Book picks similar to
Carrier: Untangling the Danger in My DNA by Bonnie J. Rough
memoir
genetics
non-fiction
nonfiction
The Victoria's Secret Catalog Never Stops Coming: And Other Lessons I Learned From Breast Cancer
Jennie Nash - 2001
She learned, among other things, that her instincts are good, her kids are really resilient, and that, in the fight against breast cancer, the journey for patients, family, and friends can be a surprisingly positive, life-changing experience. Some five years younger than the AMA-recommended age for mammograms, Jennie Nash insisted she be tested, not because of a lump but because of a hunch brought on by a friend's battle with lung cancer. Jennie was as shocked to discover as her friend had been that cancer knows no age limits. From detection and surgery to reconstruction and recovery, Jennie gives readers a road map for a journey no one chooses to take. She details both the large and small lessons learned along the way: the importance of a child's birthday cake; the pleasure of wearing a beautiful, provocative red dress; how to be grateful rather than guilty when someone brings lasagne to the door; and that sometimes the only difference between getting to live and having to die is luck. A celebration of survival, Jennie Nash's account transforms one of life's most harrowing experiences into a story of reassurance and enlightenment.
In Shock: My Journey from Death to Recovery and the Redemptive Power of Hope
Rana Awdish - 2017
Rana Awdish never imagined that an emergency trip to the hospital would result in hemorrhaging nearly all of her blood volume and losing her unborn first child. But after her first visit, Dr. Awdish spent months fighting for her life, enduring consecutive major surgeries and experiencing multiple overlapping organ failures. At each step of the recovery process, Awdish was faced with something even more unexpected: repeated cavalier behavior from her fellow physicians—indifference following human loss, disregard for anguish and suffering, and an exacting emotional distance.Hauntingly perceptive and beautifully written, In Shock allows the reader to transform alongside Awidsh and watch what she discovers in our carefully-cultivated, yet often misguided, standard of care. Awdish comes to understand the fatal flaws in her profession and in her own past actions as a physician while achieving, through unflinching presence, a crystalline vision of a new and better possibility for us all.As Dr. Awdish finds herself up against the same self-protective partitions she was trained to construct as a medical student and physician, she artfully illuminates the dysfunction of disconnection. Shatteringly personal, and yet wholly universal, she offers a brave road map for anyone navigating illness while presenting physicians with a new paradigm and rationale for embracing the emotional bond between doctor and patient.
Lots of Candles, Plenty of Cake
Anna Quindlen - 2012
It's odd when I think of the arc of my life, from child to young woman to aging adult. First I was who I was. Then I didn't know who I was. Then I invented someone, and became her. Then I began to like what I'd invented. And finally I was what I was again. It turned out I wasn't alone in that particular progression. As she did in her beloved New York Times columns, and in A Short Guide to a Happy Life, Quindlen says for us here what we may wish we could have said ourselves. Using her past, present, and future to explore what matters most to women at different ages, Quindlen talks aboutMarriage: "A safety net of small white lies can be the bedrock of a successful marriage. You wouldn't believe how cheaply I can do a kitchen renovation."Girlfriends: "Real friends offer both hard truths and soft landings and realize that it's sometimes more important to be nice than to be honest." Our bodies: "I've finally recognized my body for what it is, a personality-delivery system, designed expressly to carry my character from place to place, now and in the years to come. It's like a car, and while I like a red convertible or even a Bentley as well as the next person, what I really need are four tires and an engine."Parenting: "Being a parent is not transactional. We do not get what we give. It is the ultimate pay-it-forward: We are good parents, not so they will be loving enough to stay with us, but so they will be strong enough to leave us." From childhood memories to manic motherhood to middle age, Quindlen uses the events of her own life to illuminate our own. Along with the downsides of age, she says, can come wisdom, a perspective on life that makes it both satisfying and even joyful. So here's to lots of candles, plenty of cake.
Sybil Exposed: The Extraordinary Story Behind the Famous Multiple Personality Case
Debbie Nathan - 2011
Sybil became both a pop phenomenon and a revolutionary force in the psychotherapy industry. The book rocketed multiple personality disorder (MPD) into public consciousness and played a major role in having the diagnosis added to the psychiatric bible, Diagnostic and Statistical Manual of Mental Disorders. But what do we really know about how Sybil came to be? In her news-breaking book Sybil Exposed, journalist Debbie Nathan gives proof that the allegedly true story was largely fabricated. The actual identity of Sybil (Shirley Mason) has been available for some years, as has the idea that the book might have been exaggerated. But in Sybil Exposed, Nathan reveals what really powered the legend: a trio of women—the willing patient, her ambitious shrink, and the imaginative journalist who spun their story into bestseller gold. From horrendously irresponsible therapeutic practices—Sybil’s psychiatrist often brought an electroshock machine to Sybil’s apartment and climbed into bed with her while administering the treatment— to calculated business decisions (under an entity they named Sybil, Inc., the women signed a contract designating a three-way split of profits from the book and its spin-offs, including board games, tee shirts, and dolls), the story Nathan unfurls is full of over-the-top behavior. Sybil’s psychiatrist, driven by undisciplined idealism and galloping professional ambition, subjected the young woman to years of antipsychotics, psychedelics, uppers, and downers, including an untold number of injections with Pentothal, once known as “truth serum” but now widely recognized to provoke fantasies. It was during these “treatments” that Sybil produced rambling, garbled, and probably “false-memory”–based narratives of the hideous child abuse that her psychiatrist said caused her MPD. Sybil Exposed uses investigative journalism to tell a fascinating tale that reads like fiction but is fact. Nathan has followed an enormous trail of papers, records, photos, and tapes to unearth the lives and passions of these three women. The Sybil archive became available to the public only recently, and Nathan examined all of it and provides proof that the story was an elaborate fraud—albeit one that the perpetrators may have half-believed. Before Sybil was published, there had been fewer than 200 known cases of MPD; within just a few years after, more than 40,000 people would be diagnosed with it. Set across the twentieth century and rooted in a time when few professional roles were available to women, this is a story of corrosive sexism, unchecked ambition, and shaky theories of psychoanalysis exuberantly and drastically practiced. It is the story of how one modest young woman’s life turned psychiatry on its head and radically changed the course of therapy, and our culture, as well.
Until Tuesday: A Wounded Warrior and the Golden Retriever Who Saved Him
Luis Carlos Montalván - 2011
Army, Luis Montalván never backed down from a challenge during his two tours of duty in Iraq. After returning home from combat, however, his physical wounds and crippling post-traumatic stress disorder began to take their toll. He wondered if he would ever recover.Then Luis met Tuesday, a sensitive golden retriever trained to assist the disabled. Tuesday had lived among prisoners and at a home for troubled boys, and he found it difficult to trust in or connect with a human being--until Luis.Until Tuesday is the story of how two wounded warriors, who had given so much and suffered the consequences, found salvation in each other. It is a story about war and peace, injury and recovery, psychological wounds and spiritual restoration. But more than that, it is a story about the love between a man and dog, and how, together, they healed each other's souls.
Tell Me Everything You Don't Remember: The Stroke That Changed My Life
Christine Hyung-Oak Lee - 2017
By that afternoon, she saw the world—quite literally—upside down. By New Year’s Day, she was unable to form a coherent sentence. And after hours in the ER, days in the hospital, and multiple questions and tests, her doctors informed her that she had had a stroke. For months afterward, Lee outsourced her memories to a journal, taking diligent notes to compensate for the thoughts she could no longer hold on to. It is from these notes that she has constructed this frank and compelling memoir.In a precise and captivating narrative, Lee navigates fearlessly between chronologies, weaving her childhood humiliations and joys together with the story of the early days of her marriage; and then later, in painstaking, painful, and unflinching detail, the account of her stroke and every upset—temporary or permanent—that it caused. Lee illuminates the connection between memory and identity in an honest, meditative, and truly funny manner, utterly devoid of self-pity. And as she recovers, she begins to realize that this unexpected and devastating event has provided a catalyst for coming to terms with her true self—and, in a way, has allowed her to become the person she’s always wanted to be.
Thin
Grace Bowman - 2006
Until one day, aged 18, she went on a diet. That didn’t stop. Then couldn’t stop. That trapped her in ‘a secret world of eating-related happiness and unhappiness’. And saw her weight swiftly drop to below six stone. A grippingly honest account of life with anorexia nervosa, Thin is Grace’s heartbreaking, shocking and, finally, inspirational story. A memoir that is in part insider’s exposé and in part survivor’s testimony, it explains the struggle for self-discovery, and chronicles the devastating battles waged for control over mind and body. Breaking secrets, Grace shatters the myths surrounding this widely misunderstood illness, helping those bound within the rules of anorexia to find a way out, and those on the outside to understand more.Thin also has resonance beyond the world of eating disorders. For in daring to tell the truth, Grace reveals her extraordinary story to be a common one, reflected in the shape of many of our lives. She draws on the universal themes of female self-image and self-determination, which have inspired such classics as The Bell Jar and A Room of One’s Own, to shatter the myths surrounding anorexia. And the powerful insights she brings to overcoming addiction make this an invaluable narrative for all those looking to find hope and renewal in the acceptance of change and growth.Thin is the most eloquent account of anorexia yet.
The Boy Who Loved Too Much: A True Story of Pathological Friendliness
Jennifer Latson - 2017
It also makes him enormously vulnerable. Eli lacks the innate skepticism that will help his peers navigate adolescence more safely—and vastly more successfully. Journalist Jennifer Latson follows Eli over three critical years of his life as his mother, Gayle, must decide whether to shield Eli entirely from the world and its dangers or give him the freedom to find his own way and become his own person. By intertwining Eli and Gayle’s story with the science and history of Williams syndrome, the book explores the genetic basis of behavior and the quirks of human nature. More than a case study of a rare disorder, however, The Boy Who Loved Too Much is a universal tale about the joys and struggles of raising a child, of growing up, and of being different.
Irritable Hearts: A PTSD Love Story
Mac McClelland - 2015
I dissociated... Changes in self-perception and hallucinations-those are some of my other symptoms. You are poison, I chanted silently to myself. And your poison is contagious."So begins Mac McClelland's powerful, unforgettable memoir, Irritable Hearts.When thirty-year-old, award-winning human rights journalist Mac McClelland left Haiti after reporting on the devastating earthquake of 2010, she never imagined how the assignment would irrevocably affect her own life. Back home in California, McClelland cannot stop reliving vivid scenes of violence. She is plagued by waking terrors, violent fantasies, and crippling emotional breakdowns. She can't sleep or stop crying. Her life in shambles, it becomes clear that she is suffering from Post-Traumatic Stress Disorder. Her bewilderment about this sudden loss of control is magnified by the intensity of her feelings for Nico, a French soldier she met in Port-au-Prince and with whom she connected instantly and deeply.With inspiring fearlessness, McClelland tackles perhaps her most harrowing assignment to date: investigating the damage in her own mind and repairing her broken psyche. She begins to probe the depths of her illness, exploring our culture's history with PTSD, delving into the latest research by the country's top scientists and therapists, and spending time with veterans and their families. McClelland discovers she is far from alone: while we frequently associate PTSD with wartime combat, it is more often caused by other manner of trauma and can even be contagious-close proximity to those afflicted can trigger its symptoms. As she confronts the realities of her diagnosis, she opens up to the love that seems to have found her at an inopportune moment.Irritable Hearts is a searing, personal medical mystery that unfolds at a breakneck pace. But it is also a romance. McClelland fights desperately to repair her heart so that she can give it to the kind, patient, and compassionate man with whom she wants to share a life. Vivid, suspenseful, tender, and intimate, Irritable Hearts is a remarkable exploration of vulnerability and resilience, control and acceptance. It is a riveting and hopeful story of survival, strength, and love.
Once More We Saw Stars: A Memoir
Jayson Greene - 2019
She is immediately rushed to the hospital. Once More We Saw Stars begins with this event, leading the reader into the unimaginable.But although it begins with the anguish Jayson and his wife Stacy confront in the wake of their daughter’s trauma and the hours leading up to her death, it quickly becomes a narrative that is as much about hope and healing as it is about grief and loss. Jayson recognizes, even in the very midst of his ordeal, that there will be a life for him beyond it—that if only he can continue moving forward, from one moment to the next, he will survive what seems un-survivable.With raw honesty, deep emotion, and exquisite tenderness, he captures both the fragility of life and absoluteness of death, and most important of all, the unconquerable power of love. This is an unforgettable memoir of courage and transformation—and a book that will change the way you look at the world.
Comeback: A Mother and Daughter's Journey Through Hell and Back
Claire Fontaine - 2006
Claire Fontaine's story is a parent's worst nightmare, a cautionary tale chronicling her daughter Mia's drug–fueled manipulation of everyone around her as she sought refuge in the seedy underworld of felons and heroin addicts, the painful childhood secrets that led up to it, and the healing that followed. Her search for Mia was brutal for both mother and daughter, a dizzying series of dead ends, incredible coincidences and, at times, miracles. Ultimately, Mia was forced into harsh but loving boot-camp schools on two continents while Claire entered a painful but life–changing program of her own. Mia's story includes the jarring culture shock of the extreme and controversial behavior modification school she was in for nearly two years, which helped her overcome depression and self–hatred to emerge a powerful young woman with self–esteem and courage. Come Back is an unforgettable story of love and transformation that will resonate with mothers and daughters everywhere.
Dirty Secret: A Daughter Comes Clean About Her Mother's Compulsive Hoarding
Jessie Sholl - 2010
Because if my mother is one of those crazy junk-house people, then what does that make me?When her divorced mother was diagnosed with cancer, New York City writer Jessie Sholl returned to her hometown of Minneapolis to help her prepare for her upcoming surgery and get her affairs in order. While a daunting task for any adult dealing with an aging parent, it's compounded for Sholl by one lifelong, complex, and confounding truth: her mother is a compulsive hoarder. Dirty Secret is a daughter's powerful memoir of confronting her mother's disorder, of searching for the normalcy that was never hers as a child, and, finally, cleaning out the clutter of her mother's home in the hopes of salvaging the true heart of their relationship before it's too late.Growing up, young Jessie knew her mother wasn't like other mothers: chronically disorganized, she might forgo picking Jessie up from kindergarten to spend the afternoon thrift store shopping. Now, tracing the downward spiral in her mother's hoarding behavior to the death of a long-time boyfriend, she bravely wades into a pathological sea of stuff: broken appliances, moldy cowboy boots, twenty identical pairs of graying bargain-bin sneakers, abandoned arts and crafts, newspapers, magazines, a dresser drawer crammed with discarded eyeglasses, shovelfuls of junk mail . . . the things that become a hoarder's treasures. With candor, wit, and not a drop of sentimentality, Jessie Sholl explores the many personal and psychological ramifications of hoarding while telling an unforgettable mother-daughter tale.
The Shapeless Unease: A Year of Not Sleeping
Samantha Harvey - 2020
She tried everything to appease her wakefulness: from medication to therapy, changes in her diet to changes in her living arrangements. Nothing seemed to help.The Shapeless Unease is Harvey's darkly funny and deeply intelligent anatomy of her insomnia, an immersive interior monologue of a year without one of the most basic human needs. Original and profound, and narrated with a lucid breathlessness, this is a startlingly insightful exploration of memory, writing and influence, death and the will to survive, from "this generation's Virginia Woolf" (Telegraph).
I'm Telling the Truth, but I'm Lying: Essays
Bassey Ikpi - 2019
Four years later, she and her mother joined her father in Stillwater, Oklahoma —a move that would be anxiety ridden for any child, but especially for Bassey. Her early years in America would come to be defined by tension: an assimilation further complicated by bipolar II and anxiety that would go undiagnosed for decades.By the time she was in her early twenties, Bassey was a spoken word artist and traveling with HBO's Russell Simmons Def Poetry Jam, channeling her experiences into art. But something wasn’t right—beneath the façade of the confident performer, Bassey’s mental health was in a precipitous decline, culminating in a breakdown that resulted in hospitalization and a diagnosis of Bipolar II.Determined to learn from her experiences—and share them with others—Bassey became a mental health advocate and has spent the fourteen years since her diagnosis examining the ways mental health is inextricably intertwined with every facet of ourselves and our lives. Viscerally raw and honest, the result is an exploration of the stories we tell ourselves to make sense of who we are—and the ways, as honest as we try to be, each of these stories can also be a lie.
The Missing Kennedy: Rosemary Kennedy and the Secret Bonds of Four Women
Elizabeth Koehler-Pentacoff - 2015
Elizabeth Koehler was born in 1957, the first and only child of a struggling Wisconsin farm family. What, besides their religion, did these two very different Catholic women have in common? One person: Stella Koehler, a charismatic woman of the cloth who became Sister Paulus Koehler after taking her vows with the Sisters of the Third Order of St. Francis of Assisi. Sister Paulus was Elizabeth's Wisconsin aunt. For thirty-five years―indeed much of her adult life―Sister Paulus was Rosie Kennedy’s caregiver. And a caregiver, tragically, had become necessary after Rosie, a slow learner prone to emotional outbursts, underwent one of America’s first lobotomies―an operation Joseph Kennedy was assured would normalize Rosie’s life. It did not. Rosie’s condition became decidedly worse. After the procedure, Joe Kennedy sent Rosie to rural Wisconsin and Saint Coletta, a Catholic-run home for the mentally disabled. For the next two decades, she never saw her siblings, her parents, or any other relative, the doctors having issued stern instructions that even the occasional family visit would be emotionally disruptive to Rosie. Following Joseph Kennedy’s stroke in 1961, the Kennedy family, led by mother Rose and sister Eunice Kennedy Shriver, resumed face to face contact with Rosie. It was also about then that a young Elizabeth Koehler began paying visits to Rosie. In this insightful and poignant memoir, based in part on Sister Paulus’ private notes and augmented by over one-hundred never-before-seen photos, Elizabeth Koehler-Pentacoff recalls the many happy and memorable times spent with the “missing Kennedy.” She looks at the many parallels between Rosie’s post-operative life, her own, and those of the two families. And, most important, she traces how, entirely because of Rosie, the Kennedy and Shriver families embarked on an exceedingly consequential campaign advancing the cause of the developmentally disabled―a campaign that continues to this day. Ten years after Rosie’s death comes a highly personal yet fitting testimonial to a sad but truly meaningful and important life.