How to Survive a Plague: The Inside Story of How Citizens and Science Tamed AIDS


David France - 2013
     A riveting, powerful telling of the story of the grassroots movement of activists, many of them in a life-or-death struggle, who seized upon scientific research to help develop the drugs that turned HIV from a mostly fatal infection to a manageable disease. Ignored by public officials, religious leaders, and the nation at large, and confronted with shame and hatred, this small group of men and women chose to fight for their right to live by educating themselves and demanding to become full partners in the race for effective treatments. Around the globe, 16 million people are alive today thanks to their efforts. Not since the publication of Randy Shilts's classic And the Band Played On has a book measured the AIDS plague in such brutally human, intimate, and soaring terms. In dramatic fashion, we witness the founding of ACT UP and TAG (Treatment Action Group), and the rise of an underground drug market in opposition to the prohibitively expensive (and sometimes toxic) AZT. We watch as these activists learn to become their own researchers, lobbyists, drug smugglers, and clinicians, establishing their own newspapers, research journals, and laboratories, and as they go on to force reform in the nation s disease-fighting agencies. With his unparalleled access to this community David France illuminates the lives of extraordinary characters, including the closeted Wall Street trader-turned-activist, the high school dropout who found purpose battling pharmaceutical giants in New York, the South African physician who helped establish the first officially recognized buyers club at the height of the epidemic, and the public relations executive fighting to save his own life for the sake of his young daughter. Expansive yet richly detailed, this is an insider's account of a pivotal moment in the history of American civil rights. Powerful, heart-wrenching, and finally exhilarating, How to Survive a Plague is destined to become an essential part of the literature of AIDS.

Second Avenue Caper: When Goodfellas, Divas, and Dealers Plotted Against the Plague


Joyce Brabner - 2014
    Fast-paced, poignant, and beautifully illustrated by the award-winning illustrator Mark Zingarelli, Second Avenue Caper is a heartfelt tribute to the generation that faced down AIDS.

Hold Tight Gently: Michael Callen, Essex Hemphill, and the Battlefield of AIDS


Martin Duberman - 2014
    For countless people, the drug offered a reprieve from what had been a death sentence; for others, it was too late. In the United States alone, over 318,000 people had already died from AIDS-related complications—among them the singer Michael Callen and the poet Essex Hemphill.Meticulously researched and evocatively told, The Battlefield of AIDS is the celebrated historian Martin Duberman’s poignant memorial to those lost to AIDS and to two of the great unsung heroes of the early years of the epidemic. Callen, a white gay Midwesterner who had moved to New York, became a leading figure in the movement to increase awareness of AIDS in the face of willful and homophobic denial under the Reagan administration; Hemphill, an African American gay man, contributed to the black gay and lesbian scene in Washington, D.C., with poetry of searing intensity and introspection.A profound exploration of the intersection of race, sexuality, class, identity, and the politics of AIDS activism beyond ACT UP, The Battlefield of AIDS captures both a generation struggling to cope with the deadly disease and the extraordinary refusal of two men to give in to despair.

Taking Turns: Stories from HIV/AIDS Care Unit 371


M.K. Czerwiec - 2017
    Taking Turns pulls back the curtain on life in the ward.A shining example of excellence in the treatment and care of patients, Unit 371 was a community for thousands of patients and families affected by HIV and AIDS and the people who cared for them. This graphic novel combines Czerwiec’s memories with the oral histories of patients, family members, and staff. It depicts life and death in the ward, the ways the unit affected and informed those who passed through it, and how many look back on their time there today. Czerwiec joined Unit 371 at a pivotal time in the history of AIDS: deaths from the syndrome in the Midwest peaked in 1995 and then dropped drastically in the following years, with the release of antiretroviral protease inhibitors. This positive turn of events led to a decline in patient populations and, ultimately, to the closure of Unit 371. Czerwiec’s restrained, inviting drawing style and carefully considered narrative examine individual, institutional, and community responses to the AIDS epidemic—as well as the role that art can play in the grieving process.Deeply personal yet made up of many voices, this history of daily life in a unique AIDS care unit is an open, honest look at suffering, grief, and hope among a community of medical professionals and patients at the heart of the epidemic.

Let the Record Show: A Political History of ACT UP New York, 1987-1993


Sarah Schulman - 2021
    --Alexander Chee Twenty years in the making, Sarah Schulman's Let the Record Show is the most comprehensive political history ever assembled of ACT UP and American AIDS activism In just six years, ACT UP, New York, a broad and unlikely coalition of activists from all races, genders, sexualities, and backgrounds, changed the world. Armed with rancor, desperation, intelligence, and creativity, it took on the AIDS crisis with an indefatigable, ingenious, and multifaceted attack on the corporations, institutions, governments, and individuals who stood in the way of AIDS treatment for all. They stormed the FDA and NIH in Washington, DC, and started needle exchange programs in New York; they took over Grand Central Terminal and fought to change the legal definition of AIDS to include women; they transformed the American insurance industry, weaponized art and advertising to push their agenda, and battled--and beat--The New York Times, the Catholic Church, and the pharmaceutical industry. Their activism, in its complex and intersectional power, transformed the lives of people with AIDS and the bigoted society that had abandoned them.Based on more than two hundred interviews with ACT UP members and rich with lessons for today's activists, Let the Record Show is a revelatory exploration--and long-overdue reassessment--of the coalition's inner workings, conflicts, achievements, and ultimate fracture. Schulman, one of the most revered queer writers and thinkers of her generation, explores the how and the why, examining, with her characteristic rigor and bite, how a group of desperate outcasts changed America forever, and in the process created a livable future for generations of people across the world.

Golem Girl: A Memoir


Riva Lehrer - 2020
    At the time, most such children are not expected to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured.Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture. Their work is daring, edgy, funny, and dark — it rejects tropes that define disabled people as pathetic, frightening, or worthless. They insist that disability is an opportunity for creativity and resistance. Emboldened, Riva asks if she can paint their portraits — inventing an intimate and collaborative process that will transform the way she sees herself, others, and the world. Each portrait story begins to transform the myths she’s been told her whole life about her body, her sexuality, and other measures of normal.Written with the vivid, cinematic prose of a visual artist, and the love and playfulness that defines all of Riva's work, Golem Girl is an extraordinary story of tenacity and creativity. With the author's magnificent portraits featured throughout, this memoir invites us to stretch ourselves toward a world where bodies flow between all possible forms of what it is to be human.

Party Monster: A Fabulous But True Tale of Murder in Clubland


James St. James - 1999
    Nominated for the Edgar Award for best true-crime book of the year, it also marked the debut of an audaciously talented writer, James St. James, who himself had been a club kid and close friend and confidant of Michael Alig, the young man convicted of killing the drug dealer known as Angel. Now the book has been brought to the screen as Party Monster, with Macaulay Culkin playing killer Michael Alig and Seth Green as author/celebutante James St. James.

Nurses On The Inside: Stories Of The HIV/AIDS Epidemic In NYC


Ellen Matzer - 2019
    It is the story of two nurses who witnessed the early years of the HIV/AIDS epidemic from the frontline. It focuses on their lives and their experiences. Some of the story is raw, sometimes graphic, but familiar for people with HIV infection, family members, friends, and other nurses and medical professionals such as Ellen and Valery. There were hundreds of nurses who went through what Ellen and Valery experienced. They want to tell this story to give a voice to a generation lost, encouraging the world to remember one simple thing: this history cannot be repeated.

I Am Not Myself These Days


Josh Kilmer-Purcell - 2006
    His story begins here—before the homemade goat milk soaps and hand-gathered honeys, before his memoir of the city mouse’s move to the country, The Bucolic Plague—in I Am Not Myself These Days,  with “plenty of dishy anecdotes and moments of tragi-camp delight” (WashingtonPost).

Borrowed Time: An AIDS Memoir


Paul Monette - 1988
    A National Book Critics Circle Award finalist and the winner of the PEN Center West literary award.

In the Shadow of the American Dream: The Diaries of David Wojnarowicz


David Wojnarowicz - 1998
    It tells the story of Wojnarowicz's creative birth, from publishing his first photographs and writing what would become The Waterfront Journals to completing his tour de force, Close to the Knives, at the height of his fame. In the Shadow of the American Dream is finally a record of the private Wojnarowicz, falling in love, exploring erotic possibilities on the Hudson River piers, becoming overwhelmed by the demands of survival, and searching for the pleasure and freedom he believed one could live on.

Portrait of an Addict as a Young Man: A Memoir


Bill Clegg - 2010
    He had been released from rehab nine months earlier, and his relapse would cost him his home, his money, his career, and very nearly his life.What is it that leads an exceptional young mind want to disappear? Clegg makes stunningly clear the attraction of the drug that had him in its thrall, capturing in scene after scene the drama, tension, and paranoiac nightmare of a secret life--and the exhilarating bliss that came again and again until it was eclipsed almost entirely by doom. He also explores the shape of addiction, how its pattern--not its cause--can be traced to the past.Portrait of an Addict as a Young Man is an utterly compelling narrative--lyrical, irresistible, harsh, honest, and beautifully written--from which you simply cannot look away.

Spoiler Alert: The Hero Dies


Michael Ausiello - 2017
    From his time at Soaps in Depth and Entertainment Tonight to his influential stints at TV Guide and Entertainment Weekly to his current role as co-founder of the wildly popular website TVLine.com, Michael has established himself as the go-to expert when it comes to our most popular form of entertainment.What many of his fans don’t know, however, is that while his professional life was in full swing, Michael had to endure the greatest of personal tragedies: his longtime boyfriend, Kit Cowan, was diagnosed with a rare and very aggressive form of neuroendrocrine cancer. Over the course of eleven months, Kit and Michael did their best to combat the deadly disease, but Kit succumbed to his illness in February 2015.In this heartbreaking and darkly hilarious memoir, Michael tells the story of his harrowing and challenging last year with Kit while revisiting the thirteen years that preceded it, and how the undeniably powerful bond between him and Kit carried them through all manner of difficulty—always with laughter front and center in their relationship. Instead of a tale of sadness and loss, Spoiler Alert: The Hero Dies is an unforgettable, inspiring, and beautiful testament to the resilience and strength of true love.

Not My Father's Son


Alan Cumming - 2014
    Until one day they all flood back in horrible detail.When television producers approached Alan Cumming to appear on a popular celebrity genealogy show, he hoped to solve the mystery of his maternal grandfather's disappearance that had long cast a shadow over his family. But this was not the only mystery laid before Alan.Alan grew up in the grip of a man who held his family hostage, someone who meted out violence with a frightening ease, who waged a silent war with himself that sometimes spilled over onto everyone around him. That man was Alex Cumming, Alan's father, whom Alan had not seen or spoken to for more than a decade when he reconnected just before filming for Who Do You Think You Are? began. He had a secret he had to share, one that would shock his son to his very core and set into motion a journey that would change Alan's life forever.With ribald humor, wit, and incredible insight, Alan seamlessly moves back and forth in time, integrating stories from his childhood in Scotland and his experiences today as the celebrated actor of film, television, and stage. At times suspenseful, at times deeply moving, but always incredibly brave and honest, Not My Father's Son is a powerful story of embracing the best aspects of the past and triumphantly pushing the darkness aside.

Body Counts: A Memoir of Politics, Sex, AIDS, and Survival


Sean Strub - 2014
    He also harbored a terrifying secret: his attraction to men. As Strub explored the capital’s political and social circles, he discovered a parallel world where powerful men lived double lives shrouded in shame. When the AIDS epidemic hit in the early 1980s, Strub was living in New York and soon found himself attending “more funerals than birthday parties.” Scared and angry, he turned to radical activism to combat discrimination and demand research. Strub takes you through his own diagnosis and inside ACT UP, the organization that transformed a stigmatized cause into one of the defining political movements of our time. From the New York of Studio 54 and Andy Warhol’s Factory to the intersection of politics and burgeoning LGBT and AIDS movements, Strub’s story crackles with history. He recounts his role in shocking AIDS demonstrations at St. Patrick’s Cathedral as well as at the home of US Sen­ator Jesse Helms. With an astonishing cast of characters, including Tennessee Williams, Gore Vidal, Keith Haring, Bill Clinton, and Yoko Ono, this is a vivid portrait of a tumultuous era: “A page-turner…[with] the suspense and horror of Paul Monette’s memoir Borrowed Time and the drama of Larry Kramer’s play The Normal Heart….What a lot of action—and life—there is in this gripping book” (The Washington Post).