Each piece compels readers to rethink not only how they have arrived at their own personal beliefs but also the extent to which they share them with others. Featuring a well-known list of contributors--including Isabel Allende, Colin Powell, Gloria Steinem, William F. Buckley Jr., Penn Jillette, Bill Gates, and John Updike--the collection also contains essays by a Brooklyn lawyer; a part-time hospital clerk from Rehoboth, Massachusetts; a woman who sells Yellow Pages advertising in Fort Worth, Texas; and a man who serves on the state of Rhode Island's parole board. The result is a stirring and provocative trip inside the minds and hearts of a diverse group of people whose beliefs--and the incredibly varied ways in which they choose to express them--reveal the American spirit at its best.

    The word itself was just one of many ideas in this work, her 1998 Honours thesis, a pioneering sociological work that mapped out the emergence of a new category of disability that, till then, had no name. And in the process, prefigured a new paradigm within the disability rights movement of the time. The work attempted a panoramic view of this new terrain from within a post-modern, social constructionist, feminist, disability rights perspective. Its chapters encompassed a brief history of autism, self-exploration of Singer’s life in the middle of three generations of women “somewhere on the autistic spectrum” and her research as a participant-observer on InLv, an online community of people on the spectrum. At the same time it offered a critique of what Singer perceived to be a certain tendency towards social-constructionist fundamentalism within the disability movement, which, she argued, limited the potential of the new paradigm. This volume reproduces the original thesis with the addition of a new introduction, which gives the background to the creation of the work and offers some thoughts on the current neurodiversity movement.

    The final realisation that he has Asperger’s allows a light to dawn on the riddles of his life: his accidental rudeness, maladroitness, Pan Am smile, and other social impediments. But, like many with Asperger’s, Tom possesses great facility with words, and this shines through this exceptionally warm, bright, and moving memoir, which is alternately strikingly revealing, laugh-out-loud funny, and achingly sad.Tom explores his eccentric behaviour from boyhood to manhood, examines the role of autism in his strange family, and investigates the scientific explanations for the condition. He recounts his anxiety and bewilderment in social situations, his sensory overload, his strange way of dressing, and his particular trouble with girls. He shares his autistic adventures in offices, toyshops, backstage in theatres, and in book and magazine publishing houses, as well as on — or more often off — roads.

    In this captivating story, Manguso recalls her struggle: arduous blood cleansings, collapsed veins, multiple chest catheters, depression, the deaths of friends and strangers, addiction, and, worst of all for a writer, the trite metaphors that accompany prolonged illness. A book of tremendous grace, The Two Kinds of Decay transcends the very notion of what an illness story can and should be.

    Includes photos and tributes to Lorde written after her death in 1992."Grief, terror, courage, the passion for survival and for more than survival, are here in the searchings of a great poet." —Adrienne Rich"This book teaches me that with one breast or none, I am still me." —Alice Walker"The forthrightness and ferocity with which Audre Lorde greeted every social injustice is in full force in this courageous exploration." —Amazon.com

    Claiming Disability captures this moment in the first comprehensive examination of disability studies as a field of inquiry. Arguing that disability studies takes for its subject matter not simply the variations that exist in human behavior, appearance, functioning, sensory acuity, and cognitive processing, but the meaning we make of those variations, this work offers both a passionate challenge to status quo definitions of disability and a methodology for reexamining it.

    At nine he started working on an original theory in astrophysics that experts believe may someday put him in line for a Nobel Prize, and at age twelve he became a paid researcher in quantum physics. But the story of Kristine’s journey with Jake is all the more remarkable because his extraordinary mind was almost lost to autism. At age two, when Jake was diagnosed, Kristine was told he might never be able to tie his own shoes. The Spark is a remarkable memoir of mother and son. Surrounded by “experts” at home and in special ed who tried to focus on Jake’s most basic skills and curtail his distracting interests—moving shadows on the wall, stars, plaid patterns on sofa fabric—Jake made no progress, withdrew more and more into his own world, and eventually stopped talking completely. Kristine knew in her heart that she had to make a change. Against the advice of her husband, Michael, and the developmental specialists, Kristine followed her instincts, pulled Jake out of special ed, and began preparing him for mainstream kindergarten on her own. Relying on the insights she developed at the daycare center she runs out of the garage in her home, Kristine resolved to follow Jacob’s “spark”—his passionate interests. Why concentrate on what he couldn’t do? Why not focus on what he could? This basic philosophy, along with her belief in the power of ordinary childhood experiences (softball, picnics, s’mores around the campfire) and the importance of play, helped Kristine overcome huge odds. The Barnetts were not wealthy people, and in addition to financial hardship, Kristine herself faced serious health issues. But through hard work and determination on behalf of Jake and his two younger brothers, as well as an undying faith in their community, friends, and family, Kristine and Michael prevailed. The results were beyond anything anyone could have imagined. Dramatic, inspiring, and transformative, The Spark is about the power of love and courage in the face of overwhelming obstacles, and the dazzling possibilities that can occur when we learn how to tap the true potential that lies within every child, and in all of us.

    Full of tender moments and unexpected humor, Following Ezra is the story of a father and son on a ten-year journey from Ezra's diagnosis to the dawn of his adolescence. It celebrates his growth from a remote toddler to an extraordinary young man, connected in his own remarkable ways to the world around him.

    Five years after he married Kristen, the love of his life, they learn that he has Asperger syndrome. The diagnosis explains David’s ever-growing list of quirks and compulsions, his lifelong propensity to quack and otherwise melt down in social exchanges, and his clinical-strength inflexibility. But it doesn’t make him any easier to live with.Determined to change, David sets out to understand Asperger syndrome and learn to be a better husband—no easy task for a guy whose inability to express himself rivals his two-year-old daughter's, who thinks his responsibility for laundry extends no further than throwing things in (or at) the hamper, and whose autism-spectrum condition makes seeing his wife's point of view a near impossibility.Nevertheless, David devotes himself to improving his marriage with an endearing yet hilarious zeal that involves excessive note-taking, performance reviews, and most of all, the Journal of Best Practices: a collection of hundreds of maxims and hard-won epiphanies that result from self-reflection both comic and painful. They include "Don’t change the radio station when she's singing along," "Apologies do not count when you shout them," and "Be her friend, first and always." Guided by the Journal of Best Practices, David transforms himself over the course of two years from the world’s most trying husband to the husband who tries the hardest, the husband he’d always meant to be.Filled with humor and surprising wisdom, The Journal of Best Practices is a candid story of ruthless self-improvement, a unique window into living with an autism-spectrum condition, and proof that a true heart can conquer all.

    But one day, he noticed a troubling weakness in his hand. At first, he brushed it off as carpal tunnel syndrome, but after a week of neurological exams and two MRIs, he learned the cause of the problem: amyotrophic lateral sclerosis, better known as ALS or Lou Gehrig’s disease. At age thirty-two, Ady was given just three to four years to live. Yet despite the devastating diagnosis, he refused to let his remaining days go to waste. Eyes to the Wind is a rousing memoir featuring intertwining storylines about determination, perseverance, and how to live a life filled with purpose and intention. The first traces Ady’s battle with ALS: how he turned the initial shock and panic from his diagnosis into a renewed commitment to social justice—not despite his disability but because of it. The second, told in flashbacks, illustrates Ady’s journey from a goofy political nerd to a prominent figure in the enduring fight for equity and justice whose “selfless activism fighting to make health care a right should be an inspiration to us all” (Senator Bernie Sanders). From one of today’s most vocal advocates for social justice, Eyes to the Wind’s “primary question is existential: how to live when you are dying? Barkan’s answer is to share, open up, act, and capital-R Resist, and his memoir, clearly and candidly written, establishes a legacy” (Booklist).

    When they dropped from the public eye after Curt’s retirement, everyone assumed it was for a simpler life. But the reality behind their seclusion was a secret they hid from even their closest friends: their twins, Austin and Christian, had been diagnosed with severe autism. What followed was a painful struggle to hold their family and their marriage together in a home filled with chaos, emotional exhaustion, and constant fear for the safety of their unpredictable but beloved boys.Now, after years of silence, the Warners share their inspiring journey from stardom and success to heartbreaking self-imposed isolation. Above all, it’s a story of the life-changing truth that love for family and each other—no matter how challenged—is the path to healing and peace.The Warner Boys is the true story of a family who fought for their children and how they grew stronger against all odds.

    Desperate for a solution, Camilla asked her mother if there was an instruction manual for humans that she could consult. But, without the blueprint to life, she was hoping for, Camilla began to create her own. Now armed with a PhD in biochemistry, Camilla dismantles our obscure social customs and identifies what it really means to be human using her unique expertise and a language she knows best: science.Through a set of scientific principles, this book examines life's everyday interactions including:- Decisions and the route we take to make them;- Conflict and how we can avoid it;- Relationships and how we establish them;- Etiquette and how we conform to it.Explaining Humans is an original and incisive exploration of human nature and the strangeness of social norms, written from the outside looking in. Camilla's unique perspective of the world, in turn, tells us so much about ourselves - about who we are and why we do it - and is a fascinating guide on how to lead a more connected, happier life.

    Once they knew why she couldn’t speak, they needed to determine how to help her learn. They didn’t know that Schuyler was going to teach them a thing or two about fearlessness, tenacity, and joy.Schuyler’s Monster is more than the memoir of a parent dealing with a child’s disability. It is the story of the relationship between a unique and ethereal little girl floating through the world without words, and her earthbound father who struggles with whether or not he is the right dad for the job. It is the story of a family seeking answers to a child’s dilemma, but it is also a chronicle of their unique relationships, formed without traditional language against the expectations of a doubting world. It is a story that has equal measure of laughter and tears. Ultimately, it is the tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs. Schuyler can now communicate through assistive technology, and continues to be the source of her father's inspiration, literary and otherwise.

    The image of coping well presented by AS females can often mask difficulties, deficits, challenges, & loneliness.

    The book offers real-world, road-tested, child-first and family-friendly advice; while also highlighting the twin truths that autism is not a tragedy, and that adaptation and acceptance are not resignation' David Mitchell, bestselling author and co-translator of The Reason I Jump'A must-read for anyone with an autistic child in their life' Laura James, author of Odd Girl OutWritten by Jessie Hewitson, an award-winning journalist at The Times, Autism is the book she wishes she had read when her son was first given the diagnosis of autism spectrum disorder.It combines her own experiences with tips from autistic adults, other parents - including author David Mitchell - as well as advice from autism professionals and academics such as Professor Simon Baron-Cohen. Autism looks at the condition as a difference rather than a disorder and includes guidance on:· What to do if you think your child is autistic · How to understand and support your child at school and at home · Mental health and autism · The differences between autistic girls and boys'It is incredibly useful and informative, full of new research and interviews that put right an awful lot of misinformation. I cannot recommend this highly enough' The Sun'Exceptionally useful and informative' Uta Frith, Emeritus Professor of Cognitive Development, UCL