The Middle Place


Kelly Corrigan - 2005
    A self-assured adman and former all-American lacrosse player (now part-time coach), he shines brightly, and his daughter appears content to live in his reflected glory.Kelly considers herself lucky for this great touchstone in her life, and her dad's can-do spirit becomes her greatest asset when she's diagnosed with breast cancer as a young mother. It is her dad's pluck and resolve that will see her through the oncoming battles -- including the realization that her "cure" will mean the end of her ability to bear children and her dream of having a large family of her own.Though Kelly writes of her husband and daughters, her mother and her brothers, it is her father's love that sustains her. And so, readers fear for her when she reveals that George has been diagnosed with cancer, too. It is at this nadir, facing not only her own mortality but her father's as well, that Kelly finally begins to emerge as a survivor -- a wife, a mother, and more herself. Yet, she will always be her father's daughter.(Spring 2008 Selection)

Brain on Fire: My Month of Madness


Susannah Cahalan - 2012
    Days earlier, she had been on the threshold of a new, adult life: at the beginning of her first serious relationship and a promising career at a major New York newspaper. Now she was labeled violent, psychotic, a flight risk. What happened?In a swift and breathtaking narrative, Cahalan tells the astonishing true story of her descent into madness, her family’s inspiring faith in her, and the lifesaving diagnosis that nearly didn’t happen.

The Still Point of the Turning World


Emily Rapp - 2013
    But all of these plans changed when Ronan was diagnosed at nine months old with Tay-Sachs disease, a rare and always-fatal degenerative disorder.  Ronan was not expected to live beyond the age of three; he would be permanently stalled at a developmental level of six months.  Rapp and her husband were forced to re-evaluate everything they thought they knew about parenting.  They would have to learn to live with their child in the moment; to find happiness in the midst of sorrow; to parent without a future.The Still Point of the Turning World is the story of a mother’s journey through grief and beyond it.  Rapp’s response to her son’s diagnosis was a belief that she needed to “make my world big”—to make sense of her family’s situation through art, literature, philosophy, theology and myth.  Drawing on a broad range of thinkers and writers, from C.S. Lewis to Sylvia Plath, Hegel to Mary Shelley’s Frankenstein, Rapp learns what wisdom there is to be gained from parenting a terminally ill child.  In luminous, exquisitely moving prose she re-examines our most fundamental assumptions about what it means to be a good parent, to be a success, and to live a meaningful life.

No Biking in the House Without a Helmet


Melissa Fay Greene - 2011
    When the clock started to run down on the home team, we brought in ringers."When the two-time National Book Award finalist Melissa Fay Greene confided to friends that she and her husband planned to adopt a four-year-old boy from Bulgaria to add to their four children at home, the news threatened to place her, she writes, "among the greats: the Kennedys, the McCaughey septuplets, the von Trapp family singers, and perhaps even Mrs. Feodor Vassilyev, who, according to the Guinness Book of World Records, gave birth to sixty-nine children in eighteenth-century Russia." Greene is best known for her books on the civil rights movement and the African HIV/AIDS pandemic. She's been praised for her "historian's urge for accuracy," her "sociologist's sense of social nuance," and her "writerly passion for the beauty of language." But Melissa and her husband have also pursued a more private vocation: parenthood. "We so loved raising our four children by birth, we didn't want to stop. When the clock started to run down on the home team, we brought in ringers." When the number of children hit nine, Greene took a break from reporting. She trained her journalist's eye upon events at home. Fisseha was riding a bike down the basement stairs; out on the porch, a squirrel was sitting on Jesse's head; vulgar posters had erupted on bedroom walls; the insult niftam (the Amharic word for "snot") had led to fistfights; and four non-native-English-speaking teenage boys were researching, on Mom's computer, the subject of "saxing." "At first I thought one of our trombone players was considering a change of instrument," writes Greene. "Then I remembered: they can't spell."Using the tools of her trade, she uncovered the true subject of the "saxing" investigation, inspiring the chapter "Everything You Always Wanted to Know About Sex, but Couldn't Spell." A celebration of parenthood; an ingathering of children, through birth and out of loss and bereavement; a relishing of moments hilarious and enlightening - No Biking in the House Without a Helmet is a loving portrait of a unique twenty first-century family as it wobbles between disaster and joy.

As Nature Made Him: The Boy Who Was Raised as a Girl


John Colapinto - 2000
    The case would become one of the most famous in modern medicine—and a total failure. As Nature Made Him tells the extraordinary story of David Reimer, who, when finally informed of his medical history, made the decision to live as a male. A macabre tale of medical arrogance, it is first and foremost a human drama of one man's—and one family's—amazing survival in the face of terrible odds.

Inconceivable: A Medical Mistake, the Baby We Couldn't Keep, and Our Choice to Deliver the Ultimate Gift


Carolyn Savage - 2011
    An unthinkable situation . . . you’re pregnant with the wrong baby. You can terminate, but you can’t keep him. What choice would you make?Carolyn and Sean Savage had been trying to expand their family for years. When they underwent an IVF transfer in February 2009, they knew it would be their last chance. If they became pregnant, they would celebrate the baby as an answer to their prayers. If not, they would be grateful for the family they had and leave their fertility struggles behind forever.They never imagined a third option. The pregnancy test was positive, but the clinic had transferred the wrong embryos. Carolyn was pregnant with someone else’s baby.The Savages faced a series of heartbreaking decisions: terminate the pregnancy, sue for custody, or hand over the infant to his genetic parents upon delivery. Knowing that Carolyn was carrying another couple’s hope for a baby, the Savages wanted to do what they prayed the other family would do for them if the situation was reversed. Sean and Carolyn Savage decided to give the ultimate gift, the gift of life, to a family they didn’t know, no strings attached.Inconceivable provides an inside look at how modern medicine, which creates miracles daily, could allow such a tragic mistake, and the many legal ramifications that ensued with both the genetic family and the clinic. Chronicling their tumultuous pregnancy and its aftermath, which tested the Savage’s faith, their relationship to their church, and their marriage, Inconceivable is ultimately a testament to love. Carolyn and Sean loved this baby, making it impossible for them to imagine how they could give him life and then give him away.In the end, Inconceivable is a story of what it is to be a parent, someone who nurtures a life, protects a soul, only to release that child into the world long before you’re ready to let him go.

The Horse Boy: A Father's Quest to Heal His Son


Rupert Isaacson - 2009
    But when Isaacson, a lifelong horseman, rode their neighbor's horse with Rowan, Rowan improved immeasurably. He was struck with a crazy idea: why not take Rowan to Mongolia, the one place in the world where horses and shamanic healing intersected? THE HORSE BOY is the dramatic and heartwarming story of that impossible adventure. In Mongolia, the family found undreamed of landscapes and people, unbearable setbacks, and advances beyond their wildest dreams. This is a deeply moving, truly one-of-a-kind story--of a family willing to go to the ends of the earth to help their son, and of a boy learning to connect with the world for the first time.

Bloom: Finding Beauty in the Unexpected--A Memoir


Kelle Hampton - 2012
    The author of the popular blog Enjoying the Small Things—named The Bump’s Best Special Needs Blog and The Blog You’ve Learned the Most From in the 2010 BlogLuxe Awards—Kelle Hampton interweaves lyrical prose and stunning four-color photography as she recounts the unforgettable story of the first year in the life of her daughter Nella, who has Down syndrome. Poignant, eye-opening, and heart-soaring, Hampton’s Bloom is ultimately about embracing life and really living it.

Expecting Adam: A True Story of Birth, Rebirth, and Everyday Magic


Martha N. Beck - 1999
    This "rueful, riveting, piercingly funny" (Julia Cameron) book is written by a Harvard graduate--but it tells a story in which hearts trump brains every time. It's a tale about mothering a Down syndrome child that opts for sass over sap, and it's a book of heavenly visions and inexplicable phenomena that's as down-to-earth as anyone could ask for. This small masterpiece is Martha Beck's own story--of leaving behind the life of a stressed-out superachiever, opening herself to things she'd never dared consider, meeting her son for (maybe) the first time...and "unlearn[ing] virtually everything Harvard taught [her] about what is precious and what is garbage.""Beck [is] very funny, particularly about the most serious possible subjects--childbirth, angels and surviving at Harvard." --New York Times Book Review"Immensely appealing...hooked me on the first page and propelled me right through visions and out-of-body experiences I would normally scoff at." --Detroit Free Press"I challenge any reader not to be moved by it." --Newsday"Brilliant." --Minneapolis Star-Tribune

Against Medical Advice


James Patterson - 2008
    From that day forward his life became a hell of uncontrollable tics, urges, and involuntary utterances. Eventually he is diagnosed with Tourette's Syndrome and Obsessive Compulsive disorder, and Cory embarks on an excruciating journey from specialist to specialist, enduring countless combinations of medications in wildly varying doses. Soon it becomes unclear what tics are symptoms of his disease and what are side effects of the drugs. The only certainty is that it kept getting worse. Despite his lack of control, Cory is aware of every embarrassing movement, and sensitive to every person's reaction to his often aggravating presence. Simply put: Cory Friedman's life is a living hell.Against Medical Advice is the true story of one family's decades-long battle for survival in the face of extraordinary difficulties and a rigid medical establishment.

My Lobotomy: A Memoir


Howard Dully - 2007
    Yet somehow, this normal boy became one of the youngest people on whom Dr. Walter Freeman performed his barbaric transorbital—or ice pick—lobotomy.Abandoned by his family within a year of the surgery, Howard spent his teen years in mental institutions, his twenties in jail, and his thirties in a bottle. It wasn’t until he was in his forties that Howard began to pull his life together. But even as he began to live the “normal” life he had been denied, Howard struggled with one question: Why?“October 8, 1960. I gather that Mrs. Dully is perpetually talking, admonishing, correcting, and getting worked up into a spasm, whereas her husband is impatient, explosive, rather brutal, won’t let the boy speak for himself, and calls him numbskull, dimwit, and other uncomplimentary names.”There were only three people who would know the truth: Freeman, the man who performed the procedure; Lou, his cold and demanding stepmother who brought Howard to the doctor’s attention; and his father, Rodney. Of the three, only Rodney, the man who hadn’t intervened on his son’s behalf, was still living. Time was running out. Stable and happy for the first time in decades, Howard began to search for answers. “December 3, 1960. Mr. and Mrs. Dully have apparently decided to have Howard operated on. I suggested [they] not tell Howard anything about it.”Through his research, Howard met other lobotomy patients and their families, talked with one of Freeman’s sons about his father’s controversial life’s work, and confronted Rodney about his complicity. And, in the archive where the doctor’s files are stored, he finally came face to face with the truth.Revealing what happened to a child no one—not his father, not the medical community, not the state—was willing to protect, My Lobotomy exposes a shameful chapter in the history of the treatment of mental illness. Yet, ultimately, this is a powerful and moving chronicle of the life of one man. Without reticence, Howard Dully shares the story of a painfully dysfunctional childhood, a misspent youth, his struggle to claim the life that was taken from him, and his redemption.

Schuyler's Monster: A Father's Journey with His Wordless Daughter


Robert Rummel-Hudson - 2008
    Once they knew why she couldn’t speak, they needed to determine how to help her learn. They didn’t know that Schuyler was going to teach them a thing or two about fearlessness, tenacity, and joy.Schuyler’s Monster is more than the memoir of a parent dealing with a child’s disability. It is the story of the relationship between a unique and ethereal little girl floating through the world without words, and her earthbound father who struggles with whether or not he is the right dad for the job. It is the story of a family seeking answers to a child’s dilemma, but it is also a chronicle of their unique relationships, formed without traditional language against the expectations of a doubting world. It is a story that has equal measure of laughter and tears. Ultimately, it is the tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs. Schuyler can now communicate through assistive technology, and continues to be the source of her father's inspiration, literary and otherwise.

Born on a Blue Day: Inside the Extraordinary Mind of an Autistic Savant


Daniel Tammet - 2006
    Tammet's ability to think abstractly, deviate from routine, and empathize, interact and communicate with others is impaired, yet he's capable of incredible feats of memorization and mental calculation. Besides being able to effortlessly multiply and divide huge sums in his head with the speed and accuracy of a computer, Tammet, the subject of the 2005 documentary Brainman, learned Icelandic in a single week and recited the number pi up to the 22,514th digit, breaking the European record. He also experiences synesthesia, an unusual neurological syndrome that enables him to experience numbers and words as "shapes, colors, textures and motions." Tammet traces his life from a frustrating, withdrawn childhood and adolescence to his adult achievements, which include teaching in Lithuania, achieving financial independence with an educational Web site and sustaining a long-term romantic relationship. As one of only about 50 people living today with synesthesia and autism, Tammet's condition is intriguing to researchers; his ability to express himself clearly and with a surprisingly engaging tone (given his symptoms) makes for an account that will intrigue others as well.

The Memory Palace


Mira Bartok - 2011
    It is a poignant observation about the relationship between Mira, her sister, and their mentally ill mother. Before she was struck with schizophrenia at the age of nineteen, beautiful piano protégé Norma Herr had been the most vibrant personality in the room. She loved her daughters and did her best to raise them well, but as her mental state deteriorated, Norma spoke less about Chopin and more about Nazis and her fear that her daughters would be kidnapped, murdered, or raped. When the girls left for college, the harassment escalated--Norma called them obsessively, appeared at their apartments or jobs, threatened to kill herself if they did not return home. After a traumatic encounter, Mira and her sister were left with no choice but to change their names and sever all contact with Norma in order to stay safe. But while Mira pursued her career as an artist--exploring the ancient romance of Florence, the eerie mysticism of northern Norway, and the raw desert of Israel--the haunting memories of her mother were never far away. Then one day, Mira’s life changed forever after a debilitating car accident. As she struggled to recover from a traumatic brain injury, she was confronted with a need to recontextualize her life--she had to relearn how to paint, read, and interact with the outside world. In her search for a way back to her lost self, Mira reached out to the homeless shelter where she believed her mother was living and discovered that Norma was dying. Mira and her sister traveled to Cleveland, where they shared an extraordinary reconciliation with their mother that none of them had thought possible. At the hospital, Mira discovered a set of keys that opened a storage unit Norma had been keeping for seventeen years. Filled with family photos, childhood toys, and ephemera from Norma’s life, the storage unit brought back a flood of previous memories that Mira had thought were lost to her forever. The Memory Palace is a breathtaking literary memoir about the complex meaning of love, truth, and the capacity for forgiveness among family. Through stunning prose and original art created by the author in tandem with the text, The Memory Palace explores the connections between mother and daughter that cannot be broken no matter how much exists--or is lost--between them.

Death Be Not Proud


John Gunther - 1949
    The book opens with his father's fond, vivid portrait of his son - a young man of extraordinary intellectual promise, who excelled at physics, math, and chess, but was also an active, good-hearted, and fun-loving kid. But the heart of the book is a description of the agonized months during which Gunther and his former wife Frances try everything in their power to halt the spread of Johnny's cancer and to make him as happy and comfortable as possible. In the last months of his life, Johnny strove hard to complete his high school studies. The scene of his graduation ceremony from Deerfield Academy is one of the most powerful - and heartbreaking - in the entire book. Johnny maintained his courage, wit and quiet friendliness up to the end of his life. He died on June 30, 1947, less than a month after graduating from Deerfield.