Chasing My Cure: A Doctor's Race to Turn Hope into Action


David Fajgenbaum - 2019
    But things changed dramatically when he began suffering from inexplicable fatigue. In a matter of weeks, his organs were failing and he was read his last rites. Doctors were baffled by his condition, which they had yet to even diagnose. Floating in and out of consciousness, Fajgenbaum prayed for a second chance, the equivalent of a dramatic play to second the game into overtime.Miraculously, Fajgenbaum survived--only to endure repeated near-death relapses from what would eventually be identified as a form of Castleman disease, an extremely deadly and rare condition that acts like a cross between cancer and an autoimmune disorder. When he relapsed while on the only drug in development and realized that the medical community was unlikely to make progress in time to save his life, Fajgenbaum turned his desperate hope for a cure into concrete action: Between hospitalizations he studied his own charts and tested his own blood samples, looking for clues that could unlock a new treatment. With the help of family, friends, and mentors, he also reached out to other Castleman disease patients and physicians, and eventually came up with an ambitious plan to crowdsource the most promising research questions and recruit world-class researchers to tackle them. Instead of waiting for the scientific stars to align, he would attempt to align them himself.More than five years later and now married to his college sweetheart, Fajgenbaum has seen his hard work pay off: A treatment he identified has induced a tentative remission and his novel approach to collaborative scientific inquiry has become a blueprint for advancing rare disease research. His incredible story demonstrates the potency of hope, and what can happen when the forces of determination, love, family, faith, and serendipity collide.

You're the Only One I've Told: The Stories Behind Abortion


Meera Shah - 2020
    Meera Shah, Chief medical officer of Planned Parenthood Hudson Peconic, what she did, she would tell them she was a doctor and leave it at that. But when she started to be direct about her work as an abortion provider an interesting thing started to happen: one by one, people would confide that they'd had an abortion themselves. The refrain was often the same: You're the only one I've told.  This book collects these stories as they've been told to Shah to humanize abortion and to combat myths that persist in the discourse that surrounds it. A wide range of ages, races, socioeconomic factors, and experiences shows that abortion always occurs in a unique context.   Today, a healthcare issue that's so precious and foundational to reproductive, social, and economic freedom for millions of people is exploited by politicians who lack understanding or compassion about the context in which abortion occurs. Stories have the power to break down stigmas and help us to empathize with those whose experiences are unlike our own.  A portion of proceeds will be donated to promote reproductive health access.

Counting Backwards: A Doctor's Notes on Anesthesia


Henry Jay Przybylo - 2017
    In Counting Backwards, pediatric anesthesiologist Dr. Henry Jay Przybylo delivers an unforgettable account of the procedure’s daily dramas and fundamental mysteries. Przybylo has administered anesthesia more than 30,000 times over his thirty-year career: on newborn babies, screaming toddlers, sullen teenagers, even a gorilla. Filled with intense moments of near-disaster, life-saving successes, and simple grace, Counting Backwards is for anyone curious about what happens after we lose consciousness.

Rescuing Jeffrey: A Memoir


Richard Galli - 2000
    Although his father, Richard, saved him, Jeffrey was paralyzed with a devastating spinal cord injury. In this book, Richard Galli offers a compelling, disarmingly honest account of the decisions and experiences confronted by all such individuals who suddenly find themselves wholly dependant on others to survive—and of the realities that must be likewise faced by their families.A lawyer and former journalist, Galli writes with much intelligence and stark emotional intensity of life as it is really lived by quadriplegics and those who care for them. An unforgettable story about tragedy, love, and the choices we make at the brink of survival, Rescuing Jeffrey is "gut-wrenchingly candid," as Publishers Weekly observed, and "likely to arouse controversy and sharply divided reactions . . . Yet this eloquent story of heartbreak and hope is ultimately life affirming." The book will be must-reading for all students of counseling, rehabilitation, and related disciplines.

Gracefully Insane: The Rise and Fall of America's Premier Mental Hospital


Alex Beam - 2001
    There are no fences, no guards, no locked gates. But McLean Hospital is a mental institution-one of the most famous, most elite, and once most luxurious in America. McLean "alumni" include Olmsted himself, Robert Lowell, Sylvia Plath, James Taylor and Ray Charles, as well as (more secretly) other notables from among the rich and famous. In its "golden age," McLean provided as genteel an environment for the treatment of mental illness as one could imagine. But the golden age is over, and a downsized, downscale McLean-despite its affiliation with Harvard University-is struggling to stay afloat. Gracefully Insane, by Boston Globe columnist Alex Beam, is a fascinating and emotional biography of McLean Hospital from its founding in 1817 through today. It is filled with stories about patients and doctors: the Ralph Waldo Emerson prot'g' whose brilliance disappeared along with his madness; Anne Sexton's poetry seminar, and many more. The story of McLean is also the story of the hopes and failures of psychology and psychotherapy; of the evolution of attitudes about mental illness, of approaches to treatment, and of the economic pressures that are making McLean-and other institutions like it-relics of a bygone age. This is a compelling and often oddly poignant reading for fans of books like Plath's The Bell Jar and Susanna Kaysen's Girl, Interrupted (both inspired by their author's stays at McLean) and for anyone interested in the history of medicine or psychotherapy, or the social history of New England.

Love, Life, and Elephants: An African Love Story


Daphne Sheldrick - 2011
    Her deep empathy and understanding, her years of observing Kenya’s rich variety of wildlife, and her pioneering work in perfecting the right husbandry and milk formula have saved countless elephants, rhinos, and other baby animals from certain death. In this heartwarming and poignant memoir, Daphne shares her amazing relationships with a host of orphans, including her first love, Bushy, a liquid-eyed antelope; Rickey-Tickey-Tavey, the little dwarf mongoose; Gregory Peck, the busy buffalo weaver bird; Huppety, the mischievous zebra; and the majestic elephant Eleanor, with whom Daphne has shared more than forty years of great friendship.  But this is also a magical and heartbreaking human love story between Daphne and David Sheldrick, the famous Tsavo Park warden. It was their deep and passionate love, David’s extraordinary insight into all aspects of nature, and the tragedy of his early death that inspired Daphne’s vast array of achievements, most notably the founding of the world-renowned David Sheldrick Wildlife Trust and the Orphans’ Nursery in Nairobi National Park, where Daphne continues to live and work to this day.  Encompassing not only David and Daphne’s tireless campaign for an end to poaching and for conserving Kenya’s wildlife, but also their ability to engage with the human side of animals and their rearing of the orphans expressly so they can return to the wild, Love, Life, and Elephants is alive with compassion and humor, providing a rare insight into the life of one of the world’s most remarkable women.

Nothing Was the Same


Kay Redfield Jamison - 2009
    In direct, straightforward, and at times strikingly lyrical prose, Jamison looks back at her relationship with her husband, Richard Wyatt, a renowned scientist who battled debilitating dyslexia to become one of the foremost experts on schizophrenia. And with her characteristic honesty, candor, wit, and simplicity, she describes his death, her own long, difficult struggle with grief, and her efforts to distinguish grief from depression.But she also recalls the great joy that Richard brought her during the nearly twenty years they had together. Wryly humorous anecdotes mingle with bittersweet memories of a relationship that was passionate and loving—if troubled on occasion by her manic-depressive (bipolar) illness—as Jamison reveals the ways in which her husband encouraged her to write openly about her mental illness and, through his courage and grace taught her to live fully.A penetrating psychological study of grief viewed from deep inside the experience itself, Nothing Was the Same is also a deeply moving memoir by a superb writer.

In Shock: My Journey from Death to Recovery and the Redemptive Power of Hope


Rana Awdish - 2017
    Rana Awdish never imagined that an emergency trip to the hospital would result in hemorrhaging nearly all of her blood volume and losing her unborn first child. But after her first visit, Dr. Awdish spent months fighting for her life, enduring consecutive major surgeries and experiencing multiple overlapping organ failures. At each step of the recovery process, Awdish was faced with something even more unexpected: repeated cavalier behavior from her fellow physicians—indifference following human loss, disregard for anguish and suffering, and an exacting emotional distance.Hauntingly perceptive and beautifully written, In Shock allows the reader to transform alongside Awidsh and watch what she discovers in our carefully-cultivated, yet often misguided, standard of care. Awdish comes to understand the fatal flaws in her profession and in her own past actions as a physician while achieving, through unflinching presence, a crystalline vision of a new and better possibility for us all.As Dr. Awdish finds herself up against the same self-protective partitions she was trained to construct as a medical student and physician, she artfully illuminates the dysfunction of disconnection. Shatteringly personal, and yet wholly universal, she offers a brave road map for anyone navigating illness while presenting physicians with a new paradigm and rationale for embracing the emotional bond between doctor and patient.

Journey


Robert K. Massie - 1975
    Journey is Robert and Suzanne Massie's memoir of raising their hemophiliac son in the 1950's, and the significant differences they found between the American and French healthcare systems.

Breathing for a Living: A Memoir


Laura Rothenberg - 2003
    Twenty-one-year-old Laura Rothenberg has always tried to live a normal life--even with lungs that betray her, and a sober awareness that she may not live to see her next birthday. Like most people born with cystic fibrosis, the chronic disease that affects lungs and other organs, Rothenberg struggles to come to grips with a life that has already been compromised in many ways. Sometimes healthy and able to go to school, other times hospitalized for months on end, Rothenberg finds solace in keeping a diary. In her writing, she can be open, honest, and irreverent, like the young person she is. Yet mixed in with this voice is an incredible maturity about her mortality. The memoir opens with Rothenberg's decision to accept a lung transplant. From the waiting--and all it implies to the surgery, recovery, and her new life, Rothenberg muses on mortality in journal entries and poetry. Through it all, she reveals a will and temperament that is strong and wise despite her years. Laura Rothenberg's story, recorded and shared on NPR's Radio Diaries, was awarded the prestigious Third Coast Audio Festival Award, it also received an unprecedented listener response and generated more e-mail than any other story the producers could recall. Rothenberg's story was also featured in the New York Times and U.S. News & World Report.

Remind Me Who I Am, Again


Linda Grant - 1998
    Iimmensely moving, at times darkly comic, and searingly honest, it combines biography and memoir in a unique examination of the profound questions of identity, memory, and autonomy that dementia raises.

Daughter of Family G: A Memoir of Cancer Genes, Love and Fate


Ami McKay - 2019
    In 1895 her great-great aunt, Pauline Gross, a seamstress in Ann Arbor, Michigan, confided to a pathology professor at the local university that she expected to die young, like so many others in her family. Rather than dismiss her fears, the pathologist chose to enlist Pauline in the careful tracking of those in her family tree who had died of cancer. Pauline's premonition proved true--she died at 46--but because of her efforts, her family (who the pathologist dubbed 'Family G') would become the longest and most detailed cancer genealogy ever studied in the world. A century after Pauline's confession, researchers would identify the genetic mutation responsible for the family's woes. Now known as Lynch syndrome, the genetic condition predisposes its carriers to several types of cancer, including colorectal, endometrial, ovarian and pancreatic. In 2001, as a young mother with two sons and a keen interest in survival, Ami McKay was among the first to be tested for Lynch syndrome. She had a feeling she'd test positive: her mother's side of the family was riddled with early deaths and her own mother was being treated for the disease. When the test proved her fears true, she began living in "an unsettling state between wellness and cancer," and she's been there ever since. Intimate, candid, and probing, her genetic memoir tells a fascinating story, teasing out the many ways to live with the hand you are dealt.

Heaven is for Real: A Little Boy's Astounding Story of His Trip to Heaven and Back


Todd Burpo - 2010
    What they weren't expecting, though, was the story that emerged in the months that followed--a story as beautiful as it was extraordinary, detailing their little boy's trip to heaven and back.Colton, not yet four years old, told his parents he left his body during the surgery--and authenticated that claim by describing exactly what his parents were doing in another part of the hospital while he was being operated on. He talked of visiting heaven and relayed stories told to him by people he met there whom he had never met in life, sharing events that happened even before he was born. He also astonished his parents with descriptions and obscure details about heaven that matched the Bible exactly, though he had not yet learned to read.With disarming innocence and the plainspoken boldness of a child, Colton tells of meeting long-departed family members. He describes Jesus, the angels, how "really, really big" God is, and how much God loves us. Retold by his father, but using Colton's uniquely simple words, "Heaven is for Real" offers a glimpse of the world that awaits us, where as Colton says, "Nobody is old and nobody wears glasses.""Heaven is for Real" will forever change the way you think of eternity, offering you the chance to see, and believe, like a child.

The Hardest Peace: Expecting Grace in the Midst of Life's Hard


Kara Tippetts - 2014
    and the devestating reality of stage-four cancer. In The Hardest Peace, Kara doesn't offer answers for when living is hard, but she asks us to join her in moving away from fear and control and toward peace and grace. Most of all, she draws us back to the God who is with us, in the mundane and the suffering, and who shapes even our pain into beauty.Winner of the 2015 Christian Book Award® in the Inspiration category.

Sick Girl


Amy Silverstein - 2007
    Amy chronicles her harrowing medical journey from the first misdiagnosis to her astonishing recovery after her heart transplant, which is made all the more dramatic by the romantic bedside courtship with her future husband, and her uncompromising desire to become a mother. She presents a patient's perspective of life after a heart transplant with honesty.