Book picks similar to
Loud Hands: Autistic People, Speaking by Julia Bascom
autism
non-fiction
nonfiction
disability
Sickened: The Memoir of a Munchausen by Proxy Childhood
Julie Gregory - 2003
Just twelve, she’s tall, skinny, and weak. It’s four o’clock, and she hasn’t been allowed to eat anything all day. Her mother, on the other hand, seems curiously excited. She's about to suggest open-heart surgery on her child to "get to the bottom of this." She checks her teeth for lipstick and, as the doctor enters, shoots the girl a warning glance. This child will not ruin her plans.SickenedFrom early childhood, Julie Gregory was continually X-rayed, medicated, and operated on—in the vain pursuit of an illness that was created in her mother’s mind. Munchausen by proxy (MBP) is the world’s most hidden and dangerous form of child abuse, in which the caretaker—almost always the mother—invents or induces symptoms in her child because she craves the attention of medical professionals. Many MBP children die, but Julie Gregory not only survived, she escaped the powerful orbit of her mother's madness and rebuilt her identity as a vibrant, healthy young woman.Sickened is a remarkable memoir that speaks in an original and distinctive Midwestern voice, rising to indelible scenes in prose of scathing beauty and fierce humor. Punctuated with Julie's actual medical records, it re-creates the bizarre cocoon of her family's isolated double-wide trailer, their wild shopping sprees and gun-waving confrontations, the astonishing naïveté of medical professionals and social workers. It also exposes the twisted bonds of terror and love that roped Julie's family together—including the love that made a child willing to sacrifice herself to win her mother's happiness. The realization that the sickness lay in her mother, not in herself, would not come to Julie until adulthood. But when it did, it would strike like lightning. Through her painful metamorphosis, she discovered the courage to save her own life—and, ultimately, the life of the girl her mother had found to replace her. Sickened takes us to new places in the human heart and spirit. It is an unforgettable story, unforgettably told.
How to Be Alone
Jonathan Franzen - 2002
Reprinted here for the first time is Franzen's controversial l996 investigation of the fate of the American novel in what became known as "the Harper's essay," as well as his award-winning narrative of his father's struggle with Alzheimer's disease, and a rueful account of his brief tenure as an Oprah Winfrey author.
Ace: What Asexuality Reveals About Desire, Society, and the Meaning of Sex
Angela Chen - 2020
Among those included are the woman who had blood tests done because she was convinced that "not wanting sex" was a sign of serious illness, and the man who grew up in an evangelical household and did everything "right," only to realize after marriage that his experience of sexuality had never been the same as that of others. Also represented are disabled aces, aces of color, non-gender-conforming aces questioning whether their asexuality is a reaction against stereotypes, and aces who don't want romantic relationships asking how our society can make room for them.
Wedding Toasts I'll Never Give
Ada Calhoun - 2017
Clichés around marriage—eternal bliss, domestic harmony, soul mates—leave out the real stuff. After marriage you may still want to sleep with other people. Sometimes your partner will bore the hell out of you. And when stuck paying for your spouse’s mistakes, you might miss being single.In Wedding Toasts I’ll Never Give, Ada Calhoun presents an unflinching but also loving portrait of her own marriage, opening a long-overdue conversation about the institution as it truly is: not the happy ending of a love story or a relic doomed by high divorce rates, but the beginning of a challenging new chapter of which “the first twenty years are the hardest.”Calhoun’s funny, poignant personal essays explore the bedrooms of modern coupledom for a nuanced discussion of infidelity, existential anxiety, and the many other obstacles to staying together. Both realistic and openhearted, Wedding Toasts I’ll Never Give offers a refreshing new way to think about marriage as a brave, tough, creative decision to stay with another person for the rest of your life. “What a burden,” Calhoun calls marriage, “and what a gift.”
Cannibalism: A Perfectly Natural History
Bill Schutt - 2017
Its presence in nature was dismissed as a desperate response to starvation or other life-threatening circumstances, and few spent time studying it. A taboo subject in our culture, the behavior was portrayed mostly through horror movies or tabloids sensationalizing the crimes of real-life flesh-eaters. But the true nature of cannibalism--the role it plays in evolution as well as human history--is even more intriguing (and more normal) than the misconceptions we've come to accept as fact. In Cannibalism: A Perfectly Natural History, zoologist Bill Schutt sets the record straight, debunking common myths and investigating our new understanding of cannibalism's role in biology, anthropology, and history in the most fascinating account yet written on this complex topic. Schutt takes readers from Arizona's Chiricahua Mountains, where he wades through ponds full of tadpoles devouring their siblings, to the Sierra Nevadas, where he joins researchers who are shedding new light on what happened to the Donner Party--the most infamous episode of cannibalism in American history. He even meets with an expert on the preparation and consumption of human placenta (and, yes, it goes well with Chianti). Bringing together the latest cutting-edge science, Schutt answers questions such as why some amphibians consume their mother's skin; why certain insects bite the heads off their partners after sex; why, up until the end of the twentieth century, Europeans regularly ate human body parts as medical curatives; and how cannibalism might be linked to the extinction of the Neanderthals. He takes us into the future as well, investigating whether, as climate change causes famine, disease, and overcrowding, we may see more outbreaks of cannibalism in many more species--including our own.Cannibalism places a perfectly natural occurrence into a vital new context and invites us to explore why it both enthralls and repels us.
There Will Be No Miracles Here: A Memoir
Casey Gerald - 2018
Extraordinary." —Marlon James"Staccato prose and peripatetic storytelling combine the cadences of the Bible with an urgency reminiscent of James Baldwin in this powerfully emotional memoir." —BookPageThe testament of a boy and a generation who came of age as the world came apart—a generation searching for a new way to live.Casey Gerald comes to our fractured times as a uniquely visionary witness whose life has spanned seemingly unbridgeable divides. His story begins at the end of the world: Dallas, New Year's Eve 1999, when he gathers with the congregation of his grandfather's black evangelical church to see which of them will be carried off. His beautiful, fragile mother disappears frequently and mysteriously; for a brief idyll, he and his sister live like Boxcar Children on her disability checks. When Casey—following in the footsteps of his father, a gridiron legend who literally broke his back for the team—is recruited to play football at Yale, he enters a world he's never dreamed of, the anteroom to secret societies and success on Wall Street, in Washington, and beyond. But even as he attains the inner sanctums of power, Casey sees how the world crushes those who live at its margins. He sees how the elite perpetuate the salvation stories that keep others from rising. And he sees, most painfully, how his own ascension is part of the scheme.There Will Be No Miracles Here has the arc of a classic rags-to-riches tale, but it stands the American Dream narrative on its head. If to live as we are is destroying us, it asks, what would it mean to truly live? Intense, incantatory, shot through with sly humor and quiet fury, There Will Be No Miracles Here inspires us to question--even shatter--and reimagine our most cherished myths.
Failure to Communicate
Kaia Sønderby - 2017
But her skill at negotiating with alien species is about to be put to the ultimate test.The Anmerilli, a notoriously reticent and xenophobic people, have invented a powerful weapon that will irrevocably change the face of space combat. Now the Starsystems Alliance has called in Xandri and the crew of the Carpathia to mediate. The Alliance won't risk the weapon falling into enemy hands, and if Xandri can't bring the Anmerilli into the fold, the consequences will be dire.Amidst sabotage, assassination attempts, and rampant cronyism, Xandri struggles to convince the doubtful and ornery Anmerilli. Worse, she's beginning to suspect that not everyone on her side is really working to make the alliance a success. As tensions rise and tempers threaten to boil over, Xandri must focus all her energy into understanding the one species that has always been beyond her: her own.
Weekends at Bellevue: Nine Years on the Night Shift at the Psych E.R.
Julie Holland - 2009
Recounts stories from her vast case files that are alternately terrifying, tragically comic, and profoundly moving, all while she deals with her best friend and fellow doctor's fight with cancer.
Remember: The Science of Memory and the Art of Forgetting
Lisa Genova - 2021
You might even be worried that these lapses in memory could be an early sign of Alzheimer's or dementia. In reality, for the vast majority of us, these examples of forgetting are completely normal. Why? Because while memory is amazing, it is far from perfect. Our brains aren't designed to remember every name we hear, plan we make, or day we experience. Just because your memory sometimes fails doesn't mean it's broken or succumbing to disease. Forgetting is actually part of being human. In Remember, neuroscientist and acclaimed novelist Lisa Genova delves into how memories are made and how we retrieve them. You'll learn whether forgotten memories are temporarily inaccessible or erased forever and why some memories are built to exist for only a few seconds (like a passcode) while others can last a lifetime (your wedding day). You'll come to appreciate the clear distinction between normal forgetting (where you parked your car) and forgetting due to Alzheimer's (that you own a car). And you'll see how memory is profoundly impacted by meaning, emotion, sleep, stress, and context. Once you understand the language of memory and how it functions, its incredible strengths and maddening weaknesses, its natural vulnerabilities and potential superpowers, you can both vastly improve your ability to remember and feel less rattled when you inevitably forget. You can set educated expectations for your memory, and in doing so, create a better relationship with it. You don't have to fear it anymore. And that can be life-changing.
Cut: The True Story of an Abandoned, Abused Little Girl Who Was Desperate to Be Part of a Family
Cathy Glass - 2008
The bestselling author of 'Damaged' tells the story of Dawn, a sweet and seemingly well-balanced girl whose outward appearance masks a traumatic childhood of suffering at the hands of the very people who should have cared for her.
Bellevue: Three Centuries of Medicine and Mayhem at America's Most Storied Hospital
David M. Oshinsky - 2016
From its origins in 1738 as an almshouse and pesthouse, Bellevue today is a revered public hospital bringing first-class care to anyone in need. With its diverse, ailing, and unprotesting patient population, the hospital was a natural laboratory for the nation's first clinical research. It treated tens of thousands of Civil War soldiers, launched the first civilian ambulance corps and the first nursing school for women, pioneered medical photography and psychiatric treatment, and spurred New York City to establish the country's first official Board of Health. As medical technology advanced, "voluntary" hospitals began to seek out patients willing to pay for their care. For charity cases, it was left to Bellevue to fill the void. The latter decades of the twentieth century brought rampant crime, drug addiction, and homelessness to the nation's struggling cities problems that called a public hospital's very survival into question. It took the AIDS crisis to cement Bellevue's enduring place as New York's ultimate safety net, the iconic hospital of last resort.
Illness as Metaphor and AIDS and its Metaphors
Susan Sontag - 1989
By demystifying the fantasies surrounding cancer, Sontag shows cancer for what it is--just a disease. Cancer, she argues, is not a curse, not a punishment, certainly not an embarrassment and, it is highly curable, if good treatment is followed.Almost a decade later, with the outbreak of a new, stigmatized disease replete with mystifications and punitive metaphors, Sontag wrote a sequel to Illness as Metaphor, extending the argument of the earlier book to the AIDS pandemic.These two essays now published together, Illness as Metaphor and AIDS and Its Metaphors, have been translated into many languages and continue to have an enormous influence on the thinking of medical professionals and, above all, on the lives of many thousands of patients and caregivers.
Golem Girl: A Memoir
Riva Lehrer - 2020
At the time, most such children are not expected to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured.Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture. Their work is daring, edgy, funny, and dark — it rejects tropes that define disabled people as pathetic, frightening, or worthless. They insist that disability is an opportunity for creativity and resistance. Emboldened, Riva asks if she can paint their portraits — inventing an intimate and collaborative process that will transform the way she sees herself, others, and the world. Each portrait story begins to transform the myths she’s been told her whole life about her body, her sexuality, and other measures of normal.Written with the vivid, cinematic prose of a visual artist, and the love and playfulness that defines all of Riva's work, Golem Girl is an extraordinary story of tenacity and creativity. With the author's magnificent portraits featured throughout, this memoir invites us to stretch ourselves toward a world where bodies flow between all possible forms of what it is to be human.
Yoke: My Yoga of Self-Acceptance
Jessamyn Stanley - 2021
Stanley explores her relationship (and ours) to yoga (including why we practice, rather than how); wrestles with issues like cultural appropriation, materialism, and racism; and explores the ways we can all use yoga as a tool for self-love.
Irritable Hearts: A PTSD Love Story
Mac McClelland - 2015
I dissociated... Changes in self-perception and hallucinations-those are some of my other symptoms. You are poison, I chanted silently to myself. And your poison is contagious."So begins Mac McClelland's powerful, unforgettable memoir, Irritable Hearts.When thirty-year-old, award-winning human rights journalist Mac McClelland left Haiti after reporting on the devastating earthquake of 2010, she never imagined how the assignment would irrevocably affect her own life. Back home in California, McClelland cannot stop reliving vivid scenes of violence. She is plagued by waking terrors, violent fantasies, and crippling emotional breakdowns. She can't sleep or stop crying. Her life in shambles, it becomes clear that she is suffering from Post-Traumatic Stress Disorder. Her bewilderment about this sudden loss of control is magnified by the intensity of her feelings for Nico, a French soldier she met in Port-au-Prince and with whom she connected instantly and deeply.With inspiring fearlessness, McClelland tackles perhaps her most harrowing assignment to date: investigating the damage in her own mind and repairing her broken psyche. She begins to probe the depths of her illness, exploring our culture's history with PTSD, delving into the latest research by the country's top scientists and therapists, and spending time with veterans and their families. McClelland discovers she is far from alone: while we frequently associate PTSD with wartime combat, it is more often caused by other manner of trauma and can even be contagious-close proximity to those afflicted can trigger its symptoms. As she confronts the realities of her diagnosis, she opens up to the love that seems to have found her at an inopportune moment.Irritable Hearts is a searing, personal medical mystery that unfolds at a breakneck pace. But it is also a romance. McClelland fights desperately to repair her heart so that she can give it to the kind, patient, and compassionate man with whom she wants to share a life. Vivid, suspenseful, tender, and intimate, Irritable Hearts is a remarkable exploration of vulnerability and resilience, control and acceptance. It is a riveting and hopeful story of survival, strength, and love.