Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

    She leaves behind a close-knit family and a failed romance in Ireland to begin training in Barnet and Middlesex. She early on treats a patient who eventually becomes her husband and means that she accepts a job in the north of England that takes her first by bicycle and then in an unreliable little car, into the homes of the people who need her care. In DISTRICT NURSE, she brings to life everyone she encounters, from the doctors and other nurses to the diverse and always compelling patients. It is a captivating personal account of a life spent helping others.

    He has kept a blog of his daily working life since 2003 and his award-winning writing is, by turn, moving, cynical, funny, heart-rending, and compassionate. From the tragic to the hilarious, the stories Tom tells give a fascinatingand at times alarming picture of life in inner-city Britain, and the people who are paid to mop up after it.

    The bestselling author of Shadow Divers returns with a riveting story of exploration, mystery, and the discovery of an unknown world--this time about one man's incredible odyssey from blindness into sight.

    And, of course, there's her mother - whether she's writing another ingratiating letter to the Queen or referring to Tom Jones as 'Thumb Jone'.But Zaiba's story is also one of anxiety and seemingly irreconcilable opposites. Growing up she is constantly torn between two identities: 'British' and 'Muslim'. Alienated at school and confused at home, the racism she encounters as a child mirrors the horrors she experiences at the hands of Bangladeshi interrogators as a journalist years later.Five years after the 7/7 attacks galvanized debates about Muslim-British identity, We Are A Muslim, Please is a stirring and enchanting memoir. We see, through Zaiba's childhood eyes, the poignancy of growing up in a world whose prejudices, contradictions and ambiguities are at once distressing and utterly captivating.

    She is assured that 90 percent of Bell’s palsy patients see spontaneous improvement and experience a full recovery. Like Ruhl’s own mother. But Sarah is in the unlucky ten percent. And for a woman, wife, mother, and artist working in theater, the paralysis and the disconnect between the interior and exterior brings significant and specific challenges. So Ruhl begins an intense decade-long search for a cure while simultaneously grappling with the reality of her new face—one that, while recognizably her own—is incapable of accurately communicating feelings or intentions. In a series of piercing, witty, and lucid meditations, Ruhl chronicles her journey as a patient, wife, mother, and artist. She explores the struggle of a body yearning to match its inner landscape, the pain of postpartum depression, the story of a marriage, being a playwright and working mom to three small children, and the desire for a resilient spiritual life in the face of illness. Brimming with insight, humility, and levity, Smile is a triumph by one of America’s leading playwrights. It is an intimate examination of loss and reconciliation, and above all else, the importance of perseverance and hope in the face of adversity.

    It is the story of two nurses who witnessed the early years of the HIV/AIDS epidemic from the frontline. It focuses on their lives and their experiences. Some of the story is raw, sometimes graphic, but familiar for people with HIV infection, family members, friends, and other nurses and medical professionals such as Ellen and Valery. There were hundreds of nurses who went through what Ellen and Valery experienced. They want to tell this story to give a voice to a generation lost, encouraging the world to remember one simple thing: this history cannot be repeated.

    He didn’t leave for two and a half months. Watt had developed a rare life-threatening disease that initially baffled doctors. By the time he was allowed home, his ravaged body was forty-six pounds lighter and he was missing most of his small intestine. Watt injects pathos and humor into his medical nightmare, writing about his childhood, reflecting on his family and on his shared life with band member and partner Tracey Thorn. The result is a provocative and affecting memoir about life, illness, and survival.

    At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.

    Song without Words tells the astonishing story of a man who, at the age of thirty-four, discovered that he had been deaf since childhood, yet somehow managed to navigate his way through Andover, Yale, and Columbia Law School, and to establish a prestigious international legal career. Gerald Shea's witty and candid memoir of how he compensated for his deafness -- through sheer determination and an amazing ability to translate the melody of vowels. His experience gives fascinating new insight into the nature and significance of language, the meaning of deafness, the fierce controversy between advocates of signing and of oral education, and the longing for full communication that unites us all.

    Standefer finds herself asking one night after being suddenly shocked by her implanted cardiac defibrillator.In this gripping, intimate memoir about health, illness, and the invisible reverberating effects of our medical system, Standefer recounts the astonishing true story of the rare diagnosis that upended her rugged life in the mountains of Wyoming and sent her tumbling into a fraught maze of cardiology units, dramatic surgeries, and slow, painful recoveries. As her life increasingly comes to revolve around the internal defibrillator freshly wired into her heart, she becomes consumed with questions about the supply chain that allows such an ostensibly miraculous device to exist. So she sets out to trace its materials back to their roots.From the sterile labs of a medical device manufacturer in southern California to the tantalum and tin mines seized by armed groups in the Democratic Republic of the Congo to a nickel and cobalt mine carved out of endemic Madagascar jungle, Lightning Flowers takes us on a global reckoning with the social and environmental costs of a technology that promises to be lifesaving but is, in fact, much more complicated.Deeply personal and sharply reported, Lightning Flowers takes a hard look at technological mythos, healthcare, and our cultural relationship to medical technology, raising important questions about our obligations to one another, and the cost of saving one life.

     It was a battle that nearly everyone but attorney Jim Ferraro deemed unwinnable. After all, it involved one of the world's most powerful industrial giants. In the process, it was a fight that changed the landscape of tort law forever. Before it was over Castillo-vs-DuPont would go down in history as the first and one of the most important cases of its kind, setting precedent and also sparking a crucial debate over the questionable use of what is known as the "junk-science defense." Blindsided is a real life David and Goliath story-a true courtroom drama for the ages.

    Her late husband had hidden the truth, Joan has Alzheimer's disease. As Joan's mind continues to unravel, family relationships are put to the test. When Joan is abused by those entrusted with her care, the question arises; is anyone prepared to reveal the truth of what really goes on behind closed doors?

    At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a yearslong nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better.Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications.Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.

    Using a very personal approach, he offers practical guidance to help others avoid the anguish he has endured.An Academy and Tony Award nominee and a 2007 recipient of Golden Globe, SAG, and Television Critics Association Awards for best actor in a comedy, Alec Baldwin is one of the best-known, most successful actors in the world. His relationship with Kim Basinger, the Academy Award–winning actress, lasted nearly a decade. They have a daughter named Ireland, and for a time, theirs seemed to be the model of a successful Hollywood marriage. But in 2000 they separated and in 2002 divorced. Their split---specifically the custody battle surrounding Ireland---would be the subject of media attention for years to come.In his own life and others’, Baldwin has seen the heavy toll that divorce can take---psychologically, emotionally, and financially. He has been extensively involved in divorce litigation, and he has witnessed the way that noncustodial parents, especially fathers, are often forced to abandon hopes of equitable rights when it comes to their children. He makes a powerful case for reexamining and changing the way divorce and child custody is decided in this country and levels a scathing attack at what he calls the “family law industry.”When it comes to his experiences with judges, court-appointed therapists, and lawyers, Baldwin pulls no punches. He casts a light on his own divorce and the way the current family law system affected him, his ex-wife, and his daughter, as well as many other families. This is an important, informative, and deeply felt book on a contentious subject that offers hope of finding a better way.