Book picks similar to
The Shape of Sound by Fiona Murphy


non-fiction
memoir
disability
australian

Unseen: The secret world of chronic illness


Jacinta Parsons - 2020
    Doctors couldn’t explain why, and Jacinta wondered if it might be in her head. She could barely function, was frequently unable to eat or get out of bed for days, and gradually turned into a shadow of herself. Eventually she got a diagnosis: Crohn’s disease. But knowing this wouldn’t stop her life from spiralling into a big mess of doctors, hospitals and medical disasters.What’s most extraordinary about Jacinta’s story is how common it is. Nearly half of Australians live with a chronic illness, but most of these conditions are not obvious, often endured in secrecy and little understood. They are unseen.With compelling candour, Jacinta trains a microscope on the unique challenges of living with an invisible condition. She lays bare the struggles with shame, loss of identity, the threat of mortality, and the profoundly complex relationships between the chronically ill and their own bodies, as well as with those around them. It’s a story of trying to fix an unfixable illness, getting beaten down then clawing back up, and how that experience can shape a life.

The Trauma Cleaner: One Woman's Extraordinary Life in the Business of Death, Decay, and Disaster


Sarah Krasnostein - 2017
    Sarah Krasnostein's The Trauma Cleaner is a love letter to an extraordinary ordinary life. In Sandra Pankhurst she discovered a woman capable of taking a lifetime of hostility and transphobic abuse and using it to care for some of society's most in-need people.Sandra Pankhurst founded her trauma cleaning business to help people whose emotional scars are written on their houses. From the forgotten flat of a drug addict to the infested home of a hoarder, Sandra enters properties and lives at the same time. But few of the people she looks after know anything of the complexity of Sandra's own life. Raised in an uncaring home, Sandra's miraculous gift for warmth and humour in the face of unspeakable personal tragedy mark her out as a one-off.

Your Own Kind of Girl


Clare Bowditch - 2019
    Through her music and performing, this beloved Australian artist has touched hundreds of thousands of lives. But what of the stories she used to tell herself? That 'real life' only begins once you're thin or beautiful, that good things only happen to other people.YOUR OWN KIND OF GIRL reveals a childhood punctuated by grief, anxiety and compulsion, and tells how these forces shaped Clare's life for better and for worse. This is a heartbreaking, wise and at times playful memoir. Clare's own story told raw and as it happened. A reminder that even on the darkest of nights, victory is closer than it seems.With startling candour, Clare lays bare her truth in the hope that doing so will inspire anyone who's ever done battle with their inner critic. This is the work of a woman who has found her true power - and wants to pass it on. Happiness, we discover, is only possible when we take charge of the stories we tell ourselves.

Emotional Female


Yumiko Kadota - 2021
    A self-confessed workaholic, she regularly put 'knife before life', knowing it was all going to be worth it because it would lead to her longed-for career.But if the punishing hours in surgery weren't hard enough, she also faced challenges as a young female surgeon navigating a male-dominated specialty. She was regularly left to carry out complex procedures without senior surgeons' oversight; she was called all sorts of things, from 'emotional' to 'too confident'; and she was expected to work a relentless on-call roster - sometimes seventy hours a week or more - to prove herself.Eventually it was too much and Yumiko quit.Emotional Female is her account of what it was like to train in the Australian public hospital system, and what made her walk away.Yumiko Kadota is a voice for her generation when it comes to burnout and finding the resilience to rebuild after suffering a physical, emotional and existential breakdown. This is a brave, honest and unflinching work from a major new talent.

The Anti-Cool Girl


Rosie Waterland - 2015
    Rosie Waterland has never been cool. Growing up in housing commission, Rosie was cursed with a near perfect, beautiful older sister who dressed like Mariah Carey on a Best & Less budget while Rosie was still struggling with various toilet mishaps. She soon realised that she was the Doug Pitt to her sister's Brad, and that cool was not going to be her currency in this life. But that was only one of the problems Rosie faced. With two addicts for parents, she grew up amidst rehab stays, AA meetings, overdoses, narrow escapes from drug dealers and a merry-go-round of dodgy boyfriends in her mother's life. Rosie watched as her dad passed out/was arrested/vomited, and had to talk her mum out of killing herself. As an adult, trying to come to grips with her less than conventional childhood, Rosie navigated her way through eating disorders, nude acting roles, mental health issues and awkward Tinder dates. Then she had an epiphany: to stop pretending to be who she wasn't and embrace her true self - a girl who loved drinking wine in her underpants on Sunday nights - and become an Anti-Cool Girl. An irrepressible, blackly comic memoir, Rosie Waterland's story is a clarion call for Anti-Cool Girls everywhere. 'If Augusten Burroughs and Lena Dunham abandoned their child in an Australian housing estate, she'd write this heartbreaking, hilarious book. It made me laugh uproariously, then feel terrible for her, then laugh all over again. Sorry, Rosie.' Dominic Knight, The Chaser 'Hilarious, wise, gutsy, clear-eyed, devastating and uplifting. It's a marvel.' Richard Glover

The Erratics


Vicki Laveau-Harvie - 2018
    She has been estranged from her parents for many years (the reasons for which become quickly clear) and is horrified by what she discovers on her arrival.For years her mother has suffered from an undiagnosed mental illness but carefully hidden her delusions and unpredictable behaviour behind a carefully guarded mask, and has successfully isolated herself and her husband from all their friends. But once in hospital her mask begins to crack and her actions leave everyone baffled and confused ... and eventually scared for their lives.Meanwhile Vicki's father, who has been systematically starved and harruanged for years, and kept virtually a prisoner in his own home, begins to realise what has happened to him and embarks upon plans of his own to combat his wife.The ensuing power play between the two takes a dramatic turn and leaves Vicki stuck in the middle of a bizarre and ludicrously strange family dilemma. All this makes for an intensely gripping, yet black-humoured family drama which will leave you on the edge of your seat.

Sounds Like Titanic: A Memoir


Jessica Chiccehitto Hindman - 2019
    Struggling to pay her college tuition, Hindman accepts a dream position in an award-winning ensemble that brings ready money. But the ensemble is a sham. When the group performs, the microphones are off while the music―which sounds suspiciously like the soundtrack to the movie "Titanic"―blares from a hidden CD player. Hindman, who toured with the ensemble and its peculiar composer for four years, writes with unflinching candor and humor about her surreal and quietly devastating odyssey. Sounds Like Titanic is at once a singular coming-of-age memoir about the lengths to which one woman goes to make ends meet and an incisive articulation of modern anxieties about gender, class, and ambition.

The Lady's Handbook for Her Mysterious Illness


Sarah Ramey - 2020
    Worse, as they failed to cure her, they hinted that her devastating symptoms were psychological.The Lady's Handbook for Her Mysterious Illness is a memoir with a mission, to help the millions of (mostly) women who suffer from unnamed or misunderstood conditions.Ramey's pursuit of a diagnosis and cure for her own mysterious illness is a medical mystery that she says reveals a new understanding of today's chronic illnesses as ecological in nature, driven by modern changes to the basic foundations of health, from the quality of our sleep, diet, and social connection to the state of our microbiomes.

Phosphorescence: On Awe, Wonder and Things That Sustain You When the World Goes Dark


Julia Baird - 2020
    We know, for example, that there are a few core truths to science of happiness. We know that being kind and altruistic makes us happy, that turning off devices, talking to people, forging relationships, living with meaning and delving into the concerns of others offer our best chance at achieving happiness. But how do we retain happiness? It often slips out of our hands as quickly as we find it. So, when we are exposed to, or learn, good things, how do we continue to burn with them?And more than that, when our world goes dark, when we're overwhelmed by illness or heartbreak, loss or pain, how do we survive, stay alive or even bloom? In the muck and grit of a daily existence full of disappointments and a disturbing lack of control over many of the things that matter most - finite relationships, fragile health, fraying economies, a planet in peril - how do we find, nurture and carry our own inner, living light - a light to ward off the darkness?Absorbing, achingly beautiful, inspiring and deeply moving, Julia Baird has written exactly the book we need for these times.

The Diving Bell and the Butterfly


Jean-Dominique Bauby - 1997
    In my case, blinking my left eyelid is my only means of communication.’In December 1995, Jean-Dominique Bauby, editor-in-chief of French ‘Elle’ and the father of two young children, suffered a massive stroke and found himself paralysed and speechless, but entirely conscious, trapped by what doctors call ‘locked-in syndrome’. Using his only functioning muscle – his left eyelid – he began dictating this remarkable story, painstakingly spelling it out letter by letter.His book offers a haunting, harrowing look inside the cruel prison of locked-in syndrome, but it is also a triumph of the human spirit.

Teacher: One woman's struggle to keep the heart in teaching


Gabbie Stroud - 2018
    She very eloquently shows us why and how education needs to change...Teacher made me laugh and cry. I loved it!' - Kathy Margolis, former teacher and activist.Watching children learn is a beautiful and extraordinary experience. Their bodies transform, reflecting inner changes. Teeth fall out. Knees scab. Freckles multiply. Throughout the year they grow in endless ways and I can almost see their self-esteem rising, their confidence soaring, their small bodies now empowered. Given wings.They fall in love with learning.It is a kind of magic, a kind of loving, a kind of art.It is teaching.Just teaching.Just what I do.What I did.Past tense.In 2014, Gabrielle Stroud was a very dedicated teacher with over a decade of experience. Months later, she resigned in frustration and despair when she realised that the Naplan-test education model was stopping her from doing the very thing she was best at: teaching individual children according to their needs and talents. Her ground-breaking essay 'Teaching Australia' in the Feb 2016 Griffith Review outlined her experiences and provoked a huge response from former and current teachers around the world. That essay lifted the lid on a scandal that is yet to properly break - that our education system is unfair to our children and destroying their teachers. In a powerful memoir inspired by her original essay, Gabrielle tells the full story: how she came to teaching, what makes a great teacher, what our kids need from their teachers, and what it was that finally broke her. A brilliant and heart-breaking memoir that cuts to the heart of a vital matter of national importance.

In My Skin: A Memoir


Kate Holden - 2005
    . . the work of a stunningly talented writer who both graces and surpasses her material" (Guardian), this is the frank, harrowing, and true story of one young woman's descent into heroin addiction and prostitution and the long, arduous struggle to redeem her life that made her stronger. A shy, bookish college graduate from a solid middle-class home, Kate Holden was uncertain of her way in life. When she decided to try her first hit of heroin as a one-time adventure with friends, she did not anticipate that the drug would take over. She lost her job and apartment and stole from her family. Desperation drove her first to offer her body on the streets and then in high-class brothels, where she discovered hidden strengths as well as parts of herself that frightened her. With the acceptance and unyielding love of a family that never abandoned her, Kate Holden ultimately defeated the drug and left her netherworld behind.

All the Young Men


Ruth Coker Burks - 2020
    She witnesses nurses drawing straws to see who would tend to the patient inside, all of them reluctant to enter the room. Out of impulse, Ruth herself enters the quarantined space and immediately begins to care for the young man who cries for his mother in the last moments of his life. Before she can even process what she's done, word spreads in the community that Ruth is the only person willing to help these young men afflicted by AIDS, and is called upon to nurse them. As she forges deep friendships with the men she helps, she works tirelessly to find them housing and jobs, even searching for funeral homes willing to take their bodies - often in the middle of the night. She cooks meals for tens of people out of discarded food found in the dumpsters behind supermarkets, stores rare medications for her most urgent patients, teaches sex-ed to drag queens after hours at secret bars, and becomes a beacon of hope to an otherwise spurned group of ailing gay men on the fringes of a deeply conservative state.Throughout the years, Ruth defies local pastors and nurses to help the men she cares for: Paul and Billy, Angel, Chip, Todd and Luke. Emboldened by the weight of their collective pain, she fervently advocates for their safety and visibility, ultimately advising Governor Bill Clinton on the national HIV-AIDS crisis.This deeply moving and elegiac memoir honors the extraordinary life of Ruth Coker Burks and the beloved men who fought valiantly for their lives with AIDS during a most hostile and misinformed time in America.

Hello I Want to Die Please Fix Me: Depression in the First Person


Anna Mehler Paperny - 2019
    Illuminating, completely engaging—it's essential reading for all since we all know someone whose life, family or friends are touched by the disease that directly afflicts a fifth of Canadians. In her early twenties, while outwardly thriving in her dream job and enjoying warm familial support and a strong social network, award-winning journalist Anna Mehler Paperny found herself trapped by feelings of failure and despair. Her first suicide attempt—ingesting a deadly mix of sleeping pills and antifreeze—landed her in the ICU, followed by weeks of enforced detention that ran the gamut of horrifying, boring, hilarious, and absurd. This was Anna's entry into the labyrinthine psychiatric care system responsible for providing care to millions of Canadians.As she struggled to survive the psych ward and as an outpatient—enduring the "survivor's" shame of facing concerned family, friends, and co-workers; finding (or not) the right therapist, the right meds; staying healthy, insured, and employed—Anna could not help but turn her demanding journalist's eye on her condition and on the system in which she found herself. She set off on a quest to "know her enemy," interviewing leading practitioners in the field across Canada and the US—from psychiatrists to neurological experts, brain-mapping pioneers to heroic family practitioners, and others dabbling in novel hypotheses. She reveals in courageously frank detail her own experiences with the pharmacological pitfalls and side effects of long-term treatment, and offers moving case studies of conversations with others, opening wide a window into how we treat (and fail to treat) the disease that accounts for more years swallowed up by disability than any other in the world.

Girl in the Dark


Anna Lyndsey - 2015
    She was ambitious and worked hard; she had just bought an apartment; she was falling in love. But then she started to develop worrying symptoms: her face felt like it was burning whenever she was in front of the computer. Soon this progressed to an intolerance of fluorescent light, then of sunlight itself. The reaction soon spread to her entire body. Now, when her symptoms are at their worst, she must spend months on end in a blacked-out room, losing herself in audio books and elaborate word games in an attempt to ward off despair. It was during this period she began to write this book.