Book picks similar to
Beautiful Eyes: A Father Transformed by Paul Austin
non-fiction
parenting
disability
biography-memoir
Reasonable People
Ralph James Savarese - 2007
Part love story, part political manifesto about "living with conviction in a cynical time," the memoir traces the development of DJ, a boy written off as profoundly retarded and now, six years later, earning all "A's" at a regular school. Neither a typical saga of autism nor simply a challenge to expert opinion, Reasonable People illuminates the belated emergence of a self in language. And it does so using DJ's own words, expressed through the once discredited but now resurgent technique of facilitated communication. In this emotional page-turner, DJ reconnects with the sister from whom he was separated, begins to type independently, and explores his experience of disability, poverty, abandonment, and sexual abuse. "Try to remember my life," he says on his talking computer, and remember he does in the most extraordinarily perceptive and lyrical way.Asking difficult questions about the nature of family, the demise of social obligation, and the meaning of neurological difference, Savarese argues for a reasonable commitment to human possibility and caring.
Memoir of a Debulked Woman: Enduring Ovarian Cancer
Susan Gubar - 2012
Her memoir mines the deepest levels of anguish and devotion as she struggles to come to terms with her body’s betrayal and the frightful protocols of contemporary medicine. She finds solace in the abiding love of her husband, children, and friends while she searches for understanding in works of literature, visual art, and the testimonies of others who suffer from various forms of cancer.Ovarian cancer remains an incurable disease for most of those diagnosed, even those lucky enough to find caring and skilled physicians. Memoir of a Debulked Woman is both a polemic against the ineffectual and injurious medical responses to which thousands of women are subjected and a meditation on the gifts of companionship, art, and literature that sustain people in need.
Bobblehead Dad: 25 Life Lessons I Forgot I Knew
Jim Higley - 2011
Jim Higley was a forty-year-old bobblehead. Just like those collectible figurines with oversized, bouncy heads, he'd put on a smiling face and bobble through his hectic, overflowing days.Higley's bobbling came to a screeching halt with the diagnosis of cancer, surgery, and a summer of healing. More than a cancer story, however, Bobblehead Dad puts you in a front row seat as the author discovers the illuminating parallels between events in his childhood and his adulthood. Higley, whose weekly fatherhood column appears in the Chicago Tribune's TribLocal, unwraps poignant lessons from his family history with rich, vivid detail. His story reveals meaning in simple moments and the people who fill them--including the surprise discovery of his most important lesson, which had been quietly waiting for over thirty years.
Rattled!: A Memoir
Christine Coppa - 2009
Everything in twenty-six-year-old Christine’s life was going as planned—great friends, a promising job as a magazine assistant, New York City at her feet . . . even a cute guy. Until the fateful day she realizes she’s pregnant by said cute guy, whom she’d only been dating for a few months. The next thing you know, he bails and Christine is left to wonder, What now? Trading Manhattan for the suburbs, skinny jeans for sweatpants, and all-nighters with the girls for 3 a.m. feedings with a restless infant, Christine chooses to live a life that honors what’s important to her—and finds strength she didn’t know she had in the process.
The Diving Bell and the Butterfly
Jean-Dominique Bauby - 1997
In my case, blinking my left eyelid is my only means of communication.’In December 1995, Jean-Dominique Bauby, editor-in-chief of French ‘Elle’ and the father of two young children, suffered a massive stroke and found himself paralysed and speechless, but entirely conscious, trapped by what doctors call ‘locked-in syndrome’. Using his only functioning muscle – his left eyelid – he began dictating this remarkable story, painstakingly spelling it out letter by letter.His book offers a haunting, harrowing look inside the cruel prison of locked-in syndrome, but it is also a triumph of the human spirit.
Mortuary Confidential: Undertakers Spill the Dirt
Todd Harra - 2010
And with a thump, down came Father Iggy.From shoot-outs at funerals to dead men screaming and runaway corpses, undertakers have plenty of unusual stories to tell--and a special way of telling them.In this macabre and moving compilation, funeral directors across the country share their most embarrassing, jaw-dropping, irreverent, and deeply poignant stories about life at death's door. Discover what scares them and what moves them to tears. Learn about rookie mistakes and why death sometimes calls for duct tape.Enjoy tales of the dearly departed spending eternity naked from the waist down and getting bottled and corked--in a wine bottle. And then meet their families--the weepers, the punchers, the stolidly dignified, and the ones who deliver their dead mother in a pickup truck.If there's one thing undertakers know, it's that death drives people crazy. These are the best "bodies of work" from America's darkest profession."Sick, funny, and brilliant! I love this book." --Jonathan Maberry
All Gone
Alex Witchel - 2012
Just past seventy, Alex Witchel’s smart, adoring, ultracapable mother began to exhibit undeniable signs of dementia. Her smart, adoring, ultracapable daughter reacted as she’d been raised: If something was broken, they would fix it. But as medical reality undid that hope, and her mother continued the torturous process of disappearing in plain sight, Witchel retreated to the kitchen, trying to reclaim her mother at the stove by cooking the comforting foods of her childhood: “Is there any contract tighter than a family recipe?” Reproducing the perfect meat loaf was no panacea, but it helped Witchel come to terms with her predicament, the growing phenomenon of “ambiguous loss ”— loss of a beloved one who lives on. Gradually she developed a deeper appreciation for all the ways the parent she was losing lived on in her, starting with the daily commandment “Tell me everything that happened today” that started a future reporter and writer on her way. And she was inspired to turn her experience into this frank, bittersweet, and surprisingly funny account that offers true balm for an increasingly familiar form of heartbreak.
Unsettled
Rosaleen McDonagh - 2021
Unsettled explores racism, ableism, abuse and resistance as well as the bonds of community, family and friendship. As an Irish Traveller writing from a feminist perspective, McDonagh’s essays are rich and complex, raw and honest, and, above all else, uncompromising.Praise for UnsettledDon’t read this memoir in sorrow and outrage, read it because Rosaleen McDonagh is so proud, smart and ingenious, she will make you feel more properly alive. Beautifully written, this book beats back the darkness. It brings us all further on. — Anne EnrightMoving and eloquent, this collection is both the story of one woman’s life and a work of profound literary activism. — Emilie PineRosaleen’s story is her story. It’s a very important story and she has a right to tell it. Rosaleen demonstrates, contrary to some settled people’s opinion, that our community is matriarchal, our mothers are so resourceful, and we are not victims. The book is a testimony to the importance of identity and belonging. — Anne BurkeLike James Baldwin before her, this work is a ferociously honest exploration of the intricacies of racism, identity, sexuality, disability, grief, sensuality and marginalisation. It is also a beautiful piece of prose; honest and difficult and deeply moving. This book sees Rosaleen McDonagh masterfully taking all the parts of her life and fitting them together brilliantly for us. A must read. — Mark O’HalloranEmotive, honest and raw. Rosaleen McDonagh takes us on a journey of self acceptance, a journey that sees her face challenging obstacles and setbacks; as well as meeting friends and allies who help her to carve out a place in which she belongs. Unsettled is not only the recount of personal experiences but an authentic glimpse of Traveller life and culture as well as Rosaleen’s very sense of identity. — Michael Power
Inconceivable: A Medical Mistake, the Baby We Couldn't Keep, and Our Choice to Deliver the Ultimate Gift
Carolyn Savage - 2011
An unthinkable situation . . . you’re pregnant with the wrong baby. You can terminate, but you can’t keep him. What choice would you make?Carolyn and Sean Savage had been trying to expand their family for years. When they underwent an IVF transfer in February 2009, they knew it would be their last chance. If they became pregnant, they would celebrate the baby as an answer to their prayers. If not, they would be grateful for the family they had and leave their fertility struggles behind forever.They never imagined a third option. The pregnancy test was positive, but the clinic had transferred the wrong embryos. Carolyn was pregnant with someone else’s baby.The Savages faced a series of heartbreaking decisions: terminate the pregnancy, sue for custody, or hand over the infant to his genetic parents upon delivery. Knowing that Carolyn was carrying another couple’s hope for a baby, the Savages wanted to do what they prayed the other family would do for them if the situation was reversed. Sean and Carolyn Savage decided to give the ultimate gift, the gift of life, to a family they didn’t know, no strings attached.Inconceivable provides an inside look at how modern medicine, which creates miracles daily, could allow such a tragic mistake, and the many legal ramifications that ensued with both the genetic family and the clinic. Chronicling their tumultuous pregnancy and its aftermath, which tested the Savage’s faith, their relationship to their church, and their marriage, Inconceivable is ultimately a testament to love. Carolyn and Sean loved this baby, making it impossible for them to imagine how they could give him life and then give him away.In the end, Inconceivable is a story of what it is to be a parent, someone who nurtures a life, protects a soul, only to release that child into the world long before you’re ready to let him go.
Inside the Dementia Epidemic: A Daughter's Memoir
Martha Stettinius - 2012
Silver medal winner in the Health/Medical category of the 2013 Readers' Favorite Book Award. Finalist, 2013 Eric Hoffer Book Awards. Finalist, 2013 Indie Excellence Book Awards. Winner of an honorable mention in the category of Life Stories from the 20th Annual Writers Digest Book Awards.The unflinching and hopeful story of one woman's journey into family caregiving, and a vivid overview of the challenges of Alzheimer's care. Winner of an Honorable Mention in the category of Life Stories from the 20th Annual Writer's Digest Book Awards.With the passion of a committed daughter and the fervor of a tireless reporter, Martha Stettinius weaves this compelling story of caregiving for her demented mother with a broad exploration of the causes of Alzheimer's disease, means of treating it, and hopes for preventing it. She shares the lessons she's learned over seven years of caregiving at home, in assisted living, a rehabilitation center, a "memory care" facility for people living with dementia, and a nursing home--lessons not just about how to navigate the system, but how caregiving helped the author to overcome her challenging relationship with her mother, and how she's learned to nurture her mother's spirit through the most advanced stages of dementia.One in 8 people over age 65 has Alzheimer's disease, and nearly fifty percent of those over age 85. As baby boomers age, and we all live longer, most of us will know someone with Alzheimer's disease or another dementia, or care for someone with dementia. Alzheimer's disease is the fifth-leading cause of death in the United States for those age 65 and older, but the only one in the top 10 without a means of prevention, a way to slow its progression, or a cure. In the United States, over 15 million family caregivers provide 17.4 billion hours of unpaid care to family members and friends with Alzheimer's disease and other dementias. Sixty percent of family caregivers report feeling extreme stress.This memoir is not a lament, however; it is guide, and, the author hopes, a means to soften the blow upon all of us. In the course of the author's experience, she discovered what could have been done earlier to help her mother, and what can be done now to help us all. Ms. Stettinius's greatest gift to readers is that of optimism--that caregiving can deepen love, that dementia can be fought, and that families can be strengthened. Her book is appealing, enlightening, and inspiring.Through its intimate scenes and skillful storytelling, Inside the Dementia Epidemic is a call to action for better dementia care, more funding for dementia research, and more support for family caregivers. In the appendices, the author shares facts she wishes she had known years ago, including how to get a diagnosis of Alzheimer's disease; what medications are approved to treat the symptoms of Alzheimer's disease; risk factors for dementia, and possible preventive measures; promising explorations in dementia research; the link between insulin resistance, diabetes, and Alzheimer's disease; the benefits of "memory consultations" and early diagnosis; and national and international movements for more dementia research and better care.Inside the Dementia Epidemic: A Daughter's Memoir includes source notes, resources for caregivers, and an index.
Old Before My Time: Hayley Okines' Life with Progeria
Hayley Okines - 2011
Born with the rare genetic condition progeria, she ages eight times faster than the average person. In medical terms her body is like that of a 100-year-old woman. Yet she faces her condition with immense courage and a refreshing lack of self-pity. In Old Before My Time, Hayley and her mum Kerry reflect on her unusual life. Share Hayley's excitement as she travels the world meeting her pop heroes Kylie, Girls Aloud and Justin Bieber and her sadness as she loses her best friend to the disease at the age of 11. Now as she passes the age of 13 -- the average life expectancy for a child with progeria -- Hayley talks frankly about her hopes for the future and her pioneering drug trials in America which could unlock the secrets of ageing for everyone...
Chanel Bonfire
Wendy Lawless - 2013
But that didn't stop her from wanting one.Georgann Rea didn't bake cookies or go to PTA meetings; she wore a mink coat and always had a lit Dunhill plugged into her cigarette holder. She had slept with too many men, and some women, and she didn't like dogs or children. Georgann had the ice queen beauty of a Hitchcock heroine and the cold heart to match.In this evocative, darkly humorous memoir, Wendy deftly charts the highs and lows of growing up with her younger sister in the shadow of an unstable, fabulously neglectful mother. Georgann, a real-life Holly Golightly who constantly reinvents herself as she trades up from trailer-park to penthouse, suffers multiple nervous breakdowns and suicide attempts, while Wendy tries to hide the cracks in their fractured family from the rest of the world.Chanel Bonfire depicts a childhood blazed through the refined aeries of The Dakota and the swinging townhouses of London, while the girls' beautiful but damned mother desperately searches for glamour and fulfillment. Ultimately, they must choose between living their own lives and being their mother's warden.
Midwife: A Calling
Peggy Vincent - 2015
When Peggy Vincent first found herself holding a naked baby in her bare hands as a student nurse in 1962, she never dreamed the path her life would take as a result of that accidental catch. Countless births followed. Hippies, lawyers, teenagers, welfare moms, marijuana growers, smugglers, spiritualists, Orthodox Jews, neurologists, Christian Scientists, Muslims, the rich and the poor...this list scratches only the surface of her diverse clientele. Told with warmth, humor, and sincerity, these tales will resonate with all those who remain as enchanted as Peggy by the unique art of giving birth.
Dirty Secret: A Daughter Comes Clean About Her Mother's Compulsive Hoarding
Jessie Sholl - 2010
Because if my mother is one of those crazy junk-house people, then what does that make me?When her divorced mother was diagnosed with cancer, New York City writer Jessie Sholl returned to her hometown of Minneapolis to help her prepare for her upcoming surgery and get her affairs in order. While a daunting task for any adult dealing with an aging parent, it's compounded for Sholl by one lifelong, complex, and confounding truth: her mother is a compulsive hoarder. Dirty Secret is a daughter's powerful memoir of confronting her mother's disorder, of searching for the normalcy that was never hers as a child, and, finally, cleaning out the clutter of her mother's home in the hopes of salvaging the true heart of their relationship before it's too late.Growing up, young Jessie knew her mother wasn't like other mothers: chronically disorganized, she might forgo picking Jessie up from kindergarten to spend the afternoon thrift store shopping. Now, tracing the downward spiral in her mother's hoarding behavior to the death of a long-time boyfriend, she bravely wades into a pathological sea of stuff: broken appliances, moldy cowboy boots, twenty identical pairs of graying bargain-bin sneakers, abandoned arts and crafts, newspapers, magazines, a dresser drawer crammed with discarded eyeglasses, shovelfuls of junk mail . . . the things that become a hoarder's treasures. With candor, wit, and not a drop of sentimentality, Jessie Sholl explores the many personal and psychological ramifications of hoarding while telling an unforgettable mother-daughter tale.
Love Works Like This: Moving from One Kind of Life to Another
Lauren Slater - 2002
Slater, career-oriented and willfully autonomous, charts her own personal journey and decision-making process, starting with a list of the pros and cons, about having a child. The cons are many, the pros only one: “learning a new kind of love.” But what will that love look like? How does one reconcile the needs of the self with the demands of others? How do couples go from the dyad that is a marriage to the triad that is a family? And how can Slater adjust to losing precious control of her own carefully developed life?Slater’s complex biological and psychological history also lies at the core of this unique and yet strikingly universal story. One of the first people ever to take Prozac, she chronicles the impossibly conflicting advice regarding pregnancy and antidepressants, and explains the rationale behind her eventual decision to stop taking the medication during her first trimester. This is Slater’s first encounter with self-sacrifice, and for her a crossroad at which modern medicine and basic human love meet. Love Works Like This is a richly written book by “an enormously poetic and ebullient writer” (Elle magazine), an author who writes with “beauty and bravery” (Los Angeles Times Book Review) about falling in love, about growing into the ability to put someone else’s life ahead of your own, and about the rich rewards we can draw from the courage to exchange one kind of happy life for another.