Julie Devaney takes us on a journey through the health care system as she is diagnosed and treated for ulcerative colitis. In and out of emergency rooms in Vancouver and Toronto, she’s poked, prodded, and abandoned to a closet at one point, bearing the helplessness and indignities of a system that at best confuses a patient into silence.Raw, harrowing, and darkly funny, Julie Devaney argues convincingly for fixes to the system and better training for all medical personnel. As she recovers, she sets out to do just that: setting up a gurney on stage at workshops and conferences across the country to teach Bedside Manners 101 and to advocate for repairs to the system.Part memoir, part love story, part revolutionary manifesto, My Leaky Body is politically astute, gooey like cake batter, and raw like ulcerated bowels. Devaney writes the book that will heal her aching heart and relax her strictured rectum as she weaves stories from professional and public interactions with tales from her gurney.

    Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived--they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness.Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals.Reading Life Disrupted is like having a best friend and mentor who truly does know what you're going through.

    However, the human interaction between patient and care giver is still the essential foundation of healing. “I’m Here” is a personal narrative from the patient’s perspective. Filled with practical advice, packed with humor and overflowing with appreciation, Marcus Engel encourages health care professionals to practice compassionate communications in all its forms.“Marcus’ books and keynote presentation has left an unforgettable impression on our nursing staff. It’s an invaluable reminder of why we do, what we do.”-Dee Evans, Driscoll Children’s Hospital, Corpus Christi, TX“I’m Here” should be required reading for all health practitioners. Marcus’ personal experience of being a patient and his insights into what constitutes compassionate care are marvelous and right on.”-Dr. Norma Stephens Hannigan, Assistant Professor of Clinical Nursing Diplomate of Comprehensive Care, Columbia University in the City of New York. -Professional speaker and author Marcus Engel is considered an expert in communicating the patient’s perspective, and inspiring health care professionals to excellence. Marcus speaks from the heart. After being blinded and suffering catastrophic injuries at the hands of a drunk driver, he endured years of hospitalization, rehab and recovery. Marcus is the author of “After This… An Inspirational Journey for All the Wrong Reasons” and “The Other End of the Stethoscope: 33 Insights for Excellent Patient Care.”

    When her broken neck healed or so everyone thought her recovery was hailed as a medical miracle and she returned to normal life. Years later, she seemed to have it all: a loving husband, two wonderful children, a peaceful home, and a richly satisfying job as a tenured poetry professor. Then, one morning, this blissful fade shattered the pain in her neck returned in the most vicious way. A life with physical agony ensued.Greenberg realized that she had been living for years on borrowed time. As she and her family navigated an increasingly complicated web of doctors and specialists, Greenberg taught herself to fight her own battles against a medical system ill-equipped to handle patients with chronic pain, and against the emotional pitfalls of a newly restricted life. Drawing on her family's support, her own indomitable spirit, and an intense connection to the poetry she taught, Greenberg found the strength to return to a productive and satisfying if irrevocably changed life.

    Like twelve million other Americans, Sandra Beasley suffers from food allergies. Her allergies—severe and lifelong—include dairy, egg, soy, beef, shrimp, pine nuts, cucumbers, cantaloupe, honeydew, mango, macadamias, pistachios, cashews, swordfish, and mustard. Add to that mold, dust, grass and tree pollen, cigarette smoke, dogs, rabbits, horses, and wool, and it’s no wonder Sandra felt she had to live her life as “Allergy Girl.” When butter is deadly and eggs can make your throat swell shut, cupcakes and other treats of childhood are out of the question—and so Sandra’s mother used to warn guests against a toxic, frosting-tinged kiss with “Don’t kill the birthday girl!” It may seem that such a person is “not really designed to survive,” as one blunt nutritionist declared while visiting Sandra’s fourth-grade class. But Sandra has not only survived, she’s thrived—now an essayist, editor, and award-winning poet, she has learned to navigate a world in which danger can lurk in an unassuming corn chip. Don’t Kill the Birthday Girl is her story. With candor, wit, and a journalist’s curiosity, Sandra draws on her own experiences while covering the scientific, cultural, and sociological terrain of allergies. She explains exactly what an allergy is, describes surviving a family reunion in heart-of-Texas beef country with her vegetarian sister, delves into how being allergic has affected her romantic relationships, exposes the dark side of Benadryl, explains how parents can work with schools to protect their allergic children, and details how people with allergies should advocate for themselves in a restaurant. A compelling mix of memoir, cultural history, and science, Don’t Kill the Birthday Girl is mandatory reading for the millions of families navigating the world of allergies—and a not-to-be-missed literary treat for the rest of us.

    She was ambitious and worked hard; she had just bought an apartment; she was falling in love. But then she started to develop worrying symptoms: her face felt like it was burning whenever she was in front of the computer. Soon this progressed to an intolerance of fluorescent light, then of sunlight itself. The reaction soon spread to her entire body. Now, when her symptoms are at their worst, she must spend months on end in a blacked-out room, losing herself in audio books and elaborate word games in an attempt to ward off despair. It was during this period she began to write this book.

    She witnesses nurses drawing straws to see who would tend to the patient inside, all of them reluctant to enter the room. Out of impulse, Ruth herself enters the quarantined space and immediately begins to care for the young man who cries for his mother in the last moments of his life. Before she can even process what she's done, word spreads in the community that Ruth is the only person willing to help these young men afflicted by AIDS, and is called upon to nurse them. As she forges deep friendships with the men she helps, she works tirelessly to find them housing and jobs, even searching for funeral homes willing to take their bodies - often in the middle of the night. She cooks meals for tens of people out of discarded food found in the dumpsters behind supermarkets, stores rare medications for her most urgent patients, teaches sex-ed to drag queens after hours at secret bars, and becomes a beacon of hope to an otherwise spurned group of ailing gay men on the fringes of a deeply conservative state.Throughout the years, Ruth defies local pastors and nurses to help the men she cares for: Paul and Billy, Angel, Chip, Todd and Luke. Emboldened by the weight of their collective pain, she fervently advocates for their safety and visibility, ultimately advising Governor Bill Clinton on the national HIV-AIDS crisis.This deeply moving and elegiac memoir honors the extraordinary life of Ruth Coker Burks and the beloved men who fought valiantly for their lives with AIDS during a most hostile and misinformed time in America.

    It saves lives, manipulates lives, and prioritizes some lives over others. It provides comfort, makes profits, justifies violence, and promises resolution to body-mind loss. Clare grapples with this knot of contradictions, maintaining that neither an anti-cure politics nor a pro-cure worldview can account for the messy, complex relationships we have with our body-minds.The stories he tells range widely, stretching from disability stereotypes to weight loss surgery, gender transition to skin lightening creams. At each turn, Clare weaves race, disability, sexuality, class, and gender together, insisting on the nonnegotiable value of body-mind difference. Into this mix, he adds environmental politics, thinking about ecosystem loss and restoration as a way of delving more deeply into cure.Ultimately Brilliant Imperfection reveals cure to be an ideology grounded in the twin notions of normal and natural, slippery and powerful, necessary and damaging all at the same time.

    As the reader moves in reverse to meet Laura’s younger and somewhat healthier selves (a hopeful bride in New York, a baby queer in Paris, a figure skater in Norway) we uncover her tireless work to gain control of her identity, her illness and the conflicting demands made by doctors, friends, lovers and family.Man Booker Prize-winning author Paul Beatty says most books about disease try to describe the pain; told in poetic whisper, Karen Havelin's debut novel lets pain speak for itself. It's a book that dares you be nosy, to eavesdrop and listen in to a stoic young woman whom no one noticed until she began to disappear, her body disintegrating from the inside out until there's nothing left but searing agony and almost impossibly―a burning triumph.Jarringly funny and perceptive; an intimate reckoning with the inner demons and precarity of everyday life, unpacked through the very specific lens of a woman with chronic pain.

    In this captivating story, Manguso recalls her struggle: arduous blood cleansings, collapsed veins, multiple chest catheters, depression, the deaths of friends and strangers, addiction, and, worst of all for a writer, the trite metaphors that accompany prolonged illness. A book of tremendous grace, The Two Kinds of Decay transcends the very notion of what an illness story can and should be.

    Taking on topics as eclectic as vomit, Kathy Acker's wardrobe, and Occupy Oakland, Bellamy here examines illness, health, and the body -- both the social body and the individual body -- in essays that glitter with wit even at their darkest moments.In a safe house in Marin County, strangers allergic to the poisons of the world gather for an evening's solace. In Oakland, protesters dance an ecstatic bacchanal over the cancerous body of the city-state they love and hate. In the elegiac memoir, "Phone Home," Bellamy meditates on her dying mother's last days via the improbable cipher of Steven Spielberg's E.T. the Extra-Terrestrial. Finally, Bellamy offers a piercing critique of the displacement and blight that have accompanied Twitter's move into her warehouse-district neighborhood, and the pitiless imperialism of tech consciousness.A participant in the New Narrative movement and a powerful influence on younger writers, Bellamy views heteronormativity and capitalism as plagues, and celebrates the micro-revolts of those on the outskirts. In its deft blending of forms, When the Sick Rule the World resiliently and defiantly proclaims the "undeath of the author." In the realm of sickness, Bellamy asserts, subjectivity is not stable. "When the sick rule the world, mortality will be sexy," Bellamy prophesies. Those defined by society as sick may, in fact, be its saviors.

    Includes photos and tributes to Lorde written after her death in 1992."Grief, terror, courage, the passion for survival and for more than survival, are here in the searchings of a great poet." —Adrienne Rich"This book teaches me that with one breast or none, I am still me." —Alice Walker"The forthrightness and ferocity with which Audre Lorde greeted every social injustice is in full force in this courageous exploration." —Amazon.com

    Forced to change direction, Kate took a radical new creative path. Handywoman tells this story.This is not a book about Kate's triumph over adversity. Rather, it is her account of the ordinary activities and everyday objects that stroke and disability made her see differently. From braiding hair for the first time to learning how to knit again; from the lessons of a working-class creative childhood to the support of the contemporary craft community; from the transformative effects of good design to developing a new identity as a disabled walker; in this engaging series of essays, Kate describes how the experience of brain injury allowed her to build a new kind of handmade life. Part memoir, part personal celebration of the power of making, in Handywoman Kate reclaims disability as in itself a form of practical creativity. Kate Davies is an award-winning knitwear designer and author writing on many topics from disability and design to textile history and women’s history. She’s published eight books about hand-knitting, lives on the edge of the Scottish Highlands and is inspired by her local landscape every day.

    . . . Irreverent and astute. . . . Pain Studies will change how you think about living with a body." --Elizabeth McCracken, author of Thunderstruck and Bowlaway"A thrilling investigation into pain, language, and Olstein's own exile from what Woolf called 'the army of the upright.' On a search path through art, science, poetry, and prime-time television, Olstein aims her knife-bright compassion at the very thing we're all running from. Pain Studies is a masterpiece." --Leni Zumas, author of The Listeners and Red ClocksIn this extended lyric essay, a poet mines her lifelong experience with migraine to deliver a marvelously idiosyncratic cultural history of pain--how we experience, express, treat, and mistreat it. Her sources range from the trial of Joan of Arc to the essays of Virginia Woolf and Elaine Scarry to Hugh Laurie's portrayal of Gregory House on House M.D. As she engages with science, philosophy, visual art, rock lyrics, and field notes from her own medical adventures (both mainstream and alternative), she finds a way to express the often-indescribable experience of living with pain. Eschewing simple epiphanies, Olstein instead gives us a new language to contemplate and empathize with a fundamental aspect of the human condition.Lisa Olstein teaches at the University of Texas at Austin and is the author of four poetry collections published by Copper Canyon Press. Pain Studies is her first book of creative nonfiction.

    What about on a scale of spicy to citrus? Is it more like a lava lamp or a mosaic? Pain, though a universal element of human experience, is dimly understood and sometimes barely managed. Pain Woman Takes Your Keys, and Other Essays from a Nervous System is a collection of literary and experimental essays about living with chronic pain. Sonya Huber moves away from a linear narrative to step through the doorway into pain itself, into that strange, unbounded reality. Although the essays are personal in nature, this collection is not a record of the author’s specific condition but an exploration that transcends pain’s airless and constraining world and focuses on its edges from wild and widely ranging angles. Huber addresses the nature and experience of invisible disability, including the challenges of gender bias in our health care system, the search for effective treatment options, and the difficulty of articulating chronic pain. She makes pain a lens of inquiry and lyricism, finds its humor and complexity, describes its irascible character, and explores its temperature, taste, and even its beauty.