that she was not incognitive but rather brimming with intelligence and life.At last, Tavalaro managed to break through the isolation that imprisoned her. Slowly, methodically, she regained her ability to communicate -- aided by technological and therapeutic developments -- and began to compose poems that drew on the memories of her life before her stroke. Beautifully written and achingly heartrending, Look Up for Yes is a testament to a passionate and articulate woman who is ready and able to let the world know she is, indisputably, alive."A story of utter tragedy and the triumph of a woman with uncommon courage". -- Los Angeles Times

My Dyslexia


Philip Schultz - 2011
    Not until many years later, when his oldest son was diagnosed with dyslexia, did Schultz realize that he suffered from the same condition.In his moving memoir, Schultz traces his difficult childhood and his new understanding of his early years. In doing so, he shows how a boy who did not learn to read until he was eleven went on to become a prize-winning poet by sheer force of determination. His balancing act—life as a member of a family with not one but two dyslexics, countered by his intellectual and creative successes as a writer—reveals an inspiring story of the strengths of the human mind.

This Lovely Life


Vicki Forman - 2009
    During the delivery she begged the doctors to "let her babies go" — she knew all too well that at twenty-three weeks they could very well die and, if they survived, they would face a high risk of permanent disabilities. However, California law demanded resuscitation. Her daughter died just four days later; her son survived and was indeed multiply disabled: blind, nonverbal, and dependent on a feeding tube.This Lovely Life tells, with brilliant intensity, of what became of the Forman family after the birth of the twins — the harrowing medical interventions and ethical considerations involving the sanctity of life and death. In the end, the long delayed first steps of a five-year-old child will seem like the fist-pumping stuff of a triumph narrative. Forman’s intelligent voice gives a sensitive, nuanced rendering of her guilt, her anger, and her eventual acceptance in this portrait of a mother’s fierce love for her children.

Year of Yes


Shonda Rhimes - 2015
    With three hit shows on television and three children at home, Shonda Rhimes had lots of good reasons to say no when invitations arrived. Hollywood party? No. Speaking engagement? No. Media appearances? No. And to an introvert like Shonda, who describes herself as 'hugging the walls' at social events and experiencing panic attacks before press interviews, there was a particular benefit to saying no: nothing new to fear. Then came Thanksgiving 2013, when Shonda's sister Delorse muttered six little words at her: You never say yes to anything. Profound, impassioned and laugh-out-loud funny, in Year of Yes Shonda Rhimes reveals how saying YES changed -- and saved -- her life. And inspires readers everywhere to change their own lives with one little word: Yes.

All the Things We Never Knew: Chasing the Chaos of Mental Illness


Sheila Hamilton - 2015
    Even as a reporter, Sheila Hamilton missed the signs as her husband David's mental illness unfolded before her. By the time she had pieced together the puzzle, it was too late. Her once brilliant and passionate partner was dead within six weeks of a diagnosis of bipolar disorder, leaving his wife and nine-year-old daughter without so much as a note to explain his actions, a plan to help them recover from their profound grief, or a solution for the hundreds of thousands of dollars in debt that they would inherit from him.All the Things We Never Knew takes readers on a breathtaking journey, from David and Sheila's early romance through the last three months of their life together and into the year after his death. It details their unsettling spiral from ordinary life into the world of mental illness, examines the fragile line between reality and madness, and reveals the true power of love and forgiveness.

The Short and Tragic Life of Robert Peace: A Brilliant Young Man Who Left Newark for the Ivy League


Jeff Hobbs - 2014
    His charismatic father was later convicted of a double murder. Peace's intellectual brilliance and hard-won determination earned him a full scholarship to Yale University. At college, while majoring in molecular biophysics and biochemistry, he straddled the world of academia and the world of the street, never revealing his full self in either place. Upon graduation from Yale, he went home to teach at the Catholic high school he'd attended, slid into the drug trade, and was brutally murdered at age thirty.That's the short version of Robert Peace's life. The long version, the complete version, is this remarkable tour de force by Jeff Hobbs, a talented young novelist who was Peace's college roommate. Hobbs attended Peace's funeral, reached out to his friends from both Yale and Newark, and ultimately decided to write this harrowing and beautiful account of his life.What does the haunting, untimely death of one man mean? Robert Peace's life doesn't reduce to easy sociological constructions. Through Hobbs's relentless research and remarkable writing, we learn the cost of living between the world Peace was born into and the one his potential allowed him to enter. We see him work, love, fail, succeed, give to others, care for his mother, travel, and dream. We witness the decisions he made for himself and the ones that life forced upon him. But most importantly, we come to understand the sheer complexity of his existence and are irrevocably changed by the fascinating, devastating, and unforgettable life of Robert Peace.

Escape


Carolyn Jessop - 2007
    Merril Jessop already had three wives. But arranged plural marriages were an integral part of Carolyn’s heritage: She was born into and raised in the Fundamentalist Church of Jesus Christ of Latter-Day Saints (FLDS), the radical offshoot of the Mormon Church that had settled in small communities along the Arizona-Utah border. Over the next fifteen years, Carolyn had eight children and withstood her husband’s psychological abuse and the watchful eyes of his other wives who were locked in a constant battle for supremacy.Carolyn’s every move was dictated by her husband’s whims. He decided where she lived and how her children would be treated. He controlled the money she earned as a school teacher. He chose when they had sex; Carolyn could only refuse—at her peril. For in the FLDS, a wife’s compliance with her husband determined how much status both she and her children held in the family. Carolyn was miserable for years and wanted out, but she knew that if she tried to leave and got caught, her children would be taken away from her. No woman in the country had ever escaped from the FLDS and managed to get her children out, too. But in 2003, Carolyn chose freedom over fear and fled her home with her eight children. She had $20 to her name.Escape exposes a world tantamount to a prison camp, created by religious fanatics who, in the name of God, deprive their followers the right to make choices, force women to be totally subservient to men, and brainwash children in church-run schools. Against this background, Carolyn Jessop’s flight takes on an extraordinary, inspiring power. Not only did she manage a daring escape from a brutal environment, she became the first woman ever granted full custody of her children in a contested suit involving the FLDS. And in 2006, her reports to the Utah attorney general on church abuses formed a crucial part of the case that led to the arrest of their notorious leader, Warren Jeffs.

Sickened: The Memoir of a Munchausen by Proxy Childhood


Julie Gregory - 2003
    Just twelve, she’s tall, skinny, and weak. It’s four o’clock, and she hasn’t been allowed to eat anything all day. Her mother, on the other hand, seems curiously excited. She's about to suggest open-heart surgery on her child to "get to the bottom of this." She checks her teeth for lipstick and, as the doctor enters, shoots the girl a warning glance. This child will not ruin her plans.SickenedFrom early childhood, Julie Gregory was continually X-rayed, medicated, and operated on—in the vain pursuit of an illness that was created in her mother’s mind. Munchausen by proxy (MBP) is the world’s most hidden and dangerous form of child abuse, in which the caretaker—almost always the mother—invents or induces symptoms in her child because she craves the attention of medical professionals. Many MBP children die, but Julie Gregory not only survived, she escaped the powerful orbit of her mother's madness and rebuilt her identity as a vibrant, healthy young woman.Sickened is a remarkable memoir that speaks in an original and distinctive Midwestern voice, rising to indelible scenes in prose of scathing beauty and fierce humor. Punctuated with Julie's actual medical records, it re-creates the bizarre cocoon of her family's isolated double-wide trailer, their wild shopping sprees and gun-waving confrontations, the astonishing naïveté of medical professionals and social workers. It also exposes the twisted bonds of terror and love that roped Julie's family together—including the love that made a child willing to sacrifice herself to win her mother's happiness. The realization that the sickness lay in her mother, not in herself, would not come to Julie until adulthood. But when it did, it would strike like lightning. Through her painful metamorphosis, she discovered the courage to save her own life—and, ultimately, the life of the girl her mother had found to replace her. Sickened takes us to new places in the human heart and spirit. It is an unforgettable story, unforgettably told.

Banished: Surviving My Years in the Westboro Baptist Church


Lauren Drain - 2013
    Perhaps you've seen their pickets on the news, the members holding signs with messages that are too offensive to copy here, protesting at events such as the funerals of soldiers, the 9-year old victim of the recent Tucson shooting, and Elizabeth Edwards, all in front of their grieving families. The WBC is fervently anti-gay, anti-Semitic, and anti- practically everything and everyone. And they aren't going anywhere: in March, the U.S. Supreme Court ruled in favor of the WBC's right to picket funerals.Since no organized religion will claim affiliation with the WBC, it's perhaps more accurate to think of them as a cult. Lauren Drain was thrust into that cult at the age of 15, and then spat back out again seven years later.Lauren spent her early years enjoying a normal life with her family in Florida. But when her formerly liberal and secular father set out to produce a documentary about the WBC, his detached interest gradually evolved into fascination, and he moved the entire family to Kansas to join the church and live on their compound. Over the next seven years, Lauren fully assimilated their extreme beliefs, and became a member of the church and an active and vocal picketer. But as she matured and began to challenge some of the church's tenets, she was unceremoniously cast out from the church and permanently cut off from her family and from everyone else she knew and loved.Banished is the story of Lauren's fight to find herself amidst dramatic changes in a world of extremists and a life in exile.

Ido in Autismland: Climbing Out of Autism's Silent Prison


Ido Kedar - 2012
    In his pithy essays, author Ido Kedar, a brilliant sixteen year old with autism, challenges what he believes are misconceptions in many theories that dominate autism treatment today while he simultaneously chronicles his personal growth in his struggles to overcome his limitations.Ido spent the first half of his life locked internally, in silence, trapped in a remedial educational system that presumed he lacked the most basic comprehension, and unable to show the world that he understood everything. But at the age of seven, Ido was finally able to show that he had an intact mind and could understand. This led to the quest to find a system of communication that he could use despite his impaired motor control. Through the use of a letter board, and now an iPad, Ido has triumphed communicatively, enabling him to flourish in a regular high school in all general education classes.But Ido has a larger goal. He does not want to be seen as an isolated autistic exception with miraculously advanced cognitive and communication abilities. He wants people to see that thousands of other severely autistic individuals have the same capacity, but remain trapped and locked-in, as he was, unable to show their true capacities. These individuals desperately need new theories and new methods to help them break free too. Of importance to neuro-researchers, educators, psychologists, doctors, parents, friends, family and people with autism, Ido in Autismland will change our collective understanding of severe autism.PRAISE FOR Ido in Autismland "There are doubtless many Idos in this world, unable to speak, yet possessing good intellectual ability and, most certainly, a rich emotional life. And yet, precisely because they cannot communicate, nonverbal individuals with autism are nearly always consigned to the junk heap of mental deficiency, branded as incapable of understanding language or even having feelings... We need to help change things for this terribly neglected group... Reading Ido's book is a good beginning." - Portia Iversen, Co-founder, Cure Autism Now and the Autism Genetic Resource Exchange Gene Bank. Author of Strange Son"Ido is a brilliant communicator. His words bring us inside the world of autism. His gift of writing enlightens, inspires, educates. Every person who loves or works with someone with autism - educator, therapist, karent, grandparent, neighbor - should read Ido in Autismland." - Elaine Hall, Author of Now I See the Moon, co-author of Seven Keys to Unlock Autism. Featured in Autism: The Musical"Ido's book touches any heart, not only because it is well written, but because it reveals a mind that has learned how to speak to the world through spelling every word on a letter board and keyboard. His book is indeed a great gift to the world. Thank you, Ido." - Soma Mukhopadhyay, Executive Director of Education, HALO, Author of Understanding Autism through Rapid Prompting Method

The Warner Boys: Our Family’s Story of Autism and Hope


Curt Warner - 2018
    When they dropped from the public eye after Curt’s retirement, everyone assumed it was for a simpler life. But the reality behind their seclusion was a secret they hid from even their closest friends: their twins, Austin and Christian, had been diagnosed with severe autism. What followed was a painful struggle to hold their family and their marriage together in a home filled with chaos, emotional exhaustion, and constant fear for the safety of their unpredictable but beloved boys.Now, after years of silence, the Warners share their inspiring journey from stardom and success to heartbreaking self-imposed isolation. Above all, it’s a story of the life-changing truth that love for family and each other—no matter how challenged—is the path to healing and peace.The Warner Boys is the true story of a family who fought for their children and how they grew stronger against all odds.

Unfollow: A Journey from Hatred to Hope


Megan Phelps-Roper - 2019
    A loving home, shared with squabbling siblings, overseen by devoted parents. Yet in other ways it was the precise opposite: a revolving door of TV camera crews and documentary makers, a world of extreme discipline, of siblings vanishing in the night.Megan Phelps-Roper was raised in the Westboro Baptist Church - the fire-and-brimstone religious sect at once aggressively homophobic and anti-Semitic, rejoiceful for AIDS and natural disasters, and notorious for its picketing the funerals of American soldiers. From her first public protest, aged five, to her instrumental role in spreading the church's invective via social media, her formative years brought their difficulties. But being reviled was not one of them. She was preaching God's truth. She was, in her words, 'all in'.In November 2012, at the age of twenty-six, she left the church, her family, and her life behind. Unfollow is a story about the rarest thing of all: a person changing their mind. It is a fascinating insight into a closed world of extreme belief, a biography of a complex family, and a hope-inspiring memoir of a young woman finding the courage to find compassion for others, as well as herself.

Life, Animated: A Story of Sidekicks, Heroes, and Autism


Ron Suskind - 2014
    It is the saga of Owen Suskind, who happens to be the son of one of America's most noted writers, the Pulitzer Prize-winning journalist and author Ron Suskind. He's also autistic. The twisting, 20-year journey of this boy and his family will change that way you see autism, old Disney movies, and the power of imagination to heal a shattered, upside-down world.

My Age of Anxiety: Fear, Hope, Dread, and the Search for Peace of Mind


Scott Stossel - 2014
    Today, it is the most common form of officially classified mental illness. Scott Stossel gracefully guides us across the terrain of an affliction that is pervasive yet too often misunderstood. Drawing on his own long-standing battle with anxiety, Stossel presents an astonishing history, at once intimate and authoritative, of the efforts to understand the condition from medical, cultural, philosophical, and experiential perspectives. He ranges from the earliest medical reports of Galen and Hippocrates, through later observations by Robert Burton and Søren Kierkegaard, to the investigations by great nineteenth-century scientists, such as Charles Darwin, William James, and Sigmund Freud, as they began to explore its sources and causes, to the latest research by neuroscientists and geneticists. Stossel reports on famous individuals who struggled with anxiety, as well as on the afflicted generations of his own family. His portrait of anxiety reveals not only the emotion’s myriad manifestations and the anguish anxiety produces but also the countless psychotherapies, medications, and other (often outlandish) treatments that have been developed to counteract it. Stossel vividly depicts anxiety’s human toll—its crippling impact, its devastating power to paralyze—while at the same time exploring how those who suffer from it find ways to manage and control it. My Age of Anxiety is learned and empathetic, humorous and inspirational, offering the reader great insight into the biological, cultural, and environmental factors that contribute to the affliction.

Beyond the High Blue Air


Lu Spinney - 2017
    . ." He lands hard on the ice and falls into a coma. This begins the erratic loss -- Miles first in a coma and then trapped in a fluctuating state of minimal consciousness -- that unravels over the next five years. Spinney, her husband, and three other children put their lives on hold to tend to Miles at various hospitals and finally in a care home. They hold out hope that he will be returned to them. With blunt precision, Spinney chronicles her family's intimate experience. This is a story about ambiguous loss: the disappearance of someone who is still there. Three quarters of the way through, however, Spinney's story takes a turn. The family and, to the degree that he can communicate, Miles himself come to view ending his life as the only possible release from the prison of his body and mind. Spinney, cutting her last thread of hope, wishes for her son to die. And yet, even as she allows this difficult revelation to settle, she learns that this is not her decision to make. Because Miles is diagnosed as a being in a -minimally conscious state- rather than a -persistent vegetative state, - there is no legal way to bring about his death, a bewildering paradox that Spinney navigates with compassion and wisdom. Encompassing the lyrical revelations of a memoir like Jean-Dominique Bauby's THE DIVING BELL AND THE BUTTERFLY and the crucial medical and moral insights of a book such as Atul Gawande's BEING MORTAL, Lu Spinney's BEYOND THE HIGH BLUE AIR is at once a portrait of the fearlessness of familial love and the profound dilemma posed by modern medicine.