Book picks similar to
Waist-High in the World: A Life Among the Nondisabled by Nancy Mairs
disability
memoir
nonfiction
non-fiction
Unfollow: A Journey from Hatred to Hope
Megan Phelps-Roper - 2019
A loving home, shared with squabbling siblings, overseen by devoted parents. Yet in other ways it was the precise opposite: a revolving door of TV camera crews and documentary makers, a world of extreme discipline, of siblings vanishing in the night.Megan Phelps-Roper was raised in the Westboro Baptist Church - the fire-and-brimstone religious sect at once aggressively homophobic and anti-Semitic, rejoiceful for AIDS and natural disasters, and notorious for its picketing the funerals of American soldiers. From her first public protest, aged five, to her instrumental role in spreading the church's invective via social media, her formative years brought their difficulties. But being reviled was not one of them. She was preaching God's truth. She was, in her words, 'all in'.In November 2012, at the age of twenty-six, she left the church, her family, and her life behind. Unfollow is a story about the rarest thing of all: a person changing their mind. It is a fascinating insight into a closed world of extreme belief, a biography of a complex family, and a hope-inspiring memoir of a young woman finding the courage to find compassion for others, as well as herself.
Knocking on Heaven's Door: The Path to a Better Way of Death
Katy Butler - 2013
It will inspire the necessary and difficult conversations we all need to have with loved ones as it illuminates a path to a better way of death.Like so many of us, award-winning writer Katy Butler always assumed her aging parents would experience healthy, active retirements before dying peacefully at home. Then her father suffered a stroke that left him incapable of easily finishing a sentence or showering without assistance. Her mother was thrust into full-time caregiving, and Katy became one of the 24 million Americans who help care for aging parents. In an effort to correct a minor and non–life threatening heart arrhythmia, doctors outfitted her father with a pacemaker. The device kept his heart beating but did nothing to prevent his slide into dementia, incontinence, near-muteness, and misery. After several years, he asked his wife for help, telling her, "I am living too long." Mother and daughter faced a series of wrenching moral questions: When does death cease being a curse and become a blessing? Where is the line between saving life and prolonging a dying? When is the right time to say to a doctor, "Let my loved one go"? When doctors refused to disable the pacemaker, sentencing her father to a protracted and agonizing death, Katy set out to understand why. Her quest had barely begun when her mother faced her own illness, rebelled against her doctors, refused open-heart surgery, and instead met death head-on. Knocking on Heaven's Door, a revolutionary blend of memoir and investigative reporting, is the fruit of the Butler family's journey. With a reporter's skill, a poet's eye, and a daughter's love, Butler explores what happens when our terror of death collides with the technological imperatives of modern medicine. Her provocative thesis is that advanced medicine, in its single-minded pursuit of maximum longevity, often creates more suffering than it prevents. Butler lays bare the tangled web of technology, medicine, and commerce that modern dying has become and chronicles the rise of Slow Medicine - a growing movement that promotes care over cure. Knocking on Heaven's Door is a visionary map through the labyrinth of a broken and morally adrift medical system. It will inspire the necessary and difficult conversations we all need to have with loved ones as it illuminates a path to a better way of death.
Unseen: The secret world of chronic illness
Jacinta Parsons - 2020
Doctors couldn’t explain why, and Jacinta wondered if it might be in her head. She could barely function, was frequently unable to eat or get out of bed for days, and gradually turned into a shadow of herself. Eventually she got a diagnosis: Crohn’s disease. But knowing this wouldn’t stop her life from spiralling into a big mess of doctors, hospitals and medical disasters.What’s most extraordinary about Jacinta’s story is how common it is. Nearly half of Australians live with a chronic illness, but most of these conditions are not obvious, often endured in secrecy and little understood. They are unseen.With compelling candour, Jacinta trains a microscope on the unique challenges of living with an invisible condition. She lays bare the struggles with shame, loss of identity, the threat of mortality, and the profoundly complex relationships between the chronically ill and their own bodies, as well as with those around them. It’s a story of trying to fix an unfixable illness, getting beaten down then clawing back up, and how that experience can shape a life.
Rosemary: The Hidden Kennedy Daughter
Kate Clifford Larson - 2015
The daughter they secreted away made all the difference.Joe and Rose Kennedy’s strikingly beautiful daughter Rosemary attended exclusive schools, was presented as a debutante to the Queen of England, and traveled the world with her high-spirited sisters. And yet, Rosemary was intellectually disabled — a secret fiercely guarded by her powerful and glamorous family. Major new sources — Rose Kennedy’s diaries and correspondence, school and doctors' letters, and exclusive family interviews — bring Rosemary alive as a girl adored but left far behind by her competitive siblings. Kate Larson reveals both the sensitive care Rose and Joe gave to Rosemary and then — as the family’s standing reached an apex — the often desperate and duplicitous arrangements the Kennedys made to keep her away from home as she became increasingly intractable in her early twenties. Finally, Larson illuminates Joe’s decision to have Rosemary lobotomized at age twenty-three, and the family's complicity in keeping the secret. Rosemary delivers a profoundly moving coda: JFK visited Rosemary for the first time while campaigning in the Midwest; she had been living isolated in a Wisconsin institution for nearly twenty years. Only then did the siblings understand what had happened to Rosemary and bring her home for loving family visits. It was a reckoning that inspired them to direct attention to the plight of the disabled, transforming the lives of millions.
Yearbook
Seth Rogen - 2021
(I understand that it’s likely the former, which is a fancy “book” way of saying “the first one.”) I talk about my grandparents, doing stand-up comedy as a teenager, bar mitzvahs, and Jewish summer camp, and tell way more stories about doing drugs than my mother would like. I also talk about some of my adventures in Los Angeles, and surely say things about other famous people that will create a wildly awkward conversation for me at a party one day. I hope you enjoy the book should you buy it, and if you don’t enjoy it, I’m sorry. If you ever see me on the street and explain the situation, I’ll do my best to make it up to you.
My Own Country: A Doctor's Story
Abraham Verghese - 1994
Nestled in the Smoky Mountains of eastern Tennessee, the town of Johnson City had always seemed exempt from the anxieties of modern American life. But when the local hospital treated its first AIDS patient, a crisis that had once seemed an urban problem had arrived in the town to stay. Working in Johnson City was Abraham Verghese, a young Indian doctor specializing in infectious diseases. Dr. Verghese became by necessity the local AIDS expert, soon besieged by a shocking number of male and female patients whose stories came to occupy his mind, and even take over his life. Verghese brought a singular perspective to Johnson City: as a doctor unique in his abilities; as an outsider who could talk to people suspicious of local practitioners; above all, as a writer of grace and compassion who saw that what was happening in this conservative community was both a medical and a spiritual emergency."
Travels With Myself and Another
Martha Gellhorn - 1979
As a journalist, Gellhorn covered every military conflict from the Spanish Civil War to Vietnam and Nicaragua. She also bewitched Eleanor Roosevelt's secret love and enraptured Ernest Hemingway with her courage as they dodged shell fire together.Hemingway is, of course, the unnamed other in the title of this tart memoir, first published in 1979, in which Gellhorn describes her globe-spanning adventures, both accompanied and alone. With razor-sharp humor and exceptional insight into place and character, she tells of a tense week spent among dissidents in Moscow; long days whiled away in a disused water tank with hippies clustered at Eilat on the Red Sea; and her journeys by sampan and horse to the interior of China during the Sino-Japanese War.
Shrill: Notes from a Loud Woman
Lindy West - 2016
From a painfully shy childhood in which she tried, unsuccessfully, to hide her big body and even bigger opinions; to her public war with stand-up comedians over rape jokes; to her struggle to convince herself, and then the world, that fat people have value; to her accidental activism and never-ending battle royale with Internet trolls, Lindy narrates her life with a blend of humor and pathos that manages to make a trip to the abortion clinic funny and wring tears out of a story about diarrhea.With inimitable good humor, vulnerability, and boundless charm, Lindy boldly shares how to survive in a world where not all stories are created equal and not all bodies are treated with equal respect, and how to weather hatred, loneliness, harassment, and loss--and walk away laughing. Shrill provocatively dissects what it means to become self-aware the hard way, to go from wanting to be silent and invisible to earning a living defending the silenced in all caps.
Wildflower
Drew Barrymore - 2015
It includes tales of living on her own at 14 (and how laundry may have saved her life), getting stuck in a gas station overhang on a cross country road trip, saying goodbye to her father in a way only he could have understood, and many more adventures and lessons that have led her to the successful, happy, and healthy place she is today.
I Live a Life Like Yours: A Memoir
Jan Grue - 2018
I am not talking about becoming human, but about how I came to realize that I had always already been human. I am writing about all that I wanted to have, and how I got it. I am writing about what it cost, and how I was able to afford it. Jan Grue was diagnosed with spinal muscular atrophy at the age of three. Shifting between specific periods of his life--his youth with his parents and sister in Norway; his years of study in Berkeley, St. Petersburg, and Amsterdam; and his current life as a professor, husband, and father--he intersperses these histories with elegant, astonishingly wise reflections on the world, social structures, disability, loss, relationships, and the body: in short, on what it means to be human. Along the way, Grue moves effortlessly between his own story and those of others, incorporating reflections on philosophy, film, art, and the work of writers from Joan Didion to Michael Foucault. He revives the cold, clinical language of his childhood, drawing from a stack of medical records that first forced the boy who thought of himself as "just Jan" to perceive that his body, and therefore his self, was defined by its defects.I Live a Life Like Yours is a love story. It is rich with loss, sorrow, and joy, and with the details of one life: a girlfriend pushing Grue through the airport and forgetting him next to the baggage claim; schoolmates forming a chain behind his wheelchair on the ice one winter day; his parents writing desperate letters in search of proper treatment for their son; his own young son climbing into his lap as he sits in his wheelchair, only to leap down and run away too quickly to catch. It is a story about accepting one's own body and limitations, and learning to love life as it is while remaining open to hope and discovery.
Uncomfortably Numb: a memoir
Meredith O'Brien - 2020
Then it spreads. Even though an MRI finds a “mass” on her brainstem, it takes two more years for Meredith O’Brien to learn what is causing that numbness. Months after her 65-year-old mother dies from a fast-moving cancer, weeks after her father is hospitalized and she experiences an unexpected job change, she learns she has multiple sclerosis.Suddenly, Meredith, a married mother of three teens, has to figure out how to move forward into a life she no longer recognizes. Reimagining her life as a writer and an educator, as a mother and a spouse, she has to adjust to the restrictions MS imposes on her. It is a life, altered.
Where the Past Begins: A Writer's Memoir
Amy Tan - 2017
By delving into vivid memories of her traumatic childhood, confessions of self-doubt in her journals, and heartbreaking letters to and from her mother, she gives evidence to all that made it both unlikely and inevitable that she would become a writer. Through spontaneous storytelling, she shows how a fluid fictional state of mind unleashed near-forgotten memories that became the emotional nucleus of her novels. Tan explores shocking truths uncovered by family memorabilia—the real reason behind an IQ test she took at age six, why her parents lied about their education, mysteries surrounding her maternal grandmother—and, for the first time publicly, writes about her complex relationship with her father, who died when she was fifteen. Supplied with candor and characteristic humor, Where the Past Begins takes readers into the idiosyncratic workings of her writer’s mind, a journey that explores memory, imagination, and truth, with fiction serving as both her divining rod and link to meaning.
Picking Cotton: Our Memoir of Injustice and Redemption
Jennifer Thompson-Cannino - 2009
She was able to escape, and eventually positively identified Ronald Cotton as her attacker. Ronald insisted that she was mistaken-- but Jennifer's positive identification was the compelling evidence that put him behind bars. After eleven years, Ronald was allowed to take a DNA test that proved his innocence. He was released, after serving more than a decade in prison for a crime he never committed. Two years later, Jennifer and Ronald met face to face-- and forged an unlikely friendship that changed both of their lives.In their own words, Jennifer and Ronald unfold the harrowing details of their tragedy, and challenge our ideas of memory and judgment while demonstrating the profound nature of human grace and the healing power of forgiveness.
Insomnia
Marina Benjamin - 2018
More than a third of all adults report experiencing it, with the figure climbing steeply among those over sixty-five. Marina Benjamin takes on her personal experience of the condition--her struggles with it, her insomniac highs, and her dawning awareness that states of sleeplessness grant us valuable insights into the workings of our unconscious minds. Although insomnia is rarely entirely welcome, Benjamin treats it less as an affliction than as an encounter that she engages with and plumbs. She adds new dimensions to both our understanding of sleep (and going without it) and of night, of how we perceive darkness.Along the way, Insomnia trips through illuminating material from literature, art, philosophy, psychology, pop culture, and more. Benjamin pays particular attention to the relationship between women and sleep--Penelope up all night, unraveling her day's weaving for Odysseus; the Pre-Raphaelite artists' depictions of deeply sleeping women; and the worries that keep contemporary females awake.Insomnia is an intense, lyrical, witty, and humane exploration of a state we too often consider only superficially. "This is the song of insomnia, and I shall sing it," Marina Benjamin declares.
When Death Becomes Life: Notes from a Transplant Surgeon
Joshua D. Mezrich - 2019
Joshua Mezrich creates life from loss, transplanting organs from one body to another. In this intimate, profoundly moving work, he illuminates the extraordinary field of transplantation that enables this kind of miracle to happen every day.When Death Becomes Life is a thrilling look at how science advances on a grand scale to improve human lives. Mezrich examines more than one hundred years of remarkable medical breakthroughs, connecting this fascinating history with the inspiring and heartbreaking stories of his transplant patients. Combining gentle sensitivity with scientific clarity, Mezrich reflects on his calling as a doctor and introduces the modern pioneers who made transplantation a reality—maverick surgeons whose feats of imagination, bold vision, and daring risk taking generated techniques and practices that save millions of lives around the world.Mezrich takes us inside the operating room and unlocks the wondrous process of transplant surgery, a delicate, intense ballet requiring precise timing, breathtaking skill, and at times, creative improvisation. In illuminating this work, Mezrich touches the essence of existence and what it means to be alive. Most physicians fight death, but in transplantation, doctors take from death. Mezrich shares his gratitude and awe for the privilege of being part of this transformative exchange as the dead give their last breath of life to the living. After all, the donors are his patients, too.When Death Becomes Life also engages in fascinating ethical and philosophical debates: How much risk should a healthy person be allowed to take to save someone she loves? Should a patient suffering from alcoholism receive a healthy liver? What defines death, and what role did organ transplantation play in that definition? The human story behind the most exceptional medicine of our time, Mezrich’s riveting book is a beautiful, poignant reminder that a life lost can also offer the hope of a new beginning.