Book picks similar to
Patient: The True Story of a Rare Illness by Ben Watt
non-fiction
biography
memoir
music
Thinking in Pictures: My Life with Autism
Temple Grandin - 1995
She also lectures widely on autism—because Temple Grandin is autistic, a woman who thinks, feels, and experiences the world in ways that are incomprehensible to the rest of us. In this unprecedented book, Grandin delivers a report from the country of autism. Writing from the dual perspectives of a scientist and an autistic person, she tells us how that country is experienced by its inhabitants and how she managed to breach its boundaries to function in the outside world. What emerges in Thinking in Pictures is the document of an extraordinary human being, one who, in gracefully and lucidly bridging the gulf between her condition and our own, sheds light on the riddle of our common identity.
Chasing My Cure: A Doctor's Race to Turn Hope into Action
David Fajgenbaum - 2019
But things changed dramatically when he began suffering from inexplicable fatigue. In a matter of weeks, his organs were failing and he was read his last rites. Doctors were baffled by his condition, which they had yet to even diagnose. Floating in and out of consciousness, Fajgenbaum prayed for a second chance, the equivalent of a dramatic play to second the game into overtime.Miraculously, Fajgenbaum survived--only to endure repeated near-death relapses from what would eventually be identified as a form of Castleman disease, an extremely deadly and rare condition that acts like a cross between cancer and an autoimmune disorder. When he relapsed while on the only drug in development and realized that the medical community was unlikely to make progress in time to save his life, Fajgenbaum turned his desperate hope for a cure into concrete action: Between hospitalizations he studied his own charts and tested his own blood samples, looking for clues that could unlock a new treatment. With the help of family, friends, and mentors, he also reached out to other Castleman disease patients and physicians, and eventually came up with an ambitious plan to crowdsource the most promising research questions and recruit world-class researchers to tackle them. Instead of waiting for the scientific stars to align, he would attempt to align them himself.More than five years later and now married to his college sweetheart, Fajgenbaum has seen his hard work pay off: A treatment he identified has induced a tentative remission and his novel approach to collaborative scientific inquiry has become a blueprint for advancing rare disease research. His incredible story demonstrates the potency of hope, and what can happen when the forces of determination, love, family, faith, and serendipity collide.
My Age of Anxiety: Fear, Hope, Dread, and the Search for Peace of Mind
Scott Stossel - 2014
Today, it is the most common form of officially classified mental illness. Scott Stossel gracefully guides us across the terrain of an affliction that is pervasive yet too often misunderstood. Drawing on his own long-standing battle with anxiety, Stossel presents an astonishing history, at once intimate and authoritative, of the efforts to understand the condition from medical, cultural, philosophical, and experiential perspectives. He ranges from the earliest medical reports of Galen and Hippocrates, through later observations by Robert Burton and Søren Kierkegaard, to the investigations by great nineteenth-century scientists, such as Charles Darwin, William James, and Sigmund Freud, as they began to explore its sources and causes, to the latest research by neuroscientists and geneticists. Stossel reports on famous individuals who struggled with anxiety, as well as on the afflicted generations of his own family. His portrait of anxiety reveals not only the emotion’s myriad manifestations and the anguish anxiety produces but also the countless psychotherapies, medications, and other (often outlandish) treatments that have been developed to counteract it. Stossel vividly depicts anxiety’s human toll—its crippling impact, its devastating power to paralyze—while at the same time exploring how those who suffer from it find ways to manage and control it. My Age of Anxiety is learned and empathetic, humorous and inspirational, offering the reader great insight into the biological, cultural, and environmental factors that contribute to the affliction.
Face It
Debbie Harry - 2019
I wasn’t submissive or begging him to come back, I was kicking his ass, kicking him out, kicking my own ass too. My Blondie character was an inflatable doll but with a dark, provocative, aggressive side. I was playing it up, yet I was very serious.’
BRAVE, BEAUTIFUL AND BORN TO BE PUNK
DEBBIE HARRY is a musician, actor, activist and the iconic face of New York City cool. As the front-woman of Blondie, she and the band forged a new sound that brought together the worlds of rock, punk, disco, reggae and hip-hop to create some of the most beloved pop songs of all time. As a muse, she collaborated with some of the boldest artists of the past four decades. The scope of Debbie Harry’s impact on our culture has been matched only by her reticence to reveal her rich inner life – until now.In an arresting mix of visceral, soulful storytelling and stunning visuals that includes never-before-seen photographs, bespoke illustrations and fan art installations, Face It upends the standard music memoir while delivering a truly prismatic portrait. With all the grit, grime, and glory recounted in intimate detail, Face It recreates the downtown scene of 1970s New York City, where Blondie played alongside the Ramones, Television, Talking Heads, Iggy Pop and David Bowie.Following her path from glorious commercial success to heroin addiction, the near-death of partner Chris Stein, a heart-wrenching bankruptcy, and Blondie’s break-up as a band to her multifaceted acting career in more than thirty films, a stunning solo career and the triumphant return of her band, and her tireless advocacy for the environment and LGBTQ rights, Face It is a cinematic story of a woman who made her own path, and set the standard for a generation of artists who followed in her footsteps – a memoir as dynamic as its subject.
Between Two Kingdoms: A Memoir of a Life Interrupted
Suleika Jaouad - 2021
She had fallen in love and moved to Paris to pursue her dream of becoming a war correspondent. The real world she found, however, would take her into a very different kind of conflict zone.It started with an itch—first on her feet, then up her legs, like a thousand invisible mosquito bites. Next came the exhaustion, and the six-hour naps that only deepened her fatigue. Then a trip to the doctor and, a few weeks shy of her twenty-third birthday, a diagnosis: leukemia, with a 35 percent chance of survival. Just like that, the life she had imagined for herself had gone up in flames. By the time Jaouad flew home to New York, she had lost her job, her apartment, and her independence. She would spend much of the next four years in a hospital bed, fighting for her life and chronicling the saga in a column for The New York Times.When Jaouad finally walked out of the cancer ward—after three and a half years of chemo, a clinical trial, and a bone marrow transplant—she was, according to the doctors, cured. But as she would soon learn, a cure is not where the work of healing ends; it’s where it begins. She had spent the past 1,500 days in desperate pursuit of one goal—to survive. And now that she’d done so, she realized that she had no idea how to live.How would she reenter the world and live again? How could she reclaim what had been lost? Jaouad embarked—with her new best friend, Oscar, a scruffy terrier mutt—on a 100-day, 15,000-mile road trip across the country. She set out to meet some of the strangers who had written to her during her years in the hospital: a teenage girl in Florida also recovering from cancer; a teacher in California grieving the death of her son; a death-row inmate in Texas who’d spent his own years confined to a room. What she learned on this trip is that the divide between sick and well is porous, that the vast majority of us will travel back and forth between these realms throughout our lives. Between Two Kingdoms is a profound chronicle of survivorship and a fierce, tender, and inspiring exploration of what it means to begin again.
Spectacles
Sue Perkins - 2015
What I found was that she hadn't kept some of it. She had kept all of it - every bus ticket, postcard, school report - from the moment I was born to the moment I finally had the confidence to turn round and say 'Why is our house full of this shit?'Sadly, a recycling 'incident' destroyed the bulk of this archive. This has meant two things: firstly, Dear Reader, you will never get to see countless drawings of wizards, read a poem about corn on the cob, or marvel at the kilos of brown flowers I so lovingly pressed as a child. Secondly, it's left me with no choice but to actually write this thing myself.This, my first ever book, will answer questions such as 'Is Mary Berry real?', 'Is it true you wear a surgical truss?' and 'Is a non-spherically symmetric gravitational pull from outside the observable universe responsible for some of the observed motion of large objects such as galactic clusters in the universe?'Most of this book is true. I have, of course, amplified my more positive characteristics in an effort to make you like me. Thank you for reading.
A Dream About Lightning Bugs: A Life of Music and Cheap Lessons
Ben Folds - 2019
But Folds will be the first to tell you he's an unconventional icon, more normcore than hardcore. Now, in his first book, Folds looks back at his life so far in a charming and wise chronicle of his artistic coming of age, infused with the wry observations of a natural storyteller.In the title chapter, "A Dream About Lightning Bugs," Folds recalls his earliest childhood dream--and realizes how much it influenced his understanding of what it means to be an artist. In "Measure Twice, Cut Once" he learns to resist the urge to skip steps during the creative process. In "Hall Pass" he recounts his 1970s North Carolina working-class childhood, and in "Cheap Lessons" he returns to the painful life lessons he learned the hard way--but that luckily didn't kill him.In his inimitable voice, both relatable and thought-provoking, Folds digs deep into the life experiences that shaped him, imparting hard-earned wisdom about both art and life. Collectively, these stories embody the message Folds has been singing about for years: Smile like you've got nothing to prove, because it hurts to grow up, and life flies by in seconds.
Switching Time: A Doctor's Harrowing Story of Treating a Woman with 17 Personalities
Richard Baer - 2007
Odder still, she reveals that she’s suffering from a persistent memory problem. Routinely, she “loses” parts of her day, finding herself in places she doesn’t remember going to or being told about conversations she doesn’t remember having. Her problems are so pervasive that she often feels like an impersonator in her own life; she doesn’t recognize the people who call themselves her friends, and she can’t even remember being intimate with her own husband. Baer recognizes that Karen is on the verge of suicide and, while trying various medications to keep her alive, attempts to discover the root cause of her strange complaints. It’s the work of months, and then years, to gain Karen’s trust and learn the true extent of the trauma buried in her past. What she eventually reveals is nearly beyond belief, a narrative of a childhood spent grappling with unimaginable horror. How has Karen survived with even a tenuous grasp on sanity?Then Baer receives an envelope in the mail. It’s marked with Karen’s return address but contains a letter from a little girl who writes that she’s seven years old and lives inside of Karen. Soon Baer receives letters from others claiming to be parts of Karen. Under hypnosis, these alternate Karen personalities reveal themselves in shocking variety and with undeniable traits—both physical and psychological. One “alter” is a young boy filled with frightening aggression; another an adult male who considers himself Karen’s protector; and a third a sassy flirt who seeks dominance over the others. It’s only by compartmentalizing her pain, guilt, and fear in this fashion—by “switching time” with alternate selves as the situation warrants—that Karen has been able to function since childhood.Realizing that his patient represents an extreme case of multiple personality disorder, Baer faces the daunting task of creating a therapy that will make Karen whole again. Somehow, in fact, he must gain the trust of each of Karen’s seventeen “alters” and convince them of the necessity of their own annihilation.As powerful as Sybil or The Three Faces of Eve, Switching Time is the first complete account of such therapy to be told from the perspective of the treating physician, a stunningly devoted healer who worked selflessly for decades so that Karen could one day live as a single human being.From the Hardcover edition.
Because We Are Bad: OCD and a Girl Lost in Thought
Lily Bailey - 2016
She had killed someone with a thought, spread untold disease, and ogled the bodies of other children. Only by performing an exhausting series of secret routines could she make up for what she’d done. But no matter how intricate or repetitive, no act of penance was ever enough.Beautifully written and astonishingly intimate, Because We Are Bad recounts a childhood consumed by obsessive compulsive disorder. As a child, Bailey created a second personality inside herself—"I" became "we"—to help manifest compulsions that drove every minute of every day of her young life. Now she writes about the forces beneath her skin, and how they ordered, organized, and urged her forward. Lily charts her journey, from checking on her younger sister dozens of times a night, to "normalizing" herself at school among new friends as she grew older, and finally to her young adult years, learning—indeed, breaking through—to make a way for herself in a big, wide world that refuses to stay in check.Charming and raw, harrowing and redemptive, Because We Are Bad is an illuminating and uplifting look into the mind and soul of an extraordinary young woman, and a startling portrait of OCD that allows us to see and understand this condition as never before.
The Beautiful Ones
Prince - 2019
Prince was a musical genius, one of the most talented, beloved, accomplished, popular, and acclaimed musicians in history. He was also a startlingly original visionary with an imagination deep enough to whip up whole worlds, from the sexy, gritty funk paradise of “Uptown” to the mythical landscape of Purple Rain to the psychedelia of “Paisley Park.” But his most ambitious creative act was turning Prince Rogers Nelson, born in Minnesota, into Prince, the greatest pop star of his era. The Beautiful Ones is the story of how Prince became Prince—a first-person account of a kid absorbing the world around him and then creating a persona, an artistic vision, and a life, before the hits and fame that would come to define him. The book is told in four parts. The first is composed of the memoir he was writing before his tragic death, pages that brings us into Prince’s childhood world through his own lyrical prose. The second part takes us into Prince’s early years as a musician, before his first album released, through a scrapbook of Prince’s writing and photos. The third section shows us Prince’s evolution through candid images that take us up to the cusp of his greatest achievement, which we see in the book’s fourth section: his original handwritten treatment for Purple Rain—the final stage in Prince’s self-creation, as he retells the autobiography we’ve seen in the first three parts as a heroic journey.The book is framed by editor Dan Piepenbring’s riveting and moving introduction about his short but profound collaboration with Prince in his final months—a time when Prince was thinking deeply about how to reveal more of himself and his ideas to the world, while retaining the mystery and mystique he’d so carefully cultivated—and annotations that provide context to each of the book’s images. This work is not just a tribute to Prince, but an original and energizing literary work, full of Prince’s ideas and vision, his voice and image, his undying gift to the world.
The Perfect Predator: A Scientist's Race to Save Her Husband from a Deadly Superbug: A Memoir
Steffanie Strathdee - 2019
What at first seemed like a case of food poisoning quickly turned critical, and by the time Tom had been transferred via emergency medevac to the world-class medical center at UC San Diego, where both he and Steffanie worked, blood work revealed why modern medicine was failing: Tom was fighting one of the most dangerous, antibiotic-resistant bacteria in the world.Frantic, Steffanie combed through research old and new and came across phage therapy: the idea that the right virus, aka "the perfect predator," can kill even the most lethal bacteria. Phage treatment had fallen out of favor almost 100 years ago, after antibiotic use went mainstream. Now, with time running out, Steffanie appealed to phage researchers all over the world for help. She found allies at the FDA, researchers from Texas A&M, and a clandestine Navy biomedical center -- and together they resurrected a forgotten cure.
Life
Keith Richards - 2010
Now, at last, the man himself tells us the story of life in the crossfire hurricane.
Get Me Out of Here: My Recovery from Borderline Personality Disorder
Rachel Reiland - 2002
A mother, wife, and working professional, Reiland was diagnosed with borderline personality disorder at the age of 29—a diagnosis that finally explained her explosive anger, manipulative behaviors, and self-destructive episodes including bouts of anorexia, substance abuse, and promiscuity. A truly riveting read with a hopeful message.
Gotta Get Theroux This: My Life and Strange Times in Television
Louis Theroux - 2019
Gawky, socially awkward and totally unqualified, his first reaction to this exciting opportunity was panic. But he'd always been drawn to off-beat characters, so maybe his enthusiasm would carry the day. Or, you know, maybe it wouldn't...In Gotta Get Theroux This, Louis takes the reader on a joyous journey through his life and unexpectedly successful career. Nervously accepting the BBC's offer of his own series, he went on to create an award-winning documentary style that has seen him immersed in worlds as diverse as racist US militias and secretive pro-wrestlers, the violent gangs of Johannesburg and extreme drinkers in London.Arguably his biggest challenge was corralling celebrities in his When Louis Met series, with Jimmy Savile proving most elusive. Blindsided when the revelations about Savile came to light, Louis was to reflect again on the nature of evil he had spent decades uncovering.Filled with wry observation, larger-than-life characters, and self-deprecating humour, this is Louis at his insightful and honest best.
Sounds Like Me: My Life (So Far) in Song
Sara Bareilles - 2015
In this candid book of essays, Sara pulls back the curtain to expose her songwriting process, revealing all the struggle and joy inherent in creating great work while staying true to yourself.Showcasing her stripped down and confessional writing style, Sara's entertaining and inspirational book tells the inside stories behind her most popular songs and offers insights into finding balance between making art for herself and commercial music for her listeners.