The Undying


Anne Boyer - 2019
    For a single mother living paycheck to paycheck who had always been the caregiver rather than the one needing care, the catastrophic illness was both a crisis and an initiation into new ideas about mortality and the gendered politics of illness.A twenty-first-century Illness as Metaphor, as well as a harrowing memoir of survival, The Undying explores the experience of illness as mediated by digital screens, weaving in ancient Roman dream diarists, cancer hoaxers and fetishists, cancer vloggers, corporate lies, John Donne, pro-pain ”dolorists,” the ecological costs of chemotherapy, and the many little murders of capitalism. It excoriates the pharmaceutical industry and the bland hypocrisies of ”pink ribbon culture” while also diving into the long literary line of women writing about their own illnesses and ongoing deaths: Audre Lorde, Kathy Acker, Susan Sontag, and others.A genre-bending memoir in the tradition of The Argonauts, The Undying will break your heart, make you angry enough to spit, and show you contemporary America as a thing both desperately ill and occasionally, perversely glorious.

Sick: A Memoir


Porochista Khakpour - 2018
    For most of that time, she didn't know why. All of her trips to the ER and her daily anguish, pain, and lethargy only ever resulted in one question: How could any one person be this sick? Several drug addictions, three major hospitalizations, and over $100,000 later, she finally had a diagnosis: late-stage Lyme disease. Sick is Khakpour's arduous, emotional journey—as a woman, a writer, and a lifelong sufferer of undiagnosed health problems—through the chronic illness that perpetually left her a victim of anxiety, living a life stymied by an unknown condition.Divided by settings, Khakpour guides the reader through her illness by way of the locations that changed her course—New York, LA, New Mexico, and Germany—as she meditates on both the physical and psychological impacts of uncertainty, and the eventual challenge of accepting the diagnosis she had searched for over the course of her adult life. With candor and grace, she examines her subsequent struggles with mental illness, her addiction to the benzodiazepines prescribed by her psychiatrists, and her ever-deteriorating physical health. A story about survival, pain, and transformation, Sick is a candid, illuminating narrative of hope and uncertainty, boldly examining the deep impact of illness on one woman's life.

Girl in the Dark


Anna Lyndsey - 2015
    She was ambitious and worked hard; she had just bought an apartment; she was falling in love. But then she started to develop worrying symptoms: her face felt like it was burning whenever she was in front of the computer. Soon this progressed to an intolerance of fluorescent light, then of sunlight itself. The reaction soon spread to her entire body. Now, when her symptoms are at their worst, she must spend months on end in a blacked-out room, losing herself in audio books and elaborate word games in an attempt to ward off despair. It was during this period she began to write this book.

Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand


Julie Rehmeyer - 2017
    The top specialists in the world were powerless to help, and scientific research on her disease was at a near standstill. She was running out of money. And she was all alone, with no one to care for her.Having exhausted the plausible ideas, Rehmeyer turned to an implausible one. She followed the advice of strangers she'd met on the Internet. They struck her as crazy but they had recovered from chronic fatigue syndrome as severe as hers. Leaving behind everything she owned, she drove into the desert, testing the theory that mold in her home and belongings was making her sick. Stripped of the life she'd known and the future she'd imagined, Rehmeyer felt as though she were going to the desert to die.But she didn't die. She used her scientific savvy and investigative journalism skills to find a path to wellness and uncovered how shocking scientific neglect and misconduct had forced her, and millions of others, to go it alone. In stunning prose, Rehmeyer describes how her illness transformed her understanding of science, medicine, and spirituality. Through the Shadowlands will bring scientific authority to a misunderstood disease while telling an incredible and compelling story of tenacity, resourcefulness, acceptance, and love.

You've Been So Lucky Already: A Memoir


Alethea Black - 2018
    After her father’s death, Alethea is left unmoored, a young woman more connected to life’s ethereal mysteries than to practical things such as doing laundry or paying taxes.And then, just when life seems to be getting back on track, she’s suddenly racked by crushing fatigue, inexplicable pain, and memory loss. With her grasp on reality fading, and specialist after specialist declaring nothing is wrong, Alethea turns to her own research and desperate home remedies. But even as her frantic quest for wellness seems to lead to confusion and despair, she discovers more about her own strength than she ever could have imagined—and becomes a woman on fire herself.

Model Patient: My Life As an Incurable Wise-Ass


Karen Duffy - 2000
    Then her whirlwind life of celebrity parties came to an abrupt, grinding halt when she was stricken with a serious illness in one of its rarest forms: sarcoidosis of the central nervous system.Duffy soon realized that the only way for her to survive was not to take the disease too seriously. Instead of hiding from life, she chose to run toward it. She learned to embrace the chaos of a life-threatening disease with a wit and humor that helped her to find the love of her life at a time when things seemed darkest.Model Patient is a gripping, inspiring, and hilarious memoir that recounts the singular triumphs and tragedies of coping with a chronic, life-threatening disease.

House at Royal Oak: Starting Over & Rebuilding a Life One Room at a Time


Carol Eron Rizzoli - 2010
    One spring, Carol Eron Rizzoli and her husband Hugo bought a dilapidated farmhouse in the tiny village of Royal Oak, Maryland, on the edge of the Chesapeake Bay. They spent two years transforming it into a bed and breakfast, which took them twice as long and cost three times as much as they had originally estimated (on the back of a napkin). As they struggled to restore the house and open the B&B, Carol and Hugo were also slowly acquainting themselves with the rural community of Royal Oak, rich in custom and culinary traditions, and populated by neighbors with particular views on politics, hunting, wildlife, and of course, newcomers from the big city. Written with honesty and humor, The House at Royal Oak is a journey to the heart of what it means to start over and chase a dream. Part inspirational account of reinventing yourself at mid-life, part love story about learning what matters most in a relationship, it is above all a book about home: what it means, and the unexpected places we find it.

The Last Act of Love


Cathy Rentzenbrink - 2015
    He was left in a permanent vegetative state. Over the following years, Cathy and her parents took care of Matty - they built an extension onto the village pub where they lived and worked; they talked to him, fed him, bathed him, loved him. But there came a point at which it seemed the best thing they could do for Matty - and for themselves - was let him go. With unflinching honesty and raw emotional power, Cathy describes the unimaginable pain of losing her brother and the decision that changed her family's lives forever. As she delves into the past and reclaims memories that have lain buried for many years, Cathy reconnects with the bright, funny, adoring brother she lost and is finally able to see the end of his life as it really was - a last act of love. Powerful, intimate and intensely moving, this is a personal journey with universal resonance - a story of unconditional love, of grief, survival and the strength of the ties that bind. It's a story that will speak to anyone who has lost someone close to them, to anyone who has fiercely loved a sibling, and to anyone who has ever wondered whether prolonging a loved one's life might be more heartbreaking than saying goodbye.

Travelling to Infinity


Jane Hawking - 1999
    In this compelling memoir, his first wife, Jane Hawking, relates the inside story of their extraordinary marriage. As Stephen's academic renown soared, his body was collapsing under the assaults of a motor neuron disease. Jane's candid account of trying to balance his 24-hour care with the needs of their growing family reveals the inner strength of the author, while the self-evident character and achievements of her husband make for an incredible tale presented with unflinching honesty. Jane's candor is no less apparent when the marriage finally ends in a high-profile meltdown, with Stephen leaving Jane for one of his nurses and Jane marrying an old family friend. In this exceptionally open, moving, and often funny memoir, Jane Hawking confronts not only the acutely complicated and painful dilemmas of her first marriage, but also the relationship's fault lines exposed by the pervasive effects of fame and wealth. The result is a book about optimism, love, and change that will resonate with readers everywhere.

Your Voice in My Head


Emma Forrest - 2011
    A modern day fairy tale of New York, Your Voice in My Head is a dazzling and devastating memoir, clear-eyed and shot through with wit. In a voice unlike any other, Emma Forrest explores depression and mania, but also the beauty of love—and the heartbreak of loss.

Tell Me Everything You Don't Remember: The Stroke That Changed My Life


Christine Hyung-Oak Lee - 2017
    By that afternoon, she saw the world—quite literally—upside down. By New Year’s Day, she was unable to form a coherent sentence. And after hours in the ER, days in the hospital, and multiple questions and tests, her doctors informed her that she had had a stroke. For months afterward, Lee outsourced her memories to a journal, taking diligent notes to compensate for the thoughts she could no longer hold on to. It is from these notes that she has constructed this frank and compelling memoir.In a precise and captivating narrative, Lee navigates fearlessly between chronologies, weaving her childhood humiliations and joys together with the story of the early days of her marriage; and then later, in painstaking, painful, and unflinching detail, the account of her stroke and every upset—temporary or permanent—that it caused. Lee illuminates the connection between memory and identity in an honest, meditative, and truly funny manner, utterly devoid of self-pity. And as she recovers, she begins to realize that this unexpected and devastating event has provided a catalyst for coming to terms with her true self—and, in a way, has allowed her to become the person she’s always wanted to be.

Q's Legacy: A Delightful Account of a Lifelong Love Affair with Books


Helene Hanff - 1985
    Hanff recalls her serendipitous discovery of a volume of lectures by a Cambridge don, Sir Arthur Quiller-Couch. She devoured Q’s book, and, wanting to read all the books he recommended, began to order them from a small store in London, at 84, Charing Cross Road. Thus began a correspondence that became an enormously popular book, play and television production, and that finally led to the trip to England – and a visit to Q’s study – that she recounts here. In this exuberant memoir, Hanff pays her debt to her mentor and shares her joyous adventures with her many fans.

Giving Up the Ghost


Hilary Mantel - 2003
    Once married, however, she acquired a persistent pain that led to destructive drugs and patronizing psychiatry, ending in an ineffective but irrevocable surgery. There would be no children; in herself she found instead one novel, and then another.

The Shaking Woman, or A History of My Nerves


Siri Hustvedt - 2009
    Despite her flapping arms and shaking legs, she continued to speak clearly and was able to finish her speech. It was as if she had suddenly become two people: a calm orator and a shuddering wreck. Then the seizures happened again and again. The Shaking Woman tracks Hustvedt’s search for a diagnosis, one that takes her inside the thought processes of several scientific disciplines, each one of which offers a distinct perspective on her paroxysms but no ready solution. In the process, she finds herself entangled in fundamental questions: What is the relationship between brain and mind? How do we remember? What is the self?During her investigations, Hustvedt joins a discussion group in which neurologists, psychiatrists, psychoanalysts, and brain scientists trade ideas to develop a new field: neuropsychoanalysis. She volunteers as a writing teacher for psychiatric in-patients at the Payne Whitney clinic in New York City and unearths precedents in medical history that illuminate the origins of and shifts in our theories about the mind-body problem. In The Shaking Woman, Hustvedt synthesizes her experience and research into a compelling mystery: Who is the shaking woman? In the end, the story she tells becomes, in the words of George Makari, author of Revolution in Mind, “a brilliant illumination for us all.”

The Wild Silence


Raynor Winn - 2020
    After walking 630 homeless miles along The Salt Path, living on the windswept and wild English coastline; the cliffs, the sky and the chalky earth now feel like their home.Moth has a terminal diagnosis, but against all medical odds, he seems revitalized in nature. Together on the wild coastal path, with their feet firmly rooted outdoors, they discover that anything is possible.Now, life beyond The Salt Path awaits and they come back to four walls, but the sense of home is illusive and returning to normality is proving difficult - until an incredible gesture by someone who reads their story changes everything.A chance to breathe life back into a beautiful farmhouse nestled deep in the Cornish hills; rewilding the land and returning nature to its hedgerows becomes their saving grace and their new path to follow.The Wild Silence is a story of hope triumphing over despair, of lifelong love prevailing over everything. It is a luminous account of the human spirit's instinctive connection to nature, and how vital it is for us all.