Book picks similar to
Josie's Story: A Mother's Inspiring Crusade to Make Medical Care Safe by Sorrel King
non-fiction
illness
nonfiction
medical
Hollywood Park
Mikel Jollett - 2020
Mikel Jollett was born into one of the country’s most infamous cults, and subjected to a childhood filled with poverty, addiction, and emotional abuse. Yet, ultimately, his is a story of fierce love and family loyalty told in a raw, poetic voice that signals the emergence of a uniquely gifted writer.We were never young. We were just too afraid of ourselves. No one told us who we were or what we were or where all our parents went. They would arrive like ghosts, visiting us for a morning, an afternoon. They would sit with us or walk around the grounds, to laugh or cry or toss us in the air while we screamed. Then they’d disappear again, for weeks, for months, for years, leaving us alone with our memories and dreams, our questions and confusion. …So begins Hollywood Park, Mikel Jollett’s remarkable memoir. His story opens in an experimental commune in California, which later morphed into the Church of Synanon, one of the country’s most infamous and dangerous cults. Per the leader’s mandate, all children, including Jollett and his older brother, were separated from their parents when they were six months old, and handed over to the cult’s “School.” After spending years in what was essentially an orphanage, Mikel escaped the cult one morning with his mother and older brother. But in many ways, life outside Synanon was even harder and more erratic.In his raw, poetic and powerful voice, Jollett portrays a childhood filled with abject poverty, trauma, emotional abuse, delinquency and the lure of drugs and alcohol. Raised by a clinically depressed mother, tormented by his angry older brother, subjected to the unpredictability of troubled step-fathers and longing for contact with his father, a former heroin addict and ex-con, Jollett slowly, often painfully, builds a life that leads him to Stanford University and, eventually, to finding his voice as a writer and musician.Hollywood Park is told at first through the limited perspective of a child, and then broadens as Jollett begins to understand the world around him. Although Mikel Jollett’s story is filled with heartbreak, it is ultimately an unforgettable portrayal of love at its fiercest and most loyal.
It's Not Yet Dark
Simon Fitzmaurice - 2014
He was given four years to live. In 2010, in a state of lung-function collapse, Simon knew with crystal clarity that now was not his time to die. Against all prevailing medical opinion, he chose to ventilate in order to stay alive.Here, the young filmmaker, a husband and father of five small children draws us deeply into his inner world. Told in simply expressed and beautifully stark prose - in the vein of such memoirs as Jean-Dominique Bauby's The Diving Bell and the Butterfly - the result is an astonishing journey into a life which, though brutally compromised, is lived more fully and in the moment than most, revealing at its core the power of love its most potent.Written using an eye-gaze computer, It's Not Yet Dark is an unforgettable book about relationships and family, about what connects and separates us as people and, ultimately, about what it means to be alive.
The Reason I Jump: The Inner Voice of a Thirteen-Year-Old Boy with Autism
Naoki Higashida - 2005
Parents and family members who never thought they could get inside the head of their autistic loved one, at last, have a way to break through to the curious, subtle, and complex life within.Using an alphabet grid to painstakingly construct words, sentences, and thoughts that he is unable to speak out loud, Naoki answers even the most delicate questions that people want to know. Questions such as: “Why do people with autism talk so loudly and weirdly?” “Why do you line up your toy cars and blocks?” “Why don’t you make eye contact when you’re talking?” and “What’s the reason you jump?” (Naoki’s answer: “When I’m jumping, it’s as if my feelings are going upward to the sky.”) With disarming honesty and a generous heart, Naoki shares his unique point of view on not only autism but life itself. His insights—into the mystery of words, the wonders of laughter, and the elusiveness of memory—are so startling, so strange, and so powerful that you will never look at the world the same way again.
Inconceivable: A Medical Mistake, the Baby We Couldn't Keep, and Our Choice to Deliver the Ultimate Gift
Carolyn Savage - 2011
An unthinkable situation . . . you’re pregnant with the wrong baby. You can terminate, but you can’t keep him. What choice would you make?Carolyn and Sean Savage had been trying to expand their family for years. When they underwent an IVF transfer in February 2009, they knew it would be their last chance. If they became pregnant, they would celebrate the baby as an answer to their prayers. If not, they would be grateful for the family they had and leave their fertility struggles behind forever.They never imagined a third option. The pregnancy test was positive, but the clinic had transferred the wrong embryos. Carolyn was pregnant with someone else’s baby.The Savages faced a series of heartbreaking decisions: terminate the pregnancy, sue for custody, or hand over the infant to his genetic parents upon delivery. Knowing that Carolyn was carrying another couple’s hope for a baby, the Savages wanted to do what they prayed the other family would do for them if the situation was reversed. Sean and Carolyn Savage decided to give the ultimate gift, the gift of life, to a family they didn’t know, no strings attached.Inconceivable provides an inside look at how modern medicine, which creates miracles daily, could allow such a tragic mistake, and the many legal ramifications that ensued with both the genetic family and the clinic. Chronicling their tumultuous pregnancy and its aftermath, which tested the Savage’s faith, their relationship to their church, and their marriage, Inconceivable is ultimately a testament to love. Carolyn and Sean loved this baby, making it impossible for them to imagine how they could give him life and then give him away.In the end, Inconceivable is a story of what it is to be a parent, someone who nurtures a life, protects a soul, only to release that child into the world long before you’re ready to let him go.
Saving Henry: A Mother's Journey
Laurie Strongin - 2010
Saving Henry is a memoir of the author's struggle to save the life of her son Henry, who suffered from a rare childhood illness. Henry was born with a heart condition that was operable, but which proved to be a precursor for a rare, almost-always fatal illness: Fanconi anemia. Laurie, Henry's mom, decided to do everything in her power to fight the course of the disease. She and her husband signed on for a brand new procedure called PGD that, through in vitro fertilization combined with genetic testing, was supposed to be able to produce a new baby who was a carrier of the gene, but who would not become ill with it. The stem cells from the umbilical cord could then be implanted into Henry's body and ultimately save him. As Laurie puts it, "I believe in love and science, nothing more and nothing less."Laurie and her husband had a second child who was healthy but not an FA carrier, and then went through nine failed courses of PGD before they had to give up. Meanwhile, the feisty little boy who loved Batman, Cal Ripken, and root beer-flavored anesthesia captivated everyone who came in contact with him, from New York City to Minneapolis, with his spunk and "never give up" attitude. Henry was the little kid who, when the nurses came to take blood samples, brandished his Harry Potter sword and said, "Bring it on!" and when he lost his hair after a chemo treatment, he declared, "Hey, I look like Michael Jordan!" Laurie became a lobbyist for stem cell research, testifying before Congress, written up by Lisa Belkin in the New York Times and other media, and appearing on Nightline to discuss Henry's case and the importance of the research. Throughout it all, Henry's courage and bravery were a source of inspiration for the many nurses, doctors, friends and family who interacted with him-- and he has saved many lives through his participation in groundbreaking research. This is the moving and incredibly inspiring story of this family's search for a cure, and the impact their amazing son had on the lives of so many.
The Emperor of All Maladies: A Biography of Cancer
Siddhartha Mukherjee - 2010
Physician, researcher, and award-winning science writer, Siddhartha Mukherjee examines cancer with a cellular biologist’s precision, a historian’s perspective, and a biographer’s passion. The result is an astonishingly lucid and eloquent chronicle of a disease humans have lived with - and perished from - for more than five thousand years. The story of cancer is a story of human ingenuity, resilience, and perseverance, but also of hubris, paternalism, and misperception. Mukherjee recounts centuries of discoveries, setbacks, victories, and deaths, told through the eyes of his predecessors and peers, training their wits against an infinitely resourceful adversary that, just three decades ago, was thought to be easily vanquished in an all-out “war against cancer.” The book reads like a literary thriller with cancer as the protagonist. From the Persian Queen Atossa, whose Greek slave cut off her malignant breast, to the nineteenth-century recipients of primitive radiation and chemotherapy to Mukherjee’s own leukemia patient, Carla, The Emperor of All Maladies is about the people who have soldiered through fiercely demanding regimens in order to survive—and to increase our understanding of this iconic disease. Riveting, urgent, and surprising, The Emperor of All Maladies provides a fascinating glimpse into the future of cancer treatments. It is an illuminating book that provides hope and clarity to those seeking to demystify cancer.
Confessions of a Male Nurse
Michael Alexander - 2012
But now, sixteen years since he was first launched into his nursing career – as the only man in a gynaecology ward – he’s pretty much dealt with everything: Body parts that come off in his hands; Teenagers with phantom pregnancies; Doctors unable to tell the difference between their left and right; Violent drunks; Singing relatives; Sexism; . . . and a whole lot of nudity.Confessions of a Male Nurse is a touching, shocking and frequently hilarious account of one man’s life in nursing.
The Shapeless Unease: A Year of Not Sleeping
Samantha Harvey - 2020
She tried everything to appease her wakefulness: from medication to therapy, changes in her diet to changes in her living arrangements. Nothing seemed to help.The Shapeless Unease is Harvey's darkly funny and deeply intelligent anatomy of her insomnia, an immersive interior monologue of a year without one of the most basic human needs. Original and profound, and narrated with a lucid breathlessness, this is a startlingly insightful exploration of memory, writing and influence, death and the will to survive, from "this generation's Virginia Woolf" (Telegraph).
Beauty in the Broken Places: A Memoir of Love, Faith, and Resilience
Allison Pataki - 2018
After an emergency landing, she discovered that Dave—a healthy thirty-year-old athlete and surgical resident—had suffered a rare and life-threatening stroke. Next thing Allison knew, she was sitting alone in the ER in Fargo, North Dakota, waiting to hear if her husband would survive the night. When Dave woke up, he could not carry memories from hour to hour, much less from one day to the next. Allison lost the Dave she knew and loved when he lost consciousness on the plane. Within a few months, she found herself caring for both a newborn and a sick husband, struggling with the fear of what was to come. As a way to make sense of the pain and chaos of their new reality, Allison started to write daily letters to Dave. Not only would she work to make sense of the unfathomable experiences unfolding around her, but her letters would provide Dave with the memories he could not make on his own. She was writing to preserve their past, protect their present, and fight for their future. Those letters became the foundation for this beautiful, intimate memoir. And in the process, she fell in love with her husband all over again. This is a manifesto for living, an ultimately uplifting story about the transformative power of faith and resilience. It’s a tale of a husband’s turbulent road to recovery, the shifting nature of marriage, and the struggle of loving through pain and finding joy in the broken places.
Chanel Bonfire
Wendy Lawless - 2013
But that didn't stop her from wanting one.Georgann Rea didn't bake cookies or go to PTA meetings; she wore a mink coat and always had a lit Dunhill plugged into her cigarette holder. She had slept with too many men, and some women, and she didn't like dogs or children. Georgann had the ice queen beauty of a Hitchcock heroine and the cold heart to match.In this evocative, darkly humorous memoir, Wendy deftly charts the highs and lows of growing up with her younger sister in the shadow of an unstable, fabulously neglectful mother. Georgann, a real-life Holly Golightly who constantly reinvents herself as she trades up from trailer-park to penthouse, suffers multiple nervous breakdowns and suicide attempts, while Wendy tries to hide the cracks in their fractured family from the rest of the world.Chanel Bonfire depicts a childhood blazed through the refined aeries of The Dakota and the swinging townhouses of London, while the girls' beautiful but damned mother desperately searches for glamour and fulfillment. Ultimately, they must choose between living their own lives and being their mother's warden.
Emergency Sex (And Other Desperate Measures): True Stories from a War Zone
Kenneth Cain - 2004
Andrew strives for a better world through his life-saving work as a doctor. Heidi, a social worker, is in need of a challenge and a paycheck, and Ken is fresh from Harvard and brimful of idealism. As their stories interweave through the years, from Rwanda, Bosnia and Somalia to Haiti, the trio reveal a world of witnessed atrocities, primal fear, desperate loneliness and base desires. They fend off terror and futility with revelry, humour and sex; ask hard questions about the world order America has created, the true power of the UN, and whether there is any possibility for change.This is a startling celebration of the power of humour and friendship, of the limits of human compassion, and the need for a warm body and a cold beer during a Condition Echo lockdown. A book that shows the human cost of global politics and the tragic truth that wars are much more avoidable than our governments would ever admit. A brilliant, provocatively funny and fast moving book.
Get Me Out of Here: My Recovery from Borderline Personality Disorder
Rachel Reiland - 2002
A mother, wife, and working professional, Reiland was diagnosed with borderline personality disorder at the age of 29—a diagnosis that finally explained her explosive anger, manipulative behaviors, and self-destructive episodes including bouts of anorexia, substance abuse, and promiscuity. A truly riveting read with a hopeful message.
How Doctors Think
Jerome Groopman - 2007
In that short time, many doctors decide on the likely diagnosis and best treatment. Often, decisions made this way are correct, but at crucial moments they can also be wrong -- with catastrophic consequences. In this myth-shattering book, Jerome Groopman pinpoints the forces and thought processes behind the decisions doctors make. Groopman explores why doctors err and shows when and how they can -- with our help -- avoid snap judgments, embrace uncertainty, communicate effectively, and deploy other skills that can profoundly impact our health. This book is the first to describe in detail the warning signs of erroneous medical thinking and reveal how new technologies may actually hinder accurate diagnoses. How Doctors Think offers direct, intelligent questions patients can ask their doctors to help them get back on track.Groopman draws on a wealth of research, extensive interviews with some of the country’s best doctors, and his own experiences as a doctor and as a patient. He has learned many of the lessons in this book the hard way, from his own mistakes and from errors his doctors made in treating his own debilitating medical problems.How Doctors Think reveals a profound new view of twenty-first-century medical practice, giving doctors and patients the vital information they need to make better judgments together.
Things That Matter: Stories of Life & Death
David Galler - 2016
This book will equally deepen the awareness of clinicians and enlighten the lay reader. It is a gift to both.' Donald M. Berwick, MD, MPPIn this highly articulate, down-to-earth, generous book, Dr David Galler tells stories of life and death from his position as Intensive Care specialist at Middlemore Hospital. Written lyrically and warmly, these stories are based on real life events describing the everyday dilemmas and challenges that doctors and patients commonly face.It aims to explain and demystify much of the work doctors do, cast light on the workings of the medical establishment and how medicine operates, in the hope that it will encourage patients to seek to be better informed and play a greater role in the decisions that will affect them and their loved ones.It speaks to the resilience of individuals and families and their extraordinary generosity and dignity under the most extreme pressure. This book is about realistic optimism and is a celebration of life.It is also a very personal story about David Galler's life, his family and about his own slow coming of age as a doctor, from the sadness and helplessness he felt about his father's death to at last feeling that he was of some use to his most important patient, his mother.
Trauma Room Two
Philip Allen Green - 2015
It is a place where life and death meet. A place where some families celebrate the most improbable of victories while others face the most devastating of losses. A place where what matters the most in this life is revealed. Trauma Room Two is just such a place. In this collection of short stories, Dr. Green takes the reader inside the hidden emotional landscape of emergency medicine. Based on fifteen years of experience as an ER physician, he reveals the profound moments that often occur in emergency rooms for patients, their families, and the staff that work there.