Book picks similar to
Brielle and Me: Our Journey with Cytomegalovirus and Cerebral Palsy by Kerith Stull
developmental-disorders
jackie-s-books
memoirs-biographies
parenting
Raising a Rare Girl: A Memoir
Heather Lanier - 2020
She ate organic foods, recited affirmations, and drew up a birth plan for an unmedicated labor in the hopes that she could create a SuperBaby, an ultra-healthy human destined for a high-achieving future.But her daughter Fiona challenged all of Lanier's preconceptions. Born with an ultra-rare syndrome known as Wolf-Hirschhorn, Fiona received a daunting prognosis: she would experience significant developmental delays and might not reach her second birthday. Not only had Lanier failed to produce a SuperBaby, she now fiercely loved a child that the world would sometimes reject. The diagnosis obliterated Lanier's perfectionist tendencies, along with her most closely held beliefs about certainty, vulnerability, God, and love.With tiny bits of mozzarella cheese, a walker rolled to library story time, a talking iPad app, and a whole lot of pop and reggae, mother and daughter spend their days doing whatever it takes to give Fiona nourishment, movement, and language. They also confront society's attitudes toward disability and the often cruel assumptions made about Fiona's worth. Lanier realizes the biggest question is not, Will my daughter walk or talk? but, How can I best love my girl, just as she is? Loving Fiona opens Lanier up to new understandings of what it means to be human, what it takes to be a mother, and above all, the aching joy and wonder that come from embracing the unique life of her rare girl.
The Joy of Children
Gerry Robinson - 2016
Some quotes and description below: "Wow! I just read this book today. Yes, I read the whole book in one day! It is a wonderful account of the joy of a large family. His writing is hilarious, heartwarming, and inspiring. So many of his stories brought back fond memories of life with our gang. I would highly recommend this book!" See additional endorsements below the description. Description: On their wedding day in November 1998, Gerry and Mary Robinson would never have thought they would have 10 children nine years old and younger before their 11th anniversary. Yet, that is exactly what happened. In what can only be called a miracle, their family grew in record time, and the fun that came along with it is a story for the ages. This is their story. It is a testament to how children bring joy to the family, and how God has a loving part in all of it. The stories are hilarious and the lessons life long. This is a great read for all couples, whether they be dating, engaged, or married. Quote from Dr. Theresa Farnan: The Joy of Children is a candid, funny, first person account of a family that lives the meaning of “Thy kingdom come, Thy will be done” and never seem to want for their “daily bread.” Gerry and Mary Robinson and their beautiful family are living proof that God is never outdone in generosity. In addition to being a wonderful tribute to the joy of children, this book is filled with insights about the joy of marriage. The Robinsons' inspirational story illustrates that family life is not always easy but it can be consistently joyous when families commit themselves to complete, trustful surrender to Divine providence. About Dr. Theresa Farnan: Theresa is the Co-Author of the Book: Where Did I Come From? Where Am I Going? How Do I Get There? and Consultant to the USCCB committee on Laity, Marriage, Family Life and Youth. Quote from James M. Littleton, President and Co-founder of Forming Faithful Families: The Joy of Children, by Gerry Robinson is a beautiful, candid story of heroic parents who overcame the fear-driven popular mindset of the modern culture by faithfully trusting in God's loving Providence by taking perceived risks in being open to a large family which opened the floodgates of blessings and joy to be poured into their lives and their family. The Joy of Children is full of hilarious anecdotes that make it a fun read. It is an important book for these times, jarring our spirit to awaken to the realization that God and family are so much more important and lasting than the things of this world. I highly recommend the Joy of Children. About James M. Littleton: James Littleton is a hope-filled, inspirational national speaker and Evangelist, Co-Founder and Co-Director of Forming Faithful Families and One More Baby For Jesus, Co-Host, Co-writer and Producer of Forming Faithful Families Formational Video & Televisions Series
Michelle's Story: One Woman's Escape from a Lifetime of Abuse
Shelley Chase - 2012
Her first husband, and then her second husband end up abusing her also. Later on, both her surviving children were abused, one by her ex husband, another by a trusted boyfriend. Michelle finally manages to free herself from this cycle of abuse. This is her true story of her escape. It is Michelle's hope that her story will encourage others who are trapped in abuse to seek freedom.
What was I Thinking
Paul Henry - 2011
It will keep you entertained for hours. It's the very unusual story of Paul Henry - from his eventful childhood to his adventurous career in journalism to his recent outrageous comments on television which divided the country.A natural-born story teller, Paul spins many great yarns in this book. It's fascinating insight into his complex character. He's surprising -- he doesn't adhere to any prescribed set of beliefs. He's bold -- he set himself up as an international news correspondent working out of his Masterton lounge. And he's versatile -- turning his hand to running a cafe, running for Parliament and running from terrorists.
Healing Spirits
Sally Morgan - 2009
When loved ones die, where do they go? Are they still with us? If so, can they see us, even hear us? How can we communicate with them? This book explores the process of grieving and the earth-shattering feeling that comes from losing someone close to us.
The Storms Can't Hurt the Sky: The Buddhist Path through Divorce
Gabriel Cohen - 2008
In Storms Can't Hurt the Sky, Gabriel Cohen bravely delves into his personal experience-along with insights from Buddhist masters, parables, humor, social science studies, and interviews with other divorces-to provide a practical and very helpful guide to surviving the pain of any break-up. Focusing on the emotions most common in the dissolution of a relationship-anger, resentment, loss, and grief -- Storms Can't Hurt the Sky shows how thinking about these feelings in surprisingly different ways can lead to a radically better experience. This compulsively readable book offers sound advice and much-needed empathy for anyone dealing with a break-up.
An Early Start for Your Child with Autism: Using Everyday Activities to Help Kids Connect, Communicate, and Learn
Sally J. Rogers - 2012
This encouraging guide from the developers of a groundbreaking early intervention program provides doable, practical strategies you can use every day. Nearly all young kids—including those with ASD—have an amazing capacity to learn. Drs. Sally Rogers, Geraldine Dawson, and Laurie Vismara make it surprisingly simple to turn daily routines like breakfast or bath time into fun and rewarding learning experiences that target crucial developmental skills. Vivid examples illustrate proven techniques for promoting play, language, and engagement. Get an early start—and give your child the tools to explore and enjoy the world.Winner--American Journal of Nursing Book of the Year Award Mental health professionals, see also the authors' related intervention manual, Early Start Denver Model for Young Children with Autism, as well as the Early Start Denver Model Curriculum Checklist for Young Children with Autism (sold in sets of 15).
The Still Point of the Turning World
Emily Rapp - 2013
But all of these plans changed when Ronan was diagnosed at nine months old with Tay-Sachs disease, a rare and always-fatal degenerative disorder. Ronan was not expected to live beyond the age of three; he would be permanently stalled at a developmental level of six months. Rapp and her husband were forced to re-evaluate everything they thought they knew about parenting. They would have to learn to live with their child in the moment; to find happiness in the midst of sorrow; to parent without a future.The Still Point of the Turning World is the story of a mother’s journey through grief and beyond it. Rapp’s response to her son’s diagnosis was a belief that she needed to “make my world big”—to make sense of her family’s situation through art, literature, philosophy, theology and myth. Drawing on a broad range of thinkers and writers, from C.S. Lewis to Sylvia Plath, Hegel to Mary Shelley’s Frankenstein, Rapp learns what wisdom there is to be gained from parenting a terminally ill child. In luminous, exquisitely moving prose she re-examines our most fundamental assumptions about what it means to be a good parent, to be a success, and to live a meaningful life.
I Raise My Eyes to Say Yes
Ruth Sienkiewicz-Mercer - 1989
She has never spoken a word; never walked, never fed herself, never combed her own hair. Trapped in a body that is functionally useless, her mind works perfectly. This is her story. Absorbing and heartbreaking, it was written with the collaboration of Ruth's friend, Steven Kaplan. Without any self pity Ruth recounts her early childhood with a loving family and some happy years at a rehabilitation center, then virtual incarceration at the notorious Belchertown State School in Massachusetts. After 16 years she was released and now she enjoys a life of purpose and personal triumph. I Raise My Eyes to Say Yes will permanently alter your perception of the severely disabled and it will inspire you with the extraordinary power of love, thought, and the human spirit.
The Spark: A Mother's Story of Nurturing Genius
Kristine Barnett - 2013
At nine he started working on an original theory in astrophysics that experts believe may someday put him in line for a Nobel Prize, and at age twelve he became a paid researcher in quantum physics. But the story of Kristine’s journey with Jake is all the more remarkable because his extraordinary mind was almost lost to autism. At age two, when Jake was diagnosed, Kristine was told he might never be able to tie his own shoes. The Spark is a remarkable memoir of mother and son. Surrounded by “experts” at home and in special ed who tried to focus on Jake’s most basic skills and curtail his distracting interests—moving shadows on the wall, stars, plaid patterns on sofa fabric—Jake made no progress, withdrew more and more into his own world, and eventually stopped talking completely. Kristine knew in her heart that she had to make a change. Against the advice of her husband, Michael, and the developmental specialists, Kristine followed her instincts, pulled Jake out of special ed, and began preparing him for mainstream kindergarten on her own. Relying on the insights she developed at the daycare center she runs out of the garage in her home, Kristine resolved to follow Jacob’s “spark”—his passionate interests. Why concentrate on what he couldn’t do? Why not focus on what he could? This basic philosophy, along with her belief in the power of ordinary childhood experiences (softball, picnics, s’mores around the campfire) and the importance of play, helped Kristine overcome huge odds. The Barnetts were not wealthy people, and in addition to financial hardship, Kristine herself faced serious health issues. But through hard work and determination on behalf of Jake and his two younger brothers, as well as an undying faith in their community, friends, and family, Kristine and Michael prevailed. The results were beyond anything anyone could have imagined. Dramatic, inspiring, and transformative, The Spark is about the power of love and courage in the face of overwhelming obstacles, and the dazzling possibilities that can occur when we learn how to tap the true potential that lies within every child, and in all of us.
A Friend Like Henry: The Touching True Story of an Autistic Boy and His Dog
Nuala Gardner - 2007
Dale was still a baby when his parents realised that something wasn't right. Worried, his mother Nuala took him to see several doctors, before finally hearing the word 'autism' for the first time in a specialist's office. Scared but determined that Dale should live a fulfilling life, Nuala describes her despairat her son's condition, her struggle to prevent Dale being excluded from a 'normal' education and her sense of hopeless isolation. Dale's autism was severe and violent and family life was a daily battleground. But the Gardner's lives were transformed when they welcomed a gorgeous Golden Retriever into the family. The special bond between Dale and his dog Henry helped them to produce the breakthrough in Dale they had long sought. From taking a bath to saying 'I love you', Henry helped introduce Dale to all the normal activities most parents take for granted, and set him on the road to being the charming and well-adjusted young man he is today. This is a heartrending and fascinating account of how one devoted and talented dog helped a little boy conquer his autism.
A Regular Guy: Growing Up with Autism
Laura Shumaker - 2008
It answers the many questions that people have about autism through the story of Matthew's life spanning from babyhood to young adulthood. A Regular Guy illustrates the many ways in which family, friends and strangers are touched by Matthew's desperate desire to be a regular guy, and how his brutal honesty and social awkwardness bring out the best and worst in people in touching and humorous ways. In turn, A Regular Guy leads readers to love and accept Matthew, quirks and all, and inspires them to understand and tolerate the differences in others.
Choosing Naia: A Family's Journey
Mitchell Zuckoff - 2002
A dramatic and carefully detailed account of one family's journey through the maze of genetic counseling, medical technology, and disability rights; destined to become required reading for anyone touched by any of these issues.
The ADHD-Autism Connection: A Step Toward More Accurate Diagnoses and Effective Treatments
Diane M. Kennedy - 2002
Help for frustrated ADHD patients and their families. (As well as those with autism, PDD, Asperger’s syndrome, and other related conditions.) Attention deficit/hyperactive disorder (ADHD) is one of the most rapidly growing diagnoses of our generation. Often the diagnosis fails to provide real help, leaving patients, doctors, and families at a loss to know what to do next. But for the first time ever, new insights into the overwhelming number of similarities between Autism and ADHD are giving those with ADHD genuine hope. For years, the label of Autism has carried a negative connotation. Parents were afraid to admit the diagnosis and banished the term from discussion. Finally, The ADHD-Autism Connection gives parents, educators, and doctors a reason to embrace autism with a renewed sense of hope and understanding. This book will show how these understandings can minimize the frustration, misdiagnoses, and misunderstandings ADHD sufferers and their families face.
By Faith, Not by Sight: The Inspirational Story of a Blind Prodigy, a Life-Threatening Illness, and an Unexpected Gift
Scott MacIntyre - 2012
A piano prodigy, a nineteen-year-old college grad, a Marshall scholar, and an American Idol finalist. This guy had it made. He could sing.He could ski blind. What couldn't he do?Even if you saw him in concert, you might not believe that Scott MacIntyre is blind, and you'd never guess that at nineteen, he faced a diagnosis that rocked his family and nearly took his life.So how did he do it? How did he overcome the odds?This is Scott's story, but he'd be the first to tell you that it's not really about him. This is the story of how God used a dedicated family, a selfless acquaintance, hardship, and a host of characters to give him life, faith, determination, and experiences most can only imagine.Peek behind the scenes to see how he learned to overcome his disability, how he made it in the music industry, how he found the love of his life, and how God taught him that in all things, we can truly achieve our dreams By Faith, Not by Sight.