What Doesn't Kill You: A Life with Chronic Illness - Lessons from a Body in Revolt


Tessa Miller - 2021
    At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a yearslong nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better.Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications.Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.

Your Voice in My Head


Emma Forrest - 2011
    A modern day fairy tale of New York, Your Voice in My Head is a dazzling and devastating memoir, clear-eyed and shot through with wit. In a voice unlike any other, Emma Forrest explores depression and mania, but also the beauty of love—and the heartbreak of loss.

A Stolen Life


Jaycee Dugard - 2011
    It was the last her family and friends saw of her for over eighteen years. On 26 August 2009, Dugard, her daughters, and Phillip Craig Garrido appeared in the office of her kidnapper's parole officer in California. Their unusual behaviour sparked an investigation that led to the positive identification of Jaycee Lee Dugard, living in a tent behind Garrido's home. During her time in captivity, at the age of fourteen and seventeen, she gave birth to two daughters, both fathered by Garrido. Dugard's memoir is written by the 30-year-old herself and covers the period from the time of her abduction in 1991 up until the present. In her stark, utterly honest and unflinching narrative, Jaycee opens up about what she experienced, including how she feels now, a year after being found. Garrido and his wife Nancy have since pleaded guilty to their crimes.

Darkness Visible: A Memoir of Madness


William Styron - 1990
    Styron is perhaps the first writer to convey the full terror of depression's psychic landscape, as well as the illuminating path to recovery.

Your Life in My Hands: A Junior Doctor's Story


Rachel Clarke - 2017
    It is 4 a.m. I have run arrest calls, treated life-threatening bleeding, held the hand of a young woman dying of cancer, scuttled down miles of dim corridors wanting to sob with sheer exhaustion, forgotten to eat, forgotten to drink, drawn on every fibre of strength that I possess to keep my patients safe from harm.'How does it feel to be spat out of medical school into a world of pain, loss and trauma that you feel wholly ill-equipped to handle? To be a medical novice who makes decisions which - if you get them wrong - might forever alter, or end, a person's life?In 'Your Life in My Hands', television journalist turned junior doctor Rachel Clarke captures the extraordinary realities of life on the NHS frontline. During last year's historic junior doctor strikes, Rachel was at the forefront of the campaign against the government's imposed contract upon young doctors. Her heartfelt, deeply personal account of life as a junior doctor in today's NHS is both a powerful polemic on the degradation of Britain's most vital public institution and a love letter of optimism and hope to that same health service.

Her


Christa Parravani - 2013
    Raised up from poverty by a determined single mother, the gifted and beautiful twins were able to create a private haven of splendor and merriment between themselves and then earn their way to a prestigious college and to careers as artists (a photographer and a writer, respectively) and to young marriages. But, haunted by childhood experiences with father figures and further damaged by being raped as a young adult, Cara veered off the path to robust work and life and in to depression, drugs and a shocking early death.A few years after Cara was gone, Christa read that when an identical twin dies, regardless of the cause, 50 percent of the time the surviving twin dies within two years; and this shocking statistic rang true to her. "Flip a coin," she thought," those were my chances of survival." First, Christa fought to stop her sister's downward spiral; suddenly, she was struggling to keep herself alive.Beautifully written, mesmerizingly rich and true, Christa Parravani's account of being left, one half of a whole, and of her desperate, ultimately triumphant struggle for survival is informative, heart-wrenching and unforgettably beautiful.Wall Street Journal, "Favorite Books of the Year 2013"Cosmopolitan, "Best Books of the Year for Women"Library Journal, "Best Books of 2013"Salon, "Best Books of 2013"

The Perfect Predator: A Scientist's Race to Save Her Husband from a Deadly Superbug: A Memoir


Steffanie Strathdee - 2019
    What at first seemed like a case of food poisoning quickly turned critical, and by the time Tom had been transferred via emergency medevac to the world-class medical center at UC San Diego, where both he and Steffanie worked, blood work revealed why modern medicine was failing: Tom was fighting one of the most dangerous, antibiotic-resistant bacteria in the world.Frantic, Steffanie combed through research old and new and came across phage therapy: the idea that the right virus, aka "the perfect predator," can kill even the most lethal bacteria. Phage treatment had fallen out of favor almost 100 years ago, after antibiotic use went mainstream. Now, with time running out, Steffanie appealed to phage researchers all over the world for help. She found allies at the FDA, researchers from Texas A&M, and a clandestine Navy biomedical center -- and together they resurrected a forgotten cure.

Mad Girl


Bryony Gordon - 2016
    It's caused alopecia, bulimia, and drug dependency. And Bryony is sick of it. Keeping silent about her illness has given it a cachet it simply does not deserve, so here she shares her story with trademark wit and dazzling honesty.A hugely successful columnist for the Telegraph, a bestselling author, and a happily married mother of an adorable daughter, Bryony has managed to laugh and live well while simultaneously grappling with her illness. Now it's time for her to speak out. Writing with her characteristic warmth and dark humour, Bryony explores her relationship with her OCD and depression as only she can.Mad Girl is a shocking, funny, unpredictable, heart-wrenching, raw and jaw-droppingly truthful celebration of life with mental illness.

Unbearable Lightness: A Story of Loss and Gain


Portia de Rossi - 2010
    It snuck up on me disguised as a healthy diet, a professional attitude. Being as thin as possible was a way to make the job of being an actress easier . . .” Portia de Rossi weighed only 82 pounds when she collapsed on the set of the Hollywood film in which she was playing her first leading role. This should have been the culmination of all her years of hard work—first as a child model in Australia, then as a cast member of one of the hottest shows on American television. On the outside she was thin and blond, glamorous and successful. On the inside, she was literally dying. In this searing, unflinchingly honest book, Portia de Rossi captures the complex emotional truth of what it is like when food, weight, and body image take priority over every other human impulse or action. She recounts the elaborate rituals around eating that came to dominate hours of every day, from keeping her daily calorie intake below 300 to eating precisely measured amounts of food out of specific bowls and only with certain utensils. When this wasn’t enough, she resorted to purging and compulsive physical exercise, driving her body and spirit to the breaking point. Even as she rose to fame as a cast member of the hit television shows Ally McBeal and Arrested Development, Portia alternately starved herself and binged, all the while terrified that the truth of her sexuality would be exposed in the tabloids. She reveals the heartache and fear that accompany a life lived in the closet, a sense of isolation that was only magnified by her unrelenting desire to be ever thinner. With the storytelling skills of a great novelist and the eye for detail of a poet, Portia makes transparent as never before the behaviors and emotions of someone living with an eating disorder. From her lowest point, Portia began the painful climb back to a life of health and honesty, falling in love with and eventually marrying Ellen DeGeneres, and emerging as an outspoken and articulate advocate for gay rights and women’s health issues. In this remarkable and beautifully written work, Portia shines a bright light on a dark subject. A crucial book for all those who might sometimes feel at war with themselves or their bodies, Unbearable Lightness is a story that inspires hope and nourishes the spirit.

I Am, I Am, I Am: Seventeen Brushes with Death


Maggie O'Farrell - 2017
    The childhood illness that left her bedridden for a year, which she was not expected to survive. A teenage yearning to escape that nearly ended in disaster. An encounter with a disturbed man on a remote path. And, most terrifying of all, an ongoing, daily struggle to protect her daughter--for whom this book was written--from a condition that leaves her unimaginably vulnerable to life's myriad dangers.Seventeen discrete encounters with Maggie at different ages, in different locations, reveal a whole life in a series of tense, visceral snapshots. In taut prose that vibrates with electricity and restrained emotion, O'Farrell captures the perils running just beneath the surface, and illuminates the preciousness, beauty, and mysteries of life itself.

Nobody Will Tell You This But Me: A True (as Told to Me) Story


Bess Kalb - 2020
    Bobby was a force--irrepressible, glamorous, unapologetically opinionated. Bobby doted on Bess; Bess adored Bobby. Then, at ninety, Bobby died. But in this debut memoir, Bobby is speaking to Bess once more, in a voice as passionate as it ever was in life.Recounting both family lore and family secrets, Bobby brings us four generations of indomitable women and the men who loved them. There's Bobby's mother, who traveled solo from Belarus to America in the 1880s to escape the pogroms, and Bess's mother, a 1970s rebel who always fought against convention. Then there's Bess, who grew up in New York and entered the rough-and-tumble world of L.A. television. Her grandma Bobby was with her all the way--she was the light of Bess's childhood and her fiercest supporter, giving Bess unequivocal love, even if sometimes of the toughest kind.In Nobody Will Tell You This But Me, Bobby reminds Bess of the experiences they shared, and she delivers--in phone calls, texts, and unforgettable heart-to-hearts brought vividly to the page--her signature wisdom:If the earth is cracking behind you, you put one foot in front of the other. Never. Buy. Fake. Anything.I swear on your life every word of this is true.With humor and poignancy, Bess Kalb gives us proof of the special bond that can skip a generation and endure beyond death. This book is a feat of extraordinary ventriloquism and imagination by a remarkably talented writer.

Hurry Down Sunshine


Michael Greenberg - 2008
    It begins with Sally’s visionary crack-up on the streets of Greenwich Village, and continues, among other places, in the out-of-time world of a Manhattan psychiatric ward during the city’s most sweltering months. “I feel like I’m traveling and traveling with nowhere to go back to,” Sally says in a burst of lucidity while hurtling away toward some place her father could not dream of or imagine. Hurry Down Sunshine is the chronicle of that journey, and its effect on Sally and those closest to her–her brother and grandmother, her mother and stepmother, and, not least of all, the author himself. Among Greenberg’s unforgettable gallery of characters are an unconventional psychiatrist, an Orthodox Jewish patient, a manic Classics professor, a movie producer, and a landlord with literary dreams. Unsentimental, nuanced, and deeply humane, Hurry Down Sunshine holds the reader in a mesmerizing state of suspension between the mundane and the transcendent.

All the Young Men


Ruth Coker Burks - 2020
    She witnesses nurses drawing straws to see who would tend to the patient inside, all of them reluctant to enter the room. Out of impulse, Ruth herself enters the quarantined space and immediately begins to care for the young man who cries for his mother in the last moments of his life. Before she can even process what she's done, word spreads in the community that Ruth is the only person willing to help these young men afflicted by AIDS, and is called upon to nurse them. As she forges deep friendships with the men she helps, she works tirelessly to find them housing and jobs, even searching for funeral homes willing to take their bodies - often in the middle of the night. She cooks meals for tens of people out of discarded food found in the dumpsters behind supermarkets, stores rare medications for her most urgent patients, teaches sex-ed to drag queens after hours at secret bars, and becomes a beacon of hope to an otherwise spurned group of ailing gay men on the fringes of a deeply conservative state.Throughout the years, Ruth defies local pastors and nurses to help the men she cares for: Paul and Billy, Angel, Chip, Todd and Luke. Emboldened by the weight of their collective pain, she fervently advocates for their safety and visibility, ultimately advising Governor Bill Clinton on the national HIV-AIDS crisis.This deeply moving and elegiac memoir honors the extraordinary life of Ruth Coker Burks and the beloved men who fought valiantly for their lives with AIDS during a most hostile and misinformed time in America.

Smashed: Story of a Drunken Girlhood


Koren Zailckas - 2005
    Eye-opening and utterly gripping, Koren Zailckas’s story is that of thousands of girls like her who are not alcoholics yet but who routinely use booze as a shortcut to courage and a stand-in for good judgment.With one stiff sip of Southern Comfort at the age of fourteen, Zailckas is initiated into the world of drinking. From then on, she will drink faithfully, fanatically. In high school, her experimentation will lead to a stomach pumping. In college, her excess will give way to a pattern of self-poisoning that will grow more destructive each year. At age twenty-two, Zailckas will wake up in an unfamiliar apartment in New York City, elbow her friend who is passed out next to her, and ask, "Where are we?" Smashed is a sober look at how she got there and, after years of blackouts and smashups, what it took for her to realize she had to stop drinking. Smashed is an astonishing literary debut destined to become a classic.

The Beauty in Breaking


Michele Harper - 2020
    Brought up in Washington, DC, in an abusive family, she went to Harvard, where she met her husband. They stayed together through medical school until two months before she was scheduled to join the staff of a hospital in central Philadelphia, when he told her he couldn't move with her. Her marriage at an end, Harper began her new life in a new city, in a new job, as a newly single woman.In the ensuing years, as Harper learned to become an effective ER physician, bringing insight and empathy to every patient encounter, she came to understand that each of us is broken—physically, emotionally, psychically. How we recognize those breaks, how we try to mend them, and where we go from there are all crucial parts of the healing process.The Beauty in Breaking is the poignant true story of Harper's journey toward self-healing. Each of the patients Harper writes about taught her something important about recuperation and recovery. How to let go of fear even when the future is murky. How to tell the truth when it's simpler to overlook it. How to understand that compassion isn't the same as justice. As she shines a light on the systemic disenfranchisement of the patients she treats as they struggle to maintain their health and dignity, Harper comes to understand the importance of allowing ourselves to make peace with the past as we draw support from the present. In this hopeful, moving, and beautiful book, she passes along the precious, necessary lessons that she has learned as a daughter, a woman, and a physician.