Prognosis: A Memoir of My Brain


Sarah Vallance - 2019
    The next morning, things take a sharp turn as she’s led from work to the emergency room. By the end of the week, a neurologist delivers a devastating prognosis: Sarah suffered a traumatic brain injury that has caused her IQ to plummet, with no hope of recovery. Her brain has irrevocably changed.Afraid of judgment and deemed no longer fit for work, Sarah isolates herself from the outside world. She spends months at home, with her dogs as her only source of companionship, battling a personality she no longer recognizes and her shock and rage over losing simple functions she’d taken for granted. Her life is consumed by fear and shame until a chance encounter gives Sarah hope that her brain can heal. That conversation lights a small flame of determination, and Sarah begins to push back, painstakingly reteaching herself to read and write, and eventually reentering the workforce and a new, if unpredictable, life.In this highly intimate account of devastation and renewal, Sarah pulls back the curtain on life with traumatic brain injury, an affliction where the wounds are invisible and the lasting effects are often misunderstood. Over years of frustrating setbacks and uncertain triumphs, Sarah comes to terms with her disability and finds love with a woman who helps her embrace a new, accepting sense of self.

Chasing My Cure: A Doctor's Race to Turn Hope into Action


David Fajgenbaum - 2019
    But things changed dramatically when he began suffering from inexplicable fatigue. In a matter of weeks, his organs were failing and he was read his last rites. Doctors were baffled by his condition, which they had yet to even diagnose. Floating in and out of consciousness, Fajgenbaum prayed for a second chance, the equivalent of a dramatic play to second the game into overtime.Miraculously, Fajgenbaum survived--only to endure repeated near-death relapses from what would eventually be identified as a form of Castleman disease, an extremely deadly and rare condition that acts like a cross between cancer and an autoimmune disorder. When he relapsed while on the only drug in development and realized that the medical community was unlikely to make progress in time to save his life, Fajgenbaum turned his desperate hope for a cure into concrete action: Between hospitalizations he studied his own charts and tested his own blood samples, looking for clues that could unlock a new treatment. With the help of family, friends, and mentors, he also reached out to other Castleman disease patients and physicians, and eventually came up with an ambitious plan to crowdsource the most promising research questions and recruit world-class researchers to tackle them. Instead of waiting for the scientific stars to align, he would attempt to align them himself.More than five years later and now married to his college sweetheart, Fajgenbaum has seen his hard work pay off: A treatment he identified has induced a tentative remission and his novel approach to collaborative scientific inquiry has become a blueprint for advancing rare disease research. His incredible story demonstrates the potency of hope, and what can happen when the forces of determination, love, family, faith, and serendipity collide.

Detour from Normal


Ken Dickson - 2013
    What happens next is downright frightening.Surgery saves Ken’s life but improper care sends him spiraling into madness. Unable to fend for himself, his wife Beth takes charge. She does her best to save him but the unyielding stigma of mental illness hampers his recovery at every turn until he is beyond hope.Desperate to get Ken the help that he needs, Beth makes a heartbreaking decision: she brands the man she loves a “danger to himself and others” and commits him to psychiatric treatment. A police SUV then delivers him to a high-security facility where the real nightmare begins. Plagued by the pitfalls of contemporary psych wards, Ken struggles through living hell. Nevertheless, as the days stretch to weeks, he finds solace by befriending the lost and forgotten and helping patients with worse problems than his.Featured in Amazon Prime Reading and spotlighted as Great on Kindle, Detour from Normal will touch your heart in ways that you never imagined and make you question your faith in our medical and mental health systems.What readers are saying:“A massive amount of emotion rolled into a page-turner.”“An enlightening and dare I say frightening glimpse into the world of mental health care.”“This is a story you will want to share with the people you know and love.”“Scary, life-changing and inspiring!”“Powerful and gripping.”“A psychological thriller, medical mystery, and compelling drama—made all the more vivid because it actually happened.”

Old Before My Time: Hayley Okines' Life with Progeria


Hayley Okines - 2011
    Born with the rare genetic condition progeria, she ages eight times faster than the average person. In medical terms her body is like that of a 100-year-old woman. Yet she faces her condition with immense courage and a refreshing lack of self-pity. In Old Before My Time, Hayley and her mum Kerry reflect on her unusual life. Share Hayley's excitement as she travels the world meeting her pop heroes Kylie, Girls Aloud and Justin Bieber and her sadness as she loses her best friend to the disease at the age of 11. Now as she passes the age of 13 -- the average life expectancy for a child with progeria -- Hayley talks frankly about her hopes for the future and her pioneering drug trials in America which could unlock the secrets of ageing for everyone...

The Warner Boys: Our Family’s Story of Autism and Hope


Curt Warner - 2018
    When they dropped from the public eye after Curt’s retirement, everyone assumed it was for a simpler life. But the reality behind their seclusion was a secret they hid from even their closest friends: their twins, Austin and Christian, had been diagnosed with severe autism. What followed was a painful struggle to hold their family and their marriage together in a home filled with chaos, emotional exhaustion, and constant fear for the safety of their unpredictable but beloved boys.Now, after years of silence, the Warners share their inspiring journey from stardom and success to heartbreaking self-imposed isolation. Above all, it’s a story of the life-changing truth that love for family and each other—no matter how challenged—is the path to healing and peace.The Warner Boys is the true story of a family who fought for their children and how they grew stronger against all odds.

Beautiful Bodies: A Memoir


Kimberly Rae Miller - 2017
    And trying. And trying some more. She's been at it since she was four years old, when Sesame Street inspired her to go on her first diet. Postcollege, after a brief stint as a diet-pill model, she became a health-and-fitness writer and editor working on celebrities' bestselling bios—sugarcoating the trials and tribulations celebs endure to stay thin. Needless to say, Kim has spent her life in pursuit of the ideal body.But what is the ideal body? Knowing she's far from alone in this struggle, Kim sets out to find the objective definition of this seemingly unattainable level of perfection. While on a fascinating and hilarious journey through time that takes her from obese Paleolithic cavewomen, to the bland menus that Drs. Graham and Kellogg prescribed to promote good morals in addition to good health, to the binge-drinking-prone regimen that caused William the Conqueror's body to explode at his own funeral, Kim ends up discovering a lot about her relationship with her own body.Warm, funny, and brutally honest, Beautiful Bodies is a blend of memoir and social history that will speak to anyone who's ever been caught in a power struggle with his or her own body—in other words, just about everyone.

What My Bones Know: A Memoir of Healing from Complex Trauma


Stephanie Foo - 2022
    . . . I want to have words for what my bones know."By age thirty, Stephanie Foo was successful on paper: She had her dream job as an award-winning radio producer at This American Life and a loving boyfriend. But behind her office door, she was having panic attacks and sobbing at her desk every morning. After years of questioning what was wrong with herself, she was diagnosed with complex PTSD--a condition that occurs when trauma happens continuously, over the course of years.Both of Foo's parents abandoned her when she was a teenager, after years of physical and verbal abuse and neglect. She thought she'd moved on, but her new diagnosis illuminated the way her past continued to threaten her health, relationships, and career. She found limited resources to help her, so Foo set out to heal herself, and to map her experiences onto the scarce literature about C-PTSD.In this deeply personal and thoroughly researched account, Foo interviews scientists and psychologists and tries a variety of innovative therapies. She returns to her hometown of San Jose, California, to investigate the effects of immigrant trauma on the community, and she uncovers family secrets in the country of her birth, Malaysia, to learn how trauma can be inherited through generations. Ultimately, she discovers that you don't move on from trauma--but you can learn to move with it.Powerful, enlightening, and hopeful, What My Bones Know is a brave narrative that reckons with the hold of the past over the present, the mind over the body--and examines one woman's ability to reclaim agency from her trauma.

Admissions: Life as a Brain Surgeon


Henry Marsh - 2017
    There have been exhilarating highs and devastating lows, but his love for the practice of neurosurgery has never wavered. Following the publication of his celebrated New York Times bestseller Do No Harm, Marsh retired from his full-time job in England to work pro bono in Ukraine and Nepal. In Admissions, he describes the difficulties of working in these troubled, impoverished countries and the further insights it has given him into the practice of medicine. Marsh also faces up to the burden of responsibility that can come with trying to reduce human suffering. Unearthing memories of his early days as a medical student and the experiences that shaped him as a young surgeon, he explores the difficulties of a profession that deals in probabilities rather than certainties and where the overwhelming urge to prolong life can come at a tragic cost for patients and those who love them. Reflecting on what forty years of handling the human brain has taught him, Marsh finds a different purpose in life as he approaches the end of his professional career and a fresh understanding of what matters to us all in the end.

The Neuroscientist Who Lost Her Mind: My Tale of Madness and Recovery


Barbara K. Lipska - 2018
    As the cancer progressed and was treated, the author experienced behavioral and cognitive symptoms connected to a range of mental disorders, including her professional specialty, schizophrenia. Lipska's family and associates were alarmed by the changes in her behavior, which she failed to acknowledge herself. Gradually, after a course of immunotherapy, Lipska returned to normal functioning, recalled her experience and, through her knowledge of neuroscience, identified the ways in which her brain changed during treatment. Lipska admits her condition was unusual; after recovery she was able to return to her research and resume her athletic training and compete in a triathalon. Most patients with similar brain cancers rarely survive to describe their ordeal. Lipska's memoir, coauthored with journalist McArdle, shows that strength and courage but also a encouraging support network are vital to recovery

Hundred Percent Chance


Robert K. Brown - 2020
    Perfect for fans of When Breath Becomes Air.In 1990, Robert K. Brown was an ordinary college student studying abroad in England when a series of unexpected and extraordinary events would change the trajectory of his life forever. Choosing to ignore ominous early symptoms, he was still troubled enough to write in his journal "just for the record ... I am frightened because things are happening to me that I can’t explain away."What follows is a race against time to return home to Seattle for months of chemotherapy, countless complications, and a search for as much normalcy as possible when you're forced to face your mortality at twenty."While memoirs of surviving disease are plenty, Hundred Percent Chance stands apart through its genuine humor and unflinching portrayal of both the physical and psychological struggles that accompany a diagnosis of disease. Brown avoids inspirational platitudes, instead demonstrating the need for perspective and perseverance in the face of illness."Every person Brown introduces, whether their role is significant or small, will leave a memorable impression on readers. This memoir's focus on the tiny moments that ultimately shape and define a life, are particularly poignant and engrossing" (The BookLife Prize).10% of all proceeds will benefit The Leukemia & Lymphoma Society.

Feast: True Love in and out of the Kitchen


Hannah Howard - 2018
    Eighteen years old and eager to learn, she’s invigorated by the manic energy and knife-sharp focus of the crew. By day Hannah explores the Columbia arts scene, struggling to find her place. By night she’s intoxicated by boxes of heady truffles and intrigued by the food industry’s insiders. She’s hungry for knowledge, success, and love, but she’s also ravenous because she hasn’t eaten more than yogurt and coffee in days.Hannah is hiding an eating disorder. The excruciatingly late nights, demanding chefs, bad boyfriends, and destructive obsessions have left a void inside her that she can’t fill. To reconcile her relationships with the food she worships and a body she struggles to accept, Hannah’s going to have to learn to nourish her soul.

Falling Into the Fire: A Psychiatrist's Encounters with the Mind in Crisis


Christine Montross - 2013
    A new mother is admitted with incessant visions of harming her child. A recent graduate, dressed in a tunic and declaring that love emanates from everything around him, is brought to A&E by his alarmed girlfriend. These are among the patients new physician Christine Montross meets during rounds at her hospital’s locked inpatient ward – and who we meet as she struggles to understand the mysteries of the mind, most especially when the tools of modern medicine are failing us. Beautifully written and deeply felt, Falling into the Fire is an intimate portrait of psychiatry and a moving reminder, in the words of the New York Times, of 'our fragile, shared humanity'

The Ghost in My Brain: How a Concussion Stole My Life and How the New Science of Brain Plasticity Helped Me Get it Back


Clark Elliott - 2015
    Overnight his life changed from that of a rising professor with a research career in artificial intelligence to a humbled man struggling to get through a single day. At times he couldn’t walk across a room, or even name his five children. Doctors told him he would never fully recover.  After eight years, the cognitive demands of his job, and of being a single parent, finally became more than he could manage. As a result of one final effort to recover, he crossed paths with two brilliant Chicago-area research-clinicians—one a specialized optometrist, the other a cognitive psychologist—working on the leading edge of brain plasticity. Within weeks the ghost of who he had been started to re-emerge. Remarkably, Elliott kept detailed notes throughout his experience, from the moment of impact to the final stages of his recovery, astounding documentation that is the basis of this fascinating book. The Ghost in My Brain gives hope to the millions who suffer from head injuries each year, and provides a unique and informative window into the world’s most complex computational device: the human brain.

There's a Hole in my Bucket: A Journey of Two Brothers


Royd Tolkien - 2021
    Tolkien.Having grown up on their great-grandfather’s stories, Royd Tolkien and his brother, Mike, have always enjoyed adventures. So when Mike is diagnosed with Motor Neurone Disease, the brothers decide to use the time they have left to tick off as much as possible from Mike’s bucket list, from remote camping in Norway to travelling through Royd’s beloved New Zealand.Yet, when Royd loses Mike, he discovers his brother had been writing another kind of bucket list: fifty things he wanted Royd to do after his death. His first task? Mike wants his mild-mannered brother to trip up on his way to the lectern to deliver his eulogy. What follows is a set of emotionally charged tests that will push Royd firmly out of his comfort zone.This is the story of Royd’s journey to accomplish a challenging, humorous, and often heart-breaking list of unknown tasks that chart the brothers’ lives from childhood to adulthood. But above all, it is a story of the sibling bond, of grief—and of treasuring every moment.

Loving Tiara: Memoir


Tiffani Goff - 2019
    At forty-five years old, my life’s mission was complete. If I died tomorrow, I would be proud of the life I lived.” - Loving Tiara Loving Tiara is a compelling memoir that will encompass your every thought, break your heart, fill you with hope, and leave you with a sense of awe. When Tiffani married the love of her life, Lou, after graduating from college, she assumed she would continue to live the affluent life she had always known, having grown up in Newport Beach, California. She never imagined she would soon be stalked by creditors, driving a car on the repossession list and forced to worry about providing basic necessities for her family, such as buying diapers and groceries. This increasingly desperate situation forced her to decide to return home to her parents with her baby and husband. After getting their life back on track, and with Tiffani in her final year of law school, they decided to have another baby. At eight months old, however, they discovered that their new daughter Tiara had Tuberous Sclerosis, a rare genetic disorder resulting in intractable epilepsy, developmental delay, chronic hospital admissions, and uncontrollable violent behaviors. So how did Tiffani cope with her new reality? She chose to fight. She challenged the doctors, battled the insurance companies, and refused to give up caring for Tiara even when her own life was at risk. The author’s story of unconditional love, unimaginable challenges, and, ultimately, triumph, is a compelling one, which will take hold of your heart and not let go. This memoir will, hopefully, inspire you to tackle fear, encourage you never to give up, and remind you always to trust your gut instincts.