And the Band Played On: Politics, People, and the AIDS Epidemic


Randy Shilts - 1987
    America faced a troubling question: What happened? How was this epidemic allowed to spread so far before it was taken seriously? In answering these questions, Shilts weaves the disparate threads into a coherent story, pinning down every evasion and contradiction at the highest levels of the medical, political, and media establishments. Shilts shows that the epidemic spread wildly because the federal government put budget ahead of the nation's welfare; health authorities placed political expediency before the public health; and scientists were often more concerned with international prestige than saving lives. Against this backdrop, Shilts tells the heroic stories of individuals in science and politics, public health and the gay community, who struggled to alert the nation to the enormity of the danger it faced. And the Band Played On is both a tribute to these heroic people and a stinging indictment of the institutions that failed the nation so badly.

How to Survive a Plague: The Inside Story of How Citizens and Science Tamed AIDS


David France - 2013
     A riveting, powerful telling of the story of the grassroots movement of activists, many of them in a life-or-death struggle, who seized upon scientific research to help develop the drugs that turned HIV from a mostly fatal infection to a manageable disease. Ignored by public officials, religious leaders, and the nation at large, and confronted with shame and hatred, this small group of men and women chose to fight for their right to live by educating themselves and demanding to become full partners in the race for effective treatments. Around the globe, 16 million people are alive today thanks to their efforts. Not since the publication of Randy Shilts's classic And the Band Played On has a book measured the AIDS plague in such brutally human, intimate, and soaring terms. In dramatic fashion, we witness the founding of ACT UP and TAG (Treatment Action Group), and the rise of an underground drug market in opposition to the prohibitively expensive (and sometimes toxic) AZT. We watch as these activists learn to become their own researchers, lobbyists, drug smugglers, and clinicians, establishing their own newspapers, research journals, and laboratories, and as they go on to force reform in the nation s disease-fighting agencies. With his unparalleled access to this community David France illuminates the lives of extraordinary characters, including the closeted Wall Street trader-turned-activist, the high school dropout who found purpose battling pharmaceutical giants in New York, the South African physician who helped establish the first officially recognized buyers club at the height of the epidemic, and the public relations executive fighting to save his own life for the sake of his young daughter. Expansive yet richly detailed, this is an insider's account of a pivotal moment in the history of American civil rights. Powerful, heart-wrenching, and finally exhilarating, How to Survive a Plague is destined to become an essential part of the literature of AIDS.

Body Counts: A Memoir of Politics, Sex, AIDS, and Survival


Sean Strub - 2014
    He also harbored a terrifying secret: his attraction to men. As Strub explored the capital’s political and social circles, he discovered a parallel world where powerful men lived double lives shrouded in shame. When the AIDS epidemic hit in the early 1980s, Strub was living in New York and soon found himself attending “more funerals than birthday parties.” Scared and angry, he turned to radical activism to combat discrimination and demand research. Strub takes you through his own diagnosis and inside ACT UP, the organization that transformed a stigmatized cause into one of the defining political movements of our time. From the New York of Studio 54 and Andy Warhol’s Factory to the intersection of politics and burgeoning LGBT and AIDS movements, Strub’s story crackles with history. He recounts his role in shocking AIDS demonstrations at St. Patrick’s Cathedral as well as at the home of US Sen­ator Jesse Helms. With an astonishing cast of characters, including Tennessee Williams, Gore Vidal, Keith Haring, Bill Clinton, and Yoko Ono, this is a vivid portrait of a tumultuous era: “A page-turner…[with] the suspense and horror of Paul Monette’s memoir Borrowed Time and the drama of Larry Kramer’s play The Normal Heart….What a lot of action—and life—there is in this gripping book” (The Washington Post).

Rainbow Warrior: My Life in Color


Gilbert Baker - 2019
    Baker had no idea his creation would become an international emblem of liberation, forever cementing his pivotal role in helping to define the modern LGBTQ movement. Rainbow Warrior is Baker’s passionate personal chronicle, from a repressive childhood in 1950s Kansas to a harrowing stint in the US Army, and finally his arrival in San Francisco, where he bloomed as both a visual artist and social justice activist. His fascinating story weaves through the early years of the struggle for LGBTQ rights, when he worked closely with Milk, Cleve Jones, and the Sisters of Perpetual Indulgence. Baker continued his flag-making, street theater and activism through the Reagan years and the AIDS crisis. And in 1994, Baker spearheaded the effort to fabricate a mile-long Rainbow Flag—at the time, the world’s longest—to celebrate the twenty-fifth anniversary of the Stonewall uprising in New York City. Gilbert and parade organizers battled with Mayor Rudy Giuliani for the right to carry it up Fifth Avenue, past St. Patrick’s Cathedral. Today, the Rainbow Flag has become a worldwide symbol of LGBTQ diversity and inclusiveness, and its colorful hues have illuminated landmarks from the White House to the Eiffel Tower to the Sydney Opera House. Gilbert Baker often called himself the “Gay Betsy Ross,” and readers of his colorful, irreverent, and deeply personal memoir will find it difficult to disagree.

When We Rise: My Life in the Movement


Cleve Jones - 2016
    There were. Like thousands of other young people, Jones, nearly penniless, was drawn in the early 1970s to San Francisco, a city electrified by progressive politics and sexual freedom.Jones found community--in the hotel rooms and ramshackle apartments shared by other young adventurers, in the city's bathhouses and gay bars like The Stud, and in the burgeoning gay district, the Castro, where a New York transplant named Harvey Milk set up a camera shop, began shouting through his bullhorn, and soon became the nation's most outspoken gay elected official. With Milk's encouragement, Jones dove into politics and found his calling in "the movement." When Milk was killed by an assassin's bullet in 1978, Jones took up his mentor's progressive mantle--only to see the arrival of AIDS transform his life once again.By turns tender and uproarious--and written entirely in his own words--When We Rise is Jones' account of his remarkable life. He chronicles the heartbreak of losing countless friends to AIDS, which very nearly killed him, too; his co-founding of the San Francisco AIDS Foundation during the terrifying early years of the epidemic; his conception of the AIDS Memorial Quilt, the largest community art project in history; the bewitching story of 1970s San Francisco and the magnetic spell it cast for thousands of young gay people and other misfits; and the harrowing, sexy, and sometimes hilarious stories of Cleve's passionate relationships with friends and lovers during an era defined by both unprecedented freedom and possibility, and prejudice and violence alike.When We Rise is not only the story of a hero to the LQBTQ community, but the vibrantly voice memoir of a full and transformative American life--an activist whose work continues today.

The Epidemic: A Global History of AIDS


Jonathan Engel - 2006
    Engel seamlessly weaves together science, politics, and culture, writing with an even hand—noting the excesses of the more radical edges of the ACT UP movement as well as the conservative religious leaders who thought AIDS victims deserved what they got.The story of AIDS is one of the most compelling human dramas of our time, both in its profound tragedy and in the extraordinary scientific efforts impelled on its behalf. For gay Americans, it has been the story of the past generation, redefining the community and the community's sexuality. For the Third World, AIDS has created endless devastation, toppling economies, social structures, and whole villages and regions. And the worst may yet be to come: AIDS is expanding quickly into India, Russia, China, and elsewhere, while still raging insub-Saharan Africa.A distinguished medical historian, Engel lets his characters speak for themselves. Whether gay activists, government officials, public health professionals, scientists, or frightened parents of schoolchildren, they responded as best they could to tragic happenstance that emerged seemingly from nowhere. There is much drama here, and human weakness and heroism too. Writing with vivid immediacy, Engel allows us to relive the short but tumultuous history of a modern scourge.

Borrowed Time: An AIDS Memoir


Paul Monette - 1988
    A National Book Critics Circle Award finalist and the winner of the PEN Center West literary award.

The Wisdom of Whores: Bureaucrats, Brothels, and the Business of AIDS


Elizabeth Pisani - 2008
    With swashbuckling wit and fierce honesty, she dishes on herself and her colleagues as they try to prod reluctant governments to fund HIV prevention for the people who need it most—drug injectors, gay men, sex workers, and johns.Pisani chats with flamboyant Indonesian transsexuals about their boob jobs and watches Chinese streetwalkers turn away clients because their SUVs aren't nice enough. With verve and clarity, she shows the general reader how her profession really works; how easy it is to draw wrong conclusions from "objective" data; and, shockingly, how much money is spent so very badly. "Exhibit A": the 45 billion taxpayer dollars the Bush administration is committing to international AIDS programs.

Patient Zero and the Making of the AIDS Epidemic


Richard A. McKay - 2017
    Yet the term itself did not exist before the emergence of the HIV/AIDS epidemic in the 1980s. How did this idea so swiftly come to exert such a strong grip on the scientific, media, and popular consciousness? In Patient Zero, Richard A. McKay interprets a wealth of archival sources and interviews to demonstrate how this seemingly new concept drew upon centuries-old ideas—and fears—about contagion and social disorder. McKay presents a carefully documented and sensitively written account of the life of Gaétan Dugas, a gay man whose skin cancer diagnosis in 1980 took on very different meanings as the HIV/AIDS epidemic developed—and who received widespread posthumous infamy when he was incorrectly identified as patient zero of the North American outbreak. McKay shows how investigators from the US Centers for Disease Control inadvertently created the term amid their early research into the emerging health crisis; how an ambitious journalist dramatically amplified the idea in his determination to reframe national debates about AIDS; and how many individuals grappled with the notion of patient zero—adopting, challenging and redirecting its powerful meanings—as they tried to make sense of and respond to the first fifteen years of an unfolding epidemic. With important insights for our interconnected age, Patient Zero untangles the complex process by which individuals and groups create meaning and allocate blame when faced with new disease threats. What McKay gives us here is myth-smashing revisionist history at its best.

The Invisible Cure: Africa, the West, and the Fight Against AIDS


Helen C. Epstein - 2007
    Now, in her unsparing and illuminating account of this global disease, she describes how international health experts, governments, and ordinary Africans have struggled to understand the rapid and devastating spread of the disease in Africa, and traces the changes wrought by new medical developments and emerging political realities. It is an account of scientific discovery and intrigue with implications far beyond the fight against one tragic disease. The AIDS epidemic is partly a consequence of the rapid transition of African societies from an agrarian past to an impoverished present. Millions of African people have yet to find a place in an increasingly globalized world, and their poverty and social dislocation have generated an earthquake in gender relations that deeply affects the spread of HIV. But Epstein argues that there are solutions to this crisis, and some of the most effective ones may be simpler than many people assume. Written with conviction, knowledge, and insight, Why Don't They Listen? will change how we think about the worst health crisis of the past century, and our strategies for improving global public health.

The Origins of AIDS


Jacques Pepin - 2011
    Inspired by his own experiences working as an infectious diseases physician in Africa, Jacques Pepin looks back to the early twentieth-century events in Africa that triggered the emergence of HIV/AIDS and traces its subsequent development into the most dramatic and destructive epidemic of modern times. He shows how the disease was first transmitted from chimpanzees to man and then how urbanization, prostitution, and large-scale colonial medical campaigns intended to eradicate tropical diseases combined to disastrous effect to fuel the spread of the virus from its origins in Leopoldville to the rest of Africa, the Caribbean and ultimately worldwide. This is an essential new perspective on HIV/AIDS and on the lessons that must be learnt if we are to avoid provoking another pandemic in the future.

AIDS and Its Metaphors


Susan Sontag - 1989
    By demystifying the fantasies surrounding cancer, Sontag shows cancer for what it is—just a disease. Cancer, she argues, is not a curse, not a punishment, certainly not an embarrassment and, it is highly curable, if good treatment is followed. Almost a decade later, with the outbreak of a new, stigmatized disease replete with mystifications and punitive metaphors, Sontag wrote a sequel to Illness as Metaphor, extending the argument of the earlier book to the AIDS pandemic.These two essays now published together, Illness as Metaphor and AIDS and Its Metaphors, have been translated into many languages and continue to have an enormous influence on the thinking of medical professionals and, above all, on the lives of many thousands of patients and caregivers.

Sexuality Now: Embracing Diversity


Janell L. Carroll - 2004
    Janell Carroll clearly conveys foundational biological and health issues, extensively cites both current and classic research, and addresses all material in a fresh and fun way; her book helps teach students what they need, and want, to know about sexuality. Her focus takes into account the social, religious, ethnic, racial, and cultural contexts of today's students. Dr. Carroll has used feedback from the first edition to add even further value to this popular title-streamlining student pedagogy and providing dynamic learning opportunities through Active Summaries at the end of chapters, a new online student tutorial, new video components, and content for Classroom Response Systems. This continues to be the text most representative of today's students, incorporating new sexual position art, a new pronunciation guide, and (for instructors) a new cross-cultural Slang Guide.

Infections and Inequalities: The Modern Plagues


Paul Farmer - 1999
    A physician-anthropologist with more than fifteen years in the field, Farmer writes from the front lines of the war against these modern plagues and shows why, even more than those of history, they target the poor. This "peculiarly modern inequality" that permeates AIDS, TB, malaria, and typhoid in the modern world, and that feeds emerging (or re-emerging) infectious diseases such as Ebola and cholera, is laid bare in Farmer's harrowing stories of sickness and suffering.Challenging the accepted methodologies of epidemiology and international health, he points out that most current explanatory strategies, from "cost-effectiveness" to patient "noncompliance," inevitably lead to blaming the victims. In reality, larger forces, global as well as local, determine why some people are sick and others are shielded from risk. Yet this moving account is far from a hopeless inventory of insoluble problems. Farmer writes of what can be done in the face of seemingly overwhelming odds, by physicians determined to treat those in need. Infections and Inequalities weds meticulous scholarship with a passion for solutions—remedies for the plagues of the poor and the social maladies that have sustained them.

HIV/AIDS: A Very Short Introduction


Alan Whiteside - 2007
    As of 2004 an estimated 40 million people were living with the disease, and about 20 million had died. Despite rapid scientific advances there is still no cure and the drugs are expensive and toxic. In the developing world, especially in parts of Africa, life expectancy has plummeted to below 35 years, causing a serious decline in economic growth, a sharp increase in orphans, and the imminent collapse of health care systems. The news is not all bleak though. There have been unprecedented breakthroughs in understanding diseases and developing drugs. Because the disease is so closely linked to sexual activity and drug use, the need to understand and change behavior has caused us to reassess what it means to be human and how we should operate in the globalizing world. This Very Short Introduction tackles the science, the international and local politics, the fascinating demographics, and the devastating consequences of the disease, and suggests how we must respond.About the Series: Oxford's Very Short Introductions offers concise and original introductions to a wide range of subjects--from Islam to Sociology, Politics to Classics, and Literary Theory to History. Not simply a textbook of definitions, each volume provides trenchant and provocative--yet always balanced and complete--discussions of the central issues in a given topic. Every Very Short Introduction gives a readable evolution of the subject in question, demonstrating how it has developed and influenced society. Whatever the area of study, whatever the topic that fascinates the reader, the series has a handy and affordable guide that will likely prove indispensable.