On Being Ill


Virginia Woolf - 1930
    We cannot quote Shakespeare to describe a headache. We must, Woolf says, invent language to describe pain. And though illness enhances our perceptions, she observes that it reduces self-consciousness; it is "the great confessional." Woolf discusses the cultural taboos associated with illness and explores how illness changes the way we read. Poems clarify and astonish, Shakespeare exudes new brilliance, and so does melodramatic fiction!On Being Ill was published as an individual volume by Hogarth Press in 1930. While other Woolf essays, such as A Room of One’s Own and Three Guineas, were first published by Hogarth as individual volumes and have since been widely available, On Being Ill has been overlooked. The Paris Press edition features original cover art by Woolf’s sister, the painter Vanessa Bell. Hermione Lee’s Introduction discusses this extraordinary work, and explores Woolf’s revelations about poetry, language, and illness.

Trans Like Me: A Journey for All of Us


C.N. Lester - 2017
    Lester, academic and activist, takes us on a journey through some of the most pressing issues concerning the trans debate: from pronouns to Caitlyn Jenner; from feminist and LGBTQ activists, to the rise in referrals for gender variant children -- all by way of insightful and moving passages about the author's own experience. Trans Like Me shows us how to strive for authenticity in a world which often seeks to limit us by way of labels.

NeuroTribes: The Legacy of Autism and the Future of Neurodiversity


Steve Silberman - 2015
      Along the way, he reveals the untold story of Hans Asperger, the father of Asperger’s syndrome, whose “little professors” were targeted by the darkest social-engineering experiment in human history; exposes the covert campaign by child psychiatrist Leo Kanner to suppress knowledge of the autism spectrum for fifty years; and casts light on the growing movement of "neurodiversity" activists seeking respect, support, technological innovation, accommodations in the workplace and in education, and the right to self-determination for those with cognitive differences.

The Hilarious World of Depression


John Moe - 2020
    As Moe came to terms with his own illness, he began to see similar patterns of behavior and coping mechanisms surfacing in conversations with others, including high-profile comedians who'd struggled with the disease. Moe saw that there was tremendous comfort and community in open dialogue about these shared experiences and that humor had a unique power. Thus was born the podcast The Hilarious World of Depression.Inspired by the immediate success of the podcast, Moe has written a remarkable investigation of the disease, part memoir of his own journey, part treasure trove of laugh-out-loud stories and insights drawn from years of interviews with some of the most brilliant minds facing similar challenges. Throughout the course of this powerful narrative, depression's universal themes come to light, among them, struggles with identity, lack of understanding of the symptoms, the challenges of work-life, self-medicating, the fallout of the disease in the lives of our loved ones, the tragedy of suicide, and the hereditary aspects of the disease.The Hilarious World of Depression illuminates depression in an entirely fresh and inspiring way.

Parkland: Birth of a Movement


Dave Cullen - 2019
    David Hogg called out Adult America. The uprising had begun. Cameron Kasky immediately recruited a colorful band of theatre kids and rising activists and brought them together in his living room to map out a movement. Four days after escaping Marjory Stoneman Douglas High School, two dozen extraordinary kids announced the audacious March for Our Lives. A month later, it was the fourth largest protest in American history.Dave Cullen, who has been reporting on the epidemic of school shootings for two decades, takes us along on the students’ nine-month odyssey to the midterms and beyond. With unrivaled access to their friends and families, meetings and homes, he pulls back the curtain to reveal intimate portraits of the quirky, playful organizers that have taken the nation by storm. Cullen brings us onto the bus for the Road to Change tour showing us how these kids seized an opportunity. They hit the highway to organize the young activist groups mushrooming across America in their image. Rattled but undeterred, they pressed on in gun country even as adversaries armed with assault weapons tailed them across Texas and Utah trying to scare them off. The Parkland students are genuinely candid about their experiences. We see them cope with shattered friendships and PTSD, along with the normal day-to-day struggles of school, including AP exams and college acceptances. Yet, with the idealism of youth they are mostly bubbling with fresh ideas. As victims refusing victimhood, they continue to devise clever new tactics to stir their generation to action while building a powerhouse network to match the NRA’s. This spell-binding book is a testament to change and a perceptive examination of a pivotal moment in American culture. After two decades of adult hand-wringing, the MFOL kids are mapping a way out. They see a long road ahead, a generational struggle to save every kid of every color from the ravages of gun violence in America. Parkland is a story of staggering empowerment and hope, told through the wildly creative and wickedly funny voices of a group of remarkable kids.

Hot & Heavy: Fierce Fat Girls on Life, Love & Fashion


Virgie Tovar - 2012
    Hot & Heavy rejects the idea that being thin is best, instead embracing the many fabulous aspects of being fat—building fat-positive spaces, putting together fat-friendly wardrobes, turning society’s rules into personal politics, and creating supportive, inclusive communities. Writers, activists, performers, and poets—including April Flores, Alysia Angel, Charlotte Cooper, Jessica Judd, Emily Anderson, Genne Murphy, and Tigress Osborn—cover everything from fat go-go dancing to queer dating to urban gardening in their essays, exploring their experiences with the word "fat," pinpointing particular moments that have impacted the way they think and feel about their bodies, and telling the story of how they each became fat revolutionaries.Ground-breaking and long overdue, Hot & Heavy is a fierce, sassy, thoughtful, authentic, and joyous collection of stories about unapologetically—and unconditionally—loving the body you’re in.

Fight of the Century: Writers Reflect on 100 Years of Landmark ACLU Cases


Michael ChabonSergio de la Pava - 2020
    A century after its founding, the ACLU remains the nation’s premier defender of the rights and freedoms guaranteed by the Constitution. In collaboration with the ACLU, prize-winning authors Michael Chabon and Ayelet Waldman have curated an anthology of essays about landmark cases in the ACLU’s 100-year history. In Fight of the Century, bestselling and award-winning authors present unique literary takes on historic decisions like Brown v. Board of Education, the Scopes trial, Roe v. Wade, and more. Contributors include Geraldine Brooks, Michael Cunningham, Jennifer Egan, Dave Eggers, Louise Erdrich, Neil Gaiman, Lauren Groff, Marlon James, Viet Thanh Nguyen, Morgan Parker, Ann Patchett, Salman Rushdie, George Saunders, Elizabeth Strout, Jesmyn Ward, Meg Wolitzer, and more. Fight of the Century shows how throughout American history, pivotal legal battles, fought primarily by underdogs and their lawyers, have advanced civil rights and social justice. The ACLU has been integral in this process. The essays range from personal memoir to narrative history, each shedding light on the work of one remarkable organization as it shaped a country. Chabon and Waldman are donating their advance to the ACLU and the contributors are forgoing payment.

Four Hundred Souls: A Community History of African America, 1619-2019


Ibram X. Kendi - 2021
    Kendi, author of the number one bestseller How To Be an Antiracist, and fellow historian Keisha N. Blain, Four Hundred Souls begins with the arrival of twenty enslaved Ndongo people on the shores of the British colony in mainland America in 1619, the year before the arrival of the Mayflower. In eighty chronological chapters, the book charts the tragic and triumphant four-hundred-year history of Black American experience in a choral work of exceptional power and beauty. Contributors include some of the best-known scholars, writers, historians, journalists, lawyers, poets and activists of contemporary America who together bring to vivid life countless new facets to the drama of slavery and resistance, segregation and survival, migration and self-discovery, cultural oppression and world-changing artistic, literary and musical creativity. In these pages are dozens of extraordinary lives and personalities, rescued from the archives and restored to their rightful place in America's narrative, as well as the ghosts of millions more.Four Hundred Souls is an essential work of story-telling and reclamation that redefines America and changes our notion of how history is written.

Pain Woman Takes Your Keys, and Other Essays from a Nervous System


Sonya Huber - 2017
    What about on a scale of spicy to citrus? Is it more like a lava lamp or a mosaic? Pain, though a universal element of human experience, is dimly understood and sometimes barely managed. Pain Woman Takes Your Keys, and Other Essays from a Nervous System is a collection of literary and experimental essays about living with chronic pain. Sonya Huber moves away from a linear narrative to step through the doorway into pain itself, into that strange, unbounded reality. Although the essays are personal in nature, this collection is not a record of the author’s specific condition but an exploration that transcends pain’s airless and constraining world and focuses on its edges from wild and widely ranging angles. Huber addresses the nature and experience of invisible disability, including the challenges of gender bias in our health care system, the search for effective treatment options, and the difficulty of articulating chronic pain. She makes pain a lens of inquiry and lyricism, finds its humor and complexity, describes its irascible character, and explores its temperature, taste, and even its beauty.

The Witches Are Coming


Lindy West - 2019
    From the moment powerful men started falling to the #MeToo movement, the lamentations began: this is feminism gone too far, this is injustice, this is a witch hunt. In The Witches Are Coming, firebrand author of the New York Times bestselling memoir and now critically acclaimed Hulu TV series Shrill, Lindy West, turns that refrain on its head. You think this is a witch hunt? Fine. You’ve got one.In a laugh-out-loud, incisive cultural critique, West extolls the world-changing magic of truth, urging readers to reckon with dark lies in the heart of the American mythos, and unpacking the complicated, and sometimes tragic, politics of not being a white man in the twenty-first century. She tracks the misogyny and propaganda hidden (or not so hidden) in the media she and her peers devoured growing up, a buffet of distortions, delusions, prejudice, and outright bullsh*t that has allowed white male mediocrity to maintain a death grip on American culture and politics-and that delivered us to this precarious, disorienting moment in history.West writes, “We were just a hair’s breadth from electing America’s first female president to succeed America’s first black president. We weren’t done, but we were doing it. And then, true to form—like the Balrog’s whip catching Gandalf by his little gray bootie, like the husband in a Lifetime movie hissing, ‘If I can’t have you, no one can’—white American voters shoved an incompetent, racist con man into the White House.”We cannot understand how we got here-how the land of the free became Trump’s America—without examining the chasm between who we are and who we think we are, without fact—checking the stories we tell ourselves about ourselves and each other. The truth can transform us; there is witchcraft in it. Lindy West turns on the light.

Pain and Prejudice: A Call to Arms for Women and Their Bodies


Gabrielle Jackson - 2019
    And many are so, so tired … But women's pain is all too often dismissed, their illnesses misdiagnosed or ignored. In medicine, man is the default human being. Any deviation is atypical, abnormal, deficient.'Fourteen years after being diagnosed with endometriosis, Gabrielle Jackson couldn't believe how little had changed in the treatment and knowledge of the disease. In 2015, her personal story kick-started a worldwide investigation into the disease by The Guardian; thousands of women got in touch to tell their own stories and many more read and shared the material. What began as one issue led Jackson to explore how women - historically and through to the present day - are under-served by the systems that should keep them happy, healthy and informed about their bodies.Pain and Prejudice is a vital testament to how social taboos and medical ignorance keep women sick and in anguish. The stark reality is that women's pain is not taken as seriously as men's. Women are more likely to be disbelieved and denied treatment than men, even though women are far more likely to be suffering from chronic pain.In a potent blend of personal memoir and polemic, Jackson confronts the private concerns and questions women face regarding their health and medical treatment. Pain and Prejudice, finally, explains how we got here, and where we need to go next.

Pretty Bitches: On Being Called Crazy, Angry, Bossy, Frumpy, Feisty, and All the Other Words That Are Used to Undermine Women


Lizzie SkurnickElizabeth Spiers - 2020
    They wound, they inflate, they define, they demean. They have nuance and power. "Effortless," "Sassy," "Ambitious," "Aggressive": What subtle digs and sneaky implications are conveyed when women are described with words like these? Words are made into weapons, warnings, praise, and blame, bearing an outsized influence on women's lives -- to say nothing of our moods.No one knows this better than Lizzie Skurnick, writer of the New York Times' column "That Should be A Word" and a veritable queen of cultural coinage. And in Pretty Bitches, Skurnick has rounded up a group of powerhouse women writers to take on the hidden meanings of these words, and how they can limit our worlds -- or liberate them. From Laura Lipmann and Meg Wolizer to Jennifer Weiner and Rebecca Traister, each writer uses her word as a vehicle for memoir, cultural commentary, critique, or all three. Spanning the street, the bedroom, the voting booth, and the workplace, these simple words have huge stories behind them -- stories it's time to examine, re-imagine, and change.

Ophelia Speaks: Adolescent Girls Write About Their Search for Self


Sara Shandler - 1999
    "Horror stories of eating disorders, self-mutilation, abusive relationships floated across the page," Shandler writes of Pipher's book on adolescent girls. "Pipher equated our contemporary adolescent experiences to Shakespeare's ill-fated Ophelia." Shandler identified with the emotional experiences described in the book. "However," she explains, "I did not feel simply spoken to, I felt spoken for."With courage and unselfconscious audacity, Shandler decided to speak for herself. She had her friends write reflections on subjects such as eating disorders, sex, drugs, and child abuse, and scored a book deal. With the help of her publisher, HarperPerennial, Shandler sent queries for firsthand adolescent accounts to high school principals across the country, asking them to enlist the help of English teachers, parents associations, school psychologists, etc. (This letter appears as Appendix A in the book.) Not too shabby for a kid who only recently started getting serious about studying, and drinking lots of coffee.Ophelia Speaks: Adolescent Girls Write About Their Search for Self is the result of Sara Shandler's crusade. Her goal was to bring real voice to Reviving Ophelia. She succeeds. The voices are raw and young and jarring -- sometimes adult-like, sometimes childlike, and more often both, like Shandler's voice.Shandler introduces each chapter -- "Intoxication," "Rape and Sexual Abuse," "Questions of Faith," "Diverse Sexualities," "Mothers, Feminist Pride," etc.-- with personal anecdotes of her own. Through these introductions, it becomes clear that Shandler is like any modern American teenager: She has experimented lightly with drugs, had sex at an early age (one month shy of 15), is mildly infatuated with her weight, and was at one point pretty depressed (as in, the thought of suicide once crossed her mind). Pretty run-of-the-mill teen stuff. Somehow it is surprising that nothing "worse" ever happened to Shandler. It seems too simple that her only motivation to complete this project was to help other teens feel less alone. Then again, maybe it is too simple to think that all books of this kind must be written by damaged teens or once-damaged teens.By definition, Shandler's carefully selected contributions are young words for young ears. But they are also an intense reminder for older ears: When all you have lived is 16 years, thinking once of suicide feels like the biggest thing ever. This is not to belittle Shandler's impressive compilation or her honesty. She is very, very honest. In a chapter entitled "Broken-Hearted Independence," she explains how she got through the tragedy of breaking up with her first love. "[W]ith our separation I forced myself to face the dependence that left me alone and broken with our breakup. That confrontation was frightening. I was not brave in the usual sense. I cried often and hard. But instead of lonely isolation, I read and wrote and thought and thought. I buried myself in Virginia Woolf and Alice Walker, Margaret Atwood and Maya Angelou, Sylvia Plath and Toni Morrison, and I wondered why women I had never met knew me so well. With these women I was not so alone anymore."Each entry in this book is this bare, this open. Which is why Ophelia Speaks works as a book for teens by teens, but also as a tool for parents who want to know -- or remind themselves -- of what lies just around the corner. (Alexandra Zissu)

Loud Hands: Autistic People, Speaking


Julia Bascom - 2012
    Loud Hands: Autistic People, Speaking is a collection of essays written by and for Autistic people. Spanning from the dawn of the Neurodiversity movement to the blog posts of today, Loud Hands: Autistic People, Speaking catalogues the experiences and ethos of the Autistic community and preserves both diverse personal experiences and the community’s foundational documents together side by side.-from ASAN

A Map Is Only One Story: Twenty Writers on Immigration, Family, and the Meaning of Home


Nicole Chung - 2020
    Selected from the archives of Catapult magazine, the essays in A Map Is Only One Story highlight the human side of immigration policies and polarized rhetoric, as twenty writers share provocative personal stories of existing between languages and cultures.Victoria Blanco relates how those with family in both El Paso and Ciudad Juárez experience life on the border. Nina Li Coomes recalls the heroines of Japanese animator Hayao Miyazaki and what they taught her about her bicultural identity. Nur Nasreen Ibrahim details her grandfather’s crossing of the India-Pakistan border sixty years after Partition. Krystal A. Sital writes of how undocumented status in the United States can impact love and relationships. Porochista Khakpour describes the challenges in writing (and rewriting) Iranian America. Through the power of personal narratives, as told by both emerging and established writers, A Map Is Only One Story offers a new definition of home in the twenty-first century.