Henry's Demons: Living with Schizophrenia, A Father and Son's Story


Patrick Cockburn - 2011
    Voices, he said, had urged him to do it. Nearly halfway around the world in Afghanistan, journalist Patrick Cockburn learned from his wife, Jan, that his son had suffered a breakdown and had been admitted to a hospital. Ten days later, Henry was diagnosed with schizophrenia. Narrated by both Patrick and Henry, this is the extraordinary story of the eight years since Henry’s descent into schizophrenia—years he has spent almost entirely in hospitals—and his family’s struggle to help him recover. With remarkable frankness, Patrick writes of Henry’s transformation from art student to mental patient and of the agonizing and difficult task of helping his son get well. Any hope of recovery lies in medication, yet Henry, who does not believe he is ill, secretly stops taking it and frequently runs away. Hopeful periods of stability are followed by frightening disappearances, then relapses that bleed into one another, until at last there is the promise of real improvement. In Henry’s own raw, beautiful chapters, he describes his psychosis from the inside. He vividly relates what it is like to hear trees and bushes speaking to him, voices compelling him to wander the countryside or live in the streets, the loneliness of life within hospital walls, harrowing “polka dot days” that incapacitate him, and finally, his steps towards recovery. Patrick’s and Henry’s parallel stories reveal the complex intersections of sanity, madness, and identity; the vagaries of mental illness and its treatment; and a family’s steadfast response to a bewildering condition. Haunting, intimate, and profoundly moving, their unique narrative will resonate with every parent and anyone who has been touched by mental illness.

When Breath Becomes Air


Paul Kalanithi - 2016
    One day he was a doctor treating the dying, and the next he was a patient struggling to live. And just like that, the future he and his wife had imagined evaporated. When Breath Becomes Air chronicles Kalanithi's transformation from a naïve medical student "possessed," as he wrote, "by the question of what, given that all organisms die, makes a virtuous and meaningful life" into a neurosurgeon at Stanford working in the brain, the most critical place for human identity, and finally into a patient and new father confronting his own mortality. What makes life worth living in the face of death? What do you do when the future, no longer a ladder toward your goals in life, flattens out into a perpetual present? What does it mean to have a child, to nurture a new life as another fades away? These are some of the questions Kalanithi wrestles with in this profoundly moving, exquisitely observed memoir. Paul Kalanithi died in March 2015, while working on this book, yet his words live on as a guide and a gift to us all. "I began to realize that coming face to face with my own mortality, in a sense, had changed nothing and everything," he wrote. "Seven words from Samuel Beckett began to repeat in my head: 'I can't go on. I'll go on.'" When Breath Becomes Air is an unforgettable, life-affirming reflection on the challenge of facing death and on the relationship between doctor and patient, from a brilliant writer who became both.

Welcome, Silence


Carol S. North - 1987
    Carol North was diagnosed with schizophrenia in college. The story of her life is traced from her early life in a middle class small-town family in the Midwest. For many years, Carol struggled against overwhelming odds to achieve in school in spite of her illness and was finally admitted to medical school to pursue her hopes and dreams of becoming a doctor. In medical school, however, she slid further into psychosis and finally succumbed the inexorable incapacitation so often characteristic of the illness. Carol was fortunate enough, however, to find a skilled psychiatrist who understood her dedication to becoming a physician and who worked with her to stay well enough to remain in school. When all hope seemed lost, her doctor enrolled her in an experimental dialysis program, similar to the treatment given to patients with kidney failure. With this treatment, her illness went away and she no longer required medication for it. This engrossing and ultimately triumphant story of courageous struggle against mental illness will inspire anyone who has ever had to battle for achievement against overwhelming odds. After recovering from her illness, Carol returned to school and received her medical degree from Washington University School of Medicine in St. Louis, Missouri in 1983. She then completed her internship and residency at Barnes Hospital/Washington University, and subsequently obtained a masters degree in psychiatric epidemiology (the study of psychiatric disorders in populations) while simultaneously pursuing a NIMH fellowship in psychiatric epidemiology at Washington University. Dr. Carol North is currently a board-certified psychiatrist and full Professor of Psychiatry at Washington University School of Medicine. She treats patients with schizophrenia and a range of psychiatric illness, trains young physicians and psychiatrists, and pursues federally funded research in psychiatric epidemiology. She is the recipient of numerous national awards and has appeared on many national television and radio programs.

Drinking: A Love Story


Caroline Knapp - 1996
    Caroline Knapp describes how the distorted world of her well-to-do parents pushed her toward anorexia and alcoholism. Fittingly, it was literature that saved her: she found inspiration in Pete Hamill's 'A Drinking Life' and sobered up. Her tale is spiced up with the characters she has known along the way. A journalist describes her twenty years as a functioning alcoholic, explaining how she used alcohol to escape personal relationships and the realities of life until a series of personal crises forced her to confront her problem.

Blackout: Remembering the Things I Drank to Forget


Sarah Hepola - 2015
    She spent her evenings at cocktail parties and dark bars where she proudly stayed till last call. Drinking felt like freedom, part of her birthright as a strong, enlightened twenty-first-century woman. But there was a price. She often blacked out, waking up with a blank space where four hours should have been. Mornings became detective work on her own life. What did I say last night? How did I meet that guy? She apologized for things she couldn't remember doing, as though she were cleaning up after an evil twin. Publicly, she covered her shame with self-deprecating jokes, and her career flourished, but as the blackouts accumulated, she could no longer avoid a sinking truth. The fuel she thought she needed was draining her spirit instead.A memoir of unblinking honesty and poignant, laugh-out-loud humor, Blackout is the story of a woman stumbling into a new kind of adventure—the sober life she never wanted. Shining a light into her blackouts, she discovers the person she buried, as well as the confidence, intimacy, and creativity she once believed came only from a bottle. Her tale will resonate with anyone who has been forced to reinvent or struggled in the face of necessary change. It's about giving up the thing you cherish most—but getting yourself back in return.

Just Checking: Scenes From the Life of an Obsessive-Compulsive


Emily Colas - 1999
    We all have moments of unfounded dread (Is someone behind that door?), or little phobias (roaches) or superstitions (step on a crack) that we indulge. Just Checking is an autobiographical account of what it is like to live with a full-blown case of obsessive-compulsive disorder (OCD), which, at its height, finds author Emily Colas nervous that she will contract a disease from blood that she sees on television. In the course of the book, what at first appear to her husband and friends to be Colas's idiosyncratic notions accumulate until she is frozen by the astounding psychological binds of OCD. Using precise (of course), connect-the-dots scenes, Colas draws a life that is at first highly monitored and ultimately unraveled by her disorder. One imagines that from afar, Colas's behavior at the height of her illness would look incomprehensible and just plain weird: She has to check the dishwasher multiple times before using it to make sure the cat is safe; the packaging of every new toothbrush has to meet rigorous sanitary standards; the landlord can't attempt to find new tenants for her apartment — she won't let them in the house. But readers are not at a distance here. Instead, we become privy to Colas's somewhat apologetic but firm explanations of what her logic was, and what it felt like to be afraid. She is so honest and witty that one can't help liking her, rooting for her, and wishing help would come. In a typical vignette, when the family tries to go to the Macy's Thanksgiving Day Parade ("definitely a mistake"), Colas is terrified that shewillstep on blood: When I was a kid in New York, all we had to eat on the street were pretzels and hot dogs. Food that was readily identifiable. Now, vendors sell the fanciest things with cherries, berries, jelly, and other crap that's way too close to the color of blood. We finally made it to where we had to go, but not before I had inspected the bottom of my shoes. There was a mushy red object there. Maybe a cherry, possibly a finger. The kids watched the parade on TV and I had a nice new worry. My kids don't even remember that lovely November day, but, lucky for me, I do. This event is sad and resonant, but it also manages to be viscerally entertaining. The result is that instead of inspiring schadenfreude, this book reminds us that psychological disorders are often exaggerations of the ordinary and familiar. We all, on a continuum, wish to survive, to avoid disease, to impose order on our lives. We sympathize with Colas's desperate attempts to find safety and with her seemingly loving husband's gradual loss of tolerance. Even the not-so-funny poems that are occasionally interspersed among the perfectly crafted chapterettes find their place. Strange as it may be to find charm in a memoir of illness, Colas is utterly winning. Hilary Liftin is a writer living in New York City. Her first book, coauthored with Kate Montgomery, is scheduled for publication by Vintage next year. She is the editorial development manager at BookWire (www.bookwire.com).

Sybil Exposed: The Extraordinary Story Behind the Famous Multiple Personality Case


Debbie Nathan - 2011
    Sybil became both a pop phenomenon and a revolutionary force in the psychotherapy industry. The book rocketed multiple personality disorder (MPD) into public consciousness and played a major role in having the diagnosis added to the psychiatric bible, Diagnostic and Statistical Manual of Mental Disorders. But what do we really know about how Sybil came to be? In her news-breaking book Sybil Exposed, journalist Debbie Nathan gives proof that the allegedly true story was largely fabricated. The actual identity of Sybil (Shirley Mason) has been available for some years, as has the idea that the book might have been exaggerated. But in Sybil Exposed, Nathan reveals what really powered the legend: a trio of women—the willing patient, her ambitious shrink, and the imaginative journalist who spun their story into bestseller gold. From horrendously irresponsible therapeutic practices—Sybil’s psychiatrist often brought an electroshock machine to Sybil’s apartment and climbed into bed with her while administering the treatment— to calculated business decisions (under an entity they named Sybil, Inc., the women signed a contract designating a three-way split of profits from the book and its spin-offs, including board games, tee shirts, and dolls), the story Nathan unfurls is full of over-the-top behavior. Sybil’s psychiatrist, driven by undisciplined idealism and galloping professional ambition, subjected the young woman to years of antipsychotics, psychedelics, uppers, and downers, including an untold number of injections with Pentothal, once known as “truth serum” but now widely recognized to provoke fantasies. It was during these “treatments” that Sybil produced rambling, garbled, and probably “false-memory”–based narratives of the hideous child abuse that her psychiatrist said caused her MPD. Sybil Exposed uses investigative journalism to tell a fascinating tale that reads like fiction but is fact. Nathan has followed an enormous trail of papers, records, photos, and tapes to unearth the lives and passions of these three women. The Sybil archive became available to the public only recently, and Nathan examined all of it and provides proof that the story was an elaborate fraud—albeit one that the perpetrators may have half-believed. Before Sybil was published, there had been fewer than 200 known cases of MPD; within just a few years after, more than 40,000 people would be diagnosed with it. Set across the twentieth century and rooted in a time when few professional roles were available to women, this is a story of corrosive sexism, unchecked ambition, and shaky theories of psychoanalysis exuberantly and drastically practiced. It is the story of how one modest young woman’s life turned psychiatry on its head and radically changed the course of therapy, and our culture, as well.

The Bright Hour: A Memoir of Living and Dying


Nina Riggs - 2017
    They are promises. They are the only way to walk from one night to the other."Nina Riggs was just thirty-seven years old when initially diagnosed with breast cancer--one small spot. Within a year, the mother of two sons, ages seven and nine, and married sixteen years to her best friend, received the devastating news that her cancer was terminal.How does one live each day, "unattached to outcome"? How does one approach the moments, big and small, with both love and honesty?Exploring motherhood, marriage, friendship, and memory, even as she wrestles with the legacy of her great-great-great grandfather, Ralph Waldo Emerson, Nina Riggs's breathtaking memoir continues the urgent conversation that Paul Kalanithi began in his gorgeous When Breath Becomes Air. She asks, what makes a meaningful life when one has limited time?Brilliantly written, disarmingly funny, and deeply moving, The Bright Hour is about how to love all the days, even the bad ones, and it's about the way literature, especially Emerson, and Nina's other muse, Montaigne, can be a balm and a form of prayer. It's a book about looking death squarely in the face and saying "this is what will be."Especially poignant in these uncertain times, The Bright Hour urges us to live well and not lose sight of what makes us human: love, art, music, words.

The Memory Palace


Mira Bartok - 2011
    It is a poignant observation about the relationship between Mira, her sister, and their mentally ill mother. Before she was struck with schizophrenia at the age of nineteen, beautiful piano protégé Norma Herr had been the most vibrant personality in the room. She loved her daughters and did her best to raise them well, but as her mental state deteriorated, Norma spoke less about Chopin and more about Nazis and her fear that her daughters would be kidnapped, murdered, or raped. When the girls left for college, the harassment escalated--Norma called them obsessively, appeared at their apartments or jobs, threatened to kill herself if they did not return home. After a traumatic encounter, Mira and her sister were left with no choice but to change their names and sever all contact with Norma in order to stay safe. But while Mira pursued her career as an artist--exploring the ancient romance of Florence, the eerie mysticism of northern Norway, and the raw desert of Israel--the haunting memories of her mother were never far away. Then one day, Mira’s life changed forever after a debilitating car accident. As she struggled to recover from a traumatic brain injury, she was confronted with a need to recontextualize her life--she had to relearn how to paint, read, and interact with the outside world. In her search for a way back to her lost self, Mira reached out to the homeless shelter where she believed her mother was living and discovered that Norma was dying. Mira and her sister traveled to Cleveland, where they shared an extraordinary reconciliation with their mother that none of them had thought possible. At the hospital, Mira discovered a set of keys that opened a storage unit Norma had been keeping for seventeen years. Filled with family photos, childhood toys, and ephemera from Norma’s life, the storage unit brought back a flood of previous memories that Mira had thought were lost to her forever. The Memory Palace is a breathtaking literary memoir about the complex meaning of love, truth, and the capacity for forgiveness among family. Through stunning prose and original art created by the author in tandem with the text, The Memory Palace explores the connections between mother and daughter that cannot be broken no matter how much exists--or is lost--between them.

What My Bones Know: A Memoir of Healing from Complex Trauma


Stephanie Foo - 2022
    . . . I want to have words for what my bones know."By age thirty, Stephanie Foo was successful on paper: She had her dream job as an award-winning radio producer at This American Life and a loving boyfriend. But behind her office door, she was having panic attacks and sobbing at her desk every morning. After years of questioning what was wrong with herself, she was diagnosed with complex PTSD--a condition that occurs when trauma happens continuously, over the course of years.Both of Foo's parents abandoned her when she was a teenager, after years of physical and verbal abuse and neglect. She thought she'd moved on, but her new diagnosis illuminated the way her past continued to threaten her health, relationships, and career. She found limited resources to help her, so Foo set out to heal herself, and to map her experiences onto the scarce literature about C-PTSD.In this deeply personal and thoroughly researched account, Foo interviews scientists and psychologists and tries a variety of innovative therapies. She returns to her hometown of San Jose, California, to investigate the effects of immigrant trauma on the community, and she uncovers family secrets in the country of her birth, Malaysia, to learn how trauma can be inherited through generations. Ultimately, she discovers that you don't move on from trauma--but you can learn to move with it.Powerful, enlightening, and hopeful, What My Bones Know is a brave narrative that reckons with the hold of the past over the present, the mind over the body--and examines one woman's ability to reclaim agency from her trauma.

Ghost Boy: My Miraculous Escape from a Life Locked Inside My Own Body


Martin Pistorius - 2011
    But he was alive and trapped inside his own body for ten years.In January 1988 Martin Pistorius, aged twelve, fell inexplicably sick. First he lost his voice and stopped eating. Then he slept constantly and shunned human contact. Doctors were mystified. Within eighteen months he was mute and wheelchair-bound. Martin's parents were told an unknown degenerative disease left him with the mind of a baby and less than two years to live.Martin was moved to care centers for severely disabled children. The stress and heartache shook his parents’ marriage and their family to the core. Their boy was gone. Or so they thought.Ghost Boy is the heart-wrenching story of one boy’s return to life through the power of love and faith. In these pages, readers see a parent’s resilience, the consequences of misdiagnosis, abuse at the hands of cruel caretakers, and the unthinkable duration of Martin’s mental alertness betrayed by his lifeless body.We also see a life reclaimed—a business created, a new love kindled—all from a wheelchair. Martin's emergence from his own darkness invites us to celebrate our own lives and fight for a better life for others.

And Now We Have Everything: On Motherhood Before I Was Ready


Meaghan O'Connell - 2018
    O'Connell addresses the pervasive imposter syndrome that comes with unplanned pregnancy, the second adolescence of a changing postpartum body, the problem of sex post-baby, the weird push to make "mom friends," and the fascinating strangeness of stepping into a new, not-yet-comfortable identity. O'Connell brings us into the delivery room rendering childbirth in all its feverish gore and glory, and shattering the fantasies of a "magical" or "natural" experience that warp our expectations and erode maternal self-esteem.And Now We Have Everything is an unflinchingly frank, funny, and intimate motherhood story for our times, about needing to have a baby in order to stop being one yourself.

This Common Secret: My Journey as an Abortion Doctor


Susan Wicklund - 2007
    Susan Wicklund chronicles her emotional and dramatic twenty-year career on the front lines of the abortion war. Growing up in working class, rural Wisconsin, Wicklund had her own painful abortion at a young age. It was not until she became a doctor that she realized how many women shared her ordeal of an unwanted pregnancy—and how hidden this common experience remains. This is the story of Susan's love for a profession that means listening to women and helping them through one of the most pivotal and controversial events in their lives. Hers is also a calling that means sleeping on planes and commuting between clinics in different states—and that requires her to wear a bulletproof vest and to carry a .38 caliber revolver. This is also the story of the women whom Susan serves, women whose options are increasingly limited.Through these intimate, complicated, and inspiring accounts, Wicklund reveals the truth about the women's clinics that anti-abortion activists portray as little more than slaughterhouses for the unborn. As we enter the most fevered political fight over abortion America has ever seen, this raw and powerful memoir shows us what is at stake.

Down Came the Rain: My Journey Through Postpartum Depression


Brooke Shields - 2005
    When Brooke Shields welcomed her newborn daughter, Rowan Francis, into the world, something unexpected followed--a crippling depression. Now, for the first time ever, in Down Came the Rain, Brooke talks about the trials, tribulations, and finally the triumphs that occurred before, during, and after the birth of her daughter.

The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son


Ian Brown - 2009
    At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.