But when her second child is born with albinism, a rare genetic condition whose most striking characteristics are white blonde hair, pale skin and impaired vision, she discovers that the very definition of normal is up for grabs. A moving memoir with flashes of humor, this essay tells one mother’s story of navigating the spectrum of ability and disability, filled with both heartbreak and joy. And how ultimately she and her daughter learn to balance together on the edge of normal. Reviews and Praise THE EDGE OF NORMAL was selected for Amazon's Best Kindle Singles of the Year, and has been featured in the SundayTimes Magazine (UK), Longreads, and OZY. About the Author Hana Schank is an author and a technology consultant. She is a frequent contributor to the New York Times, the Washington Post and the Atlantic.com, and her writing has appeared across the web and in national magazines. Her memoir, A More Perfect Union: How I Survived the Happiest Day of My Life, was a Barnes and Noble Discover Great New Writers selection.

    Le Guin:"I read her nonstop growing up and read her still. What makes her so extraordinary for me is that her commitment to the consequences of our actions, of our all too human frailties, is unflinching and almost without precedent for a writer of such human optimism."—Junot Diaz"A lot of her work is about telling stories, and what it means to tell stories, and what stories look like. She's been extremely influential on me in that area of what I, as a beginning writer, thought a story must look like, and the much more expan-sive view I have now of what a story can be and can do."—Karen Joy Fowler"She was and remains a central figure for me."—Michael ChabonUrsula K. Le Guin is one of our foremost public literary intellectuals and this collection of her recent talks, essays, introductions, and book reviews is the best manual we have for traveling the worlds explored in recent fiction; the most useful guide to the country we're visiting, life.Ursula K. Le Guin was born in Berkeley, California, in 1929. Among her honors are the National Book Foundation's Medal for Distinguished Contribution to American Letters, a National Book Award, the Hugo, Nebula, and Kafka awards, a Pushcart Prize, and the Harold D. Vursell Me-morial Award from the American Academy of Arts and Letters. She lives in Portland, Ore-gon.