Yet many who travel this path discover rich, unexpected rewards along the way. In this candid and poignant collection of personal stories, sixty-three mothers describe the gifts of respect, strength, delight, perspective, and love, which their child with Down syndrome has brought into their lives. perspectives, and draw from a wide spectrum of ethnicity, world views, and religious beliefs. Some are parenting within a traditional family structure; some are not. Some never considered terminating their pregnancy; some struggled with the decision. Some were calm at the time of diagnosis; some were traumatised. Some write about their pregnancy and the months after giving birth; some reflect on years of experience with their child. Their diverse experiences point to a common truth: the life of a child with Down syndrome is something to celebrate. These women have something to say - not just to other mothers but to all of us.

    Yet, lurking beneath this boy genius's amazing, albeit useless, gifts for facts were an extraordinary fear of change and social aloofness. Unknown to his mother, Barbara, until much later, Ben suffered from Asperger's syndrome--the "little grown-up" disorder--a neurobiological disease similar to autism. Frank, honest, and beautifully written, Finding Ben is a remarkably moving account of Barbara LaSalle's struggles to understand--and overcome--the guilt she feels for not fully loving her son.Burdened with the belief that the world would look at her son and somehow see her own failure, Finding Ben is a powerfully honest narrative account of how a mother's love can turn over time into resentment for having to raise a special-needs child.It is through LaSalle's special friendship with Jack, a man full of wisdom despite his debilitating brain aneurysm, that LaSalle is finally able to love her son--and herself--again. With two stories to tell, Finding Ben is both a fascinating look at a mercurial disease and a powerful story of one mother's personal journey from frustration and resentment to love and acceptance.

    Please be forewarned that you are about to read the observations and life lessons of someone who entertains himself by farting in public and conversing in gibberish with his cats. Thus begins the charming, insightful, and memorable story of Jesse Saperstein. Diagnosed with Asperger's Syndrome, a mild form of autism, Jesse has struggled since childhood with many of the hallmark challenges of his condition-from social awkwardness and self-doubt to extreme difficulty with change and managing his emotions.He has also worked hard to understand and make the most of his AS- developing his keen curiosity and sense of humor, closely observing the world around him, and most of all, helping others with AS to better cope and even thrive. Told with endearing and unflinching honesty, Jesse brings his unique perspective to the circumstances of his life and his condition.

    Beth spends her days riding the buses in her Pennsylvania city. The drivers, a lively group, are her mentors; her fellow passengers are her community. One day, Beth asked Rachel to accompany her on the buses for an entire year; the book is the chronicle of that remarkable time. Rachel, a writer and college teacher whose hyperbusy life camouflaged her emotional isolation, had much to learn in her sister's extraordinary world. Here are life lessons from which every reader can profit: how to live in the moment, how to pay attention to what really matters, how to change, how to love, —and how to slow down and enjoy the ride. Simon elegantly braids together riveting memories of terrifying maternal abandonment, fierce sisterly loyalty, and astonishing forgiveness. She brings to light the almost invisible world of mental retardation, finds unlikely heroes in everyday life, and portrays her very special sister Beth as the endearing and indomitable person she is. This heartwarming book takes the reader on an inspirational journey, at once unique and universal.

    Five years after he married Kristen, the love of his life, they learn that he has Asperger syndrome. The diagnosis explains David’s ever-growing list of quirks and compulsions, his lifelong propensity to quack and otherwise melt down in social exchanges, and his clinical-strength inflexibility. But it doesn’t make him any easier to live with.Determined to change, David sets out to understand Asperger syndrome and learn to be a better husband—no easy task for a guy whose inability to express himself rivals his two-year-old daughter's, who thinks his responsibility for laundry extends no further than throwing things in (or at) the hamper, and whose autism-spectrum condition makes seeing his wife's point of view a near impossibility.Nevertheless, David devotes himself to improving his marriage with an endearing yet hilarious zeal that involves excessive note-taking, performance reviews, and most of all, the Journal of Best Practices: a collection of hundreds of maxims and hard-won epiphanies that result from self-reflection both comic and painful. They include "Don’t change the radio station when she's singing along," "Apologies do not count when you shout them," and "Be her friend, first and always." Guided by the Journal of Best Practices, David transforms himself over the course of two years from the world’s most trying husband to the husband who tries the hardest, the husband he’d always meant to be.Filled with humor and surprising wisdom, The Journal of Best Practices is a candid story of ruthless self-improvement, a unique window into living with an autism-spectrum condition, and proof that a true heart can conquer all.

    Once they knew why she couldn’t speak, they needed to determine how to help her learn. They didn’t know that Schuyler was going to teach them a thing or two about fearlessness, tenacity, and joy.Schuyler’s Monster is more than the memoir of a parent dealing with a child’s disability. It is the story of the relationship between a unique and ethereal little girl floating through the world without words, and her earthbound father who struggles with whether or not he is the right dad for the job. It is the story of a family seeking answers to a child’s dilemma, but it is also a chronicle of their unique relationships, formed without traditional language against the expectations of a doubting world. It is a story that has equal measure of laughter and tears. Ultimately, it is the tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs. Schuyler can now communicate through assistive technology, and continues to be the source of her father's inspiration, literary and otherwise.

    If the problem is physical, she takes the child to a doctor. But if the problem is a misunderstanding of her child's mind, where does she turn for help? This is Ben's story. He was a happy, healthy boy -- a mother's dream come true. Yet by the age of three, Ben's development was significantly delayed: He couldn't make sense of the simplest phrases, and he still hadn't started talking. When Karen Foli finally took her son, Ben, to a speech and hearing clinic, she was told that he was "probably retarded and perhaps autistic." But Karen knew that Ben was highly perceptive, even frustrated by his inability to communicate. Trusting her "mother's intuition," Karen set out on a journey to learn the truth about her son's condition....and what she found was APD. A person with auditory processing disorder receives jumbled and distorted sounds. But the ability to hear is usually normal. Even though it affects millions of Americans, APD can be difficult to diagnose and challenging to treat. Through years of research, and personal interviews, Karen Foli learned everything she needed to know about APD in order to help her son achieve the greatest gift of all: communication. Like Sound Through Water is her story -- winning, inspiring, and true.

    Just three years after giving birth to twin daughters, Kate and Jon learned they were pregnant again--with sextuplets. In Multiple Blessings, Kate candidly chronicles the emotional and exhausting challenges she and Jon faced from the time the babies were conceived through the first two years of their lives. This amazing story of faith provides a heartening lesson in what it means to trust the faithful hand of God to provide the strength and courage to make it through life's seemingly impossible situations.

    She has two sons with autism on opposite ends of the spectrum (Jake and Jaxson), a husband who prefers hunting to household chores, an Australian Shepherd named Sugar, and an albino frog named Humbert Humbert. This is her story—a brash, personal, and some-times shocking memoir of one woman’s determination to raise two healthy kids with autism and keep her sanity in the process. It’s not always easy. Between “poop” incidents, temper tantrums, and the “helpful” advice about parenting from her fellow citizens in the grocery store, Jeni often finds herself wanting to throw something. With chapters like: “Tickling the Weiner,” “Why I Hate Pokemon,” “Santa: Give it a Friggin’ Rest, Already,” and “Oprah’s the Reason My Kid Thinks I Want to Drown Him in the Tub,” I Wish I Were Engulfed in Flames also includes mini-chapters written by her eldest son, Jake.Readers looking for laughter and inspiration will find it here aplenty, along with tons of surreal anecdotes that will have you either shaking your head in disbelief (for those unacquainted with the world of autism) or nodding with recognition (for those who are). As Jeni says, “I developed a new ‘normal.’”

    At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.

    If you discipline, you’re buying them a spot on the shrink’s couch; if you let them run wild, they will be into drugs by seventh grade. If you buy organic, you’re spending their college fund; if you don’t, you’re risking all sorts of allergies and illnesses.Is it any wonder so many women refer to themselves at one time or another as “a bad mother”? Ayelet Waldman says it’s time for women to get over it and get on with it, in a book that is sure to spark the same level of controversy as her now legendary Modern Love piece, in which she confessed to loving her husband more than her children.Covering topics as diverse as the hysteria of competitive parenting (Whose toddler can recite the planets in order from the sun?), the relentless pursuits of the Bad Mother police, balancing the work-family dynamic, and the bane of every mother’s existence (homework, that is), Bad Mother illuminates the anxieties that riddle motherhood today, while providing women with the encouragement they need to give themselves a break.

    She ran into her two-year-old son Evan's room and found him having a seizure. Doctor after doctor misdiagnosed Evan until after many harrowing, life-threatening episodes one good doctor discovered that Evan is autistic.With a foreword from Dr. David Feinberg, medical director of the Resnick Neuro-psychiatric Hospital at UCLA, and an introduction by Jerry J. Kartzinel, a top pediatric autism specialist, Louder Than Words follows Jenny as she discovered an intense combination of behavioral therapy, diet, and supplements that became the key to saving Evan from autism. Her story sheds much-needed light on autism through her own heartbreak, struggle, and ultimately hopeful example of how a parent can shape a child's life and happiness.

    In 1982, when he was four years old, Kamran Nazeer was enrolled in a small school in New York City alongside a dozen other children diagnosed with autism. Calling themselves the Idiots, these kids received care that was at the cutting edge of developmental psychology. Twenty-three years later, the school no longer exists.Send in the Idiots is the always candid, often surprising, and ultimately moving investigation into what happened to those children. Now a policy adviser in England, Kamran decides to visit four of his old classmates to find out the kind of lives that they are living now, how much they've been able to overcome—and what remains missing. A speechwriter unable to make eye contact; a messenger who gets upset if anyone touches his bicycle; a depressive suicide victim; and a computer engineer who communicates difficult emotions through the use of hand puppets: these four classmates reveal an astonishing, thought-provoking spectrum of behavior.Bringing to life the texture of autistic lives and the pressures and limitations that the condition presents, Kamran also relates the ways in which those can be eased over time, and with the right treatment. Using his own experiences to examine such topics as the difficulties of language, conversation as performance, and the politics of civility, Send in the Idiots is also a rare and provocative exploration of the way that people—all people—learn to think and feel. Written with unmatched insight and striking personal testimony, Kamran Nazeer's account is a stunning, invaluable, and utterly unique contribution to the literature of what makes us human.

    She is immediately rushed to the hospital. Once More We Saw Stars begins with this event, leading the reader into the unimaginable.But although it begins with the anguish Jayson and his wife Stacy confront in the wake of their daughter’s trauma and the hours leading up to her death, it quickly becomes a narrative that is as much about hope and healing as it is about grief and loss. Jayson recognizes, even in the very midst of his ordeal, that there will be a life for him beyond it—that if only he can continue moving forward, from one moment to the next, he will survive what seems un-survivable.With raw honesty, deep emotion, and exquisite tenderness, he captures both the fragility of life and absoluteness of death, and most important of all, the unconquerable power of love. This is an unforgettable memoir of courage and transformation—and a book that will change the way you look at the world.

    You must mind the one taking care of you, but she's not your mama." Ashley Rhodes-Courter spent nine years of her life in fourteen different foster homes, living by those words. As her mother spirals out of control, Ashley is left clinging to an unpredictable, dissolving relationship, all the while getting pulled deeper and deeper into the foster care system. Painful memories of being taken away from her home quickly become consumed by real-life horrors, where Ashley is juggled between caseworkers, shuffled from school to school, and forced to endure manipulative,humiliating treatment from a very abusive foster family. In this inspiring, unforgettable memoir, Ashley finds the courage to succeed - and in doing so, discovers the power of her own voice.