Ido in Autismland: Climbing Out of Autism's Silent Prison


Ido Kedar - 2012
    In his pithy essays, author Ido Kedar, a brilliant sixteen year old with autism, challenges what he believes are misconceptions in many theories that dominate autism treatment today while he simultaneously chronicles his personal growth in his struggles to overcome his limitations.Ido spent the first half of his life locked internally, in silence, trapped in a remedial educational system that presumed he lacked the most basic comprehension, and unable to show the world that he understood everything. But at the age of seven, Ido was finally able to show that he had an intact mind and could understand. This led to the quest to find a system of communication that he could use despite his impaired motor control. Through the use of a letter board, and now an iPad, Ido has triumphed communicatively, enabling him to flourish in a regular high school in all general education classes.But Ido has a larger goal. He does not want to be seen as an isolated autistic exception with miraculously advanced cognitive and communication abilities. He wants people to see that thousands of other severely autistic individuals have the same capacity, but remain trapped and locked-in, as he was, unable to show their true capacities. These individuals desperately need new theories and new methods to help them break free too. Of importance to neuro-researchers, educators, psychologists, doctors, parents, friends, family and people with autism, Ido in Autismland will change our collective understanding of severe autism.PRAISE FOR Ido in Autismland "There are doubtless many Idos in this world, unable to speak, yet possessing good intellectual ability and, most certainly, a rich emotional life. And yet, precisely because they cannot communicate, nonverbal individuals with autism are nearly always consigned to the junk heap of mental deficiency, branded as incapable of understanding language or even having feelings... We need to help change things for this terribly neglected group... Reading Ido's book is a good beginning." - Portia Iversen, Co-founder, Cure Autism Now and the Autism Genetic Resource Exchange Gene Bank. Author of Strange Son"Ido is a brilliant communicator. His words bring us inside the world of autism. His gift of writing enlightens, inspires, educates. Every person who loves or works with someone with autism - educator, therapist, karent, grandparent, neighbor - should read Ido in Autismland." - Elaine Hall, Author of Now I See the Moon, co-author of Seven Keys to Unlock Autism. Featured in Autism: The Musical"Ido's book touches any heart, not only because it is well written, but because it reveals a mind that has learned how to speak to the world through spelling every word on a letter board and keyboard. His book is indeed a great gift to the world. Thank you, Ido." - Soma Mukhopadhyay, Executive Director of Education, HALO, Author of Understanding Autism through Rapid Prompting Method

Sitting Pretty: The View from My Ordinary Resilient Disabled Body


Rebekah Taussig - 2020
    None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling.Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life.Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story.

Disability Visibility: First-Person Stories from the Twenty-first Century


Alice WongChristie Thompson - 2020
    Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

Carry: A Memoir of Survival on Stolen Land


Toni Jensen - 2020
    As an adult, she’s had guns waved in her face near Standing Rock, and felt their silent threat on the concealed-carry campus where she teaches. And she has always known that in this she is not alone. As a Métis woman, she is no stranger to the violence enacted on the bodies of indigenous women, on indigenous land, and the ways it is hidden, ignored, forgotten.In Carry, Jensen maps her personal experience onto the historical, exploring how history is lived in the body and redefining the language we use to speak about violence in America. In the title chapter, Jensen connects the trauma of school shootings with her own experiences of racism and sexual assault on college campuses. "The Worry Line" explores the gun and gang violence in her neighborhood the year her daughter was born. "At the Workshop" focuses on her graduate school years, during which a workshop classmate repeatedly killed off thinly veiled versions of her in his stories. In "Women in the Fracklands", Jensen takes the listener inside Standing Rock during the Dakota Access Pipeline protests and bears witness to the peril faced by women in regions overcome by the fracking boom.In prose at once forensic and deeply emotional, Toni Jensen shows herself to be a brave new voice and a fearless witness to her own difficult history - as well as to the violent cultural landscape in which she finds her coordinates. With each chapter, Carry reminds us that surviving in one’s country is not the same as surviving one’s country.

Sincerely, Your Autistic Child: What People on the Autism Spectrum Wish Their Parents Knew About Growing Up, Acceptance, and Identity


Sharon daVanportMallory Cruz - 2021
    Furthermore, it is widely believed that many autistic girls and women are underdiagnosed, which has further limited the information available regarding the unique needs of girls and nonbinary people with autism.Sincerely, Your Autistic Child represents an authentic resource for parents and others who care about autism written by people who understand this experience most, autistic people themselves. From childhood and education to culture, gender identity, and sexuality, this anthology of autistic contributors tackles the everyday challenges of growing up while honestly addressing the emotional needs, sensitivity, and vibrancy of the autistic community with a special focus on autistic girls and nonbinary people. Written like letters to parents, the contributors reflect on what they have learned while growing up with autism and how parents can avoid common mistakes and overcome challenges while raising their child.Sincerely, Your Autistic Child calls parents to action by raising awareness and redefining "normal" in order to help parents make their child feel truly accepted, valued, and celebrated for who they are.Contributors: B. Martin Allen, B. Rankowski, K. Asasumasu, M. Baggs, L. Wiley-Mydske, H. Moss, L. XZ Brown, K. Rodriguez, A. Schaber, J. St. Jude, M. Sparrow, M. Cruz, A. Sequenzia, K. Lean, L. Soraya, K. Smith, A. Forshaw, H. Wangelin/HW, V.M. Rodríguez-Roldán, J. Strauss, O.M. Robinson, K. Levin, J. Winegardner, D. Lyubovskaya, E.P. Ballou, S. daVanport, and M. Giwa Onaiwu. Foreword and Afterword by J. Wilson and B. Ryan.

All the Weight of Our Dreams: On Living Racialized Autism


Lydia X.Z. Brown - 2017
    The work here represents the lives, politics, and artistic expressions of Black, Brown, Latinx, Indigenous, Mixed-Race, and other racialized and people of color from many autistic communities, often speaking out sharply on issues of marginality, intersectionality, and liberation.

Being Heumann: An Unrepentant Memoir of a Disability Rights Activist


Judith Heumann - 2020
    From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that fundamentally improved rights for disabled people.As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples' rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act.Candid, intimate, and irreverent, Judy Heumann's memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.

The Way I See It: A Personal Look at Autism & Asperger's


Temple Grandin - 2008
    Temple Grandin's voice of experience is back to give parents and teachers specific, practical advice on helping young people on the autism spectrum. This collection of articles, written from 2000-present as an exclusive column in the national award-winning magazine, Autism Aspergers Digest, offers Temples invaluable personal and professional insights, from inside the world of autism, about autism. Temple voices her views on a wide variety of topics ranging from the nonverbal child to social functioning, early intervention to adult issues. The articles have been updated and Temple has added fresh commentary on the topics.

The Girl with the Curly Hair - Asperger's and Me


Alis Rowe - 2013
    They have been by my side at the doctor’s. They have brought me out of shutdowns. They have supported me through depression. Yet, despite being a part of all of these things, they still don’t really know what it’s like being me, having Asperger’s Syndrome. So I wrote this book.The hardest thing about having Asperger’s Syndrome is that it can seem like an invisible condition. Females in particular, can be expert at masking their symptoms. Tomorrow I will get up and leave the house, go into work and get on with things, my challenges totally oblivious to the people around me. The next day will be the same. And the day after. I hope this book will build the bridge between people with Asperger’s Syndrome and the rest of the world. Most people with Asperger’s Syndrome are able and willing to work and live a “normal” life, with the right support and adjustment. The main problem is that most people are just unaware of how they can help. So, let us begin our journey into the wearing but wonderful world that is Asperger’s Syndrome.

Don't Call Me Inspirational: A Disabled Feminist Talks Back


Harilyn Rousso - 2013
    She addresses the often absurd and ignorant attitudes of strangers, friends, and family. Rousso also examines her own prejudice toward her disabled body, and portrays the healing effects of intimacy and creativity, as well as her involvement with the disability rights community. She intimately reveals herself with honesty and humor and measures her personal growth as she goes from "passing" to embracing and claiming her disability as a source of pride, positive identity, and rebellion. A collage of images about her life, rather than a formal portrait, Don't Call Me Inspirational celebrates Rousso's wise, witty, productive, outrageous life, disability and all.

Odd Girl Out: An Autistic Woman in a Neurotypical World


Laura James - 2017
    A successful journalist and mother to four children, she had spent her whole life feeling as if she were running a different operating system to those around her. This book charts a year in her life and offers a unique insight into the autistic mind and the journey from diagnosis to acceptance. Drawing on personal experience, research and conversations with experts, she learns how 'different' doesn't need to mean 'less' and how it's never too late for any of us to find our place in the world. Laura explores how and why female autism is so under-diagnosed and very different to that seen in men and boys and explores difficulties and benefits neurodiversity can bring.

The Reason I Jump: The Inner Voice of a Thirteen-Year-Old Boy with Autism


Naoki Higashida - 2005
    Parents and family members who never thought they could get inside the head of their autistic loved one, at last, have a way to break through to the curious, subtle, and complex life within.Using an alphabet grid to painstakingly construct words, sentences, and thoughts that he is unable to speak out loud, Naoki answers even the most delicate questions that people want to know. Questions such as: “Why do people with autism talk so loudly and weirdly?” “Why do you line up your toy cars and blocks?” “Why don’t you make eye contact when you’re talking?” and “What’s the reason you jump?” (Naoki’s answer: “When I’m jumping, it’s as if my feelings are going upward to the sky.”) With disarming honesty and a generous heart, Naoki shares his unique point of view on not only autism but life itself. His insights—into the mystery of words, the wonders of laughter, and the elusiveness of memory—are so startling, so strange, and so powerful that you will never look at the world the same way again.

Just Another Kid


Torey L. Hayden - 1988
    Three were recent arrivals from battletorn Ireland, horribly traumitized by the nightmare of war. Then there was eleven-year-old Dirkie, who had known no life outside of an institution; Mariana, who was dangerously excitable and sexually precocious, though she was only eight; and Leslie, seven years old, yet completely unresponsive and unable to speak. These were the children entrusted to the care of Torey Hayden, the extraordinary special-education teacher who refused to give up on them. She was determined that every child should experience joy, hope, and a future free of fear, and with compassion, patience, and most of all love, she knew that miracles can happen.

Look Me in the Eye: My Life with Asperger's


John Elder Robison - 2007
    It was no wonder he gravitated to machines, which could, at least, be counted on.After fleeing his parents and dropping out of high school, his savant-like ability to visualize electronic circuits landed him a gig with KISS, for whom he created their legendary fire-breathing guitars. Later, he drifted into a “real” job, as an engineer for a major toy company. But the higher Robison rose in the company, the more he had to pretend to be “normal” and do what he simply couldn’t: communicate. It wasn’t worth the paycheck.It was not until he was forty that an insightful therapist told him he had the form of autism called Asperger’s syndrome. That understanding transformed the way Robison saw himself—and the world.Look Me in the Eye is the moving, darkly funny story of growing up with Asperger’s at a time when the diagnosis simply didn’t exist. A born storyteller, Robison takes you inside the head of a boy whom teachers and other adults regarded as “defective,” who could not avail himself of KISS’s endless supply of groupies, and who still has a peculiar aversion to using people’s given names (he calls his wife “Unit Two”). He also provides a fascinating reverse angle on the younger brother he left at the mercy of their nutty parents—the boy who would later change his name to Augusten Burroughs and write the bestselling memoir Running with Scissors.Ultimately, this is the story of Robison’s journey from his world into ours, and his new life as a husband, father, and successful small business owner—repairing his beloved high-end automobiles. It’s a strange, sly, indelible account—sometimes alien, yet always deeply human.

Connecting With The Autism Spectrum: How To Talk, How To Listen, And Why You Shouldn’t Call It High-Functioning


Casey "Remrov" Vormer - 2020
    But Connecting with the Autism Spectrum can help you find common ground with expert tips and helpful insights about talking (and listening) to neurodiverse adults so you can make your interactions more transparent, meaningful, and rewarding for all.Written by Casey Vormer, a self-taught artist and high functioning autism advocate, this comprehensive guide is a trusted source to understanding neurodiversity, a brief introduction to the autism spectrum, and easy communication strategies like active listening and positive encouragement as well as steps to avoid misunderstandings by teaching how to recognize biases and correct them.This standout selection on working alongside others with high functioning autism delivers:A simple approach—Discover the best ways to communicate with those living with high functioning autism.Situational success—Find the right information for various situations and settings, including school, work, and social relationships.Sensitive tone—Get valuable information from a clear, honest point-of-view that does not seek to “cure” or manipulate people with high functioning autism.Learn how to communicate better with those diagnosed with high functioning autism in this simple book.