The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son


Ian Brown - 2009
    At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.

Welcome, Silence


Carol S. North - 1987
    Carol North was diagnosed with schizophrenia in college. The story of her life is traced from her early life in a middle class small-town family in the Midwest. For many years, Carol struggled against overwhelming odds to achieve in school in spite of her illness and was finally admitted to medical school to pursue her hopes and dreams of becoming a doctor. In medical school, however, she slid further into psychosis and finally succumbed the inexorable incapacitation so often characteristic of the illness. Carol was fortunate enough, however, to find a skilled psychiatrist who understood her dedication to becoming a physician and who worked with her to stay well enough to remain in school. When all hope seemed lost, her doctor enrolled her in an experimental dialysis program, similar to the treatment given to patients with kidney failure. With this treatment, her illness went away and she no longer required medication for it. This engrossing and ultimately triumphant story of courageous struggle against mental illness will inspire anyone who has ever had to battle for achievement against overwhelming odds. After recovering from her illness, Carol returned to school and received her medical degree from Washington University School of Medicine in St. Louis, Missouri in 1983. She then completed her internship and residency at Barnes Hospital/Washington University, and subsequently obtained a masters degree in psychiatric epidemiology (the study of psychiatric disorders in populations) while simultaneously pursuing a NIMH fellowship in psychiatric epidemiology at Washington University. Dr. Carol North is currently a board-certified psychiatrist and full Professor of Psychiatry at Washington University School of Medicine. She treats patients with schizophrenia and a range of psychiatric illness, trains young physicians and psychiatrists, and pursues federally funded research in psychiatric epidemiology. She is the recipient of numerous national awards and has appeared on many national television and radio programs.

Ghost Boy: My Miraculous Escape from a Life Locked Inside My Own Body


Martin Pistorius - 2011
    But he was alive and trapped inside his own body for ten years.In January 1988 Martin Pistorius, aged twelve, fell inexplicably sick. First he lost his voice and stopped eating. Then he slept constantly and shunned human contact. Doctors were mystified. Within eighteen months he was mute and wheelchair-bound. Martin's parents were told an unknown degenerative disease left him with the mind of a baby and less than two years to live.Martin was moved to care centers for severely disabled children. The stress and heartache shook his parents’ marriage and their family to the core. Their boy was gone. Or so they thought.Ghost Boy is the heart-wrenching story of one boy’s return to life through the power of love and faith. In these pages, readers see a parent’s resilience, the consequences of misdiagnosis, abuse at the hands of cruel caretakers, and the unthinkable duration of Martin’s mental alertness betrayed by his lifeless body.We also see a life reclaimed—a business created, a new love kindled—all from a wheelchair. Martin's emergence from his own darkness invites us to celebrate our own lives and fight for a better life for others.

The Examined Life: How We Lose and Find Ourselves


Stephen Grosz - 2012
    These beautifully rendered tales illuminate the fundamental pathways of life from birth to death.A woman finds herself daydreaming as she returns home from a business trip; a young man loses his wallet. We learn, too, from more extreme examples: the patient who points an unloaded gun at a police officer, the compulsive liar who convinces his wife he's dying of cancer. The stories invite compassionate understanding, suggesting answers to the questions that compel and disturb us most about love and loss, parents and children, work and change. The resulting journey will spark new ideas about who we are and why we do what we do.

Finding Kansas: Decoding the Enigma of Asperger's Syndrome


Aaron Likens - 2008
    Her personal account of the experience of autism was a revelation. It shattered many myths and previously accepted facts about autism. Her book permanently changed the previously limited understanding of autistic disorders. I believe Aarons writings have the same potential regarding Aspergers Disorder. He reveals depths of emotion, social comprehension, nuances of cognition and perception, and especially the potential for something close to recovery. I believe its potential benefits are invaluable and capable of changing lives. In the course of this personal odyssey, however, he becomes much more than a clinical study of Aspergers, for his personal queries eventually pose the same strenuous questions about the human experience that have challenged philosophers since antiquity: What is the meaning of our lives and actions? How do we reconcile our experience with that of others? Where does the Truth lie? What is Love? Does freedom equal love? Dr. Mark Cameron, PhD St. Louis, MO What Aaron has written provides a unique and unusual look into the cognitive processes involved in someone with Asperger's Syndrome. Understanding these ideas and emotions are essential to provide a better understanding to Autism Spectrum Disorders, including Asperger's Syndrome. This will provide a unique contribution to scientific research as well as better awareness and understanding of people with this disorder. Dr. Alycia Halladay Princeton, NJ

Hidden Valley Road: Inside the Mind of an American Family


Robert Kolker - 2020
    After World War II, Don's work with the Air Force brought them to Colorado, where their twelve children perfectly spanned the baby boom: the oldest born in 1945, the youngest in 1965. In those years, there was an established script for a family like the Galvins—aspiration, hard work, upward mobility, domestic harmony—and they worked hard to play their parts. But behind the scenes was a different story: psychological breakdown, sudden shocking violence, hidden abuse. By the mid-1970s, six of the ten Galvin boys, one after another, were diagnosed as schizophrenic. How could all this happen to one family?What took place inside the house on Hidden Valley Road was so extraordinary that the Galvins became one of the first families to be studied by the National Institute of Mental Health. Their story offers a shadow history of the science of schizophrenia, from the era of institutionalization, lobotomy, and the schizophrenogenic mother to the search for genetic markers for the disease, always amid profound disagreements about the nature of the illness itself. And unbeknownst to the Galvins, samples of their DNA informed decades of genetic research that continues today, offering paths to treatment, prediction, and even eradication of the disease for future generations.With clarity and compassion, bestselling and award-winning author Robert Kolker uncovers one family's unforgettable legacy of suffering, love, and hope.

How Can I Talk If My Lips Don't Move: Inside My Autistic Mind


Tito Rajarshi Mukhopadhyay - 2008
    When he was three years old, Tito was diagnosed as severely autistic, but his remarkable mother, Soma, determined that he would overcome the problem by teaching him to read and write. The result was that between the ages of eight and eleven he wrote stories and poems of exquisite beauty, which Dr. Oliver Sacks called amazing and shocking. Their eloquence gave lie to all our assumptions about autism.Here Tito goes even further and writes of how the autistic mind works, how it views the outside world and the normal people he deals with daily, how he tells his stories to the mirror and hears stories back, how sounds become colors, how beauty fills his mind and heart. With this work, Tito whom Portia Iversen, co-founder of Cure Autism Now, has described as a window into autism such as the world has never seen gives the world a beacon of hope. For if he can do it, why can't others?Brave, bold, and deeply felt, this book shows that much we might have believed about autism can be wrong. Boston Globe

Permanent Present Tense: The Unforgettable Life of the Amnesic Patient, H. M.


Suzanne Corkin - 2012
    The outcome was unexpected—when Henry awoke, he could no longer form new memories, and for the rest of his life would be trapped in the moment. But Henry’s tragedy would prove a gift to humanity. As renowned neuroscientist Suzanne Corkin explains in Permanent Present Tense, she and her colleagues brought to light the sharp contrast between Henry’s crippling memory impairment and his preserved intellect. This new insight that the capacity for remembering is housed in a specific brain area revolutionized the science of memory. The case of Henry—known only by his initials H. M. until his death in 2008—stands as one of the most consequential and widely referenced in the spiraling field of neuroscience. Corkin and her collaborators worked closely with Henry for nearly fifty years, and in Permanent Present Tense she tells the incredible story of the life and legacy of this intelligent, quiet, and remarkably good-humored man. Henry never remembered Corkin from one meeting to the next and had only a dim conception of the importance of the work they were doing together, yet he was consistently happy to see her and always willing to participate in her research. His case afforded untold advances in the study of memory, including the discovery that even profound amnesia spares some kinds of learning, and that different memory processes are localized to separate circuits in the human brain. Henry taught us that learning can occur without conscious awareness, that short-term and long-term memory are distinct capacities, and that the effects of aging-related disease are detectable in an already damaged brain.Undergirded by rich details about the functions of the human brain, Permanent Present Tense pulls back the curtain on the man whose misfortune propelled a half-century of exciting research. With great clarity, sensitivity, and grace, Corkin brings readers to the cutting edge of neuroscience in this deeply felt elegy for her patient and friend.

The Oasis Guide to Asperger Syndrome: Advice, Support, Insight, and Inspiration


Patricia Romanowski Bashe - 2001
    One in 300 individuals may have AS--exhibiting characteristics such as average to high intelligence, obsessive behavior, intense special interests, and difficulty dealing with everyday social situations--and it is now more prevalent than childhood cancer and Down's syndrome. As the mother of a boy diagnosed with AS in 1994, Barbara Kirby found scant resources and support. She developed the internationally renowned OASIS (Online Asperger Syndrome Information and Support) Web site in 1995 to help other parents find the information they need. She teamed up with Patricia Romanowski Bashe, now co-owner of OASIS and herself the mother of a son with AS, to write "The OASIS Guide to Asperger Syndrome," which has become the standout authority in the field and a must-have for this growing audience. Now Bashe and Kirby have crafted a fully revised edition of this comprehensive resource for parents, teachers, therapists, and anyone who knows or works with someone with AS. In addition to discussing what AS looks like and how parents can guide their unique child through the social, emotional, and intellectual challenges of growing up, this edition includes new developments made in AS research over the past four years, new thinking on diagnosis and evaluation, the latest approaches to medication and social skills development, and tips on navigating the maze of interventions, therapies, and special education. The authors know firsthand the joys and frustrations of raising children with AS, and they share their own experiences as well as those of dozens of parents facing the same issues. Filled with practical information and emotional support, this is the most complete and authoritative guide available. Whether your child has been diagnosed or troubling symptoms are just becoming apparent, this book will point you in the right direction as you face the particular challenges of loving and raising a child with Asperger Syndrome.

George and Sam


Charlotte Moore - 2004
    George and Sam are autistic. George and Sam takes the reader from the births of each of the two boys, along the painstaking path to diagnosis, interventions, schooling and more. She writes powerfully about her family and her sons, and allows readers to see the boys behind the label of autism. Their often puzzling behavior, unusual food aversions, and the different ways that autism effects George and Sam lend deeper insight into this confounding disorder.George and Sam emerge from her narrative as distinct, wonderful, and at times frustrating children who both are autistic through and through. Moore does not feel the need to search for cause or cure, but simply to find the best ways to help her sons. She conveys to readers what autism is and isn't, what therapies have worked and what hasn't been effective, and paints a moving, memorable portrait of life with her boys.

Darkness Visible: A Memoir of Madness


William Styron - 1990
    Styron is perhaps the first writer to convey the full terror of depression's psychic landscape, as well as the illuminating path to recovery.

Son Rise: The Miracle Continues


Barry Neil Kaufman - 1976
    It is the science of love, compassion and insight that will transform the world.

He Wanted the Moon: The Madness and Medical Genius of Dr. Perry Baird, and His Daughter's Quest to Know Him


Mimi Baird - 2015
    Perry Baird was a rising medical star in the late 1920s and 1930s. Early in his career, ahead of his time, he grew fascinated with identifying the biochemical root of manic depression, just as he began to suffer from it himself. By the time the results of his groundbreaking experiments were published, Dr. Baird had been institutionalized multiple times, his medical license revoked, and his wife and daughters estranged. He later received a lobotomy and died from a consequent seizure, his research incomplete, his achievements unrecognized.Mimi Baird grew up never fully knowing this story, as her family went silent about the father who had been absent for most of her childhood. Decades later, a string of extraordinary coincidences led to the recovery of a manuscript which Dr. Baird had worked on throughout his brutal institutionalization, confinement, and escape. This remarkable document, reflecting periods of both manic exhilaration and clear-headed health, presents a startling portrait of a man who was a uniquely astute observer of his own condition, struggling with a disease for which there was no cure, racing against time to unlock the key to treatment before his illness became impossible to manage.Fifty years after being told her father would forever be “ill” and “away,” Mimi Baird set off on a quest to piece together the memoir and the man. In time her fingers became stained with the lead of the pencil he had used to write his manuscript, as she devoted herself to understanding who he was, why he disappeared, and what legacy she had inherited. The result of his extraordinary record and her journey to bring his name to light is He Wanted the Moon, an unforgettable testament to the reaches of the mind and the redeeming power of a determined heart.Soon to be a major motion picture, from Brad Pitt and Tony Kushner

My Stroke of Insight: A Brain Scientist's Personal Journey


Jill Bolte Taylor - 2006
    Through the eyes of a curious scientist, she watched her mind deteriorate whereby she could not walk, talk, read, write, or recall any of her life. Because of her understanding of the brain, her respect for the cells in her body, and an amazing mother, Jill completely recovered. In My Stroke of Insight, she shares her recommendations for recovery and the insight she gained into the unique functions of the two halves of her brain. When she lost the skills of her left brain, her consciousness shifted away from normal reality where she felt "at one with the universe." Taylor helps others not only rebuild their brains from trauma, but helps those of us with normal brains better understand how we can consciously influence the neural circuitry underlying what we think, how we feel and how we react to life's circumstances.

How to Be Human: Diary of an Autistic Girl


Florida Frenz - 2013
    Diagnosed with autism as a two-year-old, Florida is now an articulate 15-year-old whose explorations into how kids make friends, what popularity means, how to handle peer pressure will resonate with any pre-teen. For those wondering what it's like inside an autistic child's head, Florida's book provides amazing insight and understanding. Reading how she learns how to be human makes us all feel a little less alien.