What Doesn't Kill You: A Life with Chronic Illness - Lessons from a Body in Revolt


Tessa Miller - 2021
    At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a yearslong nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better.Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications.Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.

Upstairs at the White House: My Life with the First Ladies


J.B. West - 1973
    B. West, chief usher of the White House, directed the operations and maintenance of 1600 Pennsylvania Avenue—and coordinated its daily life—at the request of the president and his family. He directed state functions; planned parties, weddings and funerals, gardens and playgrounds, and extensive renovations; and with a large staff, supervised every activity in the presidential home. For twenty-eight years, first as assistant to the chief usher, then as chief usher, he witnessed national crises and triumphs, and interacted daily with six consecutive presidents and first ladies, their parents, children and grandchildren, and houseguests—including friends, relatives, and heads of state.In Upstairs at the White House, West offers an absorbing and novel glimpse at America’s first families, from the Roosevelts to the Kennedys andthe Nixons. Alive with anecdotes ranging from the quotidian (Lyndon B. Johnson’s showerheads) to the tragic (the aftermath of John F. Kennedy’s assassination), West’s book is an enlightening and rich account of the American history that took place just behind the Palladian doors of the North Portico.

Thinking in Pictures: My Life with Autism


Temple Grandin - 1995
    She also lectures widely on autism—because Temple Grandin is autistic, a woman who thinks, feels, and experiences the world in ways that are incomprehensible to the rest of us. In this unprecedented book, Grandin delivers a report from the country of autism. Writing from the dual perspectives of a scientist and an autistic person, she tells us how that country is experienced by its inhabitants and how she managed to breach its boundaries to function in the outside world. What emerges in Thinking in Pictures is the document of an extraordinary human being, one who, in gracefully and lucidly bridging the gulf between her condition and our own, sheds light on the riddle of our common identity.

How Not To Be a Boy


Robert Webb - 2017
    Rules for being a man:Don't Cry; Love Sport; Play Rough; Drink Beer; Don't Talk About FeelingsBut Robert Webb has been wondering for some time now: are those rules actually any use? To anyone?Looking back over his life, from schoolboy crushes (on girls and boys) to discovering the power of making people laugh (in the Cambridge Footlights with David Mitchell), and from losing his beloved mother to becoming a husband and father, Robert Webb considers the absurd expectations boys and men have thrust upon them at every stage of life.Hilarious and heartbreaking, How Not To Be a Boy explores the relationships that made Robert who he is as a man, the lessons we learn as sons and daughters, and the understanding that sometimes you aren't the Luke Skywalker of your life - you're actually Darth Vader.

Idiot


Laura Clery - 2019
    She writes songs about her anatomy, talks trash about her one-eyed rescue pug, and sexually harasses her husband, Stephen. And it pays the bills! Now, in her first-ever book, Laura recounts how she went from being a dangerously impulsive, broke, unemployable, suicidal, cocaine-addicted narcissist, crippled by fear and hopping from one toxic romance to the next…to a more-happy-than-not, somewhat rational, meditating, vegan yogi with good credit, a great marriage, a fantastic career, and four unfortunate-looking rescue animals. Still, above all, Laura remains an amazingly talented, adorable, and vulnerable, self-described…Idiot. With her signature brand of offbeat, no-holds-barred humor, Idiot introduces you to a wildly original—and undeniably relatable—new voice.Oh, the places I've peed --High school Hammer time --My summer of (possibly too much) freedom --How to ignore a hundred red flags --The Damon inside --A spoonful of sugar --Look, Mom! I'm on TV! --New beginnings (but, like, for real) --Two apartments and a home --Maggie: cat --Walking through fear

Adventures in Human Being: A Grand Tour from the Cranium to the Calcaneum


Gavin Francis - 2015
    How many of us understand the way seizures affect the brain, how the heart is connected to wellbeing, or the why the foot carries the key to our humanity? In Adventures in Human Being, award-winning author Gavin Francis leads readers on a journey into the hidden pathways of the human body, offering a guide to its inner workings and a celebration of its marvels.Drawing on his experiences as a surgeon, ER specialist, and family physician, Francis blends stories from the clinic with episodes from medical history, philosophy, and literature to describe the body in sickness and in health, in living and in dying. At its heart, Adventures in Human Being is a meditation on what it means to be human. Poetic, eloquent, and profoundly perceptive, this book will transform the way you view your body.

Never Enough: The Neuroscience and Experience of Addiction


Judith Grisel - 2019
    With more than one in every five people over the age of fourteen addicted, drug abuse has been called the most formidable health problem worldwide. If we are not victims ourselves, we all know someone struggling with the merciless compulsion to alter their experience by changing how their brain functions.Drawing on years of research--as well as personal experience as a recovered addict--researcher and professor Judy Grisel has reached a fundamental conclusion: for the addict, there will never be enough drugs. The brain's capacity to learn and adapt is seemingly infinite, allowing it to counteract any regular disruption, including that caused by drugs. What begins as a normal state punctuated by periods of being high transforms over time into a state of desperate craving that is only temporarily subdued by a fix, explaining why addicts are unable to live either with or without their drug. One by one, Grisel shows how different drugs act on the brain, the kind of experiential effects they generate, and the specific reasons why each is so hard to kick.Grisel's insights lead to a better understanding of the brain's critical contributions to addictive behavior, and will help inform a more rational, coherent, and compassionate response to the epidemic in our homes and communities.

In Pain: A Bioethicist's Personal Struggle with Opioids


Travis Rieder - 2019
    Enduring half a dozen surgeries, the drugs he received were both miraculous and essential to his recovery. But his most profound suffering came several months later when he went into acute opioid withdrawal while following his physician’s orders. Over the course of four excruciating weeks, Rieder learned what it means to be “dope sick”—the physical and mental agony caused by opioid dependence. Clueless how to manage his opioid taper, Travis’s doctors suggested he go back on the drugs and try again later. Yet returning to pills out of fear of withdrawal is one route to full-blown addiction. Instead, Rieder continued the painful process of weaning himself.Rieder’s experience exposes a dark secret of American pain management: a healthcare system so conflicted about opioids, and so inept at managing them, that the crisis currently facing us is both unsurprising and inevitable. As he recounts his story, Rieder provides a fascinating look at the history of these drugs first invented in the 1800s, changing attitudes about pain management over the following decades, and the implementation of the pain scale at the beginning of the twenty-first century. He explores both the science of addiction and the systemic and cultural barriers we must overcome if we are to address the problem effectively in the contemporary American healthcare system.In Pain in America is not only a gripping personal account of dependence, but a groundbreaking exploration of the intractable causes of America’s opioid problem and their implications for resolving the crisis. Rieder makes clear that the opioid crisis exists against a backdrop of real, debilitating pain—and that anyone can fall victim to this epidemic.

Now I See You: A Memoir


Nicole C. Kear - 2014
    Kear's biggest concern is choosing a major--until she walks into a doctor's office in midtown Manhattan and gets a life-changing diagnosis. She is going blind, courtesy of an eye disease called retinitis pigmentosa, and has only a decade or so before Lights Out. Instead of making preparations as the doctor suggests, Kear decides to carpe diem and make the most of the vision she has left. She joins circus school, tears through boyfriends, travels the world, and through all these hi-jinks, she keeps her vision loss a secret.When Kear becomes a mother, just a few years shy of her vision's expiration date, she amends her carpe diem strategy, giving up recklessness in order to relish every moment with her kids. Her secret, though, is harder to surrender - and as her vision deteriorates, harder to keep hidden. As her world grows blurred, one thing becomes clear: no matter how hard she fights, she won't win the battle against blindness. But if she comes clean with her secret, and comes to terms with the loss, she can still win her happy ending.Told with humor and irreverence, Now I See You is an uplifting story about refusing to cower at life's curveballs, about the power of love to triumph over fear. But, at its core, it's a story about acceptance: facing the truths that just won't go away, and facing yourself, broken parts and all.

Hillary the Other Woman: A Political Memoir


Dolly Kyle - 2016
    After all, they have been in the public eye—from Arkansas to the White House and beyond—for over forty years. Dolly Kyle met former president Clinton (Billy as she calls him) on a Hot Springs golf course when she was eleven and he was almost thirteen. It was colpo de fulmine (the thunderbolt) at first sight. Their friendship grew throughout high school and college. It became a decades-long affair that lasted despite marriages and politics all the way to the threshold of the White House—when she became a political liability, and he threatened to destroy her, as Hillary had done to so many of his other women over the years. What you know about the Clintons is probably limited to the pleasantries that the mainstream media have chosen to share with you. Hillary the Other Woman pulls no punches in describing the way “media magic” makes Clinton stories disappear. Have you heard about • The RICO (Racketeering Influenced and Corrupt Organizations) federal lawsuit that Kyle filed against Clinton and cronies while he and co-president Hillary were in the White House? • The racial discrimination lawsuits filed by African-Americans against Clinton as governor of Arkansas? • Cinton’s orders for the Arkansas State Police to “stop and search” vehicles driven by Hispanics? • Thousands of young African-American men given long prison sentences under the “three strikes” laws pushed by co-presidents Bill and Hillary? • The co-president Clintons pandering to minorities with a subtle form of race baiting with their welfare agenda? • The racist names they call Jesse Jackson behind his back? Hillary the Other Woman is not only about the politics of the Arkansas gubernatorial years and the famous “two for the price of one” presidency. It also provides a perspective on Arkansas life that formed the backdrop and training ground for the Clintons in their later crimes, their gangster-like threats and intimidation of political enemies, and their arrogant belief that they are above the law. You will see the connection between Hillary’s current email scandal and her shredding of documents when they left the Arkansas governor’s mansion. You will realize that the Clinton Foundation is the new international version of the money laundering and bribes that you glossed over as “Cattlegate.” You will read clear, concise, entertaining accounts that put the multitude of Clinton scandals into everyday perspective. Finally, you will be privy to the Clinton “truth suppression” techniques that allowed them to get away with all of it. Until now…

Wuhan Diary: Dispatches from the Original Epicenter


Fang Fang - 2020
    In the days and weeks that followed, Fang Fang's nightly postings gave voice to the fears, frustrations, anger, and hope of missions of her fellow citizens, reflecting on the psychological impact of forced isolation, the role of internet as both community lifeline and source of misinformation, and most tragically, the lives of neighbors and friends taken by the deadly virus.A fascinating eyewitness account of events as they unfold, 'WUHAN DIARY' captures the challenges of daily life as changing moods and emotions of being quarantined without reliable information. Fang Fang finds solace in small domestic comforts and is inspired by the courage of friends, health professionals and volunteers, as well as the resilience and perseverance of Wuhan's nine million residents. But, by claiming the writer's duty to record she also speaks out against social injustice, abuse of power, and other problems which impeded the response to the epidemic and gets herself embroiled in online controversies because of it.As Fang Fang documents the beginning of the global health crisis in real time, we are able to identify patterns and mistakes that many of the countries dealing with the novel coronavirus have later repeated. She reminds us that, in the face of the new virus, the plight of the citizens of Wuhan is also that of citizens everywhere. As Fang Fang writes: "The virus is the common enemy of humankind; that is a lesson for all humanity. The only way we can conquer this virus and free ourselves from its grip is for all members of humankind to work together."Blending the intimate and the epic, the profound and the quotidian, 'WUHAN DIARY' is a remarkable record of an extraordinary time.

All Over the Place: Adventures in Travel, True Love, and Petty Theft


Geraldine DeRuiter - 2017
    And some people have no sense of direction, are terrified of pigeons, and get motion sickness from tying their shoes. These people are meant to stay home and eat nachos. Geraldine DeRuiter is the latter. But she won't let that stop her. Hilarious, irreverent, and heartfelt, All Over the Place chronicles the years Geraldine spent traveling the world after getting laid off from a job she loved. Those years taught her a great number of things, though the ability to read a map was not one of them. She has only a vague idea of where Russia is, but she now understands her Russian father better than ever before. She learned that what she thought was her mother's functional insanity was actually an equally incurable condition called "being Italian." She learned what it's like to travel the world with someone you already know and love -- how that person can help you make sense of things and make far-off places feel like home. She learned about unemployment and brain tumors, lost luggage and lost opportunities, and just getting lost in countless terminals and cabs and hotel lobbies across the globe. And she learned that sometimes you can find yourself exactly where you need to be -- even if you aren't quite sure where you are.

Parasite Rex: Inside the Bizarre World of Nature's Most Dangerous Creatures


Carl Zimmer - 2000
    Now award-winning writer Carl Zimmer takes us on a fantastic voyage into the secret parasite universe we actually live in but haven't recognized. He reveals not only that parasites are the most successful life-forms on Earth, but that they triggered the development of sex, shape ecosystems, and have driven the engine of evolution. In mapping the parasite universe, Zimmer makes the astonishing observation that most species are parasites, and that almost every animal, including humans, will at one time or another become the home of a parasite. Zimmer shows how highly evolved parasites are and describes the frightening and amazing ingenuity these commando invaders use to devour their hosts from the inside and control their behavior. The sinister Sacculina carcini makes its home in an unlucky crab and proceeds to eat everything but what the crab needs to put food in its mouth, which Sacculina then consumes. When Sacculina finally reproduces, it places its young precisely where the crab would nurture its own progeny, and then has the crab nurture the foster family members. Single-celled Toxoplasma gondi has an even more insidious role, for it can invade the human brain. There it makes men distrustful and less willing to submit to social mores. Women become more outgoing and warm-hearted. Why would a parasite cause these particular personality changes? It seems Toxoplasma wants its host to be less afraid, to be more prone to danger and a violent end -- so that, in the carnage, it will be able to move on to another host. From the steamy jungles of Costa Rica to the fetid parasite heaven of rebel-held southern Sudan, Zimmer tracks the genius of parasitic life and its impact on humanity. We hosts have developed remarkable defenses against the indomitable parasite: our mighty immune system, our culturally enforced habit of keeping clean, and, perhaps most intriguingly, sex. But this is not merely a book about the evil power of parasitism and how we must defend against it. On the contrary, Zimmer concludes that humankind itself is a new kind of parasite, one that preys on the entire Earth. If we are to achieve the sophistication of the parasites on display here in vivid detail, if we are to promote the flourishing of life in all its diversity as they do, we must learn the ways nature lives with itself, the laws of Parasite Rex.

Chasing My Cure: A Doctor's Race to Turn Hope into Action


David Fajgenbaum - 2019
    But things changed dramatically when he began suffering from inexplicable fatigue. In a matter of weeks, his organs were failing and he was read his last rites. Doctors were baffled by his condition, which they had yet to even diagnose. Floating in and out of consciousness, Fajgenbaum prayed for a second chance, the equivalent of a dramatic play to second the game into overtime.Miraculously, Fajgenbaum survived--only to endure repeated near-death relapses from what would eventually be identified as a form of Castleman disease, an extremely deadly and rare condition that acts like a cross between cancer and an autoimmune disorder. When he relapsed while on the only drug in development and realized that the medical community was unlikely to make progress in time to save his life, Fajgenbaum turned his desperate hope for a cure into concrete action: Between hospitalizations he studied his own charts and tested his own blood samples, looking for clues that could unlock a new treatment. With the help of family, friends, and mentors, he also reached out to other Castleman disease patients and physicians, and eventually came up with an ambitious plan to crowdsource the most promising research questions and recruit world-class researchers to tackle them. Instead of waiting for the scientific stars to align, he would attempt to align them himself.More than five years later and now married to his college sweetheart, Fajgenbaum has seen his hard work pay off: A treatment he identified has induced a tentative remission and his novel approach to collaborative scientific inquiry has become a blueprint for advancing rare disease research. His incredible story demonstrates the potency of hope, and what can happen when the forces of determination, love, family, faith, and serendipity collide.

Hidden Valley Road: Inside the Mind of an American Family


Robert Kolker - 2020
    After World War II, Don's work with the Air Force brought them to Colorado, where their twelve children perfectly spanned the baby boom: the oldest born in 1945, the youngest in 1965. In those years, there was an established script for a family like the Galvins—aspiration, hard work, upward mobility, domestic harmony—and they worked hard to play their parts. But behind the scenes was a different story: psychological breakdown, sudden shocking violence, hidden abuse. By the mid-1970s, six of the ten Galvin boys, one after another, were diagnosed as schizophrenic. How could all this happen to one family?What took place inside the house on Hidden Valley Road was so extraordinary that the Galvins became one of the first families to be studied by the National Institute of Mental Health. Their story offers a shadow history of the science of schizophrenia, from the era of institutionalization, lobotomy, and the schizophrenogenic mother to the search for genetic markers for the disease, always amid profound disagreements about the nature of the illness itself. And unbeknownst to the Galvins, samples of their DNA informed decades of genetic research that continues today, offering paths to treatment, prediction, and even eradication of the disease for future generations.With clarity and compassion, bestselling and award-winning author Robert Kolker uncovers one family's unforgettable legacy of suffering, love, and hope.