Beyond the Pale: Folklore, Family and the Mystery of Our Hidden Genes


Emily Urquhart - 2015
    Stephen's Day, 2010, in St. John's, Newfoundland, when the author gives birth to a baby girl named Sadie Jane who has a shock of snow-white hair. News of the child's icy locks travels across the hospital, and physicians and nurses from all wards visit the unusually beautiful newborn as she lies sleeping in her plastic bassinet. The maternity-floor janitor, however, feels something is amiss. Her eyes wide, incredulous and panicky, the janitor asks, "Is she an albino?" The idea is immediately dismissed, but after three months of medical testing, Sadie is diagnosed with albinism, a rare genetic condition where pigment fails to form in the skin, hair and eyes. She is visually impaired and faces a lifetime avoiding the sun. She will always have the otherworldly appearance that drew the awestruck hospital staff to her side.A journalist and folklore scholar accustomed to processing the world through other people's stories, Emily is drawn to understanding her child's difference by researching the cultural beliefs associated with albinism worldwide. What she finds on her journey vacillates between beauty and darkness. She discovers that Noah's birth story is believed to be the first record of a baby born with albinism, and that the Kuna people in Panama revere members of their society with albinism, seeing them as defenders of the moon in the night sky. She attends a gathering of people with albinism in St. Louis and interviews geneticists, social scientists, novelists and folklorists in Canada, England and the US. But when she uncovers information about gruesome attacks on people with albinism in Tanzania, rooted in witchcraft, she feels compelled to travel to East Africa, her sun-shy toddler in tow, in an effort to understand these human-rights violations. Upon her return to Canada she discovers a family photograph from the past that might illuminate her daughter’s present. While navigating new territory as a first-time parent of a child with a disability, Emily embarks on a three-year journey across North America and Africa to discover how we explain human differences, not through scientific facts or statistics but through a system of cultural beliefs. Part parenting memoir, part cultural critique and part travelogue, Beyond the Pale, as the title suggests, takes the reader into dark and unknown territory in the search for enlightenment.

Hope's Boy: A Memoir


Andrew Bridge - 2008
    Trapped in desperate poverty and confronted with unthinkable tragedies, all Andrew ever wanted was to be with his mom. But as her mental health steadily declined, and with no one else left to care for him, authorities arrived and tore Andrew from his screaming mother's arms. In that moment, the life he knew came crashing down around him. He was only seven years old. Hope was institutionalized, and Andrew was placed in what would be his devastating reality for the next eleven years--foster care. After surviving one of our country's most notorious children's facilities, Andrew was thrust into a savagely loveless foster family that refused to accept him as one of their own. Deprived of the nurturing he needed, Andrew clung to academics and the kindness of teachers. All the while, he refused to surrender the love he held for his mother in his heart. Ultimately, Andrew earned a scholarship to Wesleyan, went on to Harvard Law School, and became a Fulbright Scholar. Andrew has dedicated his life's work to helping children living in poverty and in the foster care system. He defied the staggering odds set against him, and here in this heartwrenching, brutally honest, and inspirational memoir, he reveals who Hope's boy really is.

Beautiful Boy: A Father's Journey Through His Son's Addiction


David Sheff - 2007
    Before Nic became addicted to crystal meth, he was a charming boy, joyous and funny, a varsity athlete and honor student adored by his two younger siblings. After meth, he was a trembling wraith who lied, stole, and lived on the streets. David Sheff traces the first warning signs: the denial, the three a.m. phone calls—is it Nic? the police? the hospital? His preoccupation with Nic became an addiction in itself. But as a journalist, he instinctively researched every treatment that might save his son. And he refused to give up on Nic.

The Theft of Memory: Losing My father, One Day at a Time


Jonathan Kozol - 2015
    Departing from the South Bronx and turning his sensitive eye to his own life and legacy, The Theft of Memory is Kozol's most personal book to date, as it explores the life of his father, Harry. Dr. Harry L. Kozol was a nationally-renowned neurologist whose work helped establish the emerging fields of forensic psychiatry and neuropsychiatry. He was a remarkable clinician with unusual capacity to diagnose and identify neurological and psychotic illnesses in highly complicated and sophisticated people, including well-known artists, writers, and intellectuals. Notably, in Eugene O'Neill's last years, the playwright moved to Boston so that he could live close to Kozol's father's office.In addition to his successful private practice in Boston, Kozol operated in a grim arena marked by extreme violence. But while his role as a forensic expert placed him in the public eye for high-profile criminal defendants such as Albert DeSalvo (the Boston Strangler) and Patty Hearst, he was--as his son articulates--"a healer of tormented people, not their judge, not their interrogator."With the same lyricism and clarity that have defined Kozol's acclaimed work on education for decades,The Theft of Memory intimately describes Harry's vibrant life, the challenges following his self-diagnosis of Alzheimer's, and the evolution of their relationship throughout.This unique biography will have a long shelf life as a moving portrait of an extraordinary man, a window into the heart of one of our nation's foremost education activists, and a frank examination of how we come to terms with caregiving.

The Great Pretender: The Undercover Mission That Changed Our Understanding of Madness


Susannah Cahalan - 2019
    Forced to remain inside until they'd "proven" themselves sane, all eight emerged with alarming diagnoses and even more troubling stories of their treatment. Rosenhan's study broke open the field of psychiatry, closing down institutions and changing mental health diagnosis forever. But, as Cahalan's new research shows, very little in this saga is exactly as it seems. What really happened behind those closed asylum doors, and what does it mean for our understanding of mental illness today?

Death Be Not Proud


John Gunther - 1949
    The book opens with his father's fond, vivid portrait of his son - a young man of extraordinary intellectual promise, who excelled at physics, math, and chess, but was also an active, good-hearted, and fun-loving kid. But the heart of the book is a description of the agonized months during which Gunther and his former wife Frances try everything in their power to halt the spread of Johnny's cancer and to make him as happy and comfortable as possible. In the last months of his life, Johnny strove hard to complete his high school studies. The scene of his graduation ceremony from Deerfield Academy is one of the most powerful - and heartbreaking - in the entire book. Johnny maintained his courage, wit and quiet friendliness up to the end of his life. He died on June 30, 1947, less than a month after graduating from Deerfield.

The Power of Different: The Link Between Disorder and Genius


Gail Saltz - 2017
    Saltz shows how the very conditions that cause people to experience difficulty at school, in social situations, at home, or at work, are inextricably bound to creative, disciplinary, artistic, empathetic, and cognitive abilities.In this pioneering work, readers will find engaging scientific research and stories from historical geniuses and everyday individuals who have not only made the most of their conditions, but who have flourished because of them. They are leaning into their brain differences to:*Identify areas of interest and expertise*Develop work arounds*Create the environments that best foster their talents*Forge rewarding interpersonal relationshipsEnlightening and inspiring, The Power of Different proves that the unique wiring of every brain can be a source of strength and productivity, and contributes to the richness of our world.

24/6: Giving up screens one day a week to get more time, creativity, and connection


Tiffany Shlain - 2019
    Internet pioneer and renowned filmmaker Tiffany Shlain takes us on a provocative and entertaining journey through time and technology, introducing a strategy for living in our 24/7 world: turning off all screens for twenty-four hours each week. This practice, which she’s done for nearly a decade with her husband and kids, has completely changed their lives, giving them more time, productivity, connection, and presence. She and her family call it “Technology Shabbat.” Drawn from the ancient ritual of Shabbat, living 24/6 can work for anyone from any background. In this “useful and much-needed guide to turning the clock back to a less frazzled pre-Internet and -smartphone day” (Kirkus Reviews), Shlain shares her story, offers lessons she has learned, and provides a blueprint for how to do it yourself. Along the way, she delves into the neuroscience, philosophy, psychology, and history of a weekly day of rest across cultures, making the case for why we need to bring this ritual back. A compelling personal story and a fascinating, far-reaching examination of the complex world we’ve created, 24/6 is a call to regain “the essential dignity of being human in a digital age” (Douglas Rushkoff, author of Team Human).

Motherhood


Sheila Heti - 2018
    In a narrative spanning several years, casting among the influence of her peers, partner, and her duties to her forbearers, she struggles to make a wise and moral choice. After seeking guidance from philosophy, her body, mysticism, and chance, she discovers her answer much closer to home.Motherhood is a courageous, keenly felt, and starkly original novel that will surely spark lively conversations about womanhood, parenthood, and about how—and for whom—to live.

Pope Awesome and Other Stories


Cari Donaldson - 2013
    Catholic homeschooler Cari Donaldson here relates how her friend’s newborn baby, a portrait of the Virgin Mary, and the words of the Miraculous Medal called her forth from a selfish, small way of life into the welcoming arms of the Church.

Epiphany: A Christian's Change of Heart & Mind over Same-Sex Marriage


Michael Coren - 2016
    It was one of countless posts, tweets, and articles that have condemned me for coming out in favour of same-sex marriage. I've also been fired from columns that I wrote for years, been banned from various Catholic TV and radio stations, had speeches cancelled, and been accused of cheating on my wife. My children have been called gay, and I have been compared to a child molester and a murderer. These are new experiences for me. Until last year, I was considered something of a champion of social conservatism in Canada and was well known among politically active Christians. I hosted a nightly show on Crossroads Television for twelve years, was a syndicated Sun columnist, and wrote briskly selling books with such titles as Why Catholics Are Right. Today, I am working away at a new book, Epiphany: Changing Heart and Mind on Same-Sex Marriage. How and why did it go so terribly wrong?" --Michael CorenWhat went "terribly wrong" is that Michael Coren had a profound spiritual and personal change of heart. Epiphany is about how and why that happened; the reaction from both sides of the fence; and how the Christian doctrine, when studied closely and without bias, heartily supports Michael's findings. As a middle-aged, very white, very straight, very Christian man, he was obliged, first reluctantly and then eagerly, to explore the complex dynamic between faith and homosexuality and to work out a new narrative. The crux of that narrative: God is love.      Honest, brave, and rigorous in its scholarship, Epiphany is a groundbreaking book on one of society's most pressing issues.

Chuvalo: A Fighter's Life: The Story of Boxing's Last Gladiator


George Chuvalo - 2013
    After teaching himself the basics, he turned pro as an eighteen-year-old in 1956 and over the next twenty-three years fought some of the sport's greatest names: Joe Frazier, George Foreman and, most famously, Muhammad Ali (twice). Since retiring from the ring in 1979, Chuvalo has had to come to terms with a series of crushing body blows. His youngest son, a heroin addict, died of a self-inflicted gunshot wound. Two other sons died from heroin overdoses. His first wife, overcome with grief, took her own life. Yet Chuvalo has stoically fought back. He formed his Fight Against Drugs foundation in 1996 and has spent the past seventeen years travelling across Canada and to parts of the United States, talking to tens of thousands of students and young adults about what happened to his family.An inspirational story of a Canadian icon, Chuvalo is both a top-flight boxing memoir and a poignant, hard-hitting story of coping with unimaginable loss.

Buck: A Memoir


M.K. Asante - 2013
      MK Asante was born in Zimbabwe to American parents: a mother who led the new nation’s dance company and a father who would soon become a revered pioneer in black studies. But things fell apart, and a decade later MK was in America, a teenager lost in a fog of drugs, sex, and violence on the streets of North Philadelphia. Now he was alone—his mother in a mental hospital, his father gone, his older brother locked up in a prison on the other side of the country—and forced to find his own way to survive physically, mentally, and spiritually, by any means necessary. Buck is a powerful memoir of how a precocious kid educated himself through the most unconventional teachers—outlaws and eccentrics, rappers and mystic strangers, ghetto philosophers and strippers, and, eventually, an alternative school that transformed his life with a single blank sheet of paper. It’s a one-of-a-kind story about finding your purpose in life, and an inspiring tribute to the power of education, art, and love to heal and redeem us.

My Bucket Has Holes: Living with Bipolar II


Sarah Loucks - 2016
    From childhood to diagnosis to mental hospitals, everything is included, including the ugly parts of being raised in a time period that did not understand mental illness and instead applied "tough love" to children who acted abnormally.

How to Survive the Loss of a Parent


Lois F. Akner - 1993
    They're surprised at the complex feelings of love, loss, anger, and guilt, and at the unresolved issues that emerge. Therapist Lois Akner explains why the loss of a parent is different from other losses and, using examples from her experience, shows how it is possible to work through the grief.Anyone who is going through or trying to prepare for this natural, normal, inevitable loss will find How to Survive the Loss of a Parent a powerful, healing message.