Book picks similar to
Patient: The True Story of a Rare Illness by Ben Watt
non-fiction
biography
memoir
music
My Own Medicine: A Doctor's Life as a Patient
Geoffrey Kurland - 2002
Geoffrey Kurland was a busy man. His work as a Pediatric Pulmonologist, caring for children with lung diseases such as cystic fibrosis and asthma, led to long hours on the wards at the University of California, Davis Medical Center. At the same time, he was in the midst of training for the Western States Endurance Run, a grueling 100-mile long footrace across the wilderness of the Sierra Nevada Mountains. His long training runs, the responsibilities of patient care and teaching, and relationships attempting to replace his departed girlfriend occupied most of his life. Dr. Kurland’s ordered world is suddenly turned upside-down when he is diagnosed with Hairy Cell Leukemia, a rare blood cancer with a low survival rate. His work, his running, and his friendships are altered by his struggle to survive. He finds he must undergo many of the procedures he performed on his patients, must endure surgery and chemotherapy, and must relinquish control of his life to his physicians, surgeons, and his disease. He learns first-hand what cannot be taught in medical school about the consuming power of a chronic illness and its treatment.Confronting his own mortality, Dr. Kurland is now the patient while remaining a physician and runner. With the support of his physicians at the Mayo Clinic, the University of California, and the University of Pittsburgh, he resolves to continue to live his life despite his potentially fatal disease. He discovers his personal inner strengths as well as weaknesses as he struggles to confront his illness and regain some of the control he lost to it. Along his nearly two and a half year journey, we follow Dr. Kurland as he endures surgical procedures, chemotherapy, and life-threatening complications of his illness. He emerges into remission with new inner strength and understanding of what it means to be a doctor. He also finds that he is still a runner, with the same goal, to run the 100 miles across the Sierra Mountains.REVIEWS: “Taut, dramatic, and intensely real…Very well written.” --Oliver Sacks, the best selling author of SEEING VOICES and HALLUCINATIONS"[MY OWN MEDICINE] should be required reading for every medical professional. Kurland never asks for sympathy or pity. [...] What comes through powerfully is his humanity, which his own bout with illnesses has clearly enhanced, and from which both his patients and his readers will benefit." --THE NEW YORK TIMES"While training as a pediatric pulmonologist, Kurland told a patient, 'I know how you feel'; years later, when he was diagnosed with a rare form of leukemia, he discovered just how untrue this was. [...] The way in which serious illness alters one's sense of self and of life is compellingly expressed in this energetic, nervy narrative, as Kurland's illness and eventual recovery collide with a host of profound shifts—a big career move, the death of a colleague, an unravelling relationship with his girlfriend, and a deepening one with his parents." --THE NEW YORKER"MY OWN MEDICINE is rich in detail, enhanced by the author's skillful handling of the narrative...The book depicts a man who, faced with the painful reality of his own mortality, acknowledges his condition and gears himself to face the challenge." --PITTSBURGH POST-GAZETTE
“The story of Kurland’s battle with a disease that almost took his life is compelling and poignant. Unlike other chroniclers of illness, however, Kurland is a physician caring for critically ill children. Perhaps it is inevitable that his observations on life, death, and suffering should be so informed by his work. The result is a narrative that is both unique and deeply insightful.
Walden on Wheels: On the Open Road from Debt to Freedom
Ken Ilgunas - 2013
Ilgunas set himself an ambitious mission: get out of debt as quickly as possible. Inspired by the frugality and philosophy of Henry David Thoreau, Ilgunas undertook a 3-year transcontinental journey, working in Alaska as a tour guide, garbage picker, and night cook to pay off his student loans before hitchhiking home to New York.Debt-free, Ilgunas then enrolled in a master’s program at Duke University, determined not to borrow against his future again. He used the last of his savings to buy himself a used Econoline van and outfitted it as his new dorm. The van, stationed in a campus parking lot, would be more than an adventure—it would be his very own Walden on Wheels.Freezing winters, near-discovery by campus police, and the constant challenge of living in a confined space would test Ilgunas’s limits and resolve in the two years that followed. What had begun as a simple mission would become an enlightening and life-changing social experiment.
How I Killed Pluto and Why It Had It Coming
Mike Brown - 2010
Then, in 2005, astronomer Mike Brown made the discovery of a lifetime: a tenth planet, Eris, slightly bigger than Pluto. But instead of its resulting in one more planet being added to our solar system, Brown’s find ignited a firestorm of controversy that riled the usually sedate world of astronomy and launched him into the public eye. The debate culminated in the demotion of Pluto from real planet to the newly coined category of “dwarf” planet. Suddenly Brown was receiving hate mail from schoolchildren and being bombarded by TV reporters—all because of the discovery he had spent years searching for and a lifetime dreaming about.Filled with both humor and drama, How I Killed Pluto and Why It Had It Coming is Mike Brown’s engaging first-person account of the most tumultuous year in modern astronomy—which he inadvertently caused. As it guides readers through important scientific concepts and inspires us to think more deeply about our place in the cosmos, it is also an entertaining and enlightening personal story: While Brown sought to expand our understanding of the vast nature of space, his own life was changed in the most immediate, human ways by love, birth, and death. A heartfelt and personal perspective on the demotion of everyone’s favorite farflung planet, How I Killed Pluto and Why It Had It Coming is the book for anyone, young or old, who has ever dreamed of exploring the universe—and who among us hasn’t?
The Tenth Island: Finding Joy, Beauty, and Unexpected Love in the Azores
Diana Marcum - 2018
A long-buried personal sadness is enfolding her—and her career is stalled—when she stumbles upon an unusual group of immigrants living in rural California. She follows them on their annual return to the remote Azorean islands in the Atlantic Ocean, where bulls run down village streets, volcanoes are active, and the people celebrate festas to ease their saudade, a longing so deep that the Portuguese word for it can’t be fully translated.Years later, California is in a terrible drought, the wildfires seem to never end, and Diana finds herself still dreaming of those islands and the chuva—a rain so soft you don’t notice when it begins or ends.With her troublesome Labrador retriever, Murphy, in tow, Diana returns to the islands of her dreams only to discover that there are still things she longs for—and one of them may be a most unexpected love.
The Psychopath Inside: A Neuroscientist's Personal Journey into the Dark Side of the Brain
James Fallon - 2013
While studying brain scans of several family members, he discovered that one perfectly matched a pattern he d found in the brains of serial killers. This meant one of two things: Either his family s scans had been mixed up with those of felons or someone in his family was a psychopath.Even more disturbing: The scan in question was his own.This is Fallon s account of coming to grips with this discovery and its implications. How could he, a happy family man who had never been prone to violence, be a psychopath? How much did his biology influence his behavior?Fallon shares his journey to answer these questions and the discoveries that ultimately led to his conclusion: Despite everything science can teach, humans are even more complex than we can imagine."
The Diving Bell and the Butterfly
Jean-Dominique Bauby - 1997
In my case, blinking my left eyelid is my only means of communication.’In December 1995, Jean-Dominique Bauby, editor-in-chief of French ‘Elle’ and the father of two young children, suffered a massive stroke and found himself paralysed and speechless, but entirely conscious, trapped by what doctors call ‘locked-in syndrome’. Using his only functioning muscle – his left eyelid – he began dictating this remarkable story, painstakingly spelling it out letter by letter.His book offers a haunting, harrowing look inside the cruel prison of locked-in syndrome, but it is also a triumph of the human spirit.
Confessions of a Funeral Director: How the Business of Death Saved My Life
Caleb Wilde - 2017
It happens to everyone, yet most of us don’t want to talk about this final chapter of existence. Sixth-generation funeral director Caleb Wilde intimately understands this reticence and fear. The son of an undertaker, he hesitated to embrace the legacy of running his family’s business. Yet he discovered that caring for the deceased and their loved ones profoundly changed his faith and his perspective on death—and life itself. "Yes, death can be bad. Yes, death can be negative," he acknowledges, "but it can also be beautiful. And that alternate narrative needs to be discussed."In Confessions of a Funeral Director, he talks about his experiences and pushes back against the death-negative ethos of our culture, opening a thoughtful, poignant conversation to help us see the end of life in a positive and liberating way. In the wry, compassionate, and honest voice that has charmed his growing legions of blog readers, Wilde offers an intimate look inside his business, offering information on unspoken practices around death such as the embalming process, beautiful and memorable stories about families in the wake of death, and, most importantly, a fresh and wise perspective on how embracing death can allow us to embrace life.Confessions of a Funeral Director is the story of one man learning how death illuminates and deepens the meaning of existence—insights that can help us all pursue and cherish full, rich lives.
Below Stairs
Margaret Powell - 1968
Powell first arrived at the servants' entrance of one of those great houses in the 1920s. As a kitchen maid - the lowest of the low - she entered an entirely new world; one of stoves to be blacked, vegetables to be scrubbed, mistresses to be appeased, and bootlaces to be ironed. Work started at 5:30am and went on until after dark. It was a far cry from her childhood on the beaches of Hove, where money and food were scarce, but warmth and laughter never were. Yet from the gentleman with a penchant for stroking the housemaids' curlers, to raucous tea-dances with errand boys, to the heartbreaking story of Agnes the pregnant under-parlormaid, fired for being seduced by her mistress's nephew, Margaret's tales of her time in service are told with wit, warmth, and a sharp eye for the prejudices of her situation. Margaret Powell's true story of a life spent in service is a fascinating "downstairs" portrait of the glittering, long-gone worlds behind the closed doors of Downton Abbey and 165 Eaton Place.
What Doesn't Kill You: A Life with Chronic Illness - Lessons from a Body in Revolt
Tessa Miller - 2021
At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a yearslong nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better.Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications.Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.
Full Body Burden: Growing Up in the Nuclear Shadow of Rocky Flats
Kristen Iversen - 2012
Her father's hidden liquor bottles, the strange cancers in children in the neighborhood, the truth about what was made at Rocky Flats (cleaning supplies, her mother guessed)—best not to inquire too deeply into any of it.But as Iversen grew older, she began to ask questions. She learned about the infamous 1969 Mother's Day fire, in which a few scraps of plutonium spontaneously ignited and—despite the desperate efforts of firefighters—came perilously close to a "criticality," the deadly blue flash that signals a nuclear chain reaction. Intense heat and radiation almost melted the roof, which nearly resulted in an explosion that would have had devastating consequences for the entire Denver metro area. Yet the only mention of the fire was on page 28 of the Rocky Mountain News, underneath a photo of the Pet of the Week. In her early thirties, Iversen even worked at Rocky Flats for a time, typing up memos in which accidents were always called "incidents."And as this memoir unfolds, it reveals itself as a brilliant work of investigative journalism—a detailed and shocking account of the government's sustained attempt to conceal the effects of the toxic and radioactive waste released by Rocky Flats, and of local residents' vain attempts to seek justice in court. Here, too, are vivid portraits of former Rocky Flats workers—from the healthy, who regard their work at the plant with pride and patriotism, to the ill or dying, who battle for compensation for cancers they got on the job.Based on extensive interviews, FBI and EPA documents, and class-action testimony, this taut, beautifully written book promises to have a very long half-life.
From This Moment On
Shania Twain - 2011
But in this extraordinary autobiography, Shania reveals that she is so much more. She is Eilleen Twain, one of five children born into poverty in rural Canada, where her family often didn't have enough food to send her to school with lunch. She's the teenage girl who helped her mother and young siblings escape to a battered woman's shelter to put an end to the domestic violence in her family home. And she's the courageous twenty-two-year-old who sacrificed to keep her younger siblings together after her parents were tragically killed in a car accident.Shania Twain's life has evolved from a series of pivotal moments, and in unflinching, heartbreaking prose, Shania spares no details as she takes us through the events that have made her who she is. She recounts her difficult childhood, her parents' sudden death and its painful aftermath, her dramatic rise to stardom, her devastating betrayal by a trusted friend, and her joyful marriage to the love of her life. From these moments, she offers profound, moving insights into families, personal tragedies, making sense of one's life, and the process of healing. Shania Twain is a singular, remarkable woman who has faced enormous odds and downfalls, and her extraordinary story will provide wisdom, inspiration, and hope for almost anyone.
The Shapeless Unease: A Year of Not Sleeping
Samantha Harvey - 2020
She tried everything to appease her wakefulness: from medication to therapy, changes in her diet to changes in her living arrangements. Nothing seemed to help.The Shapeless Unease is Harvey's darkly funny and deeply intelligent anatomy of her insomnia, an immersive interior monologue of a year without one of the most basic human needs. Original and profound, and narrated with a lucid breathlessness, this is a startlingly insightful exploration of memory, writing and influence, death and the will to survive, from "this generation's Virginia Woolf" (Telegraph).
What Happened
Hillary Rodham Clinton - 2017
Now I’m letting my guard down.” —Hillary Rodham Clinton, from the introduction of What HappenedFor the first time, Hillary Rodham Clinton reveals what she was thinking and feeling during one of the most controversial and unpredictable presidential elections in history. Now free from the constraints of running, Hillary takes you inside the intense personal experience of becoming the first woman nominated for president by a major party in an election marked by rage, sexism, exhilarating highs and infuriating lows, stranger-than-fiction twists, Russian interference, and an opponent who broke all the rules. This is her most personal memoir yet. In these pages, she describes what it was like to run against Donald Trump, the mistakes she made, how she has coped with a shocking and devastating loss, and how she found the strength to pick herself back up afterward. With humor and candor, she tells readers what it took to get back on her feet—the rituals, relationships, and reading that got her through, and what the experience has taught her about life. She speaks about the challenges of being a strong woman in the public eye, the criticism over her voice, age, and appearance, and the double standard confronting women in politics. She lays out how the 2016 election was marked by an unprecedented assault on our democracy by a foreign adversary. By analyzing the evidence and connecting the dots, Hillary shows just how dangerous the forces are that shaped the outcome, and why Americans need to understand them to protect our values and our democracy in the future. The election of 2016 was unprecedented and historic. What Happened is the story of that campaign and its aftermath—both a deeply intimate account and a cautionary tale for the nation.
The Family Gene: A Mission to Turn My Deadly Inheritance into a Hopeful Future
Joselin Linder - 2017
After years of misdiagnoses, doctors discovered a deadly blockage in her liver. Struggling to find an explanation for her unusual condition, Joselin compared the medical chart of her father—who had died from a mysterious disease, ten years prior—with that of an uncle who had died under similarly strange circumstances. Delving further into the past, she discovered that her great-grandmother had displayed symptoms similar to hers before her death. Clearly, this was more than a fluke. Setting out to build a more complete picture of the illness that haunted her family, Joselin approached Dr. Christine Seidman, the head of a group of world-class genetic researchers at Harvard Medical School, for help. Dr. Seidman had been working on her family’s case for twenty years and had finally confirmed that fourteen of Joselin’s relatives carried something called a private mutation—meaning that they were the first known people to experience the baffling symptoms of a brand new genetic mutation. Here, Joselin tells the story of their gene: the lives it claimed and the future of genomic medicine with the potential to save those that remain. Digging into family records and medical history, conducting interviews with relatives and friends, and reflecting on her own experiences with the Harvard doctor, Joselin pieces together the lineage of this deadly gene to write an exploration of family, history, and love.
Talking as Fast as I Can: From Gilmore Girls to Gilmore Girls (and Everything in Between)
Lauren Graham - 2016
In Talking as Fast as I Can, Lauren Graham hits pause for a moment and looks back on her life, sharing laugh-out-loud stories about growing up, starting out as an actress, and, years later, sitting in her trailer on the Parenthood set and asking herself, “Did you, um, make it?” She opens up about the challenges of being single in Hollywood (“Strangers were worried about me; that’s how long I was single!”), the time she was asked to audition her butt for a role, and her experience being a judge on Project Runway (“It’s like I had a fashion-induced blackout”). In “What It Was Like, Part One,” Graham sits down for an epic Gilmore Girls marathon and reflects on being cast as the fast-talking Lorelai Gilmore. The essay “What It Was Like, Part Two” reveals how it felt to pick up the role again nine years later, and what doing so has meant to her. Some more things you will learn about Lauren: She once tried to go vegan just to bond with Ellen DeGeneres, she’s aware that meeting guys at awards shows has its pitfalls (“If you’re meeting someone for the first time after three hours of hair, makeup, and styling, you’ve already set the bar too high”), and she’s a card-carrying REI shopper (“My bungee cords now earn points!”). Including photos and excerpts from the diary Graham kept during the filming of the recent Gilmore Girls: A Year in the Life, this book is like a cozy night in, catching up with your best friend, laughing and swapping stories, and—of course—talking as fast as you can.