But he was alive and trapped inside his own body for ten years.In January 1988 Martin Pistorius, aged twelve, fell inexplicably sick. First he lost his voice and stopped eating. Then he slept constantly and shunned human contact. Doctors were mystified. Within eighteen months he was mute and wheelchair-bound. Martin's parents were told an unknown degenerative disease left him with the mind of a baby and less than two years to live.Martin was moved to care centers for severely disabled children. The stress and heartache shook his parents’ marriage and their family to the core. Their boy was gone. Or so they thought.Ghost Boy is the heart-wrenching story of one boy’s return to life through the power of love and faith. In these pages, readers see a parent’s resilience, the consequences of misdiagnosis, abuse at the hands of cruel caretakers, and the unthinkable duration of Martin’s mental alertness betrayed by his lifeless body.We also see a life reclaimed—a business created, a new love kindled—all from a wheelchair. Martin's emergence from his own darkness invites us to celebrate our own lives and fight for a better life for others.

    She has two sons with autism on opposite ends of the spectrum (Jake and Jaxson), a husband who prefers hunting to household chores, an Australian Shepherd named Sugar, and an albino frog named Humbert Humbert. This is her story—a brash, personal, and some-times shocking memoir of one woman’s determination to raise two healthy kids with autism and keep her sanity in the process. It’s not always easy. Between “poop” incidents, temper tantrums, and the “helpful” advice about parenting from her fellow citizens in the grocery store, Jeni often finds herself wanting to throw something. With chapters like: “Tickling the Weiner,” “Why I Hate Pokemon,” “Santa: Give it a Friggin’ Rest, Already,” and “Oprah’s the Reason My Kid Thinks I Want to Drown Him in the Tub,” I Wish I Were Engulfed in Flames also includes mini-chapters written by her eldest son, Jake.Readers looking for laughter and inspiration will find it here aplenty, along with tons of surreal anecdotes that will have you either shaking your head in disbelief (for those unacquainted with the world of autism) or nodding with recognition (for those who are). As Jeni says, “I developed a new ‘normal.’”

    She tells of her fight to keep Temple in the mainstream of family, community, and school life, how Temple responded and went on to succeed, as Ms. Cutler puts it, beyond my wildest dreams. Ms. Cutler also explores the nature of the autism disorder as doctors understand it today, and how its predominant characteristics reflect our own traits in an exaggerated form.Insightful chapters include: And Baby Makes ThreeAs the Twig Is BentChildhoodThe Separate Worlds BeginThings Fall ApartAnd Start All Over AgainThe End of ChildhoodThen What Happened?Looking for the SourceThe Legacy of GenesWhat It Means to Be Human

    At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.

    Just twelve, she’s tall, skinny, and weak. It’s four o’clock, and she hasn’t been allowed to eat anything all day. Her mother, on the other hand, seems curiously excited. She's about to suggest open-heart surgery on her child to "get to the bottom of this." She checks her teeth for lipstick and, as the doctor enters, shoots the girl a warning glance. This child will not ruin her plans.SickenedFrom early childhood, Julie Gregory was continually X-rayed, medicated, and operated on—in the vain pursuit of an illness that was created in her mother’s mind. Munchausen by proxy (MBP) is the world’s most hidden and dangerous form of child abuse, in which the caretaker—almost always the mother—invents or induces symptoms in her child because she craves the attention of medical professionals. Many MBP children die, but Julie Gregory not only survived, she escaped the powerful orbit of her mother's madness and rebuilt her identity as a vibrant, healthy young woman.Sickened is a remarkable memoir that speaks in an original and distinctive Midwestern voice, rising to indelible scenes in prose of scathing beauty and fierce humor. Punctuated with Julie's actual medical records, it re-creates the bizarre cocoon of her family's isolated double-wide trailer, their wild shopping sprees and gun-waving confrontations, the astonishing naïveté of medical professionals and social workers. It also exposes the twisted bonds of terror and love that roped Julie's family together—including the love that made a child willing to sacrifice herself to win her mother's happiness. The realization that the sickness lay in her mother, not in herself, would not come to Julie until adulthood. But when it did, it would strike like lightning. Through her painful metamorphosis, she discovered the courage to save her own life—and, ultimately, the life of the girl her mother had found to replace her. Sickened takes us to new places in the human heart and spirit. It is an unforgettable story, unforgettably told.

    She ran into her two-year-old son Evan's room and found him having a seizure. Doctor after doctor misdiagnosed Evan until after many harrowing, life-threatening episodes one good doctor discovered that Evan is autistic.With a foreword from Dr. David Feinberg, medical director of the Resnick Neuro-psychiatric Hospital at UCLA, and an introduction by Jerry J. Kartzinel, a top pediatric autism specialist, Louder Than Words follows Jenny as she discovered an intense combination of behavioral therapy, diet, and supplements that became the key to saving Evan from autism. Her story sheds much-needed light on autism through her own heartbreak, struggle, and ultimately hopeful example of how a parent can shape a child's life and happiness.

    Throughout the period between 2004 to 2009 myself Noah and Moses were all given a diagnosis of something life changing, but as a mother I refused to be labelled and judged by a medical condition. I am Emma Plows; I am not Emma Plows with Bipolar. It’s my understanding that when you discover your child is on the autistic spectrum you really need to accept the diagnosis. Accept it, let it grow and don’t hinder its development. Autistic people cannot understand how the world works like we can and have difficulty understanding how people think, but we can. We have that capacity to understand them, if we choose too we should take advantage of that capacity. If we don’t accept that our children are autistic, then we are only condemning ourselves and our children to a life of frustrating misery. Work with it, not against it, it doesn’t matter why they behave the way they do as we cannot change it, but we must find the beauty in the condition and all the positives it has to offer, if we try, it gets easier and can become very rewarding.

    Despite her flapping arms and shaking legs, she continued to speak clearly and was able to finish her speech. It was as if she had suddenly become two people: a calm orator and a shuddering wreck. Then the seizures happened again and again. The Shaking Woman tracks Hustvedt’s search for a diagnosis, one that takes her inside the thought processes of several scientific disciplines, each one of which offers a distinct perspective on her paroxysms but no ready solution. In the process, she finds herself entangled in fundamental questions: What is the relationship between brain and mind? How do we remember? What is the self?During her investigations, Hustvedt joins a discussion group in which neurologists, psychiatrists, psychoanalysts, and brain scientists trade ideas to develop a new field: neuropsychoanalysis. She volunteers as a writing teacher for psychiatric in-patients at the Payne Whitney clinic in New York City and unearths precedents in medical history that illuminate the origins of and shifts in our theories about the mind-body problem. In The Shaking Woman, Hustvedt synthesizes her experience and research into a compelling mystery: Who is the shaking woman? In the end, the story she tells becomes, in the words of George Makari, author of Revolution in Mind, “a brilliant illumination for us all.”

    Spock? Check. Penelope Ann Leach (remember her?)? Check. What to Expect When You’re Expecting? Check. I had a seven hundred dollar Bellini crib for God’s sake! I was perfect. And so was Mia when she was born . . ." ...and so begins Kim Stagliano’s electrifying and hilarious memoir of her family’s journey raising three daughters with autism. In these stories, Stagliano has joined the ranks of David Sedaris and Augusten Burroughs with her amazing ability to lay everything on the table—from family, friends, and enemies to basement floods to birthdays to (possible) heroin addictions—eviscerating and celebrating the absurd. From her love of Howard Stern to her increasing activism in the autism community and exhaustive search for treatments that will help her daughters, she covers it all. Always outspoken, often touching, and sometimes heartbreaking, Kim Stagliano is a powerful new voice in comedic writing—her “Kimoir” (as she calls it) will be a must-read within the autism community and the literary world at large.

    The last thing his parents expected was to see him come alive.What followed was a remarkable tale of inspiration, heartbreak, dedication and joy as Benjamin's family relocated from Seattle to Orlando in order to capture that magic and put it to practical use. Amidst the daily challenges of life for an autistic child, Benjamin's passion for one particular theme park attraction would lead his family on a breathtaking journey of hope and discovery.How many rides does it take for an ending to become a new beginning?

    From that day forward his life became a hell of uncontrollable tics, urges, and involuntary utterances. Eventually he is diagnosed with Tourette's Syndrome and Obsessive Compulsive disorder, and Cory embarks on an excruciating journey from specialist to specialist, enduring countless combinations of medications in wildly varying doses. Soon it becomes unclear what tics are symptoms of his disease and what are side effects of the drugs. The only certainty is that it kept getting worse. Despite his lack of control, Cory is aware of every embarrassing movement, and sensitive to every person's reaction to his often aggravating presence. Simply put: Cory Friedman's life is a living hell.Against Medical Advice is the true story of one family's decades-long battle for survival in the face of extraordinary difficulties and a rigid medical establishment.

    It's caused alopecia, bulimia, and drug dependency. And Bryony is sick of it. Keeping silent about her illness has given it a cachet it simply does not deserve, so here she shares her story with trademark wit and dazzling honesty.A hugely successful columnist for the Telegraph, a bestselling author, and a happily married mother of an adorable daughter, Bryony has managed to laugh and live well while simultaneously grappling with her illness. Now it's time for her to speak out. Writing with her characteristic warmth and dark humour, Bryony explores her relationship with her OCD and depression as only she can.Mad Girl is a shocking, funny, unpredictable, heart-wrenching, raw and jaw-droppingly truthful celebration of life with mental illness.

    For a single mother living paycheck to paycheck who had always been the caregiver rather than the one needing care, the catastrophic illness was both a crisis and an initiation into new ideas about mortality and the gendered politics of illness.A twenty-first-century Illness as Metaphor, as well as a harrowing memoir of survival, The Undying explores the experience of illness as mediated by digital screens, weaving in ancient Roman dream diarists, cancer hoaxers and fetishists, cancer vloggers, corporate lies, John Donne, pro-pain ”dolorists,” the ecological costs of chemotherapy, and the many little murders of capitalism. It excoriates the pharmaceutical industry and the bland hypocrisies of ”pink ribbon culture” while also diving into the long literary line of women writing about their own illnesses and ongoing deaths: Audre Lorde, Kathy Acker, Susan Sontag, and others.A genre-bending memoir in the tradition of The Argonauts, The Undying will break your heart, make you angry enough to spit, and show you contemporary America as a thing both desperately ill and occasionally, perversely glorious.

    Everything in Its Place is a celebration of Sacks's myriad interests, all told with his characteristic compassion, erudition, and luminous prose. From the celebrated case history of Spalding Gray that appeared in The New Yorker four months before his death to reflections on mental asylums; from piercing accounts of Schizophrenia to a reminiscence of Robin Williams; from the riveting tale of a medical colleague falling victim to Alzheimer's to the cinematography of Michael Powell, this volume celebrates and reflects the wondrous curiosity of Oliver Sacks.

    Rex: A Mother, Her Autistic Child, and the Music that Transformed Their Lives