Book picks similar to
Sick: A Compilation Zine on Physical Illness by Ben Holtzman
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Don't Kill the Birthday Girl: Tales from an Allergic Life
Sandra Beasley - 2011
Like twelve million other Americans, Sandra Beasley suffers from food allergies. Her allergies—severe and lifelong—include dairy, egg, soy, beef, shrimp, pine nuts, cucumbers, cantaloupe, honeydew, mango, macadamias, pistachios, cashews, swordfish, and mustard. Add to that mold, dust, grass and tree pollen, cigarette smoke, dogs, rabbits, horses, and wool, and it’s no wonder Sandra felt she had to live her life as “Allergy Girl.” When butter is deadly and eggs can make your throat swell shut, cupcakes and other treats of childhood are out of the question—and so Sandra’s mother used to warn guests against a toxic, frosting-tinged kiss with “Don’t kill the birthday girl!” It may seem that such a person is “not really designed to survive,” as one blunt nutritionist declared while visiting Sandra’s fourth-grade class. But Sandra has not only survived, she’s thrived—now an essayist, editor, and award-winning poet, she has learned to navigate a world in which danger can lurk in an unassuming corn chip. Don’t Kill the Birthday Girl is her story. With candor, wit, and a journalist’s curiosity, Sandra draws on her own experiences while covering the scientific, cultural, and sociological terrain of allergies. She explains exactly what an allergy is, describes surviving a family reunion in heart-of-Texas beef country with her vegetarian sister, delves into how being allergic has affected her romantic relationships, exposes the dark side of Benadryl, explains how parents can work with schools to protect their allergic children, and details how people with allergies should advocate for themselves in a restaurant. A compelling mix of memoir, cultural history, and science, Don’t Kill the Birthday Girl is mandatory reading for the millions of families navigating the world of allergies—and a not-to-be-missed literary treat for the rest of us.
The Street or Me: A New York Story
Judith Glynn - 2014
Michelle Browning is 33, drunk and a former beauty queen who nears death after six years of homelessness. Judith Glynn is divorced with grown children and struggles to support herself in her adopted city. After their first hello, neither woman is the same as they embark on a remarkable journey for two years. This memoir is a raw yet enlightening read that graphically depicts the homeless subculture. But as Judith sets out all alone to rescue Michelle is her fixation worth the sacrifice? At stake is whether Michelle will choose possible death in a gutter over Judith's guiding light back into society. Enrolled in Kindle Book Lending that allows users to lend their book after purchasing to their friends and family for a duration of 14 days. For full details, review the Kindle Book Lending Program.
Raising a Rare Girl: A Memoir
Heather Lanier - 2020
She ate organic foods, recited affirmations, and drew up a birth plan for an unmedicated labor in the hopes that she could create a SuperBaby, an ultra-healthy human destined for a high-achieving future.But her daughter Fiona challenged all of Lanier's preconceptions. Born with an ultra-rare syndrome known as Wolf-Hirschhorn, Fiona received a daunting prognosis: she would experience significant developmental delays and might not reach her second birthday. Not only had Lanier failed to produce a SuperBaby, she now fiercely loved a child that the world would sometimes reject. The diagnosis obliterated Lanier's perfectionist tendencies, along with her most closely held beliefs about certainty, vulnerability, God, and love.With tiny bits of mozzarella cheese, a walker rolled to library story time, a talking iPad app, and a whole lot of pop and reggae, mother and daughter spend their days doing whatever it takes to give Fiona nourishment, movement, and language. They also confront society's attitudes toward disability and the often cruel assumptions made about Fiona's worth. Lanier realizes the biggest question is not, Will my daughter walk or talk? but, How can I best love my girl, just as she is? Loving Fiona opens Lanier up to new understandings of what it means to be human, what it takes to be a mother, and above all, the aching joy and wonder that come from embracing the unique life of her rare girl.
Girl in the Dark
Anna Lyndsey - 2015
She was ambitious and worked hard; she had just bought an apartment; she was falling in love. But then she started to develop worrying symptoms: her face felt like it was burning whenever she was in front of the computer. Soon this progressed to an intolerance of fluorescent light, then of sunlight itself. The reaction soon spread to her entire body. Now, when her symptoms are at their worst, she must spend months on end in a blacked-out room, losing herself in audio books and elaborate word games in an attempt to ward off despair. It was during this period she began to write this book.
Over My Head: A Doctor's Own Story of Head Injury from the Inside Looking Out
Claudia L. Osborn - 1997
Over My Head is an inspiring story of how one woman comes to terms with the loss of her identity and the courageous steps (and hilarious missteps) she takes while learning to rebuild her life. The author, a 45-year-old doctor and clinical professor of medicine, describes the aftermath of a brain injury eleven years ago which stripped her of her beloved profession. For years she was deprived of her intellectual companionship and the ability to handle the simplest undertakings like shopping for groceries or sorting the mail. Her progression from confusion, dysfunction, and alienation to a full, happy life is told with restraint, great style, and considerable humor.
Gut Instincts: Dispatches from the Wide Open Space Between Sickness and Health
Heather Abel - 2014
They told her that she had the worst case they’d ever seen of a rare Scandinavian disease called celiac. At first, this diagnosis – and its requirement of total adherence to a gluten-free diet – seemed like the simple answer to a lifetime of strange symptoms including anemia, insomnia, pneumonia, mouth ulcers, missed periods, and neck pain so severe that for months preceding the diagnosis she hadn’t been able to turn her head. But even on the diet – and as glutenphobia erupted in this country, with nearly a third of Americans avoiding gluten —Abel still didn’t feel well. When doctors, nutritionists, and websites all offered contradicting information on gluten and diet, she began to panic. How would she know what to eat? In this powerful, wide-ranging and emotional story about the limits of medical knowledge, Abel discovers why she wasn’t diagnosed with celiac as a child. She considers how environmental fears and Internet anecdotes lead people to avoid gluten. And she grapples with the question that confronts us all: how to live calmly, even joyfully, in the face of uncertainty. Heather Abel worked as a reporter and news editor in Colorado and San Francisco and taught creative writing at the New School University and UMass Amherst. She lives with her family in western Massachusetts where she is finishing her first novel.
Nobody Eats Parsley: And other things I learned from my family
David Oakley - 2020
They're so ridiculous you may think they're fiction. Like the time I went to a drive-in X-rated movie without realizing my parents were in the next car. Or the time I let my kid throw a rock through our living room window. There's the time I bought a camouflage thong in a bait shop and the time I ruined a kid's birthday party. And the other time I ruined a kid's birthday party. I can't guarantee that these stories will make you laugh, but I can guarantee that I didn't make them up.
The Rainman's Third Cure: An Irregular Education
Peter Coyote - 2015
For Coyote, the twin forces Dylan identifies as Texas Medicine and Railroad Gin – represent the competing forces of the transcendental, inclusive, and ecstatic world of love with the competitive, status-seeking world of wealth and power. The Rainman’s Third Cure is the tale of a young man caught between these apparently antipodal options and the journey that leads him from the privileged halls of power to Greenwich Village jazz bars, to jail, to the White House, lessons from a man who literally held the power of life and death over others, to government service and international success on stage and screen.Expanding his frame beyond the wild ride through the 1960’s counterculture that occupied so much of his lauded debut memoir, Sleeping Where I Fall, Coyote provides readers intimate portraits of mentors that shaped him—a violent, intimidating father, a be-bop Bass player who teaches him that life can be improvised, a Mafia consiglieri, who demonstrates to him that men can be bought and manipulated, an ex game-warden who initates him into the laws of nature, a gay dancer in Martha Graham’s company who introduces him to Mexico and marijuanas, beat poet Gary Snyder, who introduces him to Zen practice, and finally famed fashion designer Nino Cerruti who made the high-stakes world of haute monde Europe available to him.What begins as a peripatetic flirtation with Zen deepens into a life-long avocation, ordination as a priest, and finally the road to Transmission---acknowledgement from his teacher that he is ready to be an independent teacher. Through Zen, Coyote discovers a third option that offers an alternative to both the worlds of Love and Power’s correlatives of status seeking and material wealth. Zen was his portal, but what he discovers on the inside is actually available to all humans. In this energetic, reflective and intelligent memoir, The Rainman’s Third Cure is the way out of the box. The way that works.
Have Dog, Will Travel: A Poet’s Journey with an Exceptional Labrador
Stephen Kuusisto - 2018
Theirs is a partnership of movement, mutual self-interest, and wanderlust. Walking with Corky in Manhattan for the first time, Steve discovers he’s “living the chaos of joy—you’re in love with your surroundings, loving a barefoot mind, wild to go anyplace.”Have Dog, Will Travel is the inside story of how a person establishes trust with a dog, how a guide dog is trained. Corky absolutely transforms Steve’s life and his way of being in the world. Profound and deeply moving, theirs is a spiritual journey, during which Steve discovers that joy with a guide dog is both a method and a state of mind. Guaranteed to make you laugh—and cry—this beautiful reflection on the highs, lows, and everyday details that make up life with a guide dog provides a profound exploration of Stephen’s lifelong struggle with disability, identity, and the midlife events that lead to self-acceptance.
Mothers
Rachel Zucker - 2013
"MOTHERs is a howling storm of a book. In this desperately digressive essay, the poet Rachel Zucker narrates her complicated path to becoming and not becoming her mother, the storyteller Diane Wolkstein. Zucker turns her intelligent eye outward and inward, including everything she knows about mothers, stories, poems, and consequence itself. In mythic terms, the essay is about a poet who doesn't want to turn into a storyteller. But as in all myths of avoidance, Zucker must eventually tell a terrifyingly inevitable story."—Sarah Manguso
The Power of Two: A Twin Triumph Over Cystic Fibrosis
Isabel Stenzel Byrnes - 2007
But for twin girls with the disease, what began as a family’s stubborn determination grew into a miracle. The tragedy of CF has been touchingly recounted in such books as Frank Deford’s Alex: The Life of a Child, but The Power of Two is the first book to portray the symbiotic relationship between twins who share this life-threatening disease through adulthood. Isabel Stenzel Byrnes and Anabel Stenzel tell of their lifelong struggle to pursue normal lives with cystic fibrosis while grappling with the realization that they will die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and tells how the twins’ bicultural heritage—Japanese and German—influenced the way they coped with these challenges. Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, Isabel and Anabel endured the daily regimen of chest percussion, frequent doctor visits, and lengthy hospitalizations. But they tell how, in the face of innumerable setbacks, their deep-seated dependence on each other allowed them to survive long enough to reap the benefits of the miraculous lung transplants that marked a crossroads in their lives: “We have an old life—one of growing up with chronic illness—and a new life—one of opportunities and gifts we have never imagined before.” In this memoir, they pay tribute to the people who shaped their experience. The Power of Two is an honest and gripping portrayal of day-to-day health care, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival. It conveys an important message to both popular and professional readers as it addresses key psychosocial issues in chronic illness throughout the sufferer’s lifespan and illuminates the human side of advances in biotechnology. Even as gene therapy and stem cell research increase the chances for eradicating CF, this stirring account portrays its effects on one family that refused to give up. These two remarkable sisters have much to teach about the power of perseverance—and about the ultimate power of hope.
Eyes to the Wind: A Memoir of Love and Death, Hope and Resistance
Ady Barkan - 2019
But one day, he noticed a troubling weakness in his hand. At first, he brushed it off as carpal tunnel syndrome, but after a week of neurological exams and two MRIs, he learned the cause of the problem: amyotrophic lateral sclerosis, better known as ALS or Lou Gehrig’s disease. At age thirty-two, Ady was given just three to four years to live. Yet despite the devastating diagnosis, he refused to let his remaining days go to waste. Eyes to the Wind is a rousing memoir featuring intertwining storylines about determination, perseverance, and how to live a life filled with purpose and intention. The first traces Ady’s battle with ALS: how he turned the initial shock and panic from his diagnosis into a renewed commitment to social justice—not despite his disability but because of it. The second, told in flashbacks, illustrates Ady’s journey from a goofy political nerd to a prominent figure in the enduring fight for equity and justice whose “selfless activism fighting to make health care a right should be an inspiration to us all” (Senator Bernie Sanders). From one of today’s most vocal advocates for social justice, Eyes to the Wind’s “primary question is existential: how to live when you are dying? Barkan’s answer is to share, open up, act, and capital-R Resist, and his memoir, clearly and candidly written, establishes a legacy” (Booklist).
Admissions: Life as a Brain Surgeon
Henry Marsh - 2017
There have been exhilarating highs and devastating lows, but his love for the practice of neurosurgery has never wavered. Following the publication of his celebrated New York Times bestseller Do No Harm, Marsh retired from his full-time job in England to work pro bono in Ukraine and Nepal. In Admissions, he describes the difficulties of working in these troubled, impoverished countries and the further insights it has given him into the practice of medicine. Marsh also faces up to the burden of responsibility that can come with trying to reduce human suffering. Unearthing memories of his early days as a medical student and the experiences that shaped him as a young surgeon, he explores the difficulties of a profession that deals in probabilities rather than certainties and where the overwhelming urge to prolong life can come at a tragic cost for patients and those who love them. Reflecting on what forty years of handling the human brain has taught him, Marsh finds a different purpose in life as he approaches the end of his professional career and a fresh understanding of what matters to us all in the end.
I'm Here: Compassionate Communication in Patient Care
Marcus Engel - 2010
However, the human interaction between patient and care giver is still the essential foundation of healing. “I’m Here” is a personal narrative from the patient’s perspective. Filled with practical advice, packed with humor and overflowing with appreciation, Marcus Engel encourages health care professionals to practice compassionate communications in all its forms.“Marcus’ books and keynote presentation has left an unforgettable impression on our nursing staff. It’s an invaluable reminder of why we do, what we do.”-Dee Evans, Driscoll Children’s Hospital, Corpus Christi, TX“I’m Here” should be required reading for all health practitioners. Marcus’ personal experience of being a patient and his insights into what constitutes compassionate care are marvelous and right on.”-Dr. Norma Stephens Hannigan, Assistant Professor of Clinical Nursing Diplomate of Comprehensive Care, Columbia University in the City of New York. -Professional speaker and author Marcus Engel is considered an expert in communicating the patient’s perspective, and inspiring health care professionals to excellence. Marcus speaks from the heart. After being blinded and suffering catastrophic injuries at the hands of a drunk driver, he endured years of hospitalization, rehab and recovery. Marcus is the author of “After This… An Inspirational Journey for All the Wrong Reasons” and “The Other End of the Stethoscope: 33 Insights for Excellent Patient Care.”
An Anthology of Madness
Max Andrew Dubinsky - 2013
Featuring brand new stories and some old favorites, many of these tell-all, gritty tales were originally published on the blog Make It MAD between 2010 and 2012, and have been rereleased in their originality for this special print and digital anthology.