Until I Say Goodbye: A Book about Living


Susan Spencer-Wendel - 2012
    She was forty-four years old, with a devoted husband and three young children, and she had only one year of health remaining.Susan decided to live that year with joy.She quit her job as a journalist and spent time with her family. She built an outdoor meeting space for friends in her backyard. And she took seven trips with the seven most important people in her life. As her health declined, Susan journeyed to the Yukon, Hungary, the Bahamas, and Cyprus. She took her sons to swim with dolphins, and her teenage daughter, Marina, to Kleinfeld's bridal shop in New York City to see her for the first and last time in a wedding dress.She also wrote this book. No longer able to walk or even to lift her arms, she tapped it out letter by letter on her iPhone using only her right thumb, the last finger still working.However, Until I Say Good-Bye is not angry or bitter. It is sad in parts--how could it not be?--but it is filled with Susan's optimism, joie de vivre, and sense of humor. It is a book about life, not death. One that, like Susan, will make everyone smile.From the Burger King parking lot where she cried after her diagnosis to a snowy hot spring near the Arctic Circle, from a hilarious family Christmas disaster to the decrepit monastery in eastern Cyprus where she rediscovered her heritage, Until I Say Good-Bye is not only Susan Spencer-Wendel's unforgettable gift to her loved ones--a heartfelt record of their final experiences together--but an offering to all of us: a reminder that "every day is better when it is lived with joy."

The match : complete strangers, a miracle face transplant, two lives transformed


Susan Whitman Helfgot - 2010
    But his heart was failing. After months of waiting for a heart transplant, he died during the operation. Hours after his death, his wife Susan was asked a shocking question: would she donate her husband’s face to a total stranger?The stranger was James Maki, the adopted son of parents who spent part of World War II in an internment camp for Japanese Americans. Rebelling against his stern father, a professor, by enlisting to serve in Vietnam, he returned home a broken man, addicted to drugs. One night he fell facedown onto the electrified third rail of a Boston subway track.A young Czech surgeon who was determined to make a better life on the other side of the Iron Curtain was on call when the ambulance brought Maki to the hospital. Although Dr. Bohdan Pomahac gave him little chance of survival, Maki battled back. He was sober and grateful for a second chance, but he became a recluse, a man without a face. His only hope was a controversial face transplant, and Dr. Pomahac made it happen.In The Match, Susan Whitman Helfgot captures decades of drama and history, taking us from Warsaw to Japan, from New York to Hollywood. Through wars and immigration, poverty and persecution, from a medieval cadaver dissection to a stunning seventeen-hour face transplant, she weaves together the story of people forever intertwined—a triumphant legacy of hope.

Love & Justice: A Compelling True Story Of Triumph Over Tragedy


Diana Morgan-Hill - 2015
    At the age of 29, Diana Hill fell under a London train. In 7 seconds the tall, glamorous businesswoman went from busy woman of the world with everything to live for to double-leg amputee, her life in ruins. Then it got worse. A few days after her accident, as she lay in hospital, traumatised and heavily sedated, she learnt via a newspaper article that the railway’s Transport Police were to interview “The Fall Girl”, as the Press had labelled her, with a view to prosecution. She had boarded a moving train, they said, and trespassed onto their railway line. Her fight for justice took 5 years and was, she declares with no hesitation, a more harrowing experience than having both of her legs ‘stolen’ from her. As any young, single woman would be, Diana was shocked to the core by the sudden, catastrophic change in her body image. What man would ever love her now? The issues surrounding sexuality and disability are explored here with stark honesty as she recalls her complicated love life, the High Court dramas, and the rawness of her pain amidst a turmoil of emotion, all told with tremendous humour, charm and heart. For Diana loves to tell stories. Especially true ones. A brutally honest, heartwarming memoir that shocks and delights in equal measure – when you're not crying for her you're laughing with her: "A computer is a thing that can be disabled, not a person." Diana Morgan-Hill

La Doctora: An American Doctor In The Amazon


Linnea Smith - 1998
    Linnea Smith went to Peru on an ecotourism vacation. She was so moved that she abandoned her thriving medical practice in Wisconsin to serve the Yagua Indians in the deepest part of the Amazon rainforest of Peru-alone.Taken straight from the pages of Dr. Smith’s journal, La Doctora offers readers a rare glimpse into the suspense and drama of practicing medicine in a culture far removed from the sophisticated supplies and supports of 20th-century medicine.Learn how Dr. Smith evolved from a “strange white woman” to an adopted member of the indigenous community. Her story of adventure, self-discovery and service creates inspiring testimony to one person’s power to make a lasting difference.

My Lobotomy: A Memoir


Howard Dully - 2007
    Yet somehow, this normal boy became one of the youngest people on whom Dr. Walter Freeman performed his barbaric transorbital—or ice pick—lobotomy.Abandoned by his family within a year of the surgery, Howard spent his teen years in mental institutions, his twenties in jail, and his thirties in a bottle. It wasn’t until he was in his forties that Howard began to pull his life together. But even as he began to live the “normal” life he had been denied, Howard struggled with one question: Why?“October 8, 1960. I gather that Mrs. Dully is perpetually talking, admonishing, correcting, and getting worked up into a spasm, whereas her husband is impatient, explosive, rather brutal, won’t let the boy speak for himself, and calls him numbskull, dimwit, and other uncomplimentary names.”There were only three people who would know the truth: Freeman, the man who performed the procedure; Lou, his cold and demanding stepmother who brought Howard to the doctor’s attention; and his father, Rodney. Of the three, only Rodney, the man who hadn’t intervened on his son’s behalf, was still living. Time was running out. Stable and happy for the first time in decades, Howard began to search for answers. “December 3, 1960. Mr. and Mrs. Dully have apparently decided to have Howard operated on. I suggested [they] not tell Howard anything about it.”Through his research, Howard met other lobotomy patients and their families, talked with one of Freeman’s sons about his father’s controversial life’s work, and confronted Rodney about his complicity. And, in the archive where the doctor’s files are stored, he finally came face to face with the truth.Revealing what happened to a child no one—not his father, not the medical community, not the state—was willing to protect, My Lobotomy exposes a shameful chapter in the history of the treatment of mental illness. Yet, ultimately, this is a powerful and moving chronicle of the life of one man. Without reticence, Howard Dully shares the story of a painfully dysfunctional childhood, a misspent youth, his struggle to claim the life that was taken from him, and his redemption.

Out of This World: A Journey of Healing


Mary Swander - 1995
    In this simple yet profound memoir, she shares her experiences as she explores what it means to be a lone woman homesteader at the end of the 20th century, discovering the quiet spirituality born of a life on the land.

You Don't Look Like Anyone I Know: A True Story of Family, Face Blindness, and Forgiveness


Heather Sellers - 2010
     Heather Sellers is face-blind-that is, she has prosopagnosia, a rare neurological condition that prevents her from reliably recognizing people's faces. Growing up, unaware of the reason for her perpetual confusion and anxiety, she took what cues she could from speech, hairstyle, and gait. But she sometimes kissed a stranger, thinking he was her boyfriend, or failed to recognize even her own father and mother. She feared she must be crazy. Yet it was her mother who nailed windows shut and covered them with blankets, made her daughter walk on her knees to spare the carpeting, had her practice secret words to use in the likely event of abduction. Her father went on weeklong "fishing trips" (aka benders), took in drifters, wore panty hose and bras under his regular clothes. Heather clung to a barely coherent story of a "normal" childhood in order to survive the one she had. That fairy tale unraveled two decades later when Heather took the man she would marry home to meet her parents and began to discover the truth about her family and about herself. As she came at last to trust her own perceptions, she learned the gift of perspective: that embracing the past as it is allows us to let it go. And she illuminated a deeper truth-that even in the most flawed circumstances, love may be seen and felt. Watch a Video

Until It Hurts: America's Obsession with Youth Sports and How It Harms Our Kids


Mark Hyman - 2009
    With each throw to home plate, he felt a twinge in his still maturing arm. Any doctor would have advised the young boy to take off the rest of the season. Author Mark Hyman sent his son out to pitch the next game. After all, it was play-off time. Stories like these are not uncommon. Over the last seventy-five years, adults have staged a hostile takeover of kids' sports. In 2003 alone, more than 3.5 million children under age fifteen required medical treatment for sports injuries, nearly half of which were the result of simple overuse. The quest to turn children into tomorrow's superstar athletes has often led adults to push them beyond physical and emotional limits.In Until It Hurts, journalist, coach, and sports dad Mark Hyman explores how youth sports reached this problematic state. His investigation takes him from the Little League World Series in Pennsylvania to a prestigious Chicago soccer club, from adolescent golf and tennis superstars in Atlanta to California volleyball players. He interviews dozens of children, parents, coaches, psychologists, surgeons, sports medicine specialists, and former professional athletes. He speaks at length with Whitney Phelps, Michael's older sister; retraces the story of A Very Young Gymnast, and its subject, Torrance York; and tells the saga of the Castle High School girls' basketball team of Evansville, Indiana, which in 2005 lost three-fifths of its lineup to ACL injuries. Along the way, Hyman hears numerous stories: about a mother who left her fifteen-year-old daughter at an interstate exit after a heated exchange over her performance during a soccer game, about a coach who ordered preteens to swim laps in three-hour shifts for twenty-four hours.Hyman's exploration leads him to examine the history of youth sports in our country and how it's evolved, particularly with the increasing involvement of girls and much more proactive participation of parents. With its unique multiple perspective-of history, of reporting, and of personal experience-this book delves deep into the complicated issue of sports for children, and opens up a much-needed discussion about the perils of youth sports culture today. Hyman focuses not only on the unfortunate cases of overzealous parents and overly ambitious kids, but also on how positive change can be made, and concludes by shining a spotlight on some inspirational parents and model sports programs, giving hope that the current destructive cycle can be broken.

Rethinking Possible: A Memoir of Resilience


Rebecca Faye Smith Galli - 2017
    With a pastor father and a stay-at-home mother, her 1960s southern upbringing was bucolic--even enviable. But when her brother, only seventeen, died in a waterskiing accident, the slow unraveling of her perfect family began. Though grief overwhelmed the family, twenty-year-old Galli forged onward with her life plans--marriage, career, and raising a family of her own--one she hoped would be as idyllic as the family she once knew. But life had less than ideal plans in store. There was her son's degenerative, undiagnosed disease and subsequent death; followed by her daughter's autism diagnosis; her separation; and then, nine days after the divorce was final, the onset of the transverse myelitis that would leave Galli paralyzed from the waist down. Despite such unspeakable tragedy, Galli maintained her belief in family, in faith, in loving unconditionally, and in learning to not only accept, but also embrace a life that had veered down a path far different from the one she had envisioned. At once heartbreaking and inspiring, Rethinking Possible is a story about the power of love over loss and the choices we all make that shape our lives --especially when forced to confront the unimaginable.

Happily Ever After: My Journey with Guillain-Barr Syndrome and How I Got My Life Back


Holly Gerlach - 2012
    In less than three days, she was paralyzed and could no longer breathe on her own. She was diagnosed with Guillain-Barre syndrome, a rare autoimmune disorder that occurs when the body's immune system mistakenly attacks part of the nervous system. She was admitted to the hospital, where she spent two and a half months in the intensive care unit on a ventilator. She couldn't move, she couldn't speak, and worst of all, she couldn't hold her newborn daughter. She felt like her life was over as she couldn't be the mother that she had always wanted to be. As the weeks went on, the paralysis began to wear off. And once she was able to breathe on her own again, she started on her road to recovery. With intense physiotherapy, she learned how to use her muscles again and eventually how to walk again. She was determined, and worked hard, and after a long four months in the hospital, she was able to reach her goal of getting back to her husband and daughter. Holly Gerlach shares her inspirational story, where she faced the most terrifying and challenging experiences of her life. The book follows her entire journey, starting with the beginning symptoms, through the many months she spent in the hospital. The story continues on well past her release from the hospital, where she fought to regain her independence and eventually got her life back.

Intensive Care: A Doctor's Journey


Danielle Ofri - 2013
    Her vivid prose brings the reader into bustling hospitals, tense exam rooms, and Ofri's own life, giving an up-close look at the fast-paced, life-and-death drama of becoming a doctor. She tells of a young man uncertain of his future who comes into the clinic with a stomach complaint but for whom Dr. Ofri sees that the most useful "treatment" she can offer him is SAT tutoring. She writes of a desperate struggle to communicate with a critically ill patient who only speaks Mandarin, of a doctor whose experience in the NICU leaves her paralyzed with PTSD, and of her own struggles with the fear of making fatal errors, the dangers of overconfidence, and the impossible attempts to balance the empathy necessary for good care with the distance necessary for self-preservation. Through these stories of her patients, colleagues, and her own experiences, Intensive Care offers poignant insight into the medical world, and into the hearts and minds of doctors and their patients. These stories are drawn from the author’s previous books and one is from her forthcoming book, What Doctors Feel: How Emotions Affect the Practice of Medicine.excerpted from Amazon.com Book Description

Blue Girl: Nursing Beyond the Ward


Emma Gracie - 2020
    This unexpected journey lit a fire in me that would carry me through the next 23 years of nursing.I’ve witnessed births, deaths and all that lies in between. I’ve been exhausted, heartbroken and sexually assaulted. I’ve anguished over children who aren’t my own and I have battled an illness that forced me to change places from nurse to patient.But I have also had a blast. I’ve met and learned from extraordinary characters who I can never forget. I’d love you to meet them too and share the crazy, sad, shocking, moving and hilarious experiences that made me Blue Girl.

Carrier: Untangling the Danger in My DNA


Bonnie J. Rough - 2010
    Rough receives the test results that confirm she is a carrier of the genetic condition "hypohidrotic ectodermal dysplasia," or H.E.D., it propels her on a journey deep into her family's past in the American West.At first glance, H.E.D. seems only to be a superficial condition: a peculiar facial bone structure, sparse hair, few teeth, and an inability to sweat. But a closer look reveals the source of a lifetime of infections, breathing problems, and drug dependency for Bonnie's grandfather Earl, who suffered from the disorder. After a boyhood as a small-town oddity and an adulthood fraught with disaster, Earl died penniless and alone at the age of 49. Bonnie's mother was left with an inheritance that included not just the gene for H.E.D., but also the emotional pain that came from witnessing her father's misery.As Bonnie and her husband consider becoming parents themselves, their biological legacy haunts every decision. The availability of genetic testing gives them new choices to make, choices more excruciating than any previous generation could have imagined. Ultimately, Carrier is a story of a modern moral crisis, one that reveals the eternal tension between past and future."

Medic!: The Story of a Conscientious Objector in the Vietnam War


Ben Sherman - 2002
    A conscientious objector who served as a medic during the Vietnam War offers an unflinching, compelling account of his experiences on the battlefield, describing his work with the injured and dying in the heart of combat.

Rx


Rachel Lindsay - 2018
    But work takes a strange turn when she is promoted onto the Pfizer account and suddenly finds herself on the other side of the curtain, developing ads for an anti-depressant drug. Overwhelmed by her professional life and the self-scrutiny it inspires, her mania takes hold. She quits her job to become an artist, only to be hospitalized by her parents against her will. Over the course of her two weeks in the ward, she tries to find a path out of the hospital and this cycle of treatment. One where she can live the life she wants, finding freedom and autonomy, without sacrificing her dreams in order to stay well.