As he becomes a toddler and they navigate the often rigid and prescriptive world of therapy, Cohen is unsettled by the evaluations they undergo: At home, Ezra is playfully expressive, sharing profound, touching moments of connection and intimacy with his mother and other family members, but in therapy he is pathologized, prodded to behave in ways that undermine his unique expression of autism.It soon becomes clear that more is at stake than just Ezra’s well-being; Cohen and her marriage are suffering as well. Ezra’s differentness, and the strain of pursuing varied therapies, takes a toll on the family—Cohen’s husband grows depressed and she pursues an affair—all as she tries to help others recognize and embrace Ezra’s uniqueness rather than force him to behave outside his comfort level. It isn’t until they abandon the expected, prescriptive notions about love, marriage, and individuality that they are able to come back together as two parents who fiercely love their little boy.Powerful and eye-opening, Seeing Ezra is an inspirational chronicle of a mother’s struggle to protect her son from a system that seeks to compartmentalize and “fix” him, and of her journey toward accepting and valuing him for who he is—just as he is.

    But after falling backwards into the specialty, Dr. Fulkerson found neurosurgery to be a field filled with joy, sadness, a little humor, and courageous and inspiring patients.In an honest and compelling retelling of his long and winding road to train and then practice as a pediatric neurosurgeon, Dr. Fulkerson guides others through his journey from medical school to service on a small military base, through residency training, and finally, to a practice in a highly specialized children's hospital. The journey reveals the dramatic swings of emotions experienced by both patients and doctors in an increasingly hostile medical environment. Dr. Fulkerson also shares stories of dedicated professors who train medical students and resident surgeons to care for the tiniest neurosurgical patients.Nothing Good Happens at ... The Baby Hospital offers a compelling glimpse into the joys, tragedies, and hopeful moments that surround the highly specialized and sometimes silly world of pediatric neurosurgery.

    She had an adoring husband, a beautiful two-year-old son, a sunny Manhattan apartment, and a position as a tenured professor at Columbia University. Everything changed with the birth of her second child, Henry. Just minutes after he was born, doctors told her that Henry had Down syndrome, and she knew that her life would never be the same. In this honest, self-critical, and surprisingly funny book, Adams chronicles the first three years of Henry’s life and her own transformative experience of unexpectedly becoming the mother of a disabled child. A highly personal story of one family’s encounter with disability, Raising Henry is also an insightful exploration of today’s knotty terrain of social prejudice, disability policy, genetics, prenatal testing, medical training, and inclusive education. Adams untangles the contradictions of living in a society that is more enlightened and supportive of people with disabilities than ever before, yet is racing to perfect prenatal tests to prevent children like Henry from being born. Her book is gripping, beautifully written, and nearly impossible to put down. Once read, her family’s story is impossible to forget.

    The author of the popular blog Enjoying the Small Things—named The Bump’s Best Special Needs Blog and The Blog You’ve Learned the Most From in the 2010 BlogLuxe Awards—Kelle Hampton interweaves lyrical prose and stunning four-color photography as she recounts the unforgettable story of the first year in the life of her daughter Nella, who has Down syndrome. Poignant, eye-opening, and heart-soaring, Hampton’s Bloom is ultimately about embracing life and really living it.

    Now she offers her most personal and most deeply felt memoir yet as she embarks on her greatest, most terrifying, most rewarding endeavor of all….A good mother, writes Jeanne Marie Laskas in her latest report from Sweetwater Farm, would have bought a house in the suburbs with a cul-de-sac for her kids to ride bikes around instead of a ramshackle house in the middle of nowhere with a rooster. With the wryly observed self-doubt all mothers and mothers-to-be will instantly recognize, Laskas offers a poignant and laugh-out-loud-funny meditation on that greatest–and most impossible–of all life’s journeys: motherhood.What is it, she muses, that’s so exhausting about being a mom? You’d think raising two little girls would be a breeze compared to dealing with the barely controlled anarchy of “attack” roosters, feuding neighbors, and a scheme to turn sheep into lawn mowers on the fifty-acre farm she runs with her bemused husband Alex. But, as any mother knows, you’d be wrong.From struggling with the issues of race and identity as she raises two children adopted from China to taking her daughters to the mall for their first manicures, Jeanne Marie captures those magic moments that make motherhood the most important and rewarding job in the world–even if it’s never been done right. For, as she concludes in one of her three a.m. worry sessions, feeling like a bad mother is the only way to know you’re doing your job.Whether confronting Sasha’s language delay, reflecting on Anna’s devotion to a creepy backwards-running chicken, feeling outclassed by the fabulous homeroom moms, or describing the rich, secret language each family shares, these candid observations from the front lines of parenthood are filled with love and laughter–and radiant with the tough, tender, and timeless wisdom only raising kids can teach us.

    Once they knew why she couldn’t speak, they needed to determine how to help her learn. They didn’t know that Schuyler was going to teach them a thing or two about fearlessness, tenacity, and joy.Schuyler’s Monster is more than the memoir of a parent dealing with a child’s disability. It is the story of the relationship between a unique and ethereal little girl floating through the world without words, and her earthbound father who struggles with whether or not he is the right dad for the job. It is the story of a family seeking answers to a child’s dilemma, but it is also a chronicle of their unique relationships, formed without traditional language against the expectations of a doubting world. It is a story that has equal measure of laughter and tears. Ultimately, it is the tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs. Schuyler can now communicate through assistive technology, and continues to be the source of her father's inspiration, literary and otherwise.

    Her father served in the military, and she traveled the world with him and her family. His assignments took them to Alaska, Virginia, Japan, Texas, and Germany, as part of the US Army's responsibilities in policing the world. This candid memoir recounts her family's life in new places and cultures following World War II. What was it like to be a child living in Japan seven years after the war? What was it like to be a thirteen-year-old living in Germany twelve years after the war? What was it like to grow up moving between cultures? This is the story of one family bound to service in the military at a time when the world was being redefined. For a young girl, it was the adventure of a lifetime as she learned the secrets of finding her own way in that new world. The author's story was informed by reading her father's diary, which offers up intimate and candid insight into the life of a typical soldier in a time of war. His entries describe his time serving aboard a battleship built for 800 soldiers--but carrying 6,000 to war. His tales--told from the perspective of a young soldier in southern England, Wales, and Scotland from 1943 to 1945--are glimpses into a life many will never know firsthand.

     So begins Victor Rivas Rivers in this powerful chronicle of his escape from the war zone of domestic violence—too often regarded as a “private family matter”—and his journey toward independence, recovery, and renewal. In A Private Family Matter, Victor recalls his days as an angry youth living under the rule and wrath of his father. A Cuban immigrant, Victor's dad was nicknamed El Ciclón for his tempestuous temperament, which led him not only to beat his wife but to abuse—and eventually kidnap—his own children. How Victor managed to seek help for his family and criminal punishment for his father, overcome his demons and learn to love himself, and share his experience with other victims and survivors of domestic abuse is at the heart of this profound and affecting memoir.

    The next morning, things take a sharp turn as she’s led from work to the emergency room. By the end of the week, a neurologist delivers a devastating prognosis: Sarah suffered a traumatic brain injury that has caused her IQ to plummet, with no hope of recovery. Her brain has irrevocably changed.Afraid of judgment and deemed no longer fit for work, Sarah isolates herself from the outside world. She spends months at home, with her dogs as her only source of companionship, battling a personality she no longer recognizes and her shock and rage over losing simple functions she’d taken for granted. Her life is consumed by fear and shame until a chance encounter gives Sarah hope that her brain can heal. That conversation lights a small flame of determination, and Sarah begins to push back, painstakingly reteaching herself to read and write, and eventually reentering the workforce and a new, if unpredictable, life.In this highly intimate account of devastation and renewal, Sarah pulls back the curtain on life with traumatic brain injury, an affliction where the wounds are invisible and the lasting effects are often misunderstood. Over years of frustrating setbacks and uncertain triumphs, Sarah comes to terms with her disability and finds love with a woman who helps her embrace a new, accepting sense of self.

    Doctors predicted that she would never intellectually develop beyond the abilities of a small child. Although she made some progress after years of intensive behavioral and communication therapy, Carly remained largely unreachable. Then, at the age of ten, she had a breakthrough. While working with her devoted therapists Howie and Barb, Carly reached over to their laptop and typed in "HELP TEETH HURT," much to everyone's astonishment. This was the beginning of Carly's journey toward self-realization. Although Carly still struggles with all the symptoms of autism, which she describes with uncanny accuracy and detail, she now has regular, witty, and profound conversations on the computer with her family, her therapists, and the many thousands of people who follow her via her blog, Facebook, and Twitter. In Carly's Voice, her father, Arthur Fleischmann, blends Carly's own words with his story of getting to know his remarkable daughter. One of the first books to explore firsthand the challenges of living with autism, it brings readers inside a once-secret world and in the company of an inspiring young woman who has found her voice and her mission.

    This "rueful, riveting, piercingly funny" (Julia Cameron) book is written by a Harvard graduate--but it tells a story in which hearts trump brains every time. It's a tale about mothering a Down syndrome child that opts for sass over sap, and it's a book of heavenly visions and inexplicable phenomena that's as down-to-earth as anyone could ask for. This small masterpiece is Martha Beck's own story--of leaving behind the life of a stressed-out superachiever, opening herself to things she'd never dared consider, meeting her son for (maybe) the first time...and "unlearn[ing] virtually everything Harvard taught [her] about what is precious and what is garbage.""Beck [is] very funny, particularly about the most serious possible subjects--childbirth, angels and surviving at Harvard." --New York Times Book Review"Immensely appealing...hooked me on the first page and propelled me right through visions and out-of-body experiences I would normally scoff at." --Detroit Free Press"I challenge any reader not to be moved by it." --Newsday"Brilliant." --Minneapolis Star-Tribune

    The acclaimed book in which a natural-born storyteller relays the vital lessons and inspiration he has drawn from life's most perfect teachers: children.

    Then it took her fifteen years to resolve to go ahead and have just one. One Good Egg is a funny, warmhearted, twenty-first century tale of making a family, illustrated with hundreds of her witty cartoons, clippings, charts, and pseudographs.When Suzy Becker finally decided she had everything she needed--the home, the savings, the friends, the family, and the gumption--to have a baby alone, she was thirty-nine, which catapulted her into the ranks of the six million other American women who need medical help to conceive. In One Good Egg, she chronicles her travels through the maze of fertility treatments, considering and reconsidering how far she was willing to go and inwardly convinced none of it would ever work. Five months after she learned she was pregnant, Suzy got married.While none of us can adequately plan or prepare for certain realities like giving birth or parenthood, Suzy Becker's One Good Egg reminds us we are not alone on our journeys.

    The last thing his parents expected was to see him come alive.What followed was a remarkable tale of inspiration, heartbreak, dedication and joy as Benjamin's family relocated from Seattle to Orlando in order to capture that magic and put it to practical use. Amidst the daily challenges of life for an autistic child, Benjamin's passion for one particular theme park attraction would lead his family on a breathtaking journey of hope and discovery.How many rides does it take for an ending to become a new beginning?

    But what if the person receiving the diagnosis--young, physically fit, poised for a bright future--is himself a doctor?At thirty-one David biro has just completed his residency and joined his father's successful dermatology practice. Struck with a rare blood disease that eventually necessitates a bone marrow transplant, Biro relates with honesty and courage the story of his most transforming journey. He is forthright about the advantages that his status as a physician may have afforded him; and yet no such advantage can protect him from the anxiety and doubt brought on by his debilitating therapies. The pressures that Biro's wild "one hundred days" brings to bear on his heretofore well-established identity as a caregiver are enormous--as is the power of this riveting story of survival.