We Know How This Ends: Living while Dying


Bruce H. Kramer - 2015
    Kramer. But what began as a floppy foot and leg weakness led to a shattering diagnosis: he had amyotrophic lateral sclerosis. ALS is a cruel, unrelenting neurodegenerative disease where the body’s muscles slowly weaken, including those used to move, swallow, talk, and ultimately breathe. There is no cure; ALS is a death sentence.When death is a constant companion, sitting too closely beside you at the dinner table, coloring your thoughts and feelings and words, your outlook on life is utterly transformed. The perspective and insights offered in We Know How This Ends reveal this daily reality and inspire a way forward for anyone who has suffered major loss and for anyone who surely will. Rather than wallowing in sadness and bitterness, anger and denial, Kramer accepted the crushing diagnosis. The educator and musician recognized that if he wanted a meaningful life, embracing his imminent death was his only viable option. His decision was the foundation for profound, personal reflection and growth, even as his body weakened, and inspired Kramer to share and teach the lessons he was learning from ALS about how to live as fully as possible, even in the midst of devastating grief.At the same time Kramer was diagnosed, broadcast journalist Cathy Wurzer was struggling with her own losses, especially the slow descent of her father into the bewildering world of dementia. Mutual friends put this unlikely pair—journalist and educator—together, and the serendipitous result has been a series of remarkable broadcast conversations, a deep friendship, and now this book.Written with wisdom, genuine humor, and down-to-earth observations, We Know How This Ends is far more than a memoir. It is a dignified, courageous, and unflinching look at how acceptance of loss and inevitable death can lead us all to a more meaningful and fulfilling life.

The Lunch-Box Chronicles: Notes from the Parenting Underground


Marion Winik - 1998
    . . ."   With the candor and often hilarious outlook that have made her a beloved commentator on NPR, Marion Winik takes the reader on an unforgettable journey through modern parenthood, with all of its attendant anxieties and joys.        A single mother with two small boys, Winik knows exactly what she's talking about, from battles over breakfast and bedtime to the virtues of pre-packaged food and weightier issues like sex education and sibling rivalry. Part memoir and part survival guide, The Lunch-Box Chronicles is an engaging philosophy of parenting from a staunch realist, who knows that kids and their parents both will inevitably fall far short of perfection, and that a "good enough mom" really is, in fact, good enough.

Gratitude


Oliver Sacks - 2015
    I have loved and been loved. I have been given much and I have given something in return. Above all, I have been a sentient being, a thinking animal, on this beautiful planet, and that in itself has been an enormous privilege and adventure.” —Oliver SacksNo writer has succeeded in capturing the medical and human drama of illness as honestly and as eloquently as Oliver Sacks. During the last few months of his life, he wrote a set of essays in which he movingly explored his feelings about completing a life and coming to terms with his own death. “It is the fate of every human being,” Sacks writes, “to be a unique individual, to find his own path, to live his own life, to die his own death.”Together, these four essays form an ode to the uniqueness of each human being and to gratitude for the gift of life.

Bleeder: A Memoir


Shelby Smoak - 2013
    And I am at the hospital. A coming-of-age memoir for modern times, Bleeder is the incredibly compelling tale of author Shelby Smoak. A hemophiliac, Smoak discovered he had been infected with HIV during a blood transfusion at the start of his college career. This devastating and destabilizing news led Smoak to see his world from an entirely new perspective, one in which life-threatening illness was perpetually just around the corner. Set in the 1990s along the North Carolina coast, Bleeder traces Smoak’s quest for love in a world that feels increasingly dangerous, and despite a future that feels increasingly uncertain. From the bedroom to the operating room, and from one hospital to the next, Smoak seeks out hope and better health. Winner of a PEN American Center award for writers living with HIV, Smoak, whose work has appeared in numerous journals and magazines, constructs this unforgettable story of life and love against insurmountable difficulties in breathtaking, tightly drawn prose.

Endgame: A Journal of the Seventy-Ninth Year


May Sarton - 1992
    I looked forward to the year as a potent harvest," May Sarton writes. Assailed by debilitating illnesses, Sarton found herself instead using much of her energy battling for health. Yet, as this record shows, she did after all do what she had wanted to, as she persevered in work, friendships, and love of nature, discovering in the process new landscapes in the country of old age.

We Are a Muslim, Please


Zaiba Malik - 2010
    And, of course, there's her mother - whether she's writing another ingratiating letter to the Queen or referring to Tom Jones as 'Thumb Jone'.But Zaiba's story is also one of anxiety and seemingly irreconcilable opposites. Growing up she is constantly torn between two identities: 'British' and 'Muslim'. Alienated at school and confused at home, the racism she encounters as a child mirrors the horrors she experiences at the hands of Bangladeshi interrogators as a journalist years later.Five years after the 7/7 attacks galvanized debates about Muslim-British identity, We Are A Muslim, Please is a stirring and enchanting memoir. We see, through Zaiba's childhood eyes, the poignancy of growing up in a world whose prejudices, contradictions and ambiguities are at once distressing and utterly captivating.

A Man's Life: Dispatches from Dangerous Places


Mark Jenkins - 2007
    His journeys are as intellectual and spiritual as they are physical, and we are by his side, in his head." So wrote Robin Russin for the LA Times about Mark Jenkins’s last book, The Hard Way.In A Man’s Life, Jenkins walks across northern Afghanistan, retracing the ancient route of Marco Polo; clandestinely enters northern Burma, slipping along the forgotten Burma Road; climbs a new route in Uganda’s Mountains of the Moon; bicycles across Lithuania with a long-lost friend; canoes through Surinam with the Maroons, descendants of escaped slaves. Described by critic Bill Berkeley as having a "Whitmanesque openness to experience," Jenkins’s desire to explore and understand the world has pushed him to extremes most of us cannot imagine—being arrested in a dozen different countries from Tibet to Tajikistan, breaking a dozen bones, climbing inside glaciers in Iceland, narrowly escaping falling glaciers on Mont Blanc. Through his willingness to put himself out there, Jenkins captures profound glimpses of our chaotic, contradictory, ever-morphing world.A Man’s Life shares how these experiences change Jenkins from a reckless young globetrotter to a mature, contemplative family man who seeks adventure because he viscerally must, and yet is constantly aware of the dangers of the world and its cool-faced indifference to one man’s life. Each departure from home could be permanent and each homecoming is layered with pathos—his latest journey might have cost him his daughter’s first steps or his wife’s birthday. The tales in A Man’s Life explore the razor’s edge between life and death, as well as the nature of love and friendship, failure and redemption. Together, they unite Jenkins’s stunning travels with his lucid contemplations on the meaning of it all.Praised by Richard Bernstein in The New York Times for being able to "[transform] a common sight into a moment of pure magic" and by Amanda Heller in the Boston Globe as "blessed with a rare combination of physical and intellectual grace … he makes us understand what pushes the man who pushes the envelope," Jenkins is one of the rare writers who channels action-packed adventure into lyrical, evocative storytelling.

Skin Deep: Tattoos, the Disappearing West, Very Bad Men, and My Deep Love for Them All


Karol Griffin - 2003
    When she walked into the Body Art Workshop in Laramie, Wyoming, she found what she was looking for: a culture on the fringe of polite society, complete with outlaw signature. Soon Karol was a full-time tattoo artist, an occasional outlaw, and a tattooed woman looking for love in all the wrong places. By the mid nineties, the West had been invaded by suburban culture; and tattoos had become a mass commodity of coolness, compelling Karol to go even farther to find the authentic outsiders she romanticized. She eventually hooked up with a real old-fashioned Wyoming outlaw, complete with felony convictions and outstanding warrants—which is how Karol wound up looking down the barrel of a gun held by a tattooed caricature of true love.

Elder Rage, or Take My Father... Please! How to Survive Caring for Aging Parents


Jacqueline Marcell - 2001
    Includes creative solutions for effective management medically, behaviorally, socially, legally, financially, and emotionally of challenging elders who resist care. How To: Hire caregivers, get obstinate elders to give up driving, accept a housekeeper/caregiver, see different doctors, take medication, shower, eat properly, attend adult day care, move to a new residence and much more. Wealth of tips and valuable resources. ELDER RAGE includes an extensive Addendum by renowned dementia specialist, Rodman Shankle, MS MD: A Physician's Guide to Treating Dementia, making it valuable for the family to the physician. AUTHOR MEDIA includes: TODAY, CNN, PBS Alzheimer's Documentary, AARP Bulletin cover story, Woman's Day, Prevention, hundreds of radio/television interviews, hundreds of articles. AUTHOR HONORS include: Advocate of the Year from the National Association of Women Business Owners at their Remarkable Women Awards--and Media Award from the National Adult Day Services Association. ELDER RAGE is available in Print, Audio, eBook, and autographed via CC at the PayPal option: www.ElderRage.com/Order-2012.asp

Now I See You: A Memoir


Nicole C. Kear - 2014
    Kear's biggest concern is choosing a major--until she walks into a doctor's office in midtown Manhattan and gets a life-changing diagnosis. She is going blind, courtesy of an eye disease called retinitis pigmentosa, and has only a decade or so before Lights Out. Instead of making preparations as the doctor suggests, Kear decides to carpe diem and make the most of the vision she has left. She joins circus school, tears through boyfriends, travels the world, and through all these hi-jinks, she keeps her vision loss a secret.When Kear becomes a mother, just a few years shy of her vision's expiration date, she amends her carpe diem strategy, giving up recklessness in order to relish every moment with her kids. Her secret, though, is harder to surrender - and as her vision deteriorates, harder to keep hidden. As her world grows blurred, one thing becomes clear: no matter how hard she fights, she won't win the battle against blindness. But if she comes clean with her secret, and comes to terms with the loss, she can still win her happy ending.Told with humor and irreverence, Now I See You is an uplifting story about refusing to cower at life's curveballs, about the power of love to triumph over fear. But, at its core, it's a story about acceptance: facing the truths that just won't go away, and facing yourself, broken parts and all.

Teach Us to Sit Still: A Sceptic's Search for Health and Healing


Tim Parks - 2010
    John MacDowell's) quest to overcome ill health. Bedevilled by a crippling condition which nobody could explain or relieve, he confronts hard truths about the relationship between the mind and the body, the hectic modern world and his life as a writer.

Intensive Care: A Doctor's Journey


Danielle Ofri - 2013
    Her vivid prose brings the reader into bustling hospitals, tense exam rooms, and Ofri's own life, giving an up-close look at the fast-paced, life-and-death drama of becoming a doctor. She tells of a young man uncertain of his future who comes into the clinic with a stomach complaint but for whom Dr. Ofri sees that the most useful "treatment" she can offer him is SAT tutoring. She writes of a desperate struggle to communicate with a critically ill patient who only speaks Mandarin, of a doctor whose experience in the NICU leaves her paralyzed with PTSD, and of her own struggles with the fear of making fatal errors, the dangers of overconfidence, and the impossible attempts to balance the empathy necessary for good care with the distance necessary for self-preservation. Through these stories of her patients, colleagues, and her own experiences, Intensive Care offers poignant insight into the medical world, and into the hearts and minds of doctors and their patients. These stories are drawn from the author’s previous books and one is from her forthcoming book, What Doctors Feel: How Emotions Affect the Practice of Medicine.excerpted from Amazon.com Book Description

Lucky Man


Michael J. Fox - 2002
    Fox stunned the world by announcing he had been diagnosed with Parkinson's disease -- a degenerative neurological condition. In fact, he had been secretly fighting it for seven years. The worldwide response was staggering. Fortunately, he had accepted the diagnosis, and by the time the public started grieving for him, he had stopped grieving for himself. Now, with the same passion, humor, and energy, that Fox has invested in his dozens of performances over the last 18 years, he tells the story of his life, his career, and his campaign, to find a cure for Parkinson's.Combining his trademark ironic sensibility, and keen sense of the absurd, he recounts his life -- from his childhood in a small town in western Canada, to his meteoric rise in film and television which made him a worldwide celebrity. Most importantly however, he writes of the last 10 years, during which -- with the unswerving support of his wife, family, and friends -- he has dealt with his illness. He talks about what Parkinson's has given him: the chance to appreciate a wonderful life and career, and the opportunity to help search for a cure, and spread public awareness of the disease. He is a very lucky man, indeed.

As I Live and Breathe


Jamie Weisman - 2002
    . . The book soars." --"The San Diego Union-Tribune" Jamie Weisman was a patient long before she was a doctor. She was born with a rare defect in her immune system that leaves her prey to a range of ailments and crises and that, because it is treatable but not curable, will keep her a patient for life. In this probing and inspiring book, she brings her sojourns on both sides of the doctor-patient divide to bear on the issues of the flesh that preoccupy us all. It is a worthy addition to the best that has been written about our physical selves, a meditation on our extraordinary powers of healing and the limitations that leave intact the miracle and tragedy of being.

The Red Devil : A Memoir About Beating The Odds


Katherine Russell Rich - 1999
    Hailed by critics nationwide and winner of two 1999 Books for a Better Life Awards, this book shares the author's bold tale of illness, joy, mortality, and the improbable triumph of love in the midst of despair.