Book picks similar to
Encounters with the Invisible: Unseen Illness, Controversy, and Chronic Fatigue Syndrome by Dorothy Wall
non-fiction
chronic-illness
health
me-cfs
Sugar Surfing: How to manage type 1 diabetes in a modern world
Stephen W. Ponder - 2015
An excerpt from Chapter 4 – A Force For Change “… In the grand scheme of diabetes self-management, I explain to patients and families that I (the doctor) don’t “manage” anyone’s diabetes. My role is more like that of a coach, occasional cheerleader, mentor, and at times role model I suppose. It truly is the sum of your choices; not mine or your doctor’s. Simply receiving diabetes education is often not enough. I see a three step process at work, and often times we barely get past the frst step. What we call “diabetes education” is intended to result in understanding on the part of the person(s) receiving it. But that is not the fnal element. Understanding should translate into behavior or actions for the education “loop” to be intact. There are many highly intelligent and understanding individuals in the criminal justice system who are well educated and understand all too well their actions, even the illegal ones. So what does all this have to do with using a CGM? In my opinion, it means all the difference in the world. It morphs a CGM device from a simple high or low blood alarm system (not a bad thing by itself) into the key for unlocking a vast new universe of diabetes self-realization that could once only be dreamed about. Basic diabetes self-care can be drawn as a decision loop. This loop is actually being executed daily by most persons with diabetes albeit often in a mindless fashion. Turning this chore into a more mindful action loop transforms this into an incredible tool for attaining the best blood sugar control possible for you. Like any loop, Sugar Surfing has no beginning or end. I tend to jump in at the point I call “monitoring”. This embodies many inputs both measurable and subjective. Most of us think of the act of measuring a blood sugar level with a meter or CGM device. But it’s more than that. It’s also being “in the moment”. That means being aware of recent, current and impending actions that are known to affect the ebb and fow of blood sugar levels in the body. Since blood sugar levels can be unpredictable, staying “in the moment” is a about the only approach that works for anticipating, or at least quickly reacting to unexpected shifts in BG. Once the status of the system (your body) has been sized up, either through the act of measuring a glucose level or glancing at the screen of your CGM device (or both), the next step is to analyze what is going on. This involves pulling in memories of recent actions (last insulin dose, most recent bout of exercise, what and how much was eaten (or will be soon) and more. The analysis step is where all of the little inputs come together for a final determination which is the next step: decision- making. Deciding is prioritizing one or more actions based on all the possible actions. The one that seems to be the best option is placed at the top of the list to be acted upon. Back up options are most likely numerous, but an initial action is required. The fnal part of our loop is execution: the act of following through on our decision. Immediately afterwards we are moving back into monitoring to determine the effect of our action and then modifying it as needed. You are probably saying “I already do this” and you would be right. But as has been written about by many authors, many of our decisions are mindless as opposed to mindful. This loop is a skill as much as it is a process. And as such, skills are practicable and can improve over time, or grow rusty with disuse.
Defending the Cavewoman: And Other Tales of Evolutionary Neurology
Harold Klawans - 2000
As a sympathetic brain detective, Klawans deduced a great deal from his patients, not only about the immediate causes of their ailments but also about the evolutionary underpinnings of their behaviour.
Beauty in the Broken Places: A Memoir of Love, Faith, and Resilience
Allison Pataki - 2018
After an emergency landing, she discovered that Dave—a healthy thirty-year-old athlete and surgical resident—had suffered a rare and life-threatening stroke. Next thing Allison knew, she was sitting alone in the ER in Fargo, North Dakota, waiting to hear if her husband would survive the night. When Dave woke up, he could not carry memories from hour to hour, much less from one day to the next. Allison lost the Dave she knew and loved when he lost consciousness on the plane. Within a few months, she found herself caring for both a newborn and a sick husband, struggling with the fear of what was to come. As a way to make sense of the pain and chaos of their new reality, Allison started to write daily letters to Dave. Not only would she work to make sense of the unfathomable experiences unfolding around her, but her letters would provide Dave with the memories he could not make on his own. She was writing to preserve their past, protect their present, and fight for their future. Those letters became the foundation for this beautiful, intimate memoir. And in the process, she fell in love with her husband all over again. This is a manifesto for living, an ultimately uplifting story about the transformative power of faith and resilience. It’s a tale of a husband’s turbulent road to recovery, the shifting nature of marriage, and the struggle of loving through pain and finding joy in the broken places.
When Death Becomes Life: Notes from a Transplant Surgeon
Joshua D. Mezrich - 2019
Joshua Mezrich creates life from loss, transplanting organs from one body to another. In this intimate, profoundly moving work, he illuminates the extraordinary field of transplantation that enables this kind of miracle to happen every day.When Death Becomes Life is a thrilling look at how science advances on a grand scale to improve human lives. Mezrich examines more than one hundred years of remarkable medical breakthroughs, connecting this fascinating history with the inspiring and heartbreaking stories of his transplant patients. Combining gentle sensitivity with scientific clarity, Mezrich reflects on his calling as a doctor and introduces the modern pioneers who made transplantation a reality—maverick surgeons whose feats of imagination, bold vision, and daring risk taking generated techniques and practices that save millions of lives around the world.Mezrich takes us inside the operating room and unlocks the wondrous process of transplant surgery, a delicate, intense ballet requiring precise timing, breathtaking skill, and at times, creative improvisation. In illuminating this work, Mezrich touches the essence of existence and what it means to be alive. Most physicians fight death, but in transplantation, doctors take from death. Mezrich shares his gratitude and awe for the privilege of being part of this transformative exchange as the dead give their last breath of life to the living. After all, the donors are his patients, too.When Death Becomes Life also engages in fascinating ethical and philosophical debates: How much risk should a healthy person be allowed to take to save someone she loves? Should a patient suffering from alcoholism receive a healthy liver? What defines death, and what role did organ transplantation play in that definition? The human story behind the most exceptional medicine of our time, Mezrich’s riveting book is a beautiful, poignant reminder that a life lost can also offer the hope of a new beginning.
The Mature Mind: The Positive Power of the Aging Brain
Gene D. Cohen - 2005
The fastest-growing segment of the population, those beyond the age of fifty, are no longer content to simply cope with the losses of age. Mental acuity and vitality are becoming a life-long pursuit. Now, the science of the mind is catching up with the Baby Boom generation. In this landmark book, renowned psychiatrist Gene Cohen challenges the long-held belief that our brain power inevitably declines as we age, and shows that there are actually positive changes taking place in our minds. Based on the latest studies of the brain, as well as moving stories of men and women in the second half of life, The Mature Mind reveals for the first time how we can continue to grow and flourish. Cohen's groundbreaking theory-the first to elaborate on the psychology of later life-describes how the mind gives us "inner pushes" and creates new opportunities for positive change throughout adult life. He shows how we can jump-start that growth at any age and under any circumstances, fine-tuning as we go, actively building brain reserves and new possibilities. The Mature Mind offers a profoundly different and intriguing look at ourselves, challenging old assumptions, raising bold new questions, and providing exciting answers grounded in science and the realities of everyday life.
Trick Mirror: Reflections on Self-Delusion
Jia Tolentino - 2019
This is a book about the incentives that shape us, and about how hard it is to see ourselves clearly in a culture that revolves around the self. In each essay, Jia writes about the cultural prisms that have shaped her: the rise of the nightmare social internet; the American scammer as millennial hero; the literary heroine’s journey from brave to blank to bitter; the mandate that everything, including our bodies, should always be getting more efficient and beautiful until we die.
Last Wish
Betty Rollin - 1985
Last Wish is an intimate, fiercely honest memoir of a daughter's struggle to come to terms with her terminally ill mother's decision to die. More than a examination of the ethical, spiritual, and technical aspects of assisted suicide, Last Wish is also a celebration of Rollin's imperfect family, a passionate testament to her mother's character and courage, and a compelling argument for the right of the terminally ill to a humane and dignified death. The PublicAffairs paperback edition includes a new foreword, questions for thought and discussion, and a helpful resource guide.
I Have Asperger's
Erin Clemens - 2014
I'm 24 years old, and I want to help others understand what my life is like living with Asperger's Syndrome. My hope is that people can learn from what I have been through, and apply it to what may help someone they know on the spectrum. To me, autism isn't a death sentence. It's just a different lifestyle. The views expressed are my own.
Trauma Room Two
Philip Allen Green - 2015
It is a place where life and death meet. A place where some families celebrate the most improbable of victories while others face the most devastating of losses. A place where what matters the most in this life is revealed. Trauma Room Two is just such a place. In this collection of short stories, Dr. Green takes the reader inside the hidden emotional landscape of emergency medicine. Based on fifteen years of experience as an ER physician, he reveals the profound moments that often occur in emergency rooms for patients, their families, and the staff that work there.
The Longevity Plan: Seven Lessons from the World's Happiest and Healthiest Village
John D. Day - 2017
On six medications and suffering constant aches, he needed to make a change. While lecturing in China, he’d heard about a remote mountainous region known as Longevity Village, a wellness Shangri-La free of heart disease, cancer, diabetes, obesity, dementia, depression, and insomnia, and where living past one hundred—in good health—is not uncommon.In the hope of understanding this incredible phenomenon, Day, a Mandarin speaker, decided to spend some time living in Longevity Village. He learned everything he could about this place and its people, and met its centenarians. His research revealed seven principles that work in tandem to create health, happiness, and longevity—rules he applied to his own life. Six months later, he’d lost thirty pounds, dropped one hundred points off his cholesterol and twenty-five points off his blood pressure, and was even cured of his acid reflux and insomnia. In 2014 he began a series of four-month support groups comprised of patients who worked together to apply the lessons of Longevity Village to their lives. Ninety-two percent of the participants were able to adhere to their plans and stay on pace to reach their health goals.
Lives in the Balance: Nurses' Stories from the ICU
Tilda Shalof - 2009
From cardiac, medical, surgical, and trauma units, these nurses share their experiences of caring for critically ill patients after major surgery, illnesses, accidents, traumas, and even multiple-organ failure. These skilled professionals impart their knowledge and insights, along with accounts of the many challenges, stresses, joys, and dilemmas they face in the ICU. The intense emotional and psychological issues that patients, families — and the nurses, themselves — undergo are also explored. This fascinating collection allows us to peer over the shoulders of nurses while they provide life-saving care to patients.
Run Like a Girl: How Strong Women Make Happy Lives
Mina Samuels - 2011
Run Like A Girl includes the stories of a US-ranked amateur triathlete who's raising an autistic son, a thirteen-year-old girl who falls in love with cross-country running, a woman who runs her first marathon at age sixty, an investment banker who quit her job to become a yoga teacher and adopt a daughter on her own, a young mother with scoliosis who cycled her way back to health and became a jewelry designer along the way, and countless other women, including Kathrine Switzer, Rebecca Rusch, and Molly Barker, who have been changed by their experiences with sports. Run Like A Girl argues that physical strength lends itself to psychological strength, and that for many women, participating in sports translates into leading a happier, more fulfilling life.
The Shaking Woman, or A History of My Nerves
Siri Hustvedt - 2009
Despite her flapping arms and shaking legs, she continued to speak clearly and was able to finish her speech. It was as if she had suddenly become two people: a calm orator and a shuddering wreck. Then the seizures happened again and again. The Shaking Woman tracks Hustvedt’s search for a diagnosis, one that takes her inside the thought processes of several scientific disciplines, each one of which offers a distinct perspective on her paroxysms but no ready solution. In the process, she finds herself entangled in fundamental questions: What is the relationship between brain and mind? How do we remember? What is the self?During her investigations, Hustvedt joins a discussion group in which neurologists, psychiatrists, psychoanalysts, and brain scientists trade ideas to develop a new field: neuropsychoanalysis. She volunteers as a writing teacher for psychiatric in-patients at the Payne Whitney clinic in New York City and unearths precedents in medical history that illuminate the origins of and shifts in our theories about the mind-body problem. In The Shaking Woman, Hustvedt synthesizes her experience and research into a compelling mystery: Who is the shaking woman? In the end, the story she tells becomes, in the words of George Makari, author of Revolution in Mind, “a brilliant illumination for us all.”
All in My Head: An Epic Quest to Cure an Unrelenting, Totally Unreasonable, and Only Slightly Enlightening Headache
Paula Kamen - 2005
While she was putting in her contacts, the left lens disturbed a constellation of nerves behind her eye. The pain was more piercing than that of any other headache she had ever experienced. More than a decade later, she still has a headache-the exact same headache. From surgery to a battery of Botox injections to a dousing of Lithuanian holy water, from a mountain of pharmaceutical products to aromatherapy and even a vibrating hat, All in My Head chronicles the sometimes frightening, usually absurd, and always ineffective remedies Kamen-like so many others-tried in order to relieve the pain. Beleaguered and frustrated by doctors who, frustrated themselves, periodically declared her pain psychosomatic, she came to understand the plight of the millions who suffer chronic pain in its many forms. Full of self-deprecating humor and razorsharp reporting, All in My Head is the remarkable story of patience, acceptance, and perseverance in the face of terrifying pain.
Zen and the Art of Motorcycle Maintenance: An Inquiry Into Values
Robert M. Pirsig - 1974
Pirsig's Zen & the Art of Motorcycle Maintenance is an examination of how we live, a meditation on how to live better set around the narration of a summer motorcycle trip across America's Northwest, undertaken by a father & his young son.