What Doesn't Kill You: A Life with Chronic Illness - Lessons from a Body in Revolt


Tessa Miller - 2021
    At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a yearslong nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better.Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications.Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.

All the Things We Never Knew: Chasing the Chaos of Mental Illness


Sheila Hamilton - 2015
    Even as a reporter, Sheila Hamilton missed the signs as her husband David's mental illness unfolded before her. By the time she had pieced together the puzzle, it was too late. Her once brilliant and passionate partner was dead within six weeks of a diagnosis of bipolar disorder, leaving his wife and nine-year-old daughter without so much as a note to explain his actions, a plan to help them recover from their profound grief, or a solution for the hundreds of thousands of dollars in debt that they would inherit from him.All the Things We Never Knew takes readers on a breathtaking journey, from David and Sheila's early romance through the last three months of their life together and into the year after his death. It details their unsettling spiral from ordinary life into the world of mental illness, examines the fragile line between reality and madness, and reveals the true power of love and forgiveness.

In Love: A Memoir of Love and Loss


Amy BloomAmy Bloom - 2022
    Amy Bloom began to notice changes in her husband, Brian: He retired early from a new job he loved; he withdrew from close friendships; he talked mostly about the past. Suddenly, it seemed there was a glass wall between them, and their long walks and talks stopped. Their world was altered forever when an MRI confirmed what they could no longer ignore: Brian had Alzheimer's disease.Forced to confront the truth of the diagnosis and its impact on the future he had envisioned, Brian was determined to die on his feet, not live on his knees. Supporting each other in their last journey together, Brian and Amy made the unimaginably difficult and painful decision to go to Dignitas, an organization based in Switzerland that empowers a person to end their own life with dignity and peace.In this heartbreaking and surprising memoir, Bloom sheds light on a part of life we so often shy away from discussing--its ending. Written in Bloom's captivating, insightful voice and with her trademark wit and candor, In Love is an unforgettable portrait of a beautiful marriage, and a boundary-defying love.

Ladyparts


Deborah Copaken - 2021
    These pieces are not a metaphor. They are actual pieces. Twenty years after the publication of her iconic Shutterbabe, we remeet Deborah Copaken at her darkly comedic nadir: battered, broke, divorcing, dissected, and dying—literally—on sexism’s battlefield as she deliriously scoops up what she believes to be her internal organs, which have fallen out of her body, into a glass Tupperware container before heading off to the hospital for emergency surgery . . . in an UberPool.Part cri de coeur cautionary tale, part dystopian tragicomedy, Ladyparts is Copaken’s irreverent inventory of both the female body and the body politic of womanhood in America. With her journalist’s eye, her novelist’s heart, and her performer’s sense of timing, she provides a frontline account of one woman brought to her knees by the one-two-twelve punch of divorce, solo motherhood, lack of healthcare, unaffordable childcare, shady landlords, her father’s death, college tuitions, sexual harassment, corporate indifference, ageism, sexism, and just plain old bad luck. Plus seven serious illnesses, one on top of the other, which provide the book’s narrative skeleton: vagina, uterus, breast, heart, cervix, brain, and lungs. She keeps bouncing back from each bum body part and finding the black humor in every setback, but in her slippery struggle to survive a steep plunge off the middle-class ladder, she is suddenly awoken to what it means to have no safety net.Turning her Harlem home into a commune to pay rent and have childcare, she trades her life as a bestselling novelist to apply for full-time corporate gigs that come with health insurance but often not scruples. She gets fired from a health magazine for being unhealthy; laid off from a PR firm for rushing home to deal with a child’s medical emergency; and sexually harassed out of her newspaper column, only to be grilled by the FBI when her harasser is offered a plum job in the White House.Side-splittingly funny one minute, a freak horror show the next, and quintessentially American, Ladyparts is an era-defining memoir for our time.

Your Blue Is Not My Blue: A Missing Person Memoir


Aspen Matis - 2020
    Both sought to redefine themselves beneath the stars. By the time they made it to the snowy Cascade Range of British Columbia—the trail’s end—Aspen and Justin were in love.Embarking on a new pilgrimage the next summer, they returned to those same mossy mountains where they’d met, and they married. They built a world together, three years of a happy marriage. Until a cold November morning, when, after kissing Aspen goodbye, Justin left to attend the funeral of a close friend.He never came back. As days became weeks, her husband’s inexplicable absence left Aspen unmoored. Shock, grief, fear, and anger battled for control—but nothing prepared her for the disarming truth. A revelation that would lead Aspen to reassess not only her own life but that of the disappeared as well.The result is a brave and inspiring memoir of secrets kept and unearthed, of a vanishing that became a gift: a woman’s empowering reclamation of unmitigated purpose in the surreal wake of mystifying loss.

Smacked: A Story of White-Collar Ambition, Addiction, and Tragedy


Eilene B. Zimmerman - 2020
    Eilene Zimmerman noticed that her ex-husband looked thin, seemed distracted, and was frequently absent from activities with their children. She thought he looked sick and needed to see a doctor, and indeed, he told her he had been diagnosed with an autoimmune disorder. Yet in many ways, Peter also seemed to have it all: a beautiful house by the beach purchased after their divorce, expensive cars, and other luxuries that came with an affluent life. Eilene assumed his odd behavior was due to stress and overwork--he was a senior partner at a prominent law firm and had been working more than 60 hours a week for the last 20 years.Although they were divorced, Eilene and Peter had been partners and friends for decades, so, when her calls to Peter were not returned for several days, Eilene went to his house to see if he was OK.So begins Smacked, a brilliant, moving memoir of Eilene's shocking discovery, one that sets her on a journey to find out how a man she knew for nearly 30 years became a drug addict, and hid it so well that neither she nor anyone else in his life suspected what was happening. Eilene discovers that Peter led a secret life, one that started with pills and ended with opioids, cocaine and methamphetamine. Peter was also addicted to work; the last call he ever made was to dial into a conference call.Eilene is determined to learn all she can about Peter's hidden life, and also about drug addiction among ambitious and high achieving professionals like him. Through extensive research and interviews, she presents a picture of drug dependence today in that moneyed, upwardly mobile world. She also embarks on a journey to recreate her life in the wake of loss, both of the person--and the relationship--that profoundly defined the woman she had become.Smacked takes readers on an intimate journey into a little-known part of the drug epidemic, through the story of one man, one woman and one family.

Becoming Duchess Goldblatt: A Memoir


Duchess Goldblatt - 2020
    Fans around the world are drawn to Her Grace’s voice, her wit, her life-affirming love for all humanity, and the fun and friendship of the community that’s sprung up around her.

The Neuroscientist Who Lost Her Mind: My Tale of Madness and Recovery


Barbara K. Lipska - 2018
    As the cancer progressed and was treated, the author experienced behavioral and cognitive symptoms connected to a range of mental disorders, including her professional specialty, schizophrenia. Lipska's family and associates were alarmed by the changes in her behavior, which she failed to acknowledge herself. Gradually, after a course of immunotherapy, Lipska returned to normal functioning, recalled her experience and, through her knowledge of neuroscience, identified the ways in which her brain changed during treatment. Lipska admits her condition was unusual; after recovery she was able to return to her research and resume her athletic training and compete in a triathalon. Most patients with similar brain cancers rarely survive to describe their ordeal. Lipska's memoir, coauthored with journalist McArdle, shows that strength and courage but also a encouraging support network are vital to recovery

Body Leaping Backward: Memoir of a Delinquent Girlhood


Maureen Stanton - 2019
    A promising young girl with a smart mouth, Stanton turns watchful as her parents separate and her now-single mother descends into shoplifting, then grand larceny, anything to keep a toehold in the middle class for her children. No longer scared by threats of Walpole Prison, Stanton too slips into delinquency—vandalism, breaking and entering—all while nearly erasing herself through addiction to angel dust, a homemade form of PCP that swept through her hometown in the wake of Nixon’s “total war” on drugs.Body Leaping Backward is the haunting and beautifully drawn story of a self-destructive girlhood, of a town and a nation overwhelmed in a time of change, and of how life-altering a glimpse of a world bigger than the one we come from can be.

The Language of Kindness: A Nurse's Story


Christie Watson - 2018
    She takes us by her side down hospital corridors to visit the wards and meet her unforgettable patients.In the neonatal unit, premature babies fight for their lives, hovering at the very edge of survival, like tiny Emmanuel, wrapped up in a sandwich bag. On the cancer wards, the nurses administer chemotherapy and, long after the medicine stops working, something more important--which Watson learns to recognize when her own father is dying of cancer. In the pediatric intensive care unit, the nurses wash the hair of a little girl to remove the smell of smoke from the house fire. The emergency room is overcrowded as ever, with waves of alcohol and drug addicted patients as well as patients like Betty, a widow suffering chest pain, frail and alone. And the stories of the geriatric ward--Gladys and older patients like her--show the plight of the most vulnerable members of our society.

Now I See You: A Memoir


Nicole C. Kear - 2014
    Kear's biggest concern is choosing a major--until she walks into a doctor's office in midtown Manhattan and gets a life-changing diagnosis. She is going blind, courtesy of an eye disease called retinitis pigmentosa, and has only a decade or so before Lights Out. Instead of making preparations as the doctor suggests, Kear decides to carpe diem and make the most of the vision she has left. She joins circus school, tears through boyfriends, travels the world, and through all these hi-jinks, she keeps her vision loss a secret.When Kear becomes a mother, just a few years shy of her vision's expiration date, she amends her carpe diem strategy, giving up recklessness in order to relish every moment with her kids. Her secret, though, is harder to surrender - and as her vision deteriorates, harder to keep hidden. As her world grows blurred, one thing becomes clear: no matter how hard she fights, she won't win the battle against blindness. But if she comes clean with her secret, and comes to terms with the loss, she can still win her happy ending.Told with humor and irreverence, Now I See You is an uplifting story about refusing to cower at life's curveballs, about the power of love to triumph over fear. But, at its core, it's a story about acceptance: facing the truths that just won't go away, and facing yourself, broken parts and all.

Ordinary Girls


Jaquira Díaz - 2019
    While growing up in housing projects in Puerto Rico and Miami Beach, Jaquira Díaz found herself caught between extremes: as her family split apart and her mother battled schizophrenia, she was surrounded by the love of her friends; as she longed for a family and home, she found instead a life upended by violence. From her own struggles with depression and sexual assault to Puerto Rico’s history of colonialism, every page of Ordinary Girls vibrates with music and lyricism. Díaz triumphantly maps a way out of despair toward love and hope to become her version of the girl she always wanted to be.With a story reminiscent of Tara Westover’s Educated, Roxane Gay’s Hunger, and Terese Marie Mailhot’s Heart Berries, Jaquira Díaz delivers a memoir that reads as electrically as a novel.

What My Bones Know: A Memoir of Healing from Complex Trauma


Stephanie Foo - 2022
    . . . I want to have words for what my bones know."By age thirty, Stephanie Foo was successful on paper: She had her dream job as an award-winning radio producer at This American Life and a loving boyfriend. But behind her office door, she was having panic attacks and sobbing at her desk every morning. After years of questioning what was wrong with herself, she was diagnosed with complex PTSD--a condition that occurs when trauma happens continuously, over the course of years.Both of Foo's parents abandoned her when she was a teenager, after years of physical and verbal abuse and neglect. She thought she'd moved on, but her new diagnosis illuminated the way her past continued to threaten her health, relationships, and career. She found limited resources to help her, so Foo set out to heal herself, and to map her experiences onto the scarce literature about C-PTSD.In this deeply personal and thoroughly researched account, Foo interviews scientists and psychologists and tries a variety of innovative therapies. She returns to her hometown of San Jose, California, to investigate the effects of immigrant trauma on the community, and she uncovers family secrets in the country of her birth, Malaysia, to learn how trauma can be inherited through generations. Ultimately, she discovers that you don't move on from trauma--but you can learn to move with it.Powerful, enlightening, and hopeful, What My Bones Know is a brave narrative that reckons with the hold of the past over the present, the mind over the body--and examines one woman's ability to reclaim agency from her trauma.

The Collected Schizophrenias: Essays


Esmé Weijun Wang - 2019
    Schizophrenia is not a single unifying diagnosis, and Esme Weijun Wang writes not just to her fellow members of the "collected schizophrenias" but to those who wish to understand it as well. Opening with the journey toward her diagnosis of schizoaffective disorder, Wang discusses the medical community's own disagreement about labels and procedures for diagnosing those with mental illness, and then follows an arc that examines the manifestations of schizophrenia in her life. In essays that range from using fashion to present as high-functioning to the depths of a rare form of psychosis, and from the failures of the higher education system and the dangers of institutionalisation to the complexity of compounding factors such as PTSD and Lyme disease, Wang's analytical eye, honed as a former lab researcher at Stanford, allows her to balance research with personal narrative. An essay collection of undeniable power, The Collected Schizophrenias dispels misconceptions and provides insight into a condition long misunderstood.

The Night the Lights Went Out: A Memoir of Life After Brain Damage


Drew Magary - 2021
    But in The Night the Lights Went Out, he finds himself far out of his depths. On the night of the 2018 Deadspin Awards, he suffered a mysterious fall that caused him to smash his head so hard on a cement floor that he cracked his skull in three places and suffered a catastrophic brain hemorrhage. For two weeks, he remained in a coma. The world was gone to him, and him to it.In his long recovery from his injury, including understanding what his family and friends went through as he lay there dying, coming to terms with his now permanent disabilities, and trying to find some lesson in this cosmic accident, he leaned on the one sure thing that he knows and that didn't leave him--his writing.Drew takes a deep dive into what it meant to be a bystander to his own death and figuring out who this new Drew is: a Drew that doesn't walk as well, doesn't taste or smell or see or hear as well, and a Drew that is often failing as a husband and a father as he bounces between grumpiness, irritability, and existential fury. But what's a good comeback story without heartbreak? Eager to get back what he lost, Drew experiences an awakening of a whole other kind in this incredibly funny, medically illuminating, and heartfelt memoir.