Knocking on Heaven's Door: The Path to a Better Way of Death


Katy Butler - 2013
    It will inspire the necessary and difficult conversations we all need to have with loved ones as it illuminates a path to a better way of death.Like so many of us, award-winning writer Katy Butler always assumed her aging parents would experience healthy, active retire­ments before dying peacefully at home. Then her father suffered a stroke that left him incapable of easily finishing a sentence or showering without assistance. Her mother was thrust into full-time caregiving, and Katy became one of the 24 mil­lion Americans who help care for aging parents. In an effort to correct a minor and non–life threatening heart arrhythmia, doctors outfitted her father with a pacemaker. The device kept his heart beating but did nothing to prevent his slide into dementia, incontinence, near-muteness, and misery. After several years, he asked his wife for help, telling her, "I am living too long." Mother and daughter faced a series of wrench­ing moral questions: When does death cease being a curse and become a blessing? Where is the line between saving life and prolonging a dying? When is the right time to say to a doctor, "Let my loved one go"? When doctors refused to disable the pace­maker, sentencing her father to a protracted and agonizing death, Katy set out to understand why. Her quest had barely begun when her mother faced her own illness, rebelled against her doctors, refused open-heart surgery, and instead met death head-on. Knocking on Heaven's Door, a revolution­ary blend of memoir and investigative reporting, is the fruit of the Butler family's journey. With a reporter's skill, a poet's eye, and a daughter's love, Butler explores what happens when our terror of death collides with the tech­nological imperatives of modern medicine. Her provocative thesis is that advanced medicine, in its single-minded pursuit of maximum longevity, often creates more suffering than it prevents. Butler lays bare the tangled web of technology, medicine, and commerce that modern dying has become and chronicles the rise of Slow Medicine - a growing movement that promotes care over cure. Knocking on Heaven's Door is a visionary map through the labyrinth of a broken and morally adrift medical system. It will inspire the necessary and difficult conversations we all need to have with loved ones as it illuminates a path to a better way of death.

Happiness: The Crooked Little Road to Semi-Ever After


Heather Harpham - 2017
    Their magical interlude ends, full stop, when Heather becomes pregnant - Brian is sure he loves her, only he doesn't want kids. Heather returns to California to deliver their daughter alone, buoyed by family and friends. Mere hours after Gracie's arrival, Heather's bliss is interrupted when a nurse wakes her, "Get dressed, your baby is in trouble." This is not how Heather had imagined new motherhood – alone, heartsick, an unexpectedly solo caretaker of a baby who smelled "like sliced apples and salted pretzels" but might be perilously ill. Brian reappears as Gracie's condition grows dire; together Heather and Brian have to decide what they are willing to risk to ensure their girl sees adulthood. The grace and humor that ripple through Harpham's writing transform the dross of heartbreak and parental fears into a clear-eyed, warm-hearted view of the world. Profoundly moving and subtly written, Happiness radiates in many directions - new, romantic love; gratitude for a beautiful, inscrutable world; deep, abiding friendship; the passion a parent has for a child; and the many unlikely ways to build a family. Ultimately it's a story about love and happiness, in their many crooked configurations.

First, We Make the Beast Beautiful: A New Story About Anxiety


Sarah Wilson - 2017
    I bump along, in fits and starts, on a perpetual path to finding better ways for me and my mate, Anxiety, to get around. It's everything I do.Sarah Wilson—bestselling author and entrepreneur, intrepid solver of problems and investigator of how to live a better life—has helped over 1.2 million people across the world to quit sugar. She has also been an anxiety sufferer her whole life.In her new book, she directs her intense focus and fierce investigatory skills onto this lifetime companion of hers, looking at the triggers and treatments, the fashions and fads. She reads widely and interviews fellow sufferers, mental health experts, philosophers, and even the Dalai Lama, processing all she learns through the prism her own experiences.Sarah pulls at the thread of accepted definitions of anxiety, and unravels the notion that it is a difficult, dangerous disease that must be medicated into submission. Ultimately, she re-frames anxiety as a spiritual quest rather than a burdensome affliction, a state of yearning that will lead us closer to what really matters.Practical and poetic, wise and funny, this is a small book with a big heart. It will encourage the myriad sufferers of the world's most common mental illness to feel not just better about their condition, but delighted by the possibilities it offers for a richer, fuller life.

Hurry Down Sunshine


Michael Greenberg - 2008
    It begins with Sally’s visionary crack-up on the streets of Greenwich Village, and continues, among other places, in the out-of-time world of a Manhattan psychiatric ward during the city’s most sweltering months. “I feel like I’m traveling and traveling with nowhere to go back to,” Sally says in a burst of lucidity while hurtling away toward some place her father could not dream of or imagine. Hurry Down Sunshine is the chronicle of that journey, and its effect on Sally and those closest to her–her brother and grandmother, her mother and stepmother, and, not least of all, the author himself. Among Greenberg’s unforgettable gallery of characters are an unconventional psychiatrist, an Orthodox Jewish patient, a manic Classics professor, a movie producer, and a landlord with literary dreams. Unsentimental, nuanced, and deeply humane, Hurry Down Sunshine holds the reader in a mesmerizing state of suspension between the mundane and the transcendent.

Smoke Gets in Your Eyes & Other Lessons from the Crematory


Caitlin Doughty - 2014
    Thrown into a profession of gallows humor and vivid characters (both living and very dead), Caitlin learned to navigate the secretive culture of those who care for the deceased.Smoke Gets in Your Eyes tells an unusual coming-of-age story full of bizarre encounters and unforgettable scenes. Caring for dead bodies of every color, shape, and affliction, Caitlin soon becomes an intrepid explorer in the world of the dead. She describes how she swept ashes from the machines (and sometimes onto her clothes) and reveals the strange history of cremation and undertaking, marveling at bizarre and wonderful funeral practices from different cultures.Her eye-opening, candid, and often hilarious story is like going on a journey with your bravest friend to the cemetery at midnight. She demystifies death, leading us behind the black curtain of her unique profession. And she answers questions you didn’t know you had: Can you catch a disease from a corpse? How many dead bodies can you fit in a Dodge van? What exactly does a flaming skull look like?Honest and heartfelt, self-deprecating and ironic, Caitlin's engaging style makes this otherwise taboo topic both approachable and engrossing. Now a licensed mortician with an alternative funeral practice, Caitlin argues that our fear of dying warps our culture and society, and she calls for better ways of dealing with death (and our dead).

I Hardly Ever Wash My Hands: The Other Side of OCD


J.J. Keeler - 2012
    J.J. Keeler proves that. From her fears of the bomb in her teddy bear, to her fear of having run over innocent pedestrians, to her fear that she has killed her waiter, she tells her story in a way that allows us to see inside her disease and to see that she has not lost her sense of humor. This light-hearted yet serious and comforting look at OCD lets some light into the closet of sufferers. This book is for those with OCD, those who love someone with OCD, and for those who would like to know what it's like to live with the daily challenges of OCD.

The Spiral Staircase: My Climb Out of Darkness


Karen Armstrong - 2004
    After seven brutally unhappy years as a nun, she left her order to pursue English literature at Oxford. But convent life had profoundly altered her, and coping with the outside world and her expiring faith proved to be excruciating. Her deep solitude and a terrifying illness–diagnosed only years later as epilepsy–marked her forever as an outsider. In her own mind she was a complete failure: as a nun, as an academic, and as a normal woman capable of intimacy. Her future seemed very much in question until she stumbled into comparative theology. What she found, in learning, thinking, and writing about other religions, was the ecstasy and transcendence she had never felt as a nun. Gripping, revelatory, and inspirational, The Spiral Staircase is an extraordinary account of an astonishing spiritual journey.

House of Sticks


Ly TranLy Tran - 2021
    Ly’s father, a former lieutenant in the South Vietnamese army, spent nearly a decade as a POW, and their resettlement is made possible through a humanitarian program run by the US government. Soon after they arrive, Ly joins her parents and three older brothers sewing ties and cummerbunds piece-meal on their living room floor to make ends meet. As they navigate this new landscape, Ly finds herself torn between two worlds. She knows she must honor her parents’ Buddhist faith and contribute to the family livelihood, working long hours at home and eventually as a manicurist alongside her mother at a nail salon in Brooklyn that her parents take over. But at school, Ly feels the mounting pressure to blend in. A growing inability to see the blackboard presents new challenges, especially when her father forbids her from getting glasses, calling her diagnosis of poor vision a government conspiracy. His frightening temper and paranoia leave a mark on Ly’s sense of self. Who is she outside of everything her family expects of her? An “unsentimental yet deeply moving examination of filial bond, displacement, war trauma, and poverty” (NPR), House of Sticks is a timely and powerful portrait of one girl’s coming-of-age and struggle to find her voice amid clashing cultural expectations.

The Spectrum of Hope: An Optimistic and New Approach to Alzheimer's Disease and Other Dementias


Gayatri Devi - 2017
    And imagine how that would change the outlook of the 5 million Americans who suffer from Alzheimer’s disease and other dementias, not to mention their families, loved ones, and caretakers. A neurologist who’s been specializing in dementia and memory loss for more than 20 years, Dr. Gayatri Devi rewrites the story of Alzheimer’s by defining it as a spectrum disorder—like autism, Alzheimer’s is a disease that affects different people differently. She encourages people who are worried about memory impairment to seek a diagnosis, because early treatment will enable doctors and caregivers to manage the disease more effectively through drugs and other therapies. Told through the stories of Dr. Devi’s patients, The Spectrum of Hope is the kind of narrative medical writing that grips the reader, humanizes the science, and offers equal parts practical advice and wisdom with skillful ease. But beyond the pleasures of great reading, it’s a book that offers real hope. Here are chapters on how to maintain independence and dignity; how to fight depression, anxiety, and apathy; how to communicate effectively with a person suffering from dementia. Plus chapters on sexuality, genetics, going public with the diagnosis, even putting together a bucket list—because through her practice, Dr. Devi knows that the majority of Alzheimer’s patients continue to live and work in their communities. They babysit their grandkids, drive to the store (or own the store), serve their clients, or otherwise live fulfilling lives. That’s news that 5 million people are waiting to hear.

I Am, I Am, I Am: Seventeen Brushes with Death


Maggie O'Farrell - 2017
    The childhood illness that left her bedridden for a year, which she was not expected to survive. A teenage yearning to escape that nearly ended in disaster. An encounter with a disturbed man on a remote path. And, most terrifying of all, an ongoing, daily struggle to protect her daughter--for whom this book was written--from a condition that leaves her unimaginably vulnerable to life's myriad dangers.Seventeen discrete encounters with Maggie at different ages, in different locations, reveal a whole life in a series of tense, visceral snapshots. In taut prose that vibrates with electricity and restrained emotion, O'Farrell captures the perils running just beneath the surface, and illuminates the preciousness, beauty, and mysteries of life itself.

Wish I Could Be There: Notes from a Phobic Life


Allen Shawn - 2007
    He avoids taking subways, using elevators, or crossing bridges—in short, he is agoraphobic, which means he is afraid of both public spaces and of any form of isolation. part memori, part scientific inquiry, part meditation, Wish I Could Be There is a brave book about the experience of being afraid.The search to understand his own crippling condition led Shawn into the world of people who study brains and human behavior; at the same time, he looked back to clues from his own childhood. He grew up in one of America's premier literary families; his father was William Shawn, editor of The New Yorker for thirty-five years, and his brother is the distinguished playwright and actor Wallace Shawn. He also has a twin sister who is autistic and who was sent to live in a special home when they were eight. His father led a double life that introduced strict taboos into the household.As he looks at his own life for the sources of his phobias, Shawn also talks to professionals who are trying to decode the ways the human brain—and mind—works. These include researchers who are mapping the physiology of fear and psychologists and psychiatrists still wrestling with the mystery of how we form and change our habits of thought and behavior. Shawn deftly moves back and forth between science and personal history as he tries to solve the psychological and biological puzzles that have plagued him for so long. In doing so, he offers poignant insights into the role of pain, the nature of fear, and the definition of normality. We can all find ourselves in some part of his story.Allen Shawn's droll, probing, and honest book explores the mystery of the many ways we become who we are, whether through our upbringing, our genetic makeup, or our own choices. From inside the isolation of fear, he confronts the universal struggle to face our demons.

Inferno: A Memoir of Motherhood and Madness


Catherine Cho - 2020
    Before the trip’s end, she develops psychosis. In desperation, her husband admits her to a nearby psychiatric hospital, where she begins the hard work of rebuilding her identity.In this memoir Catherine reconstructs her sense of self, starting with her childhood as the daughter of Korean immigrants, moving through a traumatic past relationship, and on to the early years of her courtship with and marriage to her husband, James. She interweaves these parts of her past with an immediate recounting of the days she spent in the ward.

The Living End: A Memoir of Forgetting and Forgiving


Robert Leleux - 2012
    When JoAnn began exhibiting signs of Alzheimer’s, she’d been estranged from her daughter, Robert’s mother Jessica, for decades. As her disease progressed, JoAnn lost most of her memories, but she also forgot her old wounds and anger. She became a happy, gentler person who was finally able to reach out to her daughter in what became a strangely life-affirming experience, an unexpected blessing that gave a divided family a second chance.

Mill Town: Reckoning with What Remains


Kerri Arsenault - 2020
    For over 100 years the community orbited around a paper mill that employs most townspeople, including three generations of Arsenault’s own family. Years after she moved away, Arsenault realized the price she paid for her seemingly secure childhood. The mill, while providing livelihoods for nearly everyone, also contributed to the destruction of the environment and the decline of the town’s economic, physical, and emotional health in a slow-moving catastrophe, earning the area the nickname “Cancer Valley.” Mill Town is an personal investigation, where Arsenault sifts through historical archives and scientific reports, talks to family and neighbors, and examines her own childhood to illuminate the rise and collapse of the working-class, the hazards of loving and leaving home, and the ambiguous nature of toxics and disease. Mill Town is a moral wake-up call that asks, Whose lives are we willing to sacrifice for our own survival?

Aftershocks


Nadia Owusu - 2021
    Nadia Owusu grew up all over the world—from Rome and London to Dar-es-Salaam and Kampala. When her mother abandoned her when she was two years old, the rejection caused Nadia to be confused about her identity. Even after her father died when she was thirteen and she was raised by her stepmother, she was unable to come to terms with who she was since she still felt motherless and alone. When Nadia went to university in America when she was eighteen she still felt as if she had so many competing personas that she couldn’t keep track of them all without cracking under the pressure of trying to hold herself together. A powerful coming-of-age story that explores timely and universal themes of identity, Aftershocks follows Nadia’s life as she hauls herself out of the wreckage and begins to understand that the only ground firm enough to count on is the one she writes into existence.