The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son


Ian Brown - 2009
    At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.

A Long Way Home


Saroo Brierley - 2013
    Not knowing the name of his family or where he was from, he survived for weeks on the streets of Kolkata, before being taken into an orphanage and adopted by a couple in Australia.Despite being happy in his new family, Saroo always wondered about his origins. He spent hours staring at the map of India on his bedroom wall. When he was a young man the advent of Google Earth led him to pore over satellite images of the country for landmarks he recognised. And one day, after years of searching, he miraculously found what he was looking for.Then he set off on a journey to find his mother.

Navel Gazing: True Tales of Bodies, Mostly Mine (But Also My Mom's, Which I Know Sounds Weird)


Michael Ian Black - 2016
    When Michael’s mother receives a harrowing medical diagnosis, Michael begins a laugh-out-loud examination of health, happiness, and the human body from the perspective of a settled (and sedentary) husband and father of two. With the trademark wit that has made Michael’s other books popular favorites, Navel Gazing is a heartfelt and poignant memoir about coming to terms with growing older and the inevitability of death. It is also a self-deprecating and deliciously frank remembrance of exercise failures, finding out he is part Neanderthal, and almost throwing down with fellow author Tucker Max.Michael Ian Black may not have the perfect body. Or be the perfect father. Or husband. Or son. But you will laugh as you recognize yourself in his attempts to do better. And, inevitably, falling short. You’ll laugh, you’ll cry, you’ll call your mom.

God's Hotel: A Doctor, a Hospital, and a Pilgrimage to the Heart of Medicine


Victoria Sweet - 2012
    Ballet dancers and rock musicians, professors and thieves-"anyone who had fallen, or, often, leapt, onto hard times" and needed extended medical care-ended up here. So did Victoria Sweet, who came for two months and stayed for twenty years. Laguna Honda, lower tech but human paced, gave Sweet the opportunity to practice a kind of attentive medicine that has almost vanished. Gradually, the place transformed the way she understood her work. Alongside the modern view of the body as a machine to be fixed, her extraordinary patients evoked an older idea, of the body as a garden to be tended. God's Hotel tells their story and the story of the hospital itself, which, as efficiency experts, politicians, and architects descended, determined to turn it into a modern "health care facility," revealed its own surprising truths about the essence, cost, and value of caring for body and soul.

Sickened: The Memoir of a Munchausen by Proxy Childhood


Julie Gregory - 2003
    Just twelve, she’s tall, skinny, and weak. It’s four o’clock, and she hasn’t been allowed to eat anything all day. Her mother, on the other hand, seems curiously excited. She's about to suggest open-heart surgery on her child to "get to the bottom of this." She checks her teeth for lipstick and, as the doctor enters, shoots the girl a warning glance. This child will not ruin her plans.SickenedFrom early childhood, Julie Gregory was continually X-rayed, medicated, and operated on—in the vain pursuit of an illness that was created in her mother’s mind. Munchausen by proxy (MBP) is the world’s most hidden and dangerous form of child abuse, in which the caretaker—almost always the mother—invents or induces symptoms in her child because she craves the attention of medical professionals. Many MBP children die, but Julie Gregory not only survived, she escaped the powerful orbit of her mother's madness and rebuilt her identity as a vibrant, healthy young woman.Sickened is a remarkable memoir that speaks in an original and distinctive Midwestern voice, rising to indelible scenes in prose of scathing beauty and fierce humor. Punctuated with Julie's actual medical records, it re-creates the bizarre cocoon of her family's isolated double-wide trailer, their wild shopping sprees and gun-waving confrontations, the astonishing naïveté of medical professionals and social workers. It also exposes the twisted bonds of terror and love that roped Julie's family together—including the love that made a child willing to sacrifice herself to win her mother's happiness. The realization that the sickness lay in her mother, not in herself, would not come to Julie until adulthood. But when it did, it would strike like lightning. Through her painful metamorphosis, she discovered the courage to save her own life—and, ultimately, the life of the girl her mother had found to replace her. Sickened takes us to new places in the human heart and spirit. It is an unforgettable story, unforgettably told.

The Diving Bell and the Butterfly


Jean-Dominique Bauby - 1997
    In my case, blinking my left eyelid is my only means of communication.’In December 1995, Jean-Dominique Bauby, editor-in-chief of French ‘Elle’ and the father of two young children, suffered a massive stroke and found himself paralysed and speechless, but entirely conscious, trapped by what doctors call ‘locked-in syndrome’. Using his only functioning muscle – his left eyelid – he began dictating this remarkable story, painstakingly spelling it out letter by letter.His book offers a haunting, harrowing look inside the cruel prison of locked-in syndrome, but it is also a triumph of the human spirit.

Reasons to Stay Alive


Matt Haig - 2015
    Reasons to Stay Alive is Matt’s inspiring account of how, minute by minute and day by day, he overcame the disease with the help of reading, writing, and the love of his parents and his girlfriend (and now-wife), Andrea. And eventually, he learned to appreciate life all the more for it. Everyone’s lives are touched by mental illness: if we do not suffer from it ourselves, then we have a friend or loved one who does. Matt’s frankness about his experiences is both inspiring to those who feel daunted by depression and illuminating to those who are mystified by it. Above all, his humor and encouragement never let us lose sight of hope. Speaking as his present self to his former self in the depths of depression, Matt is adamant that the oldest cliché is the truest—there is light at the end of the tunnel. He teaches us to celebrate the small joys and moments of peace that life brings, and reminds us that there are always reasons to stay alive.

Merle's Door: Lessons from a Freethinking Dog


Ted Kerasote - 2007
    They became attached to each other, and Kerasote decided to name the dog Merle and bring him home. There, he realized that Merle's native intelligence would be diminished by living exclusively in the human world. He put a dog door in his house so Merle could live both outside and in.A deeply touching portrait of a remarkable dog and his relationship with the author, Merle's Door explores the issues that all animals and their human companions face as their lives intertwine, bringing to bear the latest research into animal consciousness and behavior as well as insights into the origins and evolution of the human-dog partnership. Merle showed Kerasote how dogs might live if they were allowed to make more of their own decisions, and Kerasote suggests how these lessons can be applied universally.

Committed: A Skeptic Makes Peace with Marriage


Elizabeth Gilbert - 2009
    Resettling in America, the couple swore eternal fidelity to each other, but also swore to never, ever, under any circumstances get legally married. (Both were survivors of previous bad divorces. Enough said.) But providence intervened one day in the form of the United States government, which-after unexpectedly detaining Felipe at an American border crossing-gave the couple a choice: they could either get married, or Felipe would never be allowed to enter the country again. Having been effectively sentenced to wed, Gilbert tackled her fears of marriage by delving into this topic completely, trying with all her might to discover through historical research, interviews, and much personal reflection what this stubbornly enduring old institution actually is. Told with Gilbert's trademark wit, intelligence and compassion, Committed attempts to "turn on all the lights" when it comes to matrimony, frankly examining questions of compatibility, infatuation, fidelity, family tradition, social expectations, divorce risks and humbling responsibilities. Gilbert's memoir is ultimately a clear-eyed celebration of love with all the complexity and consequence that real love, in the real world, actually entails.

Working Stiff: Two Years, 262 Bodies, and the Making of a Medical Examiner


Judy Melinek - 2014
    Judy Melinek began her training as a New York City forensic pathologist. With her husband T.J. and their toddler Daniel holding down the home front, Judy threw herself into the fascinating world of death investigation, performing autopsies, investigating death scenes, counseling grieving relatives. Working Stiff chronicles Judy's two years of training, taking readers behind the police tape of some of the most harrowing deaths in the Big Apple, including a firsthand account of the events of September 11, the subsequent anthrax bio-terrorism attack, and the disastrous crash of American Airlines flight 587.Lively, action-packed, and loaded with mordant wit, Working Stiff offers a firsthand account of daily life in one of America's most arduous professions, and the unexpected challenges of shuttling between the domains of the living and the dead. The body never lies, and through the murders, accidents, and suicides that land on her table, Dr. Melinek lays bare the truth behind the glamorized depictions of autopsy work on shows like CSI and Law and Order to reveal the secret story of the real morgue.

Inconceivable: A Medical Mistake, the Baby We Couldn't Keep, and Our Choice to Deliver the Ultimate Gift


Carolyn Savage - 2011
    An unthinkable situation . . . you’re pregnant with the wrong baby. You can terminate, but you can’t keep him. What choice would you make?Carolyn and Sean Savage had been trying to expand their family for years. When they underwent an IVF transfer in February 2009, they knew it would be their last chance. If they became pregnant, they would celebrate the baby as an answer to their prayers. If not, they would be grateful for the family they had and leave their fertility struggles behind forever.They never imagined a third option. The pregnancy test was positive, but the clinic had transferred the wrong embryos. Carolyn was pregnant with someone else’s baby.The Savages faced a series of heartbreaking decisions: terminate the pregnancy, sue for custody, or hand over the infant to his genetic parents upon delivery. Knowing that Carolyn was carrying another couple’s hope for a baby, the Savages wanted to do what they prayed the other family would do for them if the situation was reversed. Sean and Carolyn Savage decided to give the ultimate gift, the gift of life, to a family they didn’t know, no strings attached.Inconceivable provides an inside look at how modern medicine, which creates miracles daily, could allow such a tragic mistake, and the many legal ramifications that ensued with both the genetic family and the clinic. Chronicling their tumultuous pregnancy and its aftermath, which tested the Savage’s faith, their relationship to their church, and their marriage, Inconceivable is ultimately a testament to love. Carolyn and Sean loved this baby, making it impossible for them to imagine how they could give him life and then give him away.In the end, Inconceivable is a story of what it is to be a parent, someone who nurtures a life, protects a soul, only to release that child into the world long before you’re ready to let him go.

AWOL on the Appalachian Trail


David Miller - 2006
    This is a true account of his hike from Georgia to Maine, bringing to the reader the life of the towns and the people he meets along the way.

Hidden Valley Road: Inside the Mind of an American Family


Robert Kolker - 2020
    After World War II, Don's work with the Air Force brought them to Colorado, where their twelve children perfectly spanned the baby boom: the oldest born in 1945, the youngest in 1965. In those years, there was an established script for a family like the Galvins—aspiration, hard work, upward mobility, domestic harmony—and they worked hard to play their parts. But behind the scenes was a different story: psychological breakdown, sudden shocking violence, hidden abuse. By the mid-1970s, six of the ten Galvin boys, one after another, were diagnosed as schizophrenic. How could all this happen to one family?What took place inside the house on Hidden Valley Road was so extraordinary that the Galvins became one of the first families to be studied by the National Institute of Mental Health. Their story offers a shadow history of the science of schizophrenia, from the era of institutionalization, lobotomy, and the schizophrenogenic mother to the search for genetic markers for the disease, always amid profound disagreements about the nature of the illness itself. And unbeknownst to the Galvins, samples of their DNA informed decades of genetic research that continues today, offering paths to treatment, prediction, and even eradication of the disease for future generations.With clarity and compassion, bestselling and award-winning author Robert Kolker uncovers one family's unforgettable legacy of suffering, love, and hope.

Operating Instructions: A Journal of My Son's First Year


Anne Lamott - 1993
    A gifted writer and teacher, Lamott (Crooked Little Heart) is a single mother and ex-alcoholic with a pleasingly warped social circle and a remarkably tolerant religion to lean on. She responds to the changes, exhaustion, and love Sam brings with aplomb or outright insanity. The book rocks from hilarious to unbearably poignant when Sam's burgeoning life is played out against a very close friend's illness. No saccharine paean to becoming a parent, this touches on the rage and befuddlement that dog sweeter emotions during this sea change in one's life.

Chasing My Cure: A Doctor's Race to Turn Hope into Action


David Fajgenbaum - 2019
    But things changed dramatically when he began suffering from inexplicable fatigue. In a matter of weeks, his organs were failing and he was read his last rites. Doctors were baffled by his condition, which they had yet to even diagnose. Floating in and out of consciousness, Fajgenbaum prayed for a second chance, the equivalent of a dramatic play to second the game into overtime.Miraculously, Fajgenbaum survived--only to endure repeated near-death relapses from what would eventually be identified as a form of Castleman disease, an extremely deadly and rare condition that acts like a cross between cancer and an autoimmune disorder. When he relapsed while on the only drug in development and realized that the medical community was unlikely to make progress in time to save his life, Fajgenbaum turned his desperate hope for a cure into concrete action: Between hospitalizations he studied his own charts and tested his own blood samples, looking for clues that could unlock a new treatment. With the help of family, friends, and mentors, he also reached out to other Castleman disease patients and physicians, and eventually came up with an ambitious plan to crowdsource the most promising research questions and recruit world-class researchers to tackle them. Instead of waiting for the scientific stars to align, he would attempt to align them himself.More than five years later and now married to his college sweetheart, Fajgenbaum has seen his hard work pay off: A treatment he identified has induced a tentative remission and his novel approach to collaborative scientific inquiry has become a blueprint for advancing rare disease research. His incredible story demonstrates the potency of hope, and what can happen when the forces of determination, love, family, faith, and serendipity collide.