Until I Say Goodbye: A Book about Living


Susan Spencer-Wendel - 2012
    She was forty-four years old, with a devoted husband and three young children, and she had only one year of health remaining.Susan decided to live that year with joy.She quit her job as a journalist and spent time with her family. She built an outdoor meeting space for friends in her backyard. And she took seven trips with the seven most important people in her life. As her health declined, Susan journeyed to the Yukon, Hungary, the Bahamas, and Cyprus. She took her sons to swim with dolphins, and her teenage daughter, Marina, to Kleinfeld's bridal shop in New York City to see her for the first and last time in a wedding dress.She also wrote this book. No longer able to walk or even to lift her arms, she tapped it out letter by letter on her iPhone using only her right thumb, the last finger still working.However, Until I Say Good-Bye is not angry or bitter. It is sad in parts--how could it not be?--but it is filled with Susan's optimism, joie de vivre, and sense of humor. It is a book about life, not death. One that, like Susan, will make everyone smile.From the Burger King parking lot where she cried after her diagnosis to a snowy hot spring near the Arctic Circle, from a hilarious family Christmas disaster to the decrepit monastery in eastern Cyprus where she rediscovered her heritage, Until I Say Good-Bye is not only Susan Spencer-Wendel's unforgettable gift to her loved ones--a heartfelt record of their final experiences together--but an offering to all of us: a reminder that "every day is better when it is lived with joy."

January First: A Child's Descent into Madness and Her Father's Struggle to Save Her


Michael Schofield - 2012
    In January's case, she is hallucinating 95 percent of the time that she is awake. Potent psychiatric drugs that would level most adults barely faze her. January, "Jani" to her family, has literally hundreds of imaginary friends. They go by names like 400-the-Cat, 100 Degrees, and 24 Hours and live on an island called "Calalini," which she describes as existing "on the border of my world and your world." Some of these friends are good, and some of them, such as 400, are very bad. They tell her to jump off buildings, attack her brother, and scream at strangers.In the middle of these never-ending delusions, hallucinations, and paroxysms of rage are Jani's parents, who have gone to the ends of the earth to keep both of their children alive and unharmed. They live in separate one-bedroom apartments in order to keep her little brother, Bohdi, safe from his big sister—and wage a daily war against a social system that has all but completely failed them. January First is the story of the daily struggles and challenges they face as they do everything they can to help their daughter while trying to keep their family together. It is the inspiring tale of their resolute determination and faith.

Following Ezra: What One Father Learned About Gumby, Otters, Autism, and Love From His Extraordinary Son


Tom Fields-Meyer - 2011
    Full of tender moments and unexpected humor, Following Ezra is the story of a father and son on a ten-year journey from Ezra's diagnosis to the dawn of his adolescence. It celebrates his growth from a remote toddler to an extraordinary young man, connected in his own remarkable ways to the world around him.

In a Different Key: The Story of Autism


John Donvan - 2016
    Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism—by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different.  It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting “refrigerator mothers” for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families’ battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne’eman, who explained their inner worlds and championed the philosophy of neurodiversity. This is also a story of fierce controversies—from the question of whether there is truly an autism “epidemic,” and whether vaccines played a part in it; to scandals involving “facilitated communication,” one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death.<

NeuroTribes: The Legacy of Autism and the Future of Neurodiversity


Steve Silberman - 2015
      Along the way, he reveals the untold story of Hans Asperger, the father of Asperger’s syndrome, whose “little professors” were targeted by the darkest social-engineering experiment in human history; exposes the covert campaign by child psychiatrist Leo Kanner to suppress knowledge of the autism spectrum for fifty years; and casts light on the growing movement of "neurodiversity" activists seeking respect, support, technological innovation, accommodations in the workplace and in education, and the right to self-determination for those with cognitive differences.

Quirky, Yes---Hopeless, No: Practical Tips to Help Your Child with Asperger's Syndrome Be More Socially Accepted


Cynthia La Brie Norall - 2009
    Cynthia La Brie Norall and Beth Brust present short lessons, structured around specific topics from A-Z that address the social challenges faced by Asperger's children and teens. Since everyday "people skills" do not come naturally to children with Asperger's, they need training in such simple activities as:• How to greet others and make eye contact•How to let go and move on to new tasks• How to cooperate and ask for help•How to pay compliments•How to discern someone's true intentions• How to handle teasing and bullying• How not to be rude.Based on Dr. Norall's twenty years of experience diagnosing and treating thousands with Asperger's, this book will share her insights gained from helping so many friendless Asperger's children become more approachable, less stuck, and finally able to make, and keep, a friend or two.

A Real Boy: A True Story of Autism, Early Intervention, and Recovery


Christina Adams - 2005
    Just a few years later, a doctor refused to believe such a diagnosis could ever have been given to this healthy, happy boy. This is the true story of how Jonah's mother, Christina, seized his limited window of opportunity for recovery. Detailing how she utilized a combination of a special diet and one-on-one tutoring with speech therapists and behavioral psychologists, Christina shares the entire journey she undertook to give her child a second chance at a full life.

The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son


Ian Brown - 2009
    At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.

Uniquely Human: A Different Way of Seeing Autism


Barry M. Prizant - 2015
    This perspective leads to therapies focused on ridding individuals of autistic symptoms. In Uniquely Human, Dr. Barry M. Prizant suggests a major shift in understanding autism: Instead of classifying "autistic" behaviors as signs of pathology, he sees them as strategies to cope with a world that feels chaotic and overwhelming. Rather than curb these behaviors, it's better to enhance abilities, build on strengths, and offer supports that will naturally lead to more desirable behavior and a better quality of life. In fact, argues Dr. Prizant, attempts to eliminate autistic behaviors may actually interfere with important developmental processes.Including inspiring stories and practical advice drawn from Dr. Prizant's four-decade career working in universities, schools, hospitals, and in private practice, Uniquely Human offers a compassionate and insightful perspective that parents, professionals, and family members will find uplifting and hopeful.

How to Teach Life Skills to Kids with Autism or Asperger's


Jennifer McIlwee Myers - 2010
    No matter how high-functioning children with autism or Asperger's may be or may become, they function better as adults if they’ve had the chance to learn basic skills, from being on time to good personal hygiene. But many reach adulthood without those skills. Enter Jennifer McIlwee Myers, Aspie at Large. Coauthor of the groundbreaking book Asperger's and Girls, Jennifer's personal experience with Asperger's Syndrome and having a brother with autism makes her perspective doubly insightful. Jennifer can show you how to: Create opportunities for children to learn in natural settings and situations Teach vital skills such as everyday domestic tasks, choosing appropriate attire, and being polite Help individuals on the spectrum develop good habits that will help them be more fit and healthy Improve time management skills such as punctuality and task-switching And much more!Jennifer's straightforward and humorous delivery will keep you eagerly turning the page for her next creative solution!

Trying Differently Rather Than Harder: Fetal Alcohol Spectrum Disorders


Diane Malbin - 2002
    

From Mom to Me Again: How I Survived My First Empty-Nest Year and Reinvented the Rest of My Life


Melissa Shultz - 2016
    Her house was empty, her purpose unclear. If her life was no longer dominated by the day-to-day demands of mom life, then who exactly was she? And how would she ever move forward?From Mom to Me Again is the story of one woman's reinvention. Shultz's struggle with the empty nest and the transformation of her marriage, friendships, career, and ultimately herself, is part memoir and part self-help guide. Funny, comforting, and practical, this book tells Shultz's personal story and provides valuable advice for readers preparing to send their children off into the world. She shows women that while they'll always be mothers, it's time for them to take center stage in their own lives once again and embrace this new stage, in both their personal lives and in their professional careers.Also makes a great gift for empty nesters!

Always By Your Side: True Stories From The Life Of A Psychic Medium


Gaynor Carrillo - 2014
    Born with the ability to see dead people. It wasn’t until the death of her own father when she was thirteen that she started to explore what was happening to her.Over two decades later she is now an international psychic medium who has given thousands of spirit Messages and now wants to share with you some of the magic she has experienced over the years.Her stories of spirit will touch your heart and hopefully bring you closer to understanding the afterlife.Gaynor Carrillo is also a mother, a wife and a daughter.

Needles and Delaney: Angry, Unreasonable & Implacable


Todd Dorsey - 2021
    

Life As We Know It: A Father, a Family, and an Exceptional Child


Michael Bérubé - 1996
    When Jamie Bérubé was born with Down syndrome in 1991, he was immediately subject to the medical procedures, insurance guidelines, policies, and representations that surround every child our society designates as disabled. In this wrenching yet ultimately inspiring book, Jamie's father, literary scholar Michael Bérubé, describes not only the challenges of raising his son but the challenge of seeing him as a person rather than as a medical, genetic, or social problem.