Book picks similar to
Pain Studies by Lisa Olstein


non-fiction
essays
memoir
nonfiction

The Pretty One: On Life, Pop Culture, Disability, and Other Reasons to Fall in Love With Me


Keah Brown - 2019
    Keah Brown loves herself, but that hadn’t always been the case. Born with cerebral palsy, her greatest desire used to be normalcy and refuge from the steady stream of self-hate society strengthened inside her. But after years of introspection and reaching out to others in her community, she has reclaimed herself and changed her perspective.In The Pretty One, Brown gives a contemporary and relatable voice to the disabled—so often portrayed as mute, weak, or isolated. With clear, fresh, and light-hearted prose, these essays explore everything from her relationship with her able-bodied identical twin (called “the pretty one” by friends) to navigating romance; her deep affinity for all things pop culture—and her disappointment with the media’s distorted view of disability; and her declaration of self-love with the viral hashtag #DisabledAndCute.By “smashing stigmas, empowering her community, and celebrating herself” (Teen Vogue), Brown and The Pretty One aims to expand the conversation about disability and inspire self-love for people of all backgrounds.

Home is Burning


Dan Marshall - 2015
    First diagnosed when he was only ten years old, she was the model of resilience throughout his childhood, fighting her disease with tenacity and a mouth foul enough to make a sailor blush. But just as she faces a relapse, her husband —a successful businessman and devoted father—is diagnosed with ALS. He is told that in a few months' time, he be unable to walk, eat, or breathe on his own. Dan, a recent college graduate living the good life in Los Angeles, has no choice but to return home to help. Reinstalled in his parents' basement (in one of the only non-Mormon homes in a Salt Lake City subdivision) Dan is reunited with his siblings. His older sister Tiffany is resentful, having stayed closer to home to bear the brunt of their mother's illness. Younger brother Greg comes to lend a hand, giving up a journalism career and evenings cruising Chicago gay bars. Younger sister Michelle is a sullen teenager experimenting with drinking and flirting with her 35-year-old soccer coach. And baby sister Chelsea—the oddest duck in a family of misfits—can only think about dance. Together they form Team Terminal, going to battle against their parents' illnesses and cracking plenty of jokes along the way. As Dan steps into his role as caregiver, wheelchair wrangler, and sibling referee, he watches pieces of his previous life slip away, and comes to realize that you don't get to choose when it's time to grow up.

January First: A Child's Descent into Madness and Her Father's Struggle to Save Her


Michael Schofield - 2012
    In January's case, she is hallucinating 95 percent of the time that she is awake. Potent psychiatric drugs that would level most adults barely faze her. January, "Jani" to her family, has literally hundreds of imaginary friends. They go by names like 400-the-Cat, 100 Degrees, and 24 Hours and live on an island called "Calalini," which she describes as existing "on the border of my world and your world." Some of these friends are good, and some of them, such as 400, are very bad. They tell her to jump off buildings, attack her brother, and scream at strangers.In the middle of these never-ending delusions, hallucinations, and paroxysms of rage are Jani's parents, who have gone to the ends of the earth to keep both of their children alive and unharmed. They live in separate one-bedroom apartments in order to keep her little brother, Bohdi, safe from his big sister—and wage a daily war against a social system that has all but completely failed them. January First is the story of the daily struggles and challenges they face as they do everything they can to help their daughter while trying to keep their family together. It is the inspiring tale of their resolute determination and faith.

You Don't Look Like Anyone I Know: A True Story of Family, Face Blindness, and Forgiveness


Heather Sellers - 2010
     Heather Sellers is face-blind-that is, she has prosopagnosia, a rare neurological condition that prevents her from reliably recognizing people's faces. Growing up, unaware of the reason for her perpetual confusion and anxiety, she took what cues she could from speech, hairstyle, and gait. But she sometimes kissed a stranger, thinking he was her boyfriend, or failed to recognize even her own father and mother. She feared she must be crazy. Yet it was her mother who nailed windows shut and covered them with blankets, made her daughter walk on her knees to spare the carpeting, had her practice secret words to use in the likely event of abduction. Her father went on weeklong "fishing trips" (aka benders), took in drifters, wore panty hose and bras under his regular clothes. Heather clung to a barely coherent story of a "normal" childhood in order to survive the one she had. That fairy tale unraveled two decades later when Heather took the man she would marry home to meet her parents and began to discover the truth about her family and about herself. As she came at last to trust her own perceptions, she learned the gift of perspective: that embracing the past as it is allows us to let it go. And she illuminated a deeper truth-that even in the most flawed circumstances, love may be seen and felt. Watch a Video

My Lobotomy: A Memoir


Howard Dully - 2007
    Yet somehow, this normal boy became one of the youngest people on whom Dr. Walter Freeman performed his barbaric transorbital—or ice pick—lobotomy.Abandoned by his family within a year of the surgery, Howard spent his teen years in mental institutions, his twenties in jail, and his thirties in a bottle. It wasn’t until he was in his forties that Howard began to pull his life together. But even as he began to live the “normal” life he had been denied, Howard struggled with one question: Why?“October 8, 1960. I gather that Mrs. Dully is perpetually talking, admonishing, correcting, and getting worked up into a spasm, whereas her husband is impatient, explosive, rather brutal, won’t let the boy speak for himself, and calls him numbskull, dimwit, and other uncomplimentary names.”There were only three people who would know the truth: Freeman, the man who performed the procedure; Lou, his cold and demanding stepmother who brought Howard to the doctor’s attention; and his father, Rodney. Of the three, only Rodney, the man who hadn’t intervened on his son’s behalf, was still living. Time was running out. Stable and happy for the first time in decades, Howard began to search for answers. “December 3, 1960. Mr. and Mrs. Dully have apparently decided to have Howard operated on. I suggested [they] not tell Howard anything about it.”Through his research, Howard met other lobotomy patients and their families, talked with one of Freeman’s sons about his father’s controversial life’s work, and confronted Rodney about his complicity. And, in the archive where the doctor’s files are stored, he finally came face to face with the truth.Revealing what happened to a child no one—not his father, not the medical community, not the state—was willing to protect, My Lobotomy exposes a shameful chapter in the history of the treatment of mental illness. Yet, ultimately, this is a powerful and moving chronicle of the life of one man. Without reticence, Howard Dully shares the story of a painfully dysfunctional childhood, a misspent youth, his struggle to claim the life that was taken from him, and his redemption.

The Center Cannot Hold: My Journey Through Madness


Elyn R. Saks - 2007
    She has managed to achieve this in spite of being diagnosed as schizophrenic and given a "grave" prognosis—and suffering the effects of her illness throughout her life.Saks was only eight, and living an otherwise idyllic childhood in sunny 1960s Miami, when her first symptoms appeared in the form of obsessions and night terrors. But it was not until she reached Oxford University as a Marshall Scholar that her first full-blown episode, complete with voices in her head and terrifying suicidal fantasies, forced her into a psychiatric hospital.Saks would later attend Yale Law School where one night, during her first term, she had a breakdown that left her singing on the roof of the law school library at midnight. She was taken to the emergency room, force-fed antipsychotic medication, and tied hand-and-foot to the cold metal of a hospital bed. She spent the next five months in a psychiatric ward.So began Saks's long war with her own internal demons and the equally powerful forces of stigma. Today she is a chaired professor of law who researches and writes about the rights of the mentally ill. She is married to a wonderful man.In The Center Cannot Hold, Elyn Saks discusses frankly and movingly the paranoia, the inability to tell imaginary fears from real ones, and the voices in her head insisting she do terrible things, as well as the many obstacles she overcame to become the woman she is today. It is destined to become a classic in the genre.

The Collected Schizophrenias: Essays


Esmé Weijun Wang - 2019
    Schizophrenia is not a single unifying diagnosis, and Esme Weijun Wang writes not just to her fellow members of the "collected schizophrenias" but to those who wish to understand it as well. Opening with the journey toward her diagnosis of schizoaffective disorder, Wang discusses the medical community's own disagreement about labels and procedures for diagnosing those with mental illness, and then follows an arc that examines the manifestations of schizophrenia in her life. In essays that range from using fashion to present as high-functioning to the depths of a rare form of psychosis, and from the failures of the higher education system and the dangers of institutionalisation to the complexity of compounding factors such as PTSD and Lyme disease, Wang's analytical eye, honed as a former lab researcher at Stanford, allows her to balance research with personal narrative. An essay collection of undeniable power, The Collected Schizophrenias dispels misconceptions and provides insight into a condition long misunderstood.

House of Prayer No. 2: A Writer's Journey Home


Mark Richard - 2011
    During his early years in charity hospitals, Richard observed the drama of other broken boys’ lives, children from impoverished Appalachia, tobacco country lowlands, and Richmond’s poorest neighborhoods. The son of a solitary alcoholic father whose hair-trigger temper terrorized his family, and of a mother who sought inner peace through fasting, prayer, and scripture, Richard spent his bedridden childhood withdrawn into the company of books.      As a young man, Richard, defying both his doctors and parents, set out to experience as much of the world as he could—as a disc jockey, fishing trawler deckhand, house painter, naval correspondent, aerial photographer, private investigator, foreign journalist, bartender and unsuccessful seminarian—before his hips failed him.  While digging irrigation ditches in east Texas, he discovered that a teacher had sent a story of his to the Atlantic, where it was named a winner in the magazine’s national fiction contest launching a career much in the mold of Jack London and Mark Twain.    A superbly written and irresistible blend of history, travelogue, and personal reflection, House of Prayer No. 2 is a remarkable portrait of a writer’s struggle with his faith, the evolution of his art, and of recognizing one’s singularity in the face of painful disability.  Written with humor and a poetic force, this memoir is destined to become a modern classic.

Small Fry: A Memoir


Lisa Brennan-Jobs - 2018
    When she was young, Lisa's father was a mythical figure who was rarely present in her life. As she grew older, her father took an interest in her, ushering her into a new world of mansions, vacations, and private schools. His attention was thrilling, but he could also be cold, critical and unpredictable. When her relationship with her mother grew strained in high school, Lisa decided to move in with her father, hoping he'd become the parent she'd always wanted him to be.Small Fry is Lisa Brennan-Jobs's poignant story of a childhood spent between two imperfect but extraordinary homes. Scrappy, wise, and funny, young Lisa is an unforgettable guide through her parents' fascinating and disparate worlds. Part portrait of a complex family, part love letter to California in the seventies and eighties, Small Fry is an enthralling book by an insightful new literary voice.

The Crying Book


Heather Christle - 2019
    How she faces her joy, grief, anxiety, impending motherhood, and conflicted truce with the world results in a moving meditation on the nature, rapture, and perils of crying―from the history of tear-catching gadgets (including the woman who designed a gun that shoots tears) to the science behind animal tears (including moths who drink them) to the fraught role of white women's tears in racist violence.Told in short, poetic snippets, The Crying Book delights and surprises, as well as rigorously examines how mental illness can affect a family across generations and how crying can express women’s agency―or lack of agency―in everyday life. Christle’s gift is the freshness of her voice and honesty of her approach, both of which create an intimacy with readers as she explores a human behavior broadly experienced but rarely questioned. A beautiful tribute to the power of crying, and to working through despair to tears of joy.

On Call in the Arctic: A Doctor's Pursuit of Life, Love, and Miracles in the Alaskan Frontier


Thomas J. Sims - 2018
    Sims’s On Call in the Arctic, where the author relates his incredible experience saving lives in one of the most remote outposts in North America.Imagine a young doctor, trained in the latest medical knowledge and state-of-the-art equipment, suddenly transported back to one of the world’s most isolated and unforgiving environments—Nome, Alaska. Dr. Sims’ plans to become a pediatric surgeon drastically changed when, on the eve of being drafted into the Army to serve as a M.A.S.H. surgeon in Vietnam, he was offered a commission in the U.S. Public Health for assignment in Anchorage, Alaska.In Anchorage, Dr. Sims was scheduled to act as Chief of Pediatrics at the Alaska Native Medical Center. Life changed, along with his military orders, when he learned he was being transferred from Anchorage to work as the only physician in Nome.  There, he would have the awesome responsibility of rendering medical care under archaic conditions to the population of this frontier town plus thirteen Eskimo villages in the surrounding Norton Sound area. And he would do it alone with little help and support. All the while, he was pegged as both an “outsider” and an employee of the much-derided federal government.In order to do his job, Dr. Sims had to overcome racism, cultural prejudices, and hostility from those who would like to see him sent packing. On Call in the Arctic reveals the thrills and the terrors of frontier medicine, where Dr. Sims must rely upon his instincts, improvise, and persevere against all odds in order to help his patients on the icy shores of the Bering Sea.

The Beauty in Breaking


Michele Harper - 2020
    Brought up in Washington, DC, in an abusive family, she went to Harvard, where she met her husband. They stayed together through medical school until two months before she was scheduled to join the staff of a hospital in central Philadelphia, when he told her he couldn't move with her. Her marriage at an end, Harper began her new life in a new city, in a new job, as a newly single woman.In the ensuing years, as Harper learned to become an effective ER physician, bringing insight and empathy to every patient encounter, she came to understand that each of us is broken—physically, emotionally, psychically. How we recognize those breaks, how we try to mend them, and where we go from there are all crucial parts of the healing process.The Beauty in Breaking is the poignant true story of Harper's journey toward self-healing. Each of the patients Harper writes about taught her something important about recuperation and recovery. How to let go of fear even when the future is murky. How to tell the truth when it's simpler to overlook it. How to understand that compassion isn't the same as justice. As she shines a light on the systemic disenfranchisement of the patients she treats as they struggle to maintain their health and dignity, Harper comes to understand the importance of allowing ourselves to make peace with the past as we draw support from the present. In this hopeful, moving, and beautiful book, she passes along the precious, necessary lessons that she has learned as a daughter, a woman, and a physician.

The Midwife: A Memoir of Birth, Joy, and Hard Times


Jennifer Worth - 2002
    The colorful characters she meets while delivering babies all over London--from the plucky, warm-hearted nuns with whom she lives to the woman with twenty-four children who can't speak English to the prostitutes and dockers of the city's seedier side--illuminate a fascinating time in history. Beautifully written and utterly moving, The Midwife will touch the hearts of anyone who is, and everyone who has, a mother.

The Ungrateful Refugee


Dina Nayeri - 2019
    . . Her family’s escape from Isfahan to Oklahoma, which involved waiting in Dubai and Italy, is wildly fascinating . . . Using energetic prose, Nayeri is an excellent conduit for these heart-rending stories, eschewing judgment and employing care in threading the stories in with her own . . . This is a memoir laced with stimulus and plenty of heart at a time when the latter has grown elusive.” ―Star-Tribune (Minneapolis)What is it like to be a refugee? It is a question many of us do not give much thought to, and yet there are more than 25 million refugees in the world. To be a refugee is to grapple with your place in society, attempting to reconcile the life you have known with a new, unfamiliar home. All this while bearing the burden of gratitude in your host nation: the expectation that you should be forever thankful for the space you have been allowed.Aged eight, Dina Nayeri fled Iran along with her mother and brother, and lived in the crumbling shell of an Italian hotel-turned–refugee camp. Eventually she was granted asylum in America. She settled in Oklahoma, then made her way to Princeton. In this book, Nayeri weaves together her own vivid story with the stories of other refugees and asylum seekers in recent years, bringing us inside their daily lives and taking us through the different stages of their journeys, from escape to asylum to resettlement. In these pages, a couple falls in love over the phone, and women gather to prepare the noodles that remind them of home. A closeted queer man tries to make his case truthfully as he seeks asylum, and a translator attempts to help new arrivals present their stories to officials.Nothing here is flattened; nothing is simplistic. Nayeri offers a new understanding of refugee life, confronting dangers from the metaphor of the swarm to the notion of “good” immigrants. She calls attention to the harmful way in which Western governments privilege certain dangers over others. With surprising and provocative questions, The Ungrateful Refugee recalibrates the conversation around the refugee experience. Here are the real human stories of what it is like to be forced to flee your home, and to journey across borders in the hope of starting afresh.

Cook County ICU: 30 Years of Unforgettable Patients and Odd Cases


Cory Franklin - 2015
    Cory Franklin. Filled with stories of strange medical cases and unforgettable patients culled from a thirty-year career in medicine, Cook County ICU offers readers a peek into the inner workings of a hospital. Author Dr. Cory Franklin, who headed the hospital’s intensive care unit from the 1970s through the 1990s, shares his most unique and bizarre experiences, including the deadly Chicago heat wave of 1995, treating some of the first AIDS patients in the country before the disease was diagnosed, the nurse with rare Munchausen syndrome, the first surviving ricin victim, and the famous professor whose Parkinson’s disease hid the effects of the wrong medication. Surprising, darkly humorous, heartwarming, and sometimes tragic, these stories provide a big-picture look at how the practice of medicine has changed over the years, making it an enjoyable read for patients, doctors, and anyone with an interest in medicine.