Book picks similar to
Disability, Self, and Society by Tanya Titchkosky
disability
disability-studies
nonfiction
kritisk-teori-og-kulturpolemikker
Simple Spirituality: Learning to See God in a Broken World
Christopher L. Heuertz - 2008
While he's not a contemplative and hardly a mystic, Chris has found, in the Bible and in his work with impoverished people, evidence of a simple spirituality. This way of humility, community, simplicity, submission and brokenness will help you see--no matter how dark things get.
About Us: Essays from the Disability Series of the New York Times
Peter Catapano - 2019
Speaking not only to those with disabilities, but also to their families, coworkers and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them.Since its 2016 debut, the popular New York Times’ “Disability” column has transformed the national dialogue around disability. Now, echoing the refrain of the disability rights movement, “Nothing about us without us,” this landmark collection gathers the most powerful essays from the series that speak to the fullness of human experience—stories about first romance, childhood shame and isolation, segregation, professional ambition, child-bearing and parenting, aging and beyond.Reflecting on the fraught conversations around disability—from the friend who says “I don’t think of you as disabled,” to the father who scolds his child with attention differences, “Stop it stop it stop it what is wrong with you?”—the stories here reveal the range of responses, and the variety of consequences, to being labeled as “disabled” by the broader public.Here, a writer recounts her path through medical school as a wheelchair user—forging a unique bridge between patients with disabilities and their physicians. An acclaimed artist with spina bifida discusses her art practice as one that invites us to “stretch ourselves toward a world where all bodies are exquisite.” With these notes of triumph, these stories also offer honest portrayals of frustration over access to medical care, the burden of social stigma and the nearly constant need to self-advocate in the public realm.In its final sections, About Us turns to the questions of love, family and joy to show how it is possible to revel in life as a person with disabilities. Subverting the pervasive belief that disability results in relentless suffering and isolation, a quadriplegic writer reveals how she rediscovered intimacy without touch, and a mother with a chronic illness shares what her condition has taught her young children.With a foreword by Andrew Solomon and introductory comments by co-editors Peter Catapano and Rosemarie Garland-Thomson, About Us is a landmark publication of the disability movement for readers of all backgrounds, forms and abilities.Topics Include: Becoming Disabled • Mental Illness is not a Horror Show • Disability and the Right to Choose • Brain Injury and the Civil Right We Don’t Think • The Deaf Body in Public Space • The Everyday Anxiety of the Stutterer • I Use a Wheelchair. And Yes, I’m Your Doctor • A Symbol for “Nobody” That’s Really for Everybody • Flying While Blind • My $1,000 Anxiety Attack • A Girlfriend of My Own • The Three-Legged Dog Who Carried Me • Passing My Disability On to My Children • I Have Diabetes. Am I to Blame? • Learning to Sing Again • A Disabled Life is a Life Worth Living
The Ant and the Ferrari
Kerry Spackman - 2012
this is one of those rare books that will change your beliefs - and in doing so will change your life. tHE ANt AND tHE FERRARI offers readers a clear, navigable path through the big questions that confront us all today. What is the meaning of life? Can we be ethical beings in today's world? Can we know if there is life after death? Is there such a thing as Absolute truth? What caused the Big Bang and why should you care?
Invisible: How Young Women with Serious Health Issues Navigate Work, Relationships, and the Pressure to Seem Just Fine
Michele Lent Hirsch - 2018
She did.Sophie navigates being the only black scientist in her lab while studying the very disease, HIV, that she hides from her coworkers.For Victoria, coming out as a transgender woman was less difficult than coming out as bipolar.Author Michele Lent Hirsch knew she couldn't be the only woman who's faced serious health issues at a young age, as well as the resulting effects on her career, her relationships, and her sense of self. What she found while researching Invisible was a surprisingly large and overlooked population with important stories to tell.Though young women with serious illness tend to be seen as outliers, young female patients are in fact the primary demographic for many illnesses. They are also one of the most ignored groups in our medical system--a system where young women, especially women of color and trans women, are invisible.And because of expectations about gender and age, young women with health issues must often deal with bias in their careers and personal lives. Not only do they feel pressured to seem perfect and youthful, they also find themselves amid labyrinthine obstacles in a culture that has one narrow idea of womanhood.Lent Hirsch weaves her own harrowing experiences together with stories from other women, perspectives from sociologists on structural inequality, and insights from neuroscientists on misogyny in health research. She shows how health issues and disabilities amplify what women in general already confront: warped beauty standards, workplace sexism, worries about romantic partners, and mistrust of their own bodies. By shining a light on this hidden demographic, Lent Hirsch explores the challenges that all women face.
One of Us: Conjoined Twins and the Future of Normal
Alice Domurat Dreger - 2004
Anatomy matters, Alice Domurat Dreger tells us, because the senses we possess, the muscles we control, and the resources we require to keep our bodies alive limit and guide what we experience in any given context. Her deeply thought-provoking and compassionate work exposes the breadth and depth of that context--the extent of the social frame upon which we construct the normal. In doing so, the book calls into question assumptions about anatomy and normality, and transforms our understanding of how we are all intricately and inextricably joined.
Late Bloomer: How an Autism Diagnosis Changed My Life
Clem Bastow - 2021
Clem Bastow grew up feeling like she’d missed a key memo on human behaviour. She found the unspoken rules of social engagement confusing, arbitrary and often stressful. Friendships were hard, relationships harder, and the office was a fluorescent-lit nightmare of anxiety. It wasn’t until Clem was diagnosed as autistic, at age 36, that things clicked into focus. The obsession with sparkly things and dinosaurs. The encyclopaedic knowledge of popular music. The meltdowns that would come on like a hurricane. The ability to write eloquently while conquering basic maths was like trying to understand ancient Greek. These weren’t just ‘personality quirks’ but autistic traits that shaped Clem’s life in powerful ways. With wit and warmth, Clem reflects as an autistic adult on her formative experiences as an undiagnosed young person, from the asphalt playground of St Joseph's Primary School in Melbourne to working as an entertainment journalist in Hollywood. Along the way she challenges the broader cultural implications and ideas around autism, especially for women and gender-diverse people. Deconstructing the misconceptions and celebrating the realities of autistic experience, Late Bloomer is as heartbreaking as it is hilarious, and will stay with you long after the reading.
The Anxious Truth : A Step-By-Step Guide To Understanding and Overcoming Panic, Anxiety, and Agoraphobia
Drew Linsalata - 2020
At 70,000 words and 450 pages, The Anxious Truth goes well beyond just telling that that you'll get better. It actually shows you exactly how! You're anxious all the time, experiencing panic attacks over and over, and maybe afraid to leave your house or to be left alone for even a few minutes. You are avoiding simple things like driving, eating in restaurants, attending family functions, or going to the supermarket. You are terrified of the next wave of anxiety or the next panic attack. Your anxiety problems are ruining your relationships, your family life, and your career. Your anxiety problems have you afraid, confused, lost, and feeling hopeless. How did you get here? What went wrong? You've tried so many things, but nothing has cured your anxiety? What can you do now?This book, written by a former anxiety sufferer, best-selling author of "An Anxiety Story", and host of The Anxious Truth podcast will walk you through exactly how you got to where you are today, why you are not broken or ill, and what the true nature of your anxiety disorder is. Next, the book will walk you through what it takes to solve your anxiety problems, how to make an anxiety recovery plan, then how to correctly execute that plan.The Anxious Truth isn't always what you want to hear, but it's what you NEED to hear in order to solve this problem once and for all and move toward the life you so desperately want. Based firmly on the principles of cognitive behavioral therapies that have been shown over decades to be most effective in treating anxiety problems, the Anxious Truth will teach you how to move past your anxiety symptoms, past endless digging for hidden "root causes", and into an action oriented plan that will help your brain un-learn the bad reaction and fear habits that have gotten you into this predicament. The Anxious Truth will take the cognitive mechanism that got you into a corner, throw it in reverse, and use it to your advantage, backing you out of this jam and into a life free from irrational fear and needless avoidance.More than just a book, The Anxious Truth goes hand-in-hand with The Anxious Truth podcast (theanxioustruth.com) and the growing and vibrant social media community surrounding it. Read the book, listen to five years worth of free podcasts chock full of helpful advice and information, and join a large online community of fellow anxiety sufferers that are done talking about this problem and ready to actually take action to solve it. Change is possible. No matter how long you've suffered with your anxiety issues, you can get better. The Anxious Truth will tell you what you need to hear and will arm you with the information, understanding, and skills you need to get the job done.Let's do this together!
The Awakening of HK Derryberry: My Unlikely Friendship with the Boy Who Remembers Everything
Jim Bradford - 2016
He certainly was not seeking a son, but the small nine-year old boy sporting an overgrown buzz haircut and missing baby teeth desperately needed a dad. The businessman had no clue this boy was born when a car wreck took his mother’s life, or that he had been raised by his grandmother when his alcoholic father abandoned him at age five. He did not know the little boy was blind, had cerebral palsy, and plenty of other problems, or that he spent eighteen solitary hours in the restaurant most weekends while his grandmother worked the cash register. Sixteen years later neither Jim Bradford nor HK Derryberry could have fathomed how much this chance encounter would transform each other’s life. This is Jim’s extraordinary true story of an enduring friendship between a disabled boy with a remarkable hidden gift, and his best friend for life.
Too Late to Die Young: Nearly True Tales from a Life
Harriet McBryde Johnson - 2005
Born with a congenital neuromuscular disease, Johnson has never been able to walk, dress, or bathe without assistance. With assistance, she passionately celebrates her life's richness and pleasures and pursues a formidable career as an attorney and activist. Whether rolling on the streets of Havana, on the floor of the Democratic National Convention in Chicago, or in an auditorium at Princeton debating philosopher Peter Singer, Harriet McBryde Johnson defies every preconception about people with disabilities, and shows how a life, be it long or short, is a treasure of infinite value.
Sonata: A Memoir of Pain and the Piano
Andrea Avery - 2017
The heartbreaking story of this mysterious sonata—Schubert’s last, and his most elusive and haunting—is the soundtrack of Andrea's story.Sonata is a breathtaking exploration of a “Janus-head miracle”—Andrea's extraordinary talent and even more extraordinary illness. With no cure for her R.A. possible, Andrea must learn to live with this disease while not letting it define her, even though it leaves its mark on everything around her—family, relationships, even the clothes she wears. And in this riveting account, she never loses her wit, humor, or the raw artistry of a true performer.As the goshawk becomes a source of both devotion and frustration for Helen Macdonald in H is for Hawk, so the piano comes to represent both struggle and salvation for Andrea in her extraordinary debut.
Capitalism and Disability: Essays by Marta Russell
Marta Russell - 2019
In this volume, Russell’s various essays are brought together in one place in order to provide a useful and expansive resource to those interested in better understanding the ways in which the modern phenomenon of disability is shaped by capitalist economic and social relations. The essays range in analysis from the theoretical to the topical, including but not limited to: the emergence of disability as a “human category” rooted in the rise of industrial capitalism and the transformation of the conditions of work, family, and society corresponding thereto; a critique of the shortcomings of a purely “civil rights approach” to addressing the persistence of disability oppression in the economic sphere, with a particular focus on the legacy of the Americans with Disabilities Act of 1990; an examination of the changing position of disabled people within the overall system of capitalist production utilizing the Marxist economic concepts of the reserve army of the unemployed, the labor theory of value, and the exploitation of wage-labor; the effects of neoliberal capitalist policies on the living conditions and social position of disabled people as it pertains to welfare, income assistance, health care, and other social security programs; imperialism and war as a factor in the further oppression and immiseration of disabled people within the United States and globally; and the need to build unity against the divisive tendencies which hide the common economic interest shared between disabled people and the often highly-exploited direct care workers who provide services to the former.
Care Work: Dreaming Disability Justice
Leah Lakshmi Piepzna-Samarasinha - 2018
Powerful and passionate, Care Work is a crucial and necessary call to arms.
Sitting Pretty: The View from My Ordinary Resilient Disabled Body
Rebekah Taussig - 2020
None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling.Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life.Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story.
Addicted?: How Addiction Affects Every One of Us and What We Can Do About It
Matt Noffs - 2018
Addictions to smartphones, sex, games, social media, gambling, money, but most of all to alcohol and drugs. The words 'addict' and 'addiction' are loaded with baggage. Not just in Australia, but the world over, addicts are considered to be sub-human, if not alien. This book aims to reclaim their dignity. It aims to rescue the word 'addiction' from its kidnappers and restore its humanity. It offers personal accounts from inspirational people who have found themselves in the grips of such addictions, and their amazing stories of survival. At the Ted Noffs Foundation, Matt Noffs and Kieran Palmer spend their lives working with young people who have serious and often debilitating drug addictions. This book shares the tools they use every day. It offers insights into why addiction takes place and why it's a natural part of being human. It journeys across the spectrum of addictive behaviors, from social media to drugs like heroin. It questions the assumptions and begins to debunk the myth that all addiction is identical and predictable. Addiction is something that could affect any of us. This is a book that everyone should read.